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Squamous cell carcinoma of the breast

kwame
Posts: 11
Joined: Mar 2001

I have just completed chemotherapy for squamous cell carcinoma of the breast. I'm interested in knowing if anyone else has had this type of rare breast cancer. I'm anxious to read responses to this message.

webaur
Posts: 114
Joined: Feb 2001

Hi!!

My name is Wendy. I live in the high desert of So. Calif. I was so surprised to see your subject line. I was initially diagnosed with squamous cell carcinoma of the breast, but it was later revised to infiltrating ductal carcinoma with squamous metaplasia (after a second pathologist looked at "my breast"). I know that the squamous cell carcinoma of the breast is very rare, I was told that I was the 35th before I had my mastectomy. Anyway.....

Please look back on the board to my posting on 2/20 (webaur)....that tells my whole story. I would love to communicate with you, as I am still led to believe that my cancer is still not the normal, average, every day breast cancer---because squamous cells are not normally found in the breast. When were you diagnosed? What type of treatment(s) did you have? I was diagnosed on 1/23, had a modified radical mastectomy on 1/26, and started on chemo (A/C) on 2/13. About to have my second dose on 3/6. How did you do on your treatment(s)? Since I am just starting, I am interested to know how you fared.

It is late, and I must go. PLEASE feel free to contact me through the e-mail here on the site. Perhaps we can get in the chat room together sometime. Let me know. I'd love to share "war stories" with you!!! Hope this makes some sense to you. Take care and I'll wait to hear from you.

Blessings....Wendy in So. Calif.

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy,

kwame
Posts: 11
Joined: Mar 2001

Hello Wendy, I am so glad that you responded to my message about the squamous cell breast cancer. I think you may have received a partial response to your message as I accidentally hit the send button too soon. Anyway, I did read your message dated 2/20. I was diagnosed in August 2000. Initially, I had a lump that was aspirated of which the cells looked suspicious. I had a lumpectomy on Aug 2, 2000 which was found to be malignant with squamous cell. (The lump was 2 cm). On Aug 25, I had the modified radical mastectomy and lymphectomy. Of the 16 nodes removed, all 16 were negative. And no residual cancer was found in the breast tissue. My scans and x-rays and blood work all came back with negative signs of cancer. SO I was diagnosed with stage 1 cancer. However, due to the fact that my mother had breast cancer (1979) I wanted them to treat mine as aggressively as possible. Therefore, I underwent the same chemo treatments you are scheduled for but did not require the radiation due to the size of my tumor. I began my 6 months of chemo on Sept 8, 2000 and completed it on Feb 16, 2001 (my birthday believe it or not). The adriamycin and cytoxin treatments (4 of them) were not the most pleasant. I won't go into my side effects now as we all respond to chemo in our own way. I don't want to put any suggestions in your mind and then you have the same side effects because of it. However, you should know that the 4 rounds of Taxol will be no where as difficult on you as the adriamycin/cytoxin may be. The Taxol was easy, so you have that to look forward to. My schedule was administered just as yours will be, once every 3 weeks, 4 units of each. Again, just know that the Taxol will be much easier. I do wish you the very best during your treatment. In your message, you stated that you were the 37th with this type of cancer. What listing were you looking at and where can I find it or was it the 37th that your oncologist has seen. I was the first for my oncologist. In terms of your relationship with your husband I can share mine with you. I,like you, have a very supportive husband. In fact, I have nicknamed him "my rock" since all this cancer business began. As far as his treatment towards me, the amputation of one breast does not seem to have any affect on how he responds to me physically or sexually. But with all I went through physically, sex was NOT the first thing on my mind right after surgery or very often during the first 4 units of chemo. However, he was extremely patient and actually gave me TOO much space in terms of not looking at me thinking I didn't want him to look. I guess I'm a little different because from the onset I strongly felt that I would still be me without my breast because the breast don't make me. They're attached to me, I'm not attached to them. (But I am considering reconstruction so as not to have to wear this awkward prosthesis any more. It can be awfully uncomfortable at times.) I made sure that he was in the hospital room when the bandages were removed. I believe I freaked out more than he did. Or at least he didn't show it. I felt like a Borg Star Trek character with the tubes and staples on my. But he was very compassionate. During the chemo, I have since learned now that the sessions are over, he always felt so helpless when I wasn't feeling my best. I have to admit that I felt more sorry for my friends and family than I did for myself. In terms of prayers, feel that you deserve every one of them. Realize that prayer is truly powerful and the more sincere and heartfelt prayers sent out for you, the greater your recovery will be. So please don't discourage people from praying for you. Certainly you'd pray for them if the tables were turned, right? Find strength in all the support others are giving you and just know that your recovery is what they are looking forward to, not a repayment for their support. But I know just how you feel and I will include you in my prayers as well. Take care and good luck. Email me whenever you wish. Carolyn (Kwame)

lflach1
Posts: 4
Joined: Jan 2013

I found out in June 2010 that I  have Squamous cell carcinoma of the breast.  I had 2 rounds of Chemo.   Looking for somebody to talk to that has had this cancer. 

 

candyslace
Posts: 1
Joined: Mar 2013

Hi, my mom has been diagnosed with squamous cell of the breast!  It is so rare, how are you dealing with this diagnosis?  Thank you

Jodine
Posts: 1
Joined: May 2013

Hello ladies. I am wondering if there is anyone who is interested in posting photos of their lesions. I have just relocated to a new town and do not have a family physician. Todate I have been relying on walk in doctors. 

In Jan 2013 I noticed an "inverted" scab under my nipple that had a touch of green crusted puss on the inside. I waited a month for it to heal. I attempted antibiotics however it still did not heal. I visited our emergency department at the hospital where the on call doc found a lump. He was NOT concerned about the non healing lesion. 

I had an ultrasound which showed a 6 mm lump. I was told if I was not contacted all was fine. 2 weeks later....now roughly early March I attended the emergency room for my results as I wanted to ensure all was fine. A different doc told me my lump was a cyst. I asked about the non healing lesion and he then decided to biopsy it. The lesion was removed and I was stitched up with 4 stitches. 

Todate the scar is healing well however I am seeing the lesion is returning. It is necrotic and sloughy meaning it is "indented" again. I would like to hear others experiences and perhaps see some photos for comparison. I still have the lump and am scheduled for another ultrasound in 3 months however am growing concerned with the reoccurring lesion. 

 

 

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