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Early Morning to you all !!!

leanne_00
Posts: 39
Joined: Apr 2001

Hi everyone,
Woke up early and cant sleep. Proable took too long of a nap yeasterday.
A little about my self:I live in Maine, I am 38, married for 14 years, no children, a dog named Sara which is half Delmation and half Lab. She is more spoiled then most kids...lol (laugh out lound.) She has the head of a Delmation and the rest is all Lab. Great to have around when my husband is working. I mentioned before that my husband worked the grave yard shift, but now he was able to get a 3 to 11 positon and starts next Mon. I cant wait. I hate to be alone at night. When I was first doing Chemo I would get so scard that something would happen and no one would be around. My mom stayed with me the first time I had my first treatment but I was ok so I stayed alone at night for the 2nd one. But when I recived my 3rd I was sick as a dog. Nothing helped me. I ended up in the ER at 11:00 PM of that same night. They had to try about 4 difierent drugs before I would stop vomiting. (Sucks when there is nothing to come up). I was sore for a week. Needless to say my husband did not work that night. I was told that I was to stay in the hospital over night (thank God). I was so dranied. I went home the next afternoon. They just wanted to keep an eye on me and make sure I was ok. The compazine for some reason was not working so I was prescribe a more stronger drug the next time which helped me. I was so thankful when the first 4 treatments were over. Needless to say for the first night of the rest of my treatments I stayed over night at my parents so Tim (my husband) would not worry. The last 4 was Texol and was a releaf from the first 4. The first week after a treatment I was sore all over, there was no joint in my body that did not hurt. It also made me feel like someone was pressing a ton of bricks on my chest. But once the week was over I was back to my old self untill I had to get another treatment. With the Texol it did not make me sick for 3 weeks like the first 4 did. Once the week was over I had 2 weeks left to feel better. I was able to deal with the pain better then being sick everyday. I dont know about anyone else but I started having heartburn like there was no tomorrow!! The Doctor prescribed me Prevacid and had no problem from then on. If you get heartburn do not let it go like I did. I was at the point that I could not eat anything. Just drank Tea. Told my Doctor I needed something to stop it. Was like I had Reflux or something. Much better now. I still take it once in a while. Some foods stil bother me but not as bad as it was.
"HAIR" Its coming back..slowly but it is coming back. I use to complain about it before being too natural curly and doing what it wanted and not what I wanted it to do...well no more cause I have none..lol. But it's starting to come back a centermeater at a time but I can see it. Never know what you have untill it's gone and I do mean gone...lol. I don't know about anyone else but I could not ware the wigs. Itched too much. (Mom hated it when I would wip it off and itch and put it back on). It botherd her way more then me. I went to waring bandaners and a hat. I wished it was in the summer cause it would not of been so cold...burrrr. Never knew the insulation I had from it till it was gone. Long as it's back I will never complain again.
My husband is balding and hates it. An old age thing I guess. When he complains of it I tell him "it could be worse, you could have none at all like me". He does not think I'm funny...lol.
Tim has taking this whole thing well at least he has around me. Maybe because I have been very strong and positive about the whole thing. I have had my moments where I wondered if I should do a will and all that but I am in no rush. Its wired but I have a calming feeling of the whole thing. Thats where God comes in. He's not ready for me yet. I have much more living and learning to do.
I thank God for every day I get and help others along the way. I am doing Radition now. I had 32 to start with and have 16 left to go. There is this older lady (88) and has her treatment right before I do. She seemed so sad one day so I got talking to her and let her tell me all about her and what she is going through. Then she asked about me and I told her and then she said she felt better for that day. So now every day I see her we talk and laugh and enjoy each other for just that little time before she goes in for her treatment. I look forward to it every day. That will be the one thing I miss is talking to everyone and seeing how they are doing. She lives alone and does not like where she lives. But I think it's more the alone part then anything. Sweet old lady. For some reason I get along alot better with peolple older then myself. I love to hear there stories of how things use to be way back when.
I had a close frind growing up my own age but she really was'nt what she put herself out to be. When we started dateing she would hit on my boyfriends. I never knew it untill on day she had told me "you know if I wanted him I could get him" well needless to say I am no longer friend with her. I do miss the talks and being able to share my throughts and things. Its hard to find someone that you can really trust.
I was laied off from work last April of 11 years. But I was albe to pick up a job working as a PCA (personal care assistant). I became very good friends with this one lady Theola. She is 88 and what a ticket. When I go for treatments I sometimes stop at her home and we go out to dinner and then I take her shopping to get her out of her house for just a littly while. I know what its like to go stir crazy...I am there!!! I will not get her back as a client when I return to work cause she has switched companys. Its too bad but we still have our friendship. She calles me all the time to see how I am doing and make sure I am doing what I am suspose too. I thank God every day for her. When she calls me or I her we talk for hours and she catches me up on everything that is going on in her life and I let her know whats happening in mine. Its like I have known her for many years. And to beat all her Birthday is just a few days before mine is. So this year we went out and celbrated together.
Well I will let you all go for now and you all take care. Godd bless and hugs to you all.
Leanne

