Cancer Survivors Network - My Scan Results - Comments

Hey Sheri

Shayenne — Thu, 19 Nov 2009 15:33:44 -0500

No reason here to keep being gloomy, that's no fun! Got to be positive, you know, I know a few families here that do nothing with their kids, they just don't live, they seem so unhappy all the time, and so sad, and you wonder how these people have their health, and not live, I have my health, but want to keep living happily like I have, and if I can make it to even seeing a grandchild even being born, that would make my life complete, to hold my grandchild...I should tell my 19 year old to hurry up and just get pregnant, and I'll take care him/her LOL!

Hugsss!
~Donna

Awww

Shayenne — Thu, 19 Nov 2009 15:27:01 -0500

Shucks, you make me blush Rob, I think everyone looks great and fabulous here, we have one hell of a gorgeous family on this board :)

Yeah, I'm going to have a good Turkey Day!!

Hugsss!
~Donna

I

Shayenne — Thu, 19 Nov 2009 15:25:13 -0500

Believe Jewsus has beem with me in and out of the hospitals holding my hand each time. I have this beautiful prayer blanket that these women made for me, and it's Jesus praying on a rock, looking up to the father, and I bring it everywhere I go, to the hospitals, the chemo treatments, because I feel him with me.

I am so weird on onstage, I'm not a shy person, and will act as goofy as the script calls for, and since this is a play about rednecks and christmas, this should be interesting lol..you also have a beautiful family, including those cute dogs! You are such a sweetheart!

Hugsss!
~Donna

Yeah...

Shayenne — Thu, 19 Nov 2009 15:15:04 -0500

I seem to get real nervous the day before I have to see the doctor and learn of my results, but as soon as I saw her come in smiling, I knew it had to be good, and at least it's not spreading, that's what I always get scared about, and so far, no spreads, and they're smaller.

I hope his scans came out good too! let us know how they went :)

I enjoy life now as it comes, you have too, it's too short not to :)

Hugsss!
~Donna

Thanks so much Kathi!

Shayenne — Thu, 19 Nov 2009 15:11:51 -0500

You have always been on my long list of prayers, thanks for that, I feel so humbled on this board, everyone is so awesome, and this is why you all are a part of me, my family. I do look forward to a break, that's for sure, and am sure my insides will be happy lol...hopefully it's time to just maintain my body to health, where I'll finally also get that darn juicer going, need the tax money now, since hubby been laid off since last month.

Thanks for the big warm hugsss, I am sending them back atcha!

Hugsssssss!
~Donna

I will Sue :)

Shayenne — Thu, 19 Nov 2009 15:07:46 -0500

I believe after the holidays, and once my tax refund check comes in, I"ll have more money to travel abit to go, too busy with these Nov and Dec months, but it may clear my head just to get another opinion. I Know how hard it is to fool with liver that looks like shattered glass.

Hugsss to you!
~Donna

Theater

Shayenne — Thu, 19 Nov 2009 15:05:37 -0500

Is such a blast, they are like another family for me and the kids as well, it gets you out there on the stage to express yourself, and I'm loud, so they like I can project my voice well. I was doing "A Christmas Carol" a couple years ago in this beautiful angelic outfit, but had to sit there on a throne through the entire play in the corner, while the actors had to act the scenes out after I stopped reading. I had soooo much to memorize, and was so afraid I wasn't going to be able to memorize that whole story...it was scary, but the thing that was hard was trying to do a victorian english accent, with my New York accent, clearly I had a weird accent throughout the play LOL...the director kept trying to let me know what the words sounded like, but I just couldn't do it LOL...oh well!

You ought to jump in and join a show, I bet you'd love it, once you do it, you just want to keep on :)

Thanks for the beautiful comments, everyone here made me who I am today with their words of wisdom :)

Hugsss!
~Donna

Thank You Maureen!

Shayenne — Thu, 19 Nov 2009 14:56:39 -0500

You have been through so much yourself, and love that your posting here more, you do inspire me as well, and have a great story. Glad to see your still with us as well, and I enjoy your posts! Have a wonderful Thanksgiving, and yeah, I start rehearsals this Saturday, thanks for the luck, I'm going to need it LOL

Hugsss!
~Donna

Hi Nana!

