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nasopharyngeal cancer

jcurtis18
Posts: 2
Joined: May 2001

I am looking for anyone who has had this type of cancer.Or who knows someone who has had it.It is rare in the United States and I am having difficulty finding people to talk with about this .Any information would be greatly appreciated.Thanks!

coke
Posts: 3
Joined: Oct 2001

Jcurtis,
My dad had this type of cancer. My mom knows more about it than I do, but any info I can give you i will
Coke

anet48
Posts: 1
Joined: Feb 2002

hi.. one of my family member has nasal pharyngeal cancer.. jus wondering if u know someone that has this kind of cancer b4... please email me back..thanx :)

jerrikehoe
Posts: 27
Joined: Apr 2002

I had this cancer at age 29 I have had several major surgeries and reoccurances am now a 55 year old retired realtor and a full time student so I have a fair bit of knowledge aout it what would you like to know

tuffmom
Posts: 2
Joined: Jan 2003

I am 31 years old. I was diagnosed with nasopharyngeal cancer at age 30. Looking back, I think it probably began at age 29. By the time of diagnosis, I was classified as Stage III with two lymph nodes positive. I completed radiation and chemo with complete response this past December. My docs told me due to the anatomic location (close to brain stem, carotid artery, facial and ocular muscles and nerves) surgery was impossible. Tell me more about your surgeries. What were your symptoms/ how did you first get diagnosed? Mine was an ear ache and a "marble" knot in my neck (one of the lymph nodes). I'm so happy treatment is FINALLY over and my cancer is gone! I'm just scared to death of recurrence. I'm just so afraid it will come back. I go to my ENT doc every six weeks for a scope. Did you have that? I'm not sure of the technical term for this tool, but it looks like a flexible fishin' pole. Please respond. Thank you so much.

rogerbfi
Posts: 16
Joined: Dec 2003

I too was so looking for someone at the date of your posting.(1-30-03)? My husband was diagnosed in October,2002. I put the info.on the message board, I did not see this CSN until tonight. DUH! He did the treatments rad.w/chemo, then more chemo. (stage 4) Fluid filled ear appx. 1 year, right ear tube,it fell out, 2 fluid ears. ent just said I am putting in perm. tubes & doing a biopsy which I fully expect to be cancer. WHAT!? By this time he also had bi-lateral lymph nodes going on. Right side of face/neck very swollen.He is thin now, after, but was heavy 255lbs. at the time.It was not as noticable (to me) until looking at photos. I could ramble on all day, I will spare you at the moment. 10:47 P.M. in CA Please reply when you have the time. p.s. So far so good, eating is better. Almost 1 year from radiation! I have kept everything on calender,and I am working on website. I hope all is well with you still. We did meet a few people who will be friends for life. Great hopes to you in all you do.

babi
Posts: 7
Joined: Apr 2002

Hi! My brother at 41 has nasoharyngeal cancer at stage four. Please contact me so we can talk about it.

LiveStrong427
Posts: 5
Joined: Dec 2011

My name is Bryan Haught, 29yrs old and a cancer survivor of NPC going on 7yrs. If I could be of any help at all, even if its just to chat please feel free to email me: Bryan_Haught@yahoo.com

I know its going on 8yrs since you posted this but hopefully your brother is winning the battle, my prayers are with him and your family

sonoio59
Posts: 1
Joined: Dec 2011

I've been diagnozed with adenocarcinoma sinus since march 2009...I had chemio treatment, then chemio and radiation..november 2010 surgery on my sinus...then August 2011 another brain surgery...after my 3 months check up again are findings for cancer//Doctors sugesting another treatment with chemio and radiation..anybody knows anything new?Pls let me know...I want to win!!

_xia_
Posts: 16
Joined: May 2002

Hi.

I am 34 and was recently diagnosed with Nasopharyngeal cancer (stage IV)

I will begin the treatment within the next couple of weeks.

Nasopharyngeal cancer counts up to 0.25% of all the cancers in the US. It affect men half as much och as in women.

It is more common in South Esat Asia, The Arctic Region or North Africa.

I would be happy to hear from you.

