Cancer Survivors Network - ganglioneurblastoma - Comments

My daughter

dazzlemn — Thu, 04 Aug 2011 00:04:42 -0400

My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.

My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

Thanks much,

Dave

dazzlemn@gmail.com

My daughter

dazzlemn — Thu, 04 Aug 2011 00:03:48 -0400

My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

Thanks much,

Dave

dazzlemn@gmail.com

Ganglioneuroblastoma

EB — Sun, 22 Aug 2010 13:32:58 -0400

I was 25 when I was diagnosed. I know how hard it is. If you need any support or additional information, please let me know.

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username32 — Sat, 10 Oct 2009 09:13:33 -0400

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Hi yes, I was diagnosed with

dancer21 — Mon, 18 May 2009 16:39:22 -0400

Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.

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Member no longer active — Fri, 21 Dec 2007 16:02:52 -0500

This comment has been removed by the Moderator

ganglioneurblastoma

tlopez — Mon, 17 Dec 2007 21:55:41 -0500

Anybody out there have any expirence with this in adults? I have learned it is found in children. I am old enough to be rasing my own children so I really need to hear from someone over the age of 20. Any info will be helpful.