Cancer Survivors Network - input on negative hormone, her2 positive - Comments

hi rjjj are you in canada or

newbiefromcananda — Sat, 07 Nov 2009 13:25:47 -0500

hi rjjj
are you in canada or the states , my oncologist is the head of the trial here? but I can give you the # to talk to the nurse and she can give you the info ? I will be back on tomorrow. for now take care and hugs xo

Hi....

CR1954 — Fri, 06 Nov 2009 08:18:43 -0500

I am ER/PR negative & HER-2 positive.

I am stage IIIa. Had mastectomy, chemo, rads & have just completed a year of Herceptin.

As was stated earlier, very aggressive, but also very treatable.

Recently had a PET scan and NED! Just going to keep on keeping on. Have to live my life and adjust to the new me.

Hugs,

ER & PR neg HER2 positive

tommaseena — Fri, 06 Nov 2009 04:22:58 -0500

I had DCIS with invasion--lymph nodes clear.
Stage 1
Cocktails:
A/C every 2 weeks for 4 treatments
Taxol w/Herceptin once a week for 12 treatments
NOW Herceptin once every three weeks until end of August 2010.

Hugs,
Margo

Hi Lisa

rjjj — Thu, 05 Nov 2009 22:32:57 -0500

I am really interested in the Beth drug, let me know more if you can, I will ask my Onc. about it.
Hugs, jackie

Her2 positive / ER & PR neg Plus DCIS - high grade

VickiSam — Thu, 05 Nov 2009 21:03:59 -0500

I guess I hit the mother load with my 2 types of breast cancer. Saving grace for me is that I am stage 1.

TCH and Herceptin treatments for 18 weeks .. I am starting week 10 on Tuesday .. TCH week or as I refer to my TCH treatment weeks -- week from hell. Chemo is doable, however I do not have any down weeks .. straight chemo for 18 weeks.

Cancerous tumor removed from my left breast via lumpectomy, before starting chemo:

10.0 x 7.0 x 4.0 cm. -- Per MRI/Bone scan no cancer in my lymph nodes

I have elected a bi-lateral to help my chances of reoccurence .. Please note my young breast cancer sisters in PINK, that I have 2 children and I am in my early 40's. This is my course of action, as I have also suffered from thyroid cancer and cervical cancer in the past 20 years .. Cancer just loves me .. so I have elected to take every precaution necessary not to have any repeat performance of cancer anywhere in my body.

Clinical Trail - Beth currently ongoing at St Joseph's of Orange where I am curently a breast cancer patient -- I am not part of this study .. but I hear tibits of trail every Tuesday when I go in for my chemo drip's ..

I am finding that being ER/PR negative is a good thing .. or so the research and onc staff assures me. Meaning no long term homorone therapy.

Good luck and let me know if I can help with any questions ..

VickiSam

me too

newbiefromcananda — Thu, 05 Nov 2009 19:52:27 -0500

est &pro est neg, her + 3 tumours (the biggest being 5.5cm) 4 out of 17 lymph nodes pos, but now they can target this with herceptin) also new trial right now called beth, a new drug that works with herceptin to help lower the chances of reoccurrence, I have been asked to do this study just not sure yet?
Take care Lisa

me too!

ruthielaine — Fri, 23 Oct 2009 11:23:24 -0400

I am also Her2+ and ER+ and when I first found out I was upset but after talking, reading, researching you can actually consider yourself almost lucky (that is if we can think of ourselves as having bc lucky) that you have tested for this because they can target it and treat it very effectively - some other types of bc they do not have such targeted treatment - and yes watch the movie - very inspiring!!!

Hi Sam

rjjj — Fri, 23 Oct 2009 10:21:10 -0400

I also was treated with the same chemo cocktail and am PR, ER neg. and Her2 pos. I am still on the Herceptin for a few more months, but my hair is growing back and I am starting to regain my life somewhat. I was stage 3a, and am dancing with Ned.

You are right, the women on these boards DO ROCK!! and I don't know what I would have done without them. You are on your way and will do great!
hugs, jackie

Hi Florist! I want to

Ritzy — Fri, 23 Oct 2009 01:34:22 -0400

Hi Florist! I want to welcome you and to say hi! I am ER and PR + and HER2-, but, I know that others will post that are negative hormone to help you.

Sue :)

Welcome Florist

Cat64 — Thu, 22 Oct 2009 23:33:14 -0400

Haven't been "through" it yet, still in the process too. Like Sam, I am Est/Pro- & Her2+ and also on the same Chemo cocktail except for some reason my Oncologist hasn't given me the Herceptin yet.(Will find out next round why) We are both having a Lumpectomy following chemo, onto radiation,then more Herceptin. When were you diagnosed? What is your status in treatment? It would help us help you more if we had more info. There are women here that have been there-done that-or are doing it now, so feel to to post often and ask any & all things!
Someone is always here to help.
Hugz,
Cathy
P.S. There is a movie called "Living Proof" that you can rent at a video store. Highly recommended for anyone Her2+. Also you can go to Herceptin.com for more info on the subject. The ACS is also an excellent source for information. 1-800-ACS-2345
Hope this helps!

Hello

Sam726 — Thu, 22 Oct 2009 21:27:40 -0400

I am being treated for it now....stage 1. Having chemo now...carboplatin, taxotere and herceptin. Working like a charm!! Then lumpectomy and radiation. My moms friend went thru it a few years ago and she did great..same course of treatment as me. Very agressive cancer but very treatable. Herceptin targets what is feeding our cancer.
How are you? I am sorry u r going though this. These boards have been great..women on here rock! They know everything so ask away girl....

input on negative hormone, her2 positive

florist — Thu, 22 Oct 2009 21:16:44 -0400

thanks for the replies...I am currently finishing up herception and doing well..chemo and radiation was first in treatment. Hope all of you are doing well. Post any information that you may run across for further reference. I guess knowledge is power!!