Cancer Survivors Network - survivors of Terminal Stage 4 lung cancer - Comments

Our stories are similar

Gilo72 — Wed, 18 Jan 2012 18:18:05 -0500

My father was diagnosed at the end of August. They found a spot on his lung. He went into the hospital a seemingly healthy man and came out 10 days later and seemed as if he aged 20 years. He also died on December 23, 2011 and I miss him. I have a daughters the oldest who is 11 1/2. Can you tell me how you have handled your loss.

Thank you

You are a great mom!

iola_s_mom_is_so_brave — Fri, 13 Jan 2012 22:59:23 -0500

The only thing I can say is well done, Sharon, You are a great mom!
I believe Jennifer can make it. Keep praying, god bless you :-)

which city in China?

iola_s_mom_is_so_brave — Fri, 13 Jan 2012 02:13:54 -0500

Hi keepthehope, My mom got lung cancer stage 4 as well. We are in Shanghai.
Which city are you staying?
Maybe we can help with each other. I need hope too...
My mom is also weak, but believe me, you need to encourage her just like your ID: keep the hope!
We have not told my mom the truth yet. I am planing to tell her and I have faith in her! COME ON! If one person can make it which means it is reachable! Keep the hope, okay?
Leave msgs if you feel want to share. I will keep you posted about me and my mom. You are not alone!!!

Husband newly diagnosed

mgood — Fri, 06 Jan 2012 10:29:56 -0500

I"m new on here. Not sure how all this works, so I thought I would just reply to your post. My husband is 37 and was just diagnosed in October with Stage 4 NSCLC. Barely any symptoms. And when we found it, it had already spread into his liver. No brain or bone mets though. He's about to have his 4th chemo treatment. Carbo, Alimta, and Avastin. His is inoperable at this time, but maybe that will change in the future. We were pretty much devastated with the news. We have 2 children ages 15 and 7. I know the survival rate is awful, but does it take in effect the nonsmokers out there? The ones who were so healthy, they didn't even have a doctor? My husband is a general surgeon in Arkansas. So he knows all the statistics. This makes him really negative about everything. I'm glad I found your post because I need to read that people do survive this awful disease.

breast cancer now lung

ellenm4 — Sat, 31 Dec 2011 22:16:13 -0500

Sorry to hear of your secondary cancer Skybug. I too had breast cancer in 2008, stage 2b. Just a few weeks ago I was told I had lung cancer and had part of my lung removed.I have not been staged yet, but I did have the port installed. Weird....left breast and left lung! I shall keep you in my prayers. May the new year bring us all hope for a cure. Never give up and never stop having faith!

breast cancer now lung

ellenm4 — Sat, 31 Dec 2011 22:14:44 -0500

Soory to hear of your secondary cancer Skybug. I too had breast cancer in 2008, stage 2b. Just a few weeks ago I was told I had lung cancer and had part of my lung removed.I have not been staged yet, but I did have the port installed. Weird....left breast and left lung! I shall keep you in my prayers. May the new year bring us all hope for a cure. Never give up and never stop having faith!

Raven

Sat, 24 Dec 2011 12:33:44 -0500

Thank you for sharing, and I'm so sorry your sister is not doing well. I have you and your sister in my thoughts and prayers. Lori

Carcinomatous Meningitis

raven79 — Sat, 24 Dec 2011 11:46:41 -0500

Lung Cancer survivor 6 years gets carcinomatous meningitis
by raven97 on Sat Dec 24, 2011 09:30
Hi, My sister six years ago at 37 was diagnosed with stage four lung cancer. She survived by taking Tarceva/Avastin. But she had to battle 3 brain tumors with cyber knife after having seizures. A month ago she had blinding headaches, confusion and double vision which messed up her sight permanently. At the ER she was tested with spinal tap the only way to see cancer in the fluid and lining of the brain and spinal cord. The doctor said as lung cancer survivors live longer this is a progression of lung cancer. (so make sure you ask your doctor for a spinal tap if you are a long term survivor) They had to put a port in her head but she was on Avastin a long time and hemorrhaged and it paralyzed her on the left side. They have given her weeks as this cancer moves fast and attacks the nervous system. I will post a link for more on it. She is 42 now. I just wanted to address this and warn as long term lung survivors will get this more and more. http://www.ehow.com/about_5167093_carcinomatous-meningitis-t

