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Gallbladder Cancer Stage 4
Hi, A week ago my mom was diagnosed with gallbladder cancer stage 4. I am looking for survivors. Anyone who knows a survivor. I know the statistics, the doctor has already given us a time frame, and the oncologist has told us to go for "quality of life". If there are any survivors or if you are having successful treatments…
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Aggressive Digital Papillary Adenocarcinoma with lung metastases
I have posted elsewhere on this cancer (a type of sweat gland cancer). This is my diagnosis and I am seeking others who may have experience with this entity. I am always looking for the experience of others: treatments, cancer centers that may have particular expertise etc. etc. If you or someone you know/ care about has…
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Ampullary Cancer
I was just diagnosed with ampullary cancer and would like to talk to anyone who has it or is familiar with it. Also I would like to know about the Whipple procedure and what all that involves.
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Gallbladder Cancer 2023 (All Stages)
(I've started this topic because the most recent annual forum I could find was for 2018.) I have gallbladder cancer, discovered during what was anticipated to be a routine laparoscopic removal of my gallbladder, based on the presence of gallstones. As is the case in "Western" countries, gallbladder cancer is most…
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Gallbladder stage 4 cancer with small cells
I am care giver , I need information about gallbladder cancer with stage4 with smal cells. This is so rare that doctor is not able to help much , hence I am here to ask if anyone is going through similar phase and what steps you are taking to survive.
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Parotid Cancer
I was diagnosed in 1998 with acinic cell carcinoma in my left parotid gland. I have heard that this is very rare, especially in children. I was 15 at the time, and judging from the size of it, it could have gotten there as early as when I was 11-12, maybe even 10. I was wondering if anyone else knew anything about this or…
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Essential Thrombocythemia and myelofibrosis
Hello. I am a regular visitor in the breast cancer forum. Now my husband has been diagnosed with cancer. His report reads "The differential diagnosis mainly includes essential thrombocythemia and early stage of myelofibrosis". He is scheduled to see the oncologist/hematologist on March 15th. I would like to know some…
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Immunotherapy
I am 58 years old male and diagnosed with Base of Tongue Cancer last month. After series of tests, the oncologist decided to treat me with 4 chemotherapy and then 33 radiation therapy combined with a mild chemo. I heard about Immunotherapy that can help fight cancer. But some doctors said it is good and some said it is not…
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Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of oxaliplatin. I am scheduled for 11…
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ACC , Adrenal Cortical Carcinoma
Anyone else recently been diagnosed/treated? I live near Seattle and seem to have great doctors at SCCA who "have a plan". I had surgery then stereotactic radiation and now getting insurance approval for mitotane with hydrocortisone. Sounds like it is usual treatment. This is tier 5 drug so UHC only covers 75% . My cost…
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Adrenal Cortical Carcinoma
This cancer affects about 1-2 people per one million. I was diagnosed with stage 3. Anyone else have this very rare cancer?
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Mesonephric Endometiral Adenocarcinoma
I am wondering if anyone has had or know someone that had Endometrial Adenocarcinoma? I am trying to find a survivor of this very rare cancer, but so far I have not had any success. I was diagnosed in August 2015 with this very rare cancer. I was misdiagnosed for 6 months from various doctors treating for a UTI even though…
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appendiceal adenocarcinoma/Small bowel cancer
Hi, I’m new here looking at all of your questions and the answers and it’s been wonderful to see everyone helping. I come here for my mother, who was diagnosed with appendix, cancer, early 2020. Her appendix ruptured, and the mucin seeped out and is now in her colon, causing her to have small bowel cancer. Her CEA number…
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Primary small cell carcinoma of the breast
Hi everyone, I wanted to reach out to see if anyone else has had, or has known someone with, primary small cell cancer of the breast. What has your experience been so far? I was diagnosed in March 2023 with both invasive ductal carcinoma and primary small cell cancer of the breast with a neuroendocrine component, with the…
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Neutropenia with Chemotherapy
I was about to begin my 8th (final) cycle of chemotherapy. However, on what should have been Cycle 8, Day 1, my white blood cell count and, specifically, my neutrophil count were too low to proceed. The protocol is to wait a week to give the bone marrow a chance to recover. However, one week later, the numbers were still…
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Neuro Endocrine Cancer of Pancreas
I have recently been diagnosed with Neuro-Endocrine Cancer of the Pancreas. I have been prescribed Nuclear radiation therapy - Lutetium Dotate Therapy - but am yet to decide what to do. Has anyone been through this - I would like to share and chat. Thanks HariM
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Mesothelioma of fallopian tube
Looking for anyone with experience with mesothelioma of fallopian tube.