Best regards,

Mia

LiveStrong427
Posts: 5
Joined: Dec 2011

I am a NPC stage 4T cancer survivor, if you are still in need of info or just someone to talk to please contact me at Bryan_Haught@yahoo.com

I know its been 9 yrs since u posted this but my hope is that you have beat the cancer and still pushing on, look forward to your reply

jerrikehoe
Posts: 27
Joined: Apr 2002

j I hae had recurrances of this cancer for 20+ years it is a very rare cancer and as I know wheen I was first diag at the time there were only 27 known reported cases I am being followed by The American Institute of Pathology in Washington I am canadian but my ENT drs use the center for many other things it is funded by the US Military I have beebn searching for years to find someone other than myself with this. I would appreciate if you would get in touch with me at jerrikehoe@hotmail.com

LiveStrong427
Posts: 5
Joined: Dec 2011

My name is Bryan Haught, 29yrs old, live in NY and a Cancer survivor of NPC stage 4T for 7yrs.

I read a posting you put up in 2002 about being diagnosed with NPC again, so u had a recurrance after being cancer free for 20+ years?
I was diagnosed in 2004, received chemotherapy and radiation for 5 months, no surgery, was diagnosed cancer free in Dec. 2004. No recurrence since thank God but I can tell you life has been far from easy. Can't eat or drink by mouth still and its going on 7yrs, eat via feeding tube / Peg tube inserted in my abdomen, my only source of nutrition for the past 7yrs. Also auger from extreme fatigue, muscles and tissues in my head, neck and shoulders are severely damaged du to the treatment, in constant pain with limited movement of my neck and shoulders. Now my voice is going on me, its very hard to understand me not to mention it takes alot out of me to talk, have been times where I have passed out after talking because of lack of oxygen to my brain, its crazy.

Maybe we can help each other out with information or resources that we know of, its hard to find someone out there to talk to with this type of Cancer, its very rare. I do hope all is well with you and I know you are continuing to battle this illness, I m here if u want to chat or anyway I could help. I still search the web daily for new procedures or surgeries that could help me out in some way, so I am always finding useful info.

Keep in touch.

Email me at anytime: Bryan_Haught@yahoo.com
(anybody else reading this would like to contact me you are welcome to)

Skiffin16's picture
Skiffin16
Posts: 8103
Joined: Sep 2009

There's a guy on here, HONDO...he's been Dx NPC three times I believe over around nine years going on now....

He's been through the mill, but alive and kicking....

Maybe you newbies should start a new NPC member thread...he'll post.

BTW, welcome to the forum...awesome folks here.

Myself, STGIII SCC HPV+ Tonsils, back in January 2009...sixteen weeks, four different chemos, seven weeks which was concurrent chemo and 35 daily rads.

So far, doing well....pretty much back to 100% and clean and clear.

Best,
John

timreichhart
Posts: 195
Joined: Aug 2010

Hi
I am also a NPC survivor for about a year now I found out I had NPC 4+ back in February of 2009 by having a major ear infection in the right ear and I was only 24 at the time and just gotten married 6 or 7 months before I found out I had cancer but Started treatments in march with 3 months of chemo first then 7 weeks for 5days of IMRT radiation last. Now I am 26 and cancer free for about a year now but just dealing with some nasty post cancer treatment problems like, Neck/Shoulder problems, Staph Infection in the lungs, Major Hearing lost, Numbness in the legs/toes/arms/fingers, Light headiness, Major Vision changes and anxiety attacks everyday. But I am taking meds for light headiness,anxiety problem,numbness and headaches. These are the side effects that the doctors dont tell you because I am finding new side effects each day.

aprilshower55
Posts: 23
Joined: Mar 2012

hi,
i am chinese and 58 years old. my parents born in canton china, and i born in hong kong.
i notice slight bleeding when i did my nasal potty. i did not think anything of it for about 9 months. then i started feeling water in my ears, and pressure in the ears. i was scared to go to ent, cause i was afraid of the worse. i had stage 3 npc, and stage 1 in my lymph nodes. started 35 days of radiation and chemo in july and aug my 2nd chemo. nov was my 3rd and last chemo. i had a feeding g-tube put in two weeks into my radiation and removed
my tube in jan. when i wake up from my sleep my neck and shoulders hurt each day. i have schedule for eye and hearing exam next month. i was giving myself sometime to hopefully heal a little more before getting new glasses. i do not know if i need hearing aides. i do notice my hearing is not the same. i often hear ringings sounds in my ears. my biggest challenge is sleeping and eating. as you may know i have very dry mouth and i have not been able to eat much solid foods. i drink 3 or 4 ensure plus with 350 calories a day. i eat a table spoon of oatmeal with almond milk and slice of apple diced small with cinnamon for breakfast. i make a protein smoothie for lunch and dinner stir fry few slices of zucchini,and 2 mushrooms. i usually get about 11/2 hour of sleep and awaken with very dry throat. i would drink some water and rinse with biotene oral rinse and use biotene jel before trying to sleep again. i usually get up about 3 or 4 times a night before my alarm wakes me up for work.

