Cancer Survivors Network - adult survivors of childhood cancer - Comments

Survivorship

Aquagirl18 — Thu, 08 Sep 2011 14:10:07 -0400

for anyone who would like to e-mail me about survivorship or if you just want to talk and get support from another cancer survivor you can e-mail me at cat2579@sbcglobal.net

N/A

username32 — Sat, 10 Oct 2009 04:35:36 -0400

This comment has been removed by the Moderator

I'm a childhood survivor of Hodgkin's 23 years

Survivor86 — Tue, 21 Apr 2009 17:49:18 -0400

I to am experiencing the late effects of chemo and radiation. I had radiation from my neck to my pelvis, back in the 1980's we got more than we should have, but they didn't know, they were more into the survival rates and they did save my life, they told my parents that I would probably die, that was 23 years ago. I have had alot of health problems, you can read the about me page if you like.

I am interested in talking to people like me, that are long term survivors experiencing the late effects. My e-mail address is bmrigney29@aol.com, if you know of any other sites or blogs, threads etc...

I'm 22 years old now, and

rutensar — Mon, 20 Apr 2009 23:11:08 -0400

I'm 22 years old now, and I'm a 19 year survivor hepatoblastoma. I was diagnosed at 15 months, treated with chemo and surgery, relasped twice, so more chemo and surgery, but have been disease free since March of 1990. My biggest long-term effects from chemo are profound hearing loss and kidney damage from cisplatin (which I only recently found out about). I would be more than happy to provide more detail if anyone wants it, but that's the brief overview. I'm still a bit new to this whole thing, so although I really want to talk about it all, I don't quite know how to...

Osteosarcoma Survivor

megordo — Sun, 19 Apr 2009 19:35:57 -0400

I just noticed your message. Not sure if you will even get this, but I had to write. I was diagnosed @ 15 years old in 1986. I also had a year of chemo as well as a limb salvage. It was in my right knee. I was treated at the City of Hope in Duarte California. It is an amazing place. I fell like I am suffering some affects of the chemo, even 23 years later. My bones ache so much, do you have this problem? It is to the point that I moved to Arizona hoping to get relief.

childhood cancer survivor

maryruth1035 — Sat, 28 Mar 2009 21:38:54 -0400

Hi, I'm 51 this month. My cancer (neuroblastoma) was removed when I was 8 weeks old in 1958-- and then I was given a series of radiation treatments. I never had chemo--but have had a lot of subsequent 'wierd body syndrome' stuff (My husband and I call it WBS). A lot of the residual problems I have had are due to the radiation as a child.

But I've always tried to look on the bright side--I'm alive and I've lived a great 51 years--and I' in the part of my life where I have time and resources to do what I actually enjoy

--Maryruth

Hi : )

btcat — Wed, 17 Dec 2008 12:01:40 -0500

I'm Christy who started the survivors of childhood cancer thread. Although threads were started years ago doesn't mean they're not still active. Go ahead and enter them, read entries and respond as you like.
I am a 25 year survivor of medula blastoma. Probably not exactly what you would consider a young adult as I'm 36, but I feel like a young adult.
Feel free to check out the other threads in the message board. Check out the chat room too; it's great!

hello

charlottebug — Mon, 15 Dec 2008 17:58:19 -0500

for some reason I wasn't able to send you a message via the network. if you go to my profile it's set up to receive messages from members. if that doesn't work, i'd be happy to post my email, but i thought i'd try this first. i'd love to talk sometime, it sounds like our stories aren't exactly the same but really i came on here looking for support from people who are experiencing long-term side effects of any kind, and i'm sure we'd find that we have a lot in common!

adult survivors of childhood cancer

Aquagirl18 — Thu, 11 Dec 2008 22:40:20 -0500

Hi there Charlotte,
I am also a survivor of a pediatric cancer only mine was Neuroblastoma. I have side effects from treatments as well. If you'd like to talk sometime even if we don't share similar stories feel free to send me a message via the network if not thats ok too.

adult survivors of childhood cancer

charlottebug — Thu, 04 Dec 2008 18:58:40 -0500

Hello! I just recently joined the discussion boards, and I noticed that several threads I was planning to respond to were years old, and thought I'd just start a new one.

I am a 27 year old survivor of osteosarcoma, I was diagnosed at age 9 in 1991 and in remission a year later. I had a year of high-dose chemotherapy and a limb salvage operation where they removed the majority of the muscles around my knee as well as (of course) the knee itself, the thigh bone and most of the shin bones. I am currently learning and dealing with numerous long-term side effects and am eager to hear about other long-term survivors and how they're dealing with the effects of chemo.