Cancer Survivors Network - Comments

I too, just had

sherria49 — Sat, 07 Nov 2009 08:46:54 -0500

one removed on Thursday, Nov 5th, the other scheduled for Tuesday, Nov 10th for the same reasons. I know I will be relieved to have it removed as well.

Good luck on Wednesday, I hope it's quick & easy for you!

Hugs ~ Sherri

Thank you Gail. I really

jmaddox915 — Sat, 07 Nov 2009 08:35:38 -0500

Thank you Gail. I really appreciate it.

fun filled weekend!

elm3544 — Sat, 07 Nov 2009 08:05:03 -0500

I have friends from Colorado here, same ones who came for the Komen walk.
We went to the fair Thurdsay, Zoo yesterday and in about an hour we will be going up in a balloon!
Probably a museum visit this afternoon and dinner at Rustler's Roost or another place with a beautiful view! Then its back to the usual...

Good News

maryannrogers — Sat, 07 Nov 2009 07:52:41 -0500

I was diagnosed in June, 2009. Had a bilateral mastectomy on June 23. My tumor was 4.5 cm and pathology report said HER2 negative. My oncologist had an Oncotype DX test on the tumor and my number was 8, which mean no chemo. I've been on Arimidex (post menopausal) now since that time and doing well. I also had no lymph node invasion and clear margins.Good luch and keep us posted.

Did this really happen?

roseann4 — Sat, 07 Nov 2009 07:46:31 -0500

I can't tell by the responses if this really happened. Did your guy really tell you he thinks he might be gay? If so, I would assume he has an issue with his identity. I have a female friend who discovered she was gay after being married for several years. She had no idea what normal attraction was so when she met a man who she loved as a person, she thought that was love. It was only after she was in theropy that she discovered that she was sexually attracted to women.

If this is really true, get that guy into theropy. No sense trying to continue a relationship which may bring you even more pain in the future.

I'm sorry this has happened. Uncertainty is more difficult than knowing.

Roseann

Hi Teri!

roseann4 — Sat, 07 Nov 2009 07:38:34 -0500

I know someone who has lived with Stage IV for 14 years. She has worked as a Nurse and has been able to continue for most of that time. A women in my support group has lived with Stage IV mets to her lungs for 7 years and is still going strong. She takes yoga once a week and her insturctor sais she is a star. She is in her early 70s! She volunteers her time giving support to chemo patients. I think the key to living with BC is having a full life for as long as we can. We must stay active and not allow fear to dominate of lives. No matter what stage cancer any of us is living with, the future is uncertain. It is also uncertain for everyone else but the difference is that we (bc survivors) know it. My goal is to make the most of each day and live in the now as much as possible. Not always easy!

You came to the right place. Do something nice for yourself today. You deserve it!

Roseann

great news

BonnieR — Sat, 07 Nov 2009 07:38:32 -0500

Hi Wendy, that is awesome results...congratulations along with lots of hugs. BonnieR

Good question ... good answers :-)

BonnieR — Sat, 07 Nov 2009 07:36:58 -0500

Hi Cindy, as you can see each lab is different and each person is different. I have a friend whose ca125 is always in 2000's and she has less cancer than I do when I go down to 6, yes that is not a typo. For me over 100 is very high anymore and our clinics norm is 25 or below, so go figure. So each lab can be different and then each person.

It sounds like you are in a very good place ~ P.T.L. Hugs BonnieRose

different and unique

BonnieR — Sat, 07 Nov 2009 07:33:36 -0500

Dear MissPokey, sorry to hear you had to switch to another combo, but you are so right we are all different and unique and what works for one doesn't work for another. I have been on gemzar and for me it didn't work well but the carbo has, so not sure how the combination is. I bet someone out here does though.I also juice and know it can't hurt, not sure how much it helps, amen to easier way to get veggies and fruits. Wishing you the best and well be watching for updates on this new combo for you.

Hugs ♥ Prayers Bonnie

Hello to another Bonnie

BonnieR — Sat, 07 Nov 2009 07:29:44 -0500

Hi Bonnie, I have been on both drugs but not together. I think you well hear from a few who have done the doxil and some who have had avastin with other drugs. The doxil worked for me and gave me a 3 month chemo break, just need to be extra careful for the hand/foot syndroym. The avastin was harder on me and had it with cytoxan, but when I tried it, back in 06 nothing was working and the cancer was spreading. The combination killed off some of the tumors and they have never returned and gave me another 3 month chemo break and I believe gave me almost 4 more years. Good luck on this next combination.

Hugs ♥ Prayers BonnieRose

Interesting article

Rewriternyc — Sat, 07 Nov 2009 07:07:33 -0500

Now I have tons of questions about how cancer actually spreads, the value of lymph node removal in determining such spread, and the small risk that such removal MIGHT actually impair an intact immune system in cases where there are only a few "escaped" cancer cells. There is so much that is not known about cancer, and we need so many more studies of UPSC!

Thanks.........

sherria49 — Sat, 07 Nov 2009 06:43:48 -0500

Natly! I know, I've had long hair my entire life. I am considering, depends on the regrowth when all is said and done.

Hugzzz

Ditto,

SandyL — Sat, 07 Nov 2009 06:29:25 -0500

what everyone else has posted before me, Craig. Sure sorry that you are having this continued pain. Wish there was something that we could all do for you besides the prayers that you are being offerede in your behalf. And they continue on and on and on and on...
Sandy

Yes it's the Oxy...

SandyL — Sat, 07 Nov 2009 06:25:36 -0500

according to our oncologist. It happened during the first treatment for my husband and continued for a few days after the pump was removed, tho it lessened in severity once pump was removed. He no longer has the jaw spasm - he's been off the txs since June. I would say that they gained in severity with each treatment he got, tho. Dr. said that a few do get these spasms. Isn't it weird that it's just with that first bite? So very strange-I told him that he should not stop eating. Cause you forget about it until you engage in that first bite.
Sandy

Stage 4

RE — Sat, 07 Nov 2009 05:36:22 -0500

Hi Teri, I am a stage 4 survivor. My mets were not to the bone but to the chest wall and sentinel node. I got the stage 4 dx in 98 and am going strong. I had a recurrance in 07, had chemo and surgery and am doing well today. I live a full live with grandkids who love to play with me, we go camping and travel whenever possible. There is life to be lived and I believe you will get there. I am so glad you found us, you will find that this board is filled with loving caring people who have walked in your shoes and understand.

Hugs,