are you able to eat any solid foods? do you have problem swallowing? i am glad to have found this site, and know there are others who had the same kind of cancer as myself.

CherriBlossom's picture
CherriBlossom
Posts: 44
Joined: Mar 2012

Hi, the XyliMelts time-release adhering discs work great for sleeping. It stimuates saliva while you sleep. The discs sticks to your gums in your cheek. I dont have to wake up to drink water anymore.

aprilshower55
Posts: 23
Joined: Mar 2012

thanks for your suggestion, i will try it. may i ask how is your eating? are you able to eat and does food taste good? i find the food i can eat does not taste the same and has no taste. would you mind telling me more about your cancer. thanks for your help. i am so glad i joined this discussion board.

francma's picture
francma
Posts: 60
Joined: Jun 2011

I had a problem of not hearing from my left ear and thought it was the result of chemo. It turned out I had fluid in the ear. My ENT inserted a tube in the office that day. Was able to hear normally again.

I also developed frozen shoulders about 5-6 months after treatments started. Was very painful. I have been having physical therapy for 6 months now. Also had acupuncture which did help with the pain. My range of motion isn't totally normal yet, but much better. I may need to see an orthopedic. I was told it was from stress but wonder more if it is from treatments.

I am 13 months post treatment and still have problem swallowing certain foods. Have plenty of water or milk nearby.

Frederick Emil
Posts: 4
Joined: Aug 2012

I had rad therapy last august 2010. After 4 mos I was able to ingest food, check with your rad onco for possible putting of stent in your esophagus to prevent complete blockage of the esophagus like i have. I didnt know about this nut now, my problem is i cannot eat or ingest anything even my saliva due to complete blockage by radiation induced fibosis or scarring. For info.

aprilshower55
Posts: 23
Joined: Mar 2012

hi, sorry to hear all the side effects you have. what kind of neck/shoulder problems. i have neck/shoulder pain each day when i wake up but usually goes away as the day goes by.
but my should and neck is stiff all the time. i am not sure that is due to lack of exercise. yes no doctors tell you of the side effects. how is your diet like do you have any problems eating and what do you do for dry mouth, have some of your saliva glands returned? i am just hoping my saliva glands will return at least most of it. look forward to hear how you cope with your side effects. take care

NeoTheron91
Posts: 76
Joined: Sep 2011

After finished my radiation & chemo treatment 3 months ago, I am having regular nose blocked, one of the ears is blocked, dry mouth and some pain in the left shoulder. According to this forum, it's new normal life style. so we have to adapt with it.

Karri's picture
Karri
Posts: 9
Joined: Mar 2012

Hi. After reading many of your stories I am feeling much less sorry for all the after care problems I seem to be incurring. Does anyone else feel the medical profession is letting them down? I had stage 4 with no symptoms except I had an enlarged lymph node on the right side of my neck. Through pathology once my neck dissection was complete we figured out it was nasal. I went through 7 weeks of radiation and 6 months of chemo. My side affects are very minimal compared to most of yours. I am, however, finding that my after care is less desirable than I had hoped. I am trying to keep a positive attitude but sometimes it is difficult at best not to feel frustrated and alone. I am glad to have found this site and pray for all of you.

aprilshower55
Posts: 23
Joined: Mar 2012

i agree doctors do not tell you about the side effects. i too at times feel down, or sad about my new life. my friends ask me to find support group and here i am. glad to hear your side effects are minimal. may i ask what are they and how you cope with it. i am interest finding new solutions since you are 2 yr survivor. how is your dry mouth did came back? what is your routine health care for your side effects. i am hoping i can find some better or new health care. i too pray for all of you.