lucy
Posts: 160
Joined: Nov 2000

Hi Leanne - Thank you very much for your discussion subject about your experience with breast cancer. We all have so very much to be thankful for and at times, we forget about it. I was very touched reading your story and again remembering what I went through with my chemo treatments and all the sickness I felt. My second and third AC treatments were not as bad - just made me feel like I had the flu - after about 2 or 3 days, I felt pretty good. My first was bad and my last was terrible. The zofran my oncologist gave me for the nausea did not work and I had to get more medication - and that took a couple of days to do the job. I will never forget it and thank God that the treatments are behind me now. Without the support of my family and friends, I also would have never made it through this tragedy. I also have my friends here to thank for all the help they gave me - and now, I am there to help anyone else that needs it. I consider everyone here as my friend also.
May God bless you - Lucy

cherdaetwyler
Posts: 165
Joined: Dec 2000

Good morning Leanne,
It is unfortunate that I didn't know you were on on Saturday morning early cause I was sitting in my big wing chair, in serious pain from Tuesday's Taxol treatment, and wired from Percoset which acts on me like caffeine...But it does nothing at all for the Taxol pain. Thank goodnes the glucosamine workes because I was about ready to rip myself apart.

it is wierd how I wasn't sick that much on the A/C just felt fat and full all the time (but they tell me that was from the Zofran antinausea medicine) no vomiting ever, and now the Taxol is creating so much pain...or was until I got enough of the gsa stuff into me.
I don't know whether it counters the pain or heals the muscle/tendon tissue that is inflamed or what but it works.

Any how I enjoyed your long letter very much. I too enjoy older people (although to you I might be in that category myself, I'm 55), one of my best friends is 70, and last September we went to the Eastern National Rendevous together and left our husbands at home...We camped in a tent together for a week, and had a blast.

listening to your story about the friend who told you she could get your boyfriends reminded me of a tale of something that happened to me.

a woman I know called me 4 days after my masectomies (I had cancer in both breasts) ostensibly to see how I was doing and barely gave me time to answer before she launched into a tale of how she was on a new medicine now and it seemed that it was making her unable to have orgasms. She wanted to know if i thought she should call her doctor or just quit taking it to see if the orgasms came back...It was very diffficult to answer politely...I was like , you nit wit, I can't even get a hug without pain, and you are worring me about your little problem. and asking my advice what to do...grrr-rrrr. It taught me that some people never get the idea. It has given me lots of chuckles though when I get really nasty side effects or the pain in my chest is nearly unbearable.

anyhow good hearing your tales, hugs, cher

crafty
Posts: 3
Joined: Apr 2001

hELLO, I AM JUST GOING TO GET STARTED ON MY CHEMO THIS WEEK. AFTER READING YOUR MSG STARTED TO PRAY REALLY HARD THAT I WOULD NOT GET THAT SICK. ABOUT LOSING HAIR....SINCE I DID NOT START CHEMO I HAVE NOT HAD THAT HAPPEN YET. TUES I SEE MY SURGEON THEN START CHEMO BUT TUESDAY NIGHT I WILL BE GETTING MY HAIR CUT OFF AND THEN HAVE MY HAIR PLACED IN A HAT TO USE WHEN BALD. I WILL ALSO HAVE MY HEAD SHAVED SHORT SO WHEN MY HAIR DOES START FALLING OUT i WILL NOT BE SO UPSET....
BEST WISHES TO YOU ALL, EVERYONE HERE WILL BE IN MY DAILY PRAYERS. GOD BLESS AND TAKE CARE. CRAFTY

crafty
Posts: 3
Joined: Apr 2001

hELLO, I AM JUST GOING TO GET STARTED ON MY CHEMO THIS WEEK. AFTER READING YOUR MSG STARTED TO PRAY REALLY HARD THAT I WOULD NOT GET THAT SICK. ABOUT LOSING HAIR....SINCE I DID NOT START CHEMO I HAVE NOT HAD THAT HAPPEN YET. TUES I SEE MY SURGEON THEN START CHEMO BUT TUESDAY NIGHT I WILL BE GETTING MY HAIR CUT OFF AND THEN HAVE MY HAIR PLACED IN A HAT TO USE WHEN BALD. I WILL ALSO HAVE MY HEAD SHAVED SHORT SO WHEN MY HAIR DOES START FALLING OUT i WILL NOT BE SO UPSET....
BEST WISHES TO YOU ALL, EVERYONE HERE WILL BE IN MY DAILY PRAYERS. GOD BLESS AND TAKE CARE. CRAFTY

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