CSN Login
Members Online: 13

endless journey

kat5
Posts: 3
Joined: Nov 2000

i've been dealing with hodgkin's for 4 years now. i just need to find someone to talk to. i've been looking and couldn't find anybody to talk to. if you know of anyone let me know. thank you, kat5

tamis
Posts: 40
Joined: Oct 2000

Hi there,
I'd be willing to chat with you. I am battling Hodgkin's as well. It's been over a year. I just finished my second round of radiation. It's been a long struggle and I can't imagine you having to deal with this for four years. I would love to listen to you. With me talking with others, helps me deal with things. It's not easy, but having someone to relate sure does help! I hope to hear from you.

kat5
Posts: 3
Joined: Nov 2000

Hi Thanks for writing back. I went through 1 1/2 radiation and 2 1/2 chemo. I was going to go through T cell transplant,but I failed my lung test. I see the doctor Dec.5,to tell me what is going to happen next. I'm scared because I was told that the transplant would cure me. So now what? I guess I keep on looking for the end of the rainbow. That's hard to do. kat5

tamis
Posts: 40
Joined: Oct 2000

Hi. Do you know why you failed the lung test? I'm just curious. I had a Stem cell transplant back in April of this year. The reason was I had a huge mass on my lungs that wouldn't go away with all the chemo they gave me. With high hopes of a "cure" the Stem cell worked for the tumor in my lungs. We thought all else was gone too, but in September when I went for a CT Scan it showed more nodes swollen in my neck. Again, it was back to radiation to try and get them, hopefully. I won't have another round of Scans until January 18. I just pray this is it. If a Stemcell isn't the answer for you, there must be something out there that is. My doctor has told me because I often think it will be back, that there are excellent treatments for this disease. It's finding what works for you. I'm sure they will find the right one. My next step if needed will be a bone marrow transplant from a donor. My doctor had my siblings tested for precaution and my sister is a perfect match. I hope we don't need it! Please keep me posted on your Dec 5th appointment. Write if you want to talk some more. I'll be praying for you! You have been through so much. I am here to listen! Try to keep positive, even though it's tough. Tami

kat5
Posts: 3
Joined: Nov 2000

Thanks for talking to me. i don`t know why my lung test failed,but I will find out when I see my doctor. Whatever I find out when I see him I will let you know. Thanks for being my friend. I will write more when I have more answers. Thank you again. Kat5

tamis
Posts: 40
Joined: Oct 2000

Hi again, just wanted to know if you would rather communicate through Email rather than this discussion group. My email address is SNS614@earthlink.net. It might be easier. Let me know your results!! I await my CT Scan, which is not until January 18th, but it's just as well. I want to get through the holiday's! Tami

dpomroy's picture
dpomroy
Posts: 137
Joined: Dec 2000

Hi, I was diagnosed last August. I just finished my first course of 8 chemos for Hodgkins and have started a second. I don't know how anybody does this, it sucks! All I can handle is the next thing in front of me, whether that be the next test or treatment. If I look much farther ahead than that, I become a crying ball of mush. I don't know anyone else who is going through this, but if sharing the load with others like you helps, I'm game.

tamis
Posts: 40
Joined: Oct 2000

Hi there, it's not an easy battle at all. I was diagosed in July 1999, & had several treatments of ABVD. I had the usual tests after that, with positive hopes and found the cancer still there. Had more ABVD, tests run and kept my fingers crossed, but the cancer still remained. I was switched to aggresive chemo treatments & a Stem Cell transplant, finally went to radiation and finished in July 2000. In September 2000, it was back!! I just finished another cycle of radiation and I'm waiting to go for CT Scans. I make myself crazy waiting for my tests and results and I try so hard to not become a basket case before I go. It's very hard to not. I still have a positive additude, but it still remains hard to not get worked up. I can relate with you. I wish you the best. Keep your chin up!

auntk
Posts: 2
Joined: May 2001

i'm new to this site and saw your note.

i was diagnosed with hodgkin's four years ago. have you found someone to talk to about it?

lmpg
Posts: 8
Joined: May 2002

Hi auntk,

I'm relatively new to this site as well and have just finished up 12 rounds of ABVD and 26 radiation treatments to the chest. Hodgkins came as quite a surprise in Nov. 2001 at age 37.

With being a new official "survivor,", tell me... how do you get past the endless, constant worry? My spirits, attitude and outlook is very positive and remained so throughout this ordeal, which I believe doing that is half the battle.

Now I worry about every ache, twitch, pain, etc.

When does the energy level come back? Do you ever feel normal again?

Lisa G.

cschrock's picture
cschrock
Posts: 7
Joined: Mar 2001

Dear Kat5,

cschrock's picture
cschrock
Posts: 7
Joined: Mar 2001

I got cut off for some reason. I would be glad to talk to you about what your going though. I am a three year survivor of HD.I had four cycles of chemo. and eighteen days of radiation. Also, I am the logistics chair for the Relay for Life in my home town, and on the board of advisors for the American Cancer Society. I do what I can to give back to thoughs who have helped me.So email me with any question or just to talk.

Chuck~

lmpg
Posts: 8
Joined: May 2002

Hi...

Hope this finds you well and in good spirits. I'd be interested in your story... please share...

I'm a now 38 year old mom and a Hodgkins survivor. Was diagnosed at age 37 Nov. 2001 by complete surprise. No family history, no medical problems/issues, went to the doc for one thing and ended up finding out I had Hodgkins.

Just finished 12 rounds ABVD and 26 radiation treatments to the chest area. Feel great, did fine throughout.

Share your story if you want. Would love to chat with you and offer shoulder, ear, warm heart and friendship.

Lisa G :-)

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network