Hondo's picture
Hondo
Posts: 5932
Joined: Apr 2009

Sorry you are having to go through this and I hope things turn around for you very soon. Sometimes just talking to others who like you have been there helps a lot; CSN is one great place for that but you might also try other support net worth where you can meet others in your area. I am a NPC survivor, my cancer came back three times and with the help of God and a lot of prayers from my friends I beat it all three times. I am always willing to talk if you need, just click on my name and it will bring you to my profile and e-mail address.

God bless
Tim Hondo

Karri's picture
Karri
Posts: 9
Joined: Mar 2012

I have so many things to be grateful for including amazing stories like yours. You are correct just being here and not feeling alone has been a tremendous pick me up. And I love that your name is Tim, my oldest son's name is also Tim. That little ditty gave me a smile.

aprilshower55
Posts: 23
Joined: Mar 2012

i have been telling family and friends i have different life style. yes, i agree with you this would be our normal life style now. your nose blocked do you use nasal irrigation? i use it twice a day it helps clear the mucus. also through out the day i use nasal saline
(arm & hammer). how is your dry mouth? i feel my dry mouth and throat is pretty bad. i can not talk too much otherwise i start to cough and lose my voice. always carrying water bottle. i am glad have found this discussion board lots of information we all can share to improve our road to recovery or adapt to our new life style.
good luck, npc survior

lodie's picture
lodie
Posts: 8
Joined: Apr 2012

i have it and it sucks. all the radiation treatmants suck, i dont want to do it anymore but i have to in order for the cancer to not come back.. i cannot taste anything, everything tastes burnt or just flat out gross.. i always have a runny nose and i cough up alot of mucous or it drains down my throat and the sickly sweet taste of it makes me gag.. i am always tired, and my eyes are blurry.. my balance is off.. i hope all this will get better in time.. i want to have high hopes but its hard when you read about all the down effects that people go through. iI used to love to eat but now i hate it so much.. i usually have a crying jag every day.... my nose is sore and raw from the drip, my neck and shoulders ache all the time. and yesi suffer from dry mouth also... even the strongest foods have no taste to me... this is like a nightmare and i feel like i am bieng punished by some higher power... i hate this illness and well i am grateful that i am alive but then i also feel like whats the point. i am a 39 year old Thai woman and was diognosed in Feb 2012, i have 26 more radiation treatmants left and 5 more mondays of chemo to do than i am done.. but the long term effects of the treatments scare me.. and thats what makes me cry.. best of luck to you.

francma's picture
francma
Posts: 60
Joined: Jun 2011

You must believe and have positive thinking. It does suck but you can do this!! It will all be in the past as a nightmare and soon will forget. Never ever give up!!! Try and do stretches for your neck and shoulders or even get physical therapy, as it would help. I had all your symptoms and I too, had to cry. This is a great website for support..that makes a difference. I am doing good now and you will too..believe!!

tommyodavey's picture
tommyodavey
Posts: 382
Joined: Nov 2011

Lodie,

I am so sorry you have to go through all this but you know it is the only way to get better. Yes it wears you down and you feel like Ka Ka most of the time. But have you not read all the posts where others have been right where you are now? Time will heal most if not all of it. Try to look to the future and hold onto that. Your taste buds will return but it may take two years. Same as most of the symptoms. Or, maybe you'll start to feel better two weeks after treatment. My taste hasn't returned completely but it sure is better. And my mouth is healing everyday.

Did you have a neck dissection? I assume yes because of your neck and shoulder pain. My surgeon gave me an exercise to do every day. He said if I don't do it then I'll have pain for a long time. Ask and see what they say. Maybe even physical therapy with a place that is familiar with neck dissection nerve pain. There is also Lyrika for the nerve pain. Ask about that one too.

Tommy

I know it's hard to stay positive when you go every day to be radiated knowing it will either get worse or stay the same. But do your best. Come here and read the posts of those before you who are doing quite well. It'll give you some hope and something to hang onto.

Kyle Gilmore
Posts: 55
Joined: Sep 2011

Hi Lodie,

I had my last treatment for NPC stage 3 on 11-11-11. I know what your talking about for sure.

Food is still a task for me but it has been getting easier. I am up to meatloaf and mashed potatoes tasting almost like it used to...i need to dump a bunch of ketchup on it though.lol

I hated the fact that i needed to feed myself thru a tube and couldnt swallow for almost a month, but...it realy is only part of the process of treatment and healing.