Mom

Dentson — Tue, 20 Dec 2011 23:04:26 -0500

Vanessa. My situation seems almost identical to yours except Mom's is left side. She had a "port" implanted today and is scheduled to begin Chemo Dec.27th. She is up and about and doing for herself as if there was no stage IV. We are hoping for the best but really don't know what to expect.If it helps I'm wishing you the best of luck and will try and get back to you as things progress.

Survivor Stage 4- I understand

Dapsterd — Mon, 19 Dec 2011 20:29:02 -0500

Hello Lorisoto, sound just like me currently, how are you now? I hope all has been worked through for now. I understand.

Dave

Help me...

keepthehope — Thu, 15 Dec 2011 03:49:03 -0500

my mum has lung cancer stage 4 and it is already spreading to her Liver and pancreas.
I took them to China to have a treatment.
I am so lost when the Doctor said there is no more hope :((
I do not want to lose hope.

I would like her to have a chemo but my dad worry that my mum can't take it and she will be in pain.

what should I do? She is kinda weak...
I am trying to starting the cancer diet right away...

OUR BATTLE

shutt — Fri, 02 Dec 2011 23:38:31 -0500

OUR JOURNEY IS JUST BEGINNING ALSO. MY HUSBAND WAS DIAGNOSED WITH ADENOCARCINOMA ON NOV.23,2011. THE 'LOST' FEELING YOU GET WHEN YOU HEAR THE 'C' WORD IS SO OVERWHELMING! LIKE YOU STATED....THE STATS REALLY SUCK!! WE ARE GOING TO BE WITHIN THE 25% AS WELL. SOMEBODY HAS TO BE THERE...MIGHT AS WELL BE US!! WE WILL HAVE THE PET SCAN ON DEC.8. GAMEPLAN TO BE DETERMINED AT THAT POINT. HAS ANYONE EVER HEARD OF TAKING -CIMETIDINE? DAVE....I HAVE AGREED TO NOT EVER LOOK AT STATS OR BELIEVE A TIME FRAME THAT MAY BE PLACED ON A LIFE....... GOD DETERMINES OUR DESTINY!! BEST TO YOU

God is good!

Gelly — Fri, 23 Sep 2011 18:03:55 -0400

Hi Mark. I was diagnosed stage 4 small cell lung cancer (mastitis to brain) in May. I have had a lot of prayers and said a lot of prayers. I believe this and a positive attitude helps. My brain tumor was gone after 15 radiation treatments and my lung tumor has shrunk from the size of a grapefruit to the size of a cocktail weenie (dr.'s words, lol). I am currently having radiation on my lung and will be re-scanned next month. Doc told me he would then determine if I needed 2 more treatments or 5 and I told him I wouldn't need any, because the tumor will be gone....and I truly believe it!

Thank You for sharing your story, it gives everyone hope.....and I hope it turns them to God too.

Thanks tropicgirl2780

Gelly — Fri, 23 Sep 2011 17:57:30 -0400

I'm so happy for you! So far for me my tumor has shrunk from about the size of a grapefruit to the size of a, as the dr. put it, cocktail weenie. I am being radiated on the lung now. I am thinking of looking into clinical trials to keep the cancer from coming back. I hope all is well with you.

Thank You! and Update!

Gelly — Fri, 23 Sep 2011 17:54:48 -0400

I am currently receiving radiation on my lung. My brain tumor is gone after 15 radiation treatments and my lung tumor shrunk from the size of a grapefruit to the size of, as the Dr. put it, a cocktail weenie. I am so blessed and keeping strong!! I walked 4 miles yesterday even though I am still receiving radiation on my lung. I hope to get back to my healthy diet soon. Everyone tells me I look good. I'll take it.

survivors of Terminal Stage 4 lung cancer

Stardust1 — Tue, 24 Feb 2009 22:18:41 -0500

Dear Members,
Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation.

God Bless All

Stardust