Cancer Survivors Network - Question about stage 3 or 4 quality of daily lives - Comments

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username32 — Sat, 10 Oct 2009 07:40:44 -0400

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Semper Fi Marine (X)=former not X

cobra1122 — Tue, 04 Aug 2009 13:06:17 -0400

Just keep up the fight regroup and attack, never let it get the best of you. With a positive attitude and your family behind you, you maybe that "one in a million". Your in our thought and always here for another Marine....

I added you to my friends list

SEMPER FI MARINE

Semper Fi

MarykayUSMC — Fri, 31 Jul 2009 11:36:40 -0400

I too am a "former" Marine - not (X) -once a Marine always a Marine.

Sorry to hear the negative- glad to hear you have a positive additude. Never retreat, just regroup. I have stageVI lung that has moved to my liver. Trying to stay strong and be the "one in a million" that may beat it. My husband and I met in the Marine Corps. Both my son's are Marines now and are home on humanitarian leave. Didn't want to get cancer of course, but it's keeping my boys from deploying right now.

I want to add you to my friend list - battle this together.

Hi I am new to this site - I

MarykayUSMC — Fri, 31 Jul 2009 11:29:50 -0400

Hi I am new to this site - I have stageVI lung cancer that has moved into my liver. Only 49 and just found out May, 2009. I am getting chemo every three weeks. There is no cure for mine but chemo may shrink it to prolong life.
Neulastim is available in the USA - I get a shot the day after every chemo. I don't have any systoms of the lung cancer or the chemo, so far. I do have side effects from the neulastim shot. I get body aches. My feet, knees and hips hurt most of the time. On the good side, my blood work is good every time--- so far my white cells are good.

Keep going

cobra1122 — Fri, 24 Jul 2009 16:23:09 -0400

That is very kinda of you to say Cindy, but my main goal is to get people to realize that this is not the end. Life dealt us a bad hand but we can keep going and make the very best we can if it. It sound as tho you are going in the right direction, just keep up the positive. Yea we are human and get down once in a while, but we have to pick ourselves up and dust off and keep going, the alternative is not aceptable. So, you go girl and our prayers are with you and your family as well as with everyone. I'm a (X) Marine and we never give up we adapt, improvise, and overcome...

Cobra

clsmith — Thu, 23 Jul 2009 16:06:47 -0400

You are truely an inspiration to me and everyone. You have been through so much and with such a great attitude. I have lung cancer stage 2. I was diagnosed sept 08 and had surgery and chemo. I am doing very well.

Tske care, and my thoughts are with you and your family. Come to the chat room sometime.

Cindy

Everyone is different

cobra1122 — Thu, 23 Jul 2009 12:55:37 -0400

The effects of treatment hit everyone a little different, and then there is the depression.I am 49yrs old I suffer from Small cell and Non-small cell lung cancer and I am now terminal. I also have Altzheimers and Parkinsons, I have 45% of my heart working and I have suffered multiple strokes. But I look toward the positive in everything as in things could be worse and quitting is not an option. I am on Hospice, and suprise my medical staff on how positive I am. But I am an (X)Marine and don't know how to quit, I adapt, improvise, and overcome. The answer is positive attitude by me and my wife, we surround ourselves with positive and let go of the negative, even during chemo I kept on Volunteering at the hospital my wife works at, she is a occupational therapist. We have ups and downs thats normal, but we dust off and keep going. I was granted last month alittle more time by the Cardiaologist, whats left of my heart was in deep trouble , but he bought more time to spend with my family, grandchildren (5) and friends.
Just try to keep a positive attitude and help him see this.

Our Prayers are with you and your Family

Dan & Margi Harmon

Chemo

wicker_woman — Wed, 22 Jul 2009 23:48:55 -0400

Tamie,

I was given 8 rounds of Carboplatin and Taxol along with 34 rounds of radiation. It was not a clinical trial. I recieved chemo and rads in Atlanta and when the cancer returned I went to Vanderbilt looking for a clinical trial since I was told I was inoperable. At Vanderbilt they made their own diagnosis where they were able to resect the uppper and middle lobe of my right lung. I was very lucky to have my lung resected and have not had any major issues since. I do however have issues from radiation which we currently have under control.

My best to you in your journey to survival,
Marilynn

Hey Joe!

Jager — Mon, 13 Jul 2009 13:32:12 -0400

Sorry, posted twice same comments, lol.

Mario

Hey Joe!

Jager — Mon, 13 Jul 2009 13:28:58 -0400

in the end it turned to be that the "other" medication I have been talking about is the same you are talking about in this post, it´s just that it has a different name in the USA.

Yes, this one has been better for me and it seems to be cheaper than Neulastim.

What puzzled me is that you said that you receive only one shot for 21 days? I am receiving one shot every 24 hours for seven days after kemo day.

It worked great for me and will ask for this one tomorrow instead of neulastim.

Tomorrow is going to be my 4 kemo session, waiting for it as I am not feeling at 100% today. It may be that my kemo must be every 3 weeks and I am taking it every four so last 2 or 3 days I start to feel tired and achy but tomorrow will return to normal as it had happened before.

See you later mate.

Mario

Information on Vanderbilt

looch969 — Mon, 13 Jul 2009 12:07:15 -0400

Marilynn,

What treatment did you receive? Was it a clinical trial? I have stage IV Non Small Cell Lung Cancer both lungs with mets in right rib, shoulder & lower back.

Tomorrow will be my second round of chemo. I receive Carboplatin, Alimtra & Avastin. Any information you can give me will be greatly appreciated.

Thanks,

Tamie

Update

Jager — Mon, 13 Jul 2009 07:39:12 -0400

Michelle,

The other medication I receive is named Biocilin, as usual (it seems) it is not available with that name in the US, the component is "Filgrastim". I found it in the USA as Neupogen (filgratim) in the web, don´t know if that is the laboratory or comercial name.

It seems to be cheaper with great effects compared to Neulastim, but I don´t know for sure.

Cheers

Mario

Friend List

wicker_woman — Mon, 06 Jul 2009 21:50:20 -0400

Michelle,

I'm happy that I can share my journey with you and others on this site. As I said when I was diagnosed almost 8 years ago I was looking for hope and really did not find much. I owe my life to those that took a chance on me at Vanderbilt. If you have any questions, please e-mail me here on the site and I will try and help.

Marilynn

When he went for blood tests

MichelleP — Mon, 06 Jul 2009 13:33:10 -0400

When he went for blood tests last week they did give him a shot, maybe it was Procrit.....I'll ask. Following that shot we did have to go for another 3 units of blood. Seems like we have to do that following all chemo's.

Wicker....I added you as a friend here. I really was inspired reading about your journey and it gives me hope for my husband. Thanks!

Procrit is the shot for red

wicker_woman — Mon, 06 Jul 2009 00:07:36 -0400

Michelle,

I'm a Stage III-B NSCL - Large Cell suvivor. During my treatment my red blood cells count was always low and I would get a shot of Procrit just about every time I completed chemo. After my surgrey I had to have a trasfusion also.

Question about stage 3 or 4 quality of daily lives

MichelleP — Tue, 16 Jun 2009 18:29:20 -0400

I haven't been on this board very long, but reading many posts from people with stage 4 nsclc I see that many are actually leading fairly normal lives. The reason I'm posting this question is because my husband was just diagnosed with stage 3 lung cancer yet he lives in bed most all the time and can barely walk two feet. I don't understand the difference here. Can anyone help me understand why this can be?