What really helped me was getting a baritone ukelele and playing that for hours. Helps me to focus due to the foggyness in my head and gets my mind off of things.

I have been dealing with lots of new aches and pains, blurred vision, tiredness, and have 4 more appointments with my dentist to try and be proactive to deal with my teeth. All these things got easier to deal with when i came to terms with the fact that its a process many have gone through before me...when i did that I found things i could be grateful for such as the recent evolutions of treatment for our specific cancer. tomotherapy machines and so forth.NPC patients before used to just get there whole head blasted with major doses of rads, now with imrt we have such a better chance to survive.

For me the battle wasnt about the symptoms and side effects but about finding things i could really live for.

Regardless of circumstance, we can find peace. I hope you do.

longtermsurvivor's picture
longtermsurvivor
Posts: 1836
Joined: Mar 2010

there is life after this treatment. I finished my second radiation treatment six weeks ago. My radiation was for a malignancy of the soft palate, so my radiation symptoms area exactly like yours. Yes, it was pretty miserable for awhile. My nose and eyes ran so badly I could barely go outside. My shoulders and neck cramped severely. My energy levels ebbed to where I could barely drag myself around. My mouth got so sore I couldn't eat, only liquids would go down. But I knew I had to continue, because the disease would have otherwise won.

That was six weeks ago. My nose and eyes are already almost back to normal. I am regaining taste already. I had my first solid food just today, and am almost off pain medicine. I am taking Tai chi, and that has completely eliminated the neck and shoulder cramps. And I am walking several miles a day and lifting some weights. My energy levels are already very very good.

There is life after treatment. The treatment is severe, but the disease is a bad disease, and this is what we must do to go on. Learn to deal with this process one day at a time. And deal with your recovery that way too. Glad you're here.

Pat

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Lodie, don't give up. We have all been at the same place that you are now and have come out the other side, feeling strong and knowing that we have done all we could to get rid of the cancer. All of the side effects you are having now will either go away entirely or get so minimal that you will be able to live with them. I had 75% of my tongue removed, a neck dissection and forearm free flap done only 15 months ago and just last week got my stomach tube removed. I can eat some solid foods now, and it gets better every week. Taste is still not back, but can do sweets. Please hang in ther and don't give up. You will be amazed at how well you will come thru it all.

Kyle Gilmore
Posts: 55
Joined: Sep 2011

Glad to hear your doing so well with your recovery! I think about how difficult it must be to have the cancer come back twice and not lose my mind. Your certainly an inspiration and great resource for us all Pat.

I have been doing yoga classes at the gym.At first I felt so out of place because there were only 2 other dudes and I am not your typical oregonian...I am Hawaiian and covered with tatoos from head to toe...Salems pretty conservative, but the more I go the better i feel and have actually been making new friends.

I first thought of Tai Chi but had a hard time trying to absorb the moves.How did you get into it?

aprilshower55
Posts: 23
Joined: Mar 2012

like all of us on this board we have been through this road. i am no different than you, my last chemo was in 11-11. my last radiation was 8-19-11. i had a feeding tube put in soon after i begin my rad. i removed it in jan. you will get through this as hard as it sounds. i wish i had found this place when i first found out about my cancer. i started praying each day and it helps you get through the difficult days. have your love ones close to you and accept there support. the best thing for you is sleep. if you feel tired sleep is what your body needs that is what will keep you strong to fight this battle. remember we are here to support you.

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

I, too, was NPC back in late-08, and finished tx in April of 09. And I was 55 by the time treatment started. I was amazed at how fast my mouth healed. True, the teeth are still a bit of a problem, but that's life. You have C, Lodie, and at your age one heckuva lot more cause for Hope than I likely did. The flipside to looking at the Google images of H&N is that one gets to see some horrific pictures of WHAT HAPPENS WHEN YOU DON'T GO THRU TREATMENT. This is H&N C, Lodie. That's about as serious as it gets. It's no venture to say we all know what the side-effects are/can be like. I, like just about everybody here over the past three years, can tell you the treatment experience is what you make of it- that's why we stress to keep it in the Positive with mindset while in treatment. Nothing more than a rough road, if that's what you want it to be. It's up to your Drs to make said treatment tolerable, so keep them in the Loop as to how you're doing, and they'll help with both the physical and mental. You're gonna be okay, and life on the other side of treatment is very good- we are all here with testimony to that fact. This is 2012, and you have many years of a good life ahead of you.