Shayenne — Thu, 19 Nov 2009 14:54:33 -0500

I will definitely be burying the hatchet with some folks in my life over Thanksgiving weekend (long stories there) but it will turn out great, kids are going to see their cousins, and I'm going to cook for us the day before Thanksgiving, and then go to the Aunts house on Thanksgiving, I like to have alot of stuff for soups and salads :)

I will be getting more agressive with it when I feel I'm not feeling the way I should be, it's weird, I just have no pains, no nothing, like I'm not even sick, but that's ok, at least if I do feel weird, then something's going on. I will try to kick this butt, that's for sure, but right now, I been out of the hospital since September, and that's a record for me! I've been in and out all year, and finally just feeling like me again :)

You have an awesome Thanksgiving with your family, and make sure you piggggg out!

Hugsss!
~Donna

Hi Nana!

Shayenne — Thu, 19 Nov 2009 14:54:16 -0500

You have an awesome Thanksgiving with your family, and make sure you piggggg out!

Hugsss!
~Donna

Hey Donna! What a great

luv3jay — Thu, 19 Nov 2009 13:46:18 -0500

Hey Donna!

What a great attitude you have! And I agree...stable is...good. And with your positive outlook, it makes *stable* really good. And if we can keep you stable for 30 more years, well, then I say all is well. Keep us posted.

-Sheri

Doing Fabulously and Looking Great!

robinvan — Thu, 19 Nov 2009 13:37:41 -0500

Hey! We could have told you that!

That is a great way to begin the holiday season.

TTFN... Rob; in Vancouver

Thank you very

Fight for my love — Thu, 19 Nov 2009 12:54:06 -0500

Thank you very much,Donna.Without the friendship and love from the people on this board,I don't think we can make it this far.Overall we are doing ok.After a couple of treatment of Folfox,the oxy starts to kick in.But when my husband feels good enough,he still goes to work.Next Monday,it will be the 3 of 12 treatments,we will be home resting during Thanksgiving.The oncologist asked if we wanted to switch the treatment after the week of Thanksgiving,but my hubby said no,we just want to get through this as soon as possible and I believe we will.Thank you very much for your kind and lovely words.

You know,you still have lots of options,I am sure you have been seeing many people are looking for new options including clinical trials,interferon+lovastatin,and even gene test.I know you are your own advocate.Although you had been through a lot,things are still moving,chemo is still doing its job.You are in my prayers everyday.I hope after next 4 treatments,the tumors will shrink more or even disappear.You take care.Hugsss.

Someone special

Muzzy — Thu, 19 Nov 2009 12:10:33 -0500

Donna
God will take good care of you. You are a loving mother a true freind to all of us on the board and i may add a great actress. I glad to see thing are stable and hope for improvement for you. The world needs more people like you.
Huggs
Jeff
Just happy to be here

Stable is good

geotina — Thu, 19 Nov 2009 12:07:35 -0500

I know you want more but stable right now is good news. Keep up the good fight. We are getting George's scan results from the onc this afternoon. He completed his first 6 months of Folfox a few weeks ago. Had a little pity party this morning, anxiety set in a little. Hopefully shrinkage is what I will to hear then on to the next phase of treatment. Enjoy the moment kiddo, you deserve it.

My Scan Results

Shayenne — Wed, 18 Nov 2009 17:40:53 -0500

So I saw the doctor today before getting my chemo, and went further in discussing how bad my liver is, and what she said was I have multiple mets, which looks like shards of glass all over the liver, near arteries and vessels, and that's why I'm inoperable, it would be a very high risk surgery, but to not ever lose hope that this could change down the road.

She was talking about putting me on 4 more treatments with the Avastin, Irinotecan and 5fu before taking the Irinotecan which will be better for me, no side effects, and just doing it every 3 weeks, which if something should happen like it spread or something grow, she would throw the Irinotecan back in, but she said the disease has been so stable, and for the past couple months, including gaining some much needed weight, she said I was doing fabulously and looked great, and down the road, why change something that is stablizing, and working beautifully for me, there may be RFA, there may be thermaspheres, but she doesn't like to fix things now that aren't broke, so I feel better and confident with this, and know that with a liver that looks like mine, it usually is inoperable, and she told me she had many patients who have lived many years on maintenance therapy.