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Thymoma Survivors/Caregivers?
My fiance was diagnosed with a thymoma 11/21 and has undergon 4 chemo cycles (PAC Regimen), the tumor shrank drastically and he will now be able to have surgery on 4/11. Is there anybody who is has been through or is going through the same journey? Just looking for support and information...Thank you!
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Leiomyosarcoma chat
I am searching for survivors of leiomyosarcoma and would like to chat about treatments. Sandra from Alaska
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Cancer of Unknown Primary - Adenocarcinoma
Cancer of Unknown Primary--Specifically, Adenocarcinoma of Unknown Primary recognized by an intestinal blockage which turned out to be a substantial tumor with extensive lymphatic involvement, characterized via genetic and molecular assay as "very similar to intestinnal cancer." I'm looking for others with similar…
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Any more gallbladder cancer patients?
It is wonderful to connect with gbc patients, but there aren't many of us!
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Myelofibrosis/blood cancer
I was diagnosed on 11/15/19 with myelofibrosis - it's a rare kind of blood/bone marrow cancer. I'm on a pill form of chemo - jakafi - and beginning the stem cell therapy transplant process. Having a 'rare' cancer is all kinds of frustrating. And it's isolating. As I've never had cancer before, maybe that's true for all…
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Spindle Cell Carcinoma
My mother in law was diagnosed with stage four spindle cell carcinoma (originating in the gall bladder) after having her gall bladder removed. She has tumors all through her abdomen. Some of them are even visible on the outside. My husband says that one looks like a half fist sticking out. She has been in an intense amount…
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Angiosarcoma
38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all…
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Sacral tumor and Neuro/onco specialist near Chicago
Hello , I have just discovered that I have destructive sacral tumor pressing on L5 nerve and caused cortical breakthrough . I am going in for PET scan and biopsy in the next week. I am trying to find specialist near Chicago west suburban. Anyone that could provide some informations to help me going through this journey…
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Large Cell Neuroendocrine Carcinoma - Seeking Advice
Hi everyone, My dad was just diagnosed with large cell neuroendocrine carcinoma (2-3 inch tumor outside of his esophagus and widespread liver metastases) He just finished his first round of chemotherapy at our hospital in South Carolina, but we are trying to get him in to MD Anderson, as it seems like this is the best…
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SquamousCell Carcinoma-preliminary diagnosis
Hello there new here. So my husband Larry had a lump inside his throat between his right lymph node and saliva gland. They did a biopsy last week, and a couple days ago we were told he definitely has cancer. They believe it is squamous cell carcinoma of the throat, but that's only preliminary. He is going to get a PETSCAN…
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Surviving Duodenal Cancer
Hi. I'm a 54 yr old woman who was diagnosed with Stage IV (spread to liver and lungs) Duodenal Adenocarcinoma 1 year ago. I had a "partial" whipple in June 2009 and have been in chemotherapy since last July. My first six weeks of chemo were "alternative" treatments in a holistic hospital (I was too ill to have traditional…
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Duodenal Cancer, reoccurrence after 1 year
I was diagnosed with Duodenal cancer, stage 3, Feb, 2011 and had Whipple surgery March, 2011. Tumor was very aggressive and doubled in size in 1 month. Extreme tiredness preceded the diagnosis but no other symptoms. They looked for the source and found blood loss and after many tests found the cancer. One year later, I'm…
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Duodenal Cancer 2022
Dear all, I know this is a super rare cancer but i'm eager to know for anyone's recent experience in dealing with Duodenal Cancer after Whipple Surgery. My dad, 73 was diagnosed of Stage 3 Duodenal Cancer in May 2021. He completed Whipple and 12 rounds of FOLFOX chemo, CA 19.9 recently marks at 27, and with recurrence this…