Believe

kcass

lodie's picture
lodie
Posts: 8
Joined: Apr 2012

thank you everyone.. i guess i should get off the computer now and head down to radiation..
i will write more when i am done.. i need to be a little more positive about all this and see the upside... sometimes i feel so ungrateful and then cry because of it... i definatly need to stay on this site.... i will be back in half and hour or so.

Hondo's picture
Hondo
Posts: 5932
Joined: Apr 2009

I too am another NPC case, when you have time click on my name Hondo and read my story, It’s OK to be mad and angry I think we were all like that at first. Just hang in there you are in the best place there is for help as there are a lot of us here to give you support. We have all been there and are now on the other side enjoying life once again and you will too very soon.

God be with you in your trials
Hondo

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

I haven't embarked on treatment yet, but I'm about to in a couple of days. I believe, like Hondo...it's ok to be mad...it's even ok to have a pity party, I'd say it's even normal...as long as we don't let ourselves get stuck in a rut. Having all these folks here show us...lead us...thru this tunnel is a gift from God...I truly believe that.

I think if you come here everyday...go back and read old posts if there aren't any new ones...open yourself up to absorb the hope and stength found here...you'll wake up one morning and FEEL the strength coming from the inside out, and not just from outside. It will be yours. It will be you who will be helping us newbies get thru this fight.

p

lodie's picture
lodie
Posts: 8
Joined: Apr 2012

well all my treatments are done.. what should i expect now?... got runny nose runny eyes... scratchy throat.. burps lodged in my throat and lots of fatigue......... no taste for food yet but i have had a peg for like a month still not gaining weight but not losing it either.... vomiting alot....neorapathy in fingers and feet... feel achy some days but i can tolerate it...write back soon

phrannie51's picture
phrannie51
Posts: 3852
Joined: Mar 2012

Treatments are done...you need to be danced around the kitchen a couple times....you have accomplished something HUGE!! I'm a couple weeks behind you, but I hear you cook for a couple more weeks, but then the healing really really begins....you are on the road to recovery.

p

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

Might take a few weeks, as the body is still in shock from being bombarded, and swellings are still there...but very soon the gradual "better" will begin and be noticed by you. Great to hear you made it okay, and your 2nd chance has begun. Us NPCs are a tough lot!

kcass

meja
Posts: 10
Joined: Sep 2011

i can swallow now, but the sticky greenish like mucus from the throat especially in the mornings bothers me alot.i have to cough it out almost once a day, smells bad too.Is it cause of dryness?..What the solutions, newbie here help..

lodie's picture
lodie
Posts: 8
Joined: Apr 2012

hi i finally made it back to this site after 3 months of bieng out of treatments...
i did 39 rads and like 5 24 hour chemos for 5 days at a time then 2 months straight chemo once a week.... anyone else who has or had this cancer can write me for support if they want...it's not often i find many people to talk to about what i went through..
I am in remission right now and am doing fairly well for th most part.. my sense of taste has ot returned albeit i can taste some things like syrup and mostly anythng sweet, i crave foods alot but eating them is a whole new ballgame... i can eat also mussells and oysters and clams and calamari.. and tons of milk since my salivary glands were comprimised..my hair is growing back curly which is funny since normally it's straight..
my nose runs and my eyes drip and burn...i still have a peg tube in me which i only use not to flush and i am anticipating the day when it gets pulled out...*ouch.
my feet are still numb around the toe areas but my fingers are starting to feel ok again.. the numbness in my face around the eyes went away.. which i don't remember when it just so happened i was like touching my eyes and i realized i could feel sensatons again... things are a slow progress but each new one is great...
I am also on face book... so i'm here if anyone needs a friend.<3 Elizabeth

Hondo's picture
Hondo
Posts: 5932
Joined: Apr 2009

Sounds like you are doing very well recovering from all the side effects of treatment. Something you might want to ask your doctor about and that is your Jaw, there are things you need to do to keep it open and working right. Also suggest using NeiMed Sinus Rinse once a day to keep things in the nasal area clean.

Take care
Hondo

lodie's picture
lodie
Posts: 8
Joined: Apr 2012

interesting about the jaw.. i can open it but really wide feels rusty...but once i start loosening it up it seems ok.. i think about 42% of my taste has come back... my smell also..

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