treatment change

nancy591
nancy591 Member Posts: 1,027 Member
Spoke with the oncologist. My treatment will now be changed to Taxol/Avastin. Believe it or not this time around I am upset about losing my hair. I go next week for my first Taxol infusion. Since it is almost 2years since I've last had Taxol I am hoping it will work well for me again.
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Comments

  • kikz
    kikz Member Posts: 1,345 Member
    i wish you the best
    with your treatment. I cried when my hair started falling out but quickly made the decision to buzz it off. After that I was okay with it. I don't know how I would react a second time. It is normal to mourn the loss of our hair. What is that saying, "A woman's hair is her crowning glory." You are a beautiful woman and your hair is only a small part of you.

    Karen
  • jloe
    jloe Member Posts: 174
    Me too!
    I was a little upset the second time but I realized it was because it was an inconvenience more than anything. Good luck!
    Joni
  • clamryn
    clamryn Member Posts: 508
    2nd time around
    Nancy, I think this might be cocktail for you. Don't even think about the hair. I know that I felt that way too but you are beautiful inside and out. Just get well!

    (((Hugs)))
    Linda
  • clamryn
    clamryn Member Posts: 508
    jloe said:

    Me too!
    I was a little upset the second time but I realized it was because it was an inconvenience more than anything. Good luck!
    Joni

    blood pressure
    Joni, I had noticed on a previous comment that you had trouble with your blood pressure on the Avastin. I was wondering how high your blood pressure got if you don't mind me asking. I have been going through the same. I get kind of worried about it. They did start me on b/p meds but it is still high at times.

    Linda
  • antcat
    antcat Member Posts: 270
    Taxol Treatment
    Hi Nancy, I can honestly say I would feel the same way. When you were on Taxol the first time did you have any side effects, like neuropathy or anything else. Did it work for you.

    I hope all goes well for you next week.
  • srwruns
    srwruns Member Posts: 343
    Hoping this is the winning
    Hoping this is the winning cocktail for you! Sorry about the hair. It does look like you have very nice hair. Clinking my carbo/taxol cocktail glass with your new cocktail! Susan
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    antcat said:

    Taxol Treatment
    Hi Nancy, I can honestly say I would feel the same way. When you were on Taxol the first time did you have any side effects, like neuropathy or anything else. Did it work for you.

    I hope all goes well for you next week.

    Taxol is the 'good stuff'; highest % of positive results.
    I am very vain and I've lost all of my hair now 3 different times to taxol. And yet I would LOVE to be able to take taxol again, as twice taxol was able to get me into remission and NED. Alas, taxol no longer works its magic for me.

    But, think of it, Nancy: this is the shot you've been looking for that could get you into a decent remission and give you the chemo break you need so badly. Even I am not so vain that I would not trade my hair for that!! Taxol knocks back cancer for a larger percentage of women than any other chemo. Combine with Avastin and it sure looks like a winner to me!

    You are kinda shaking my faith in the chemo protocol I am currently fighting to get next: Avastin/Cytoxin. Didn't work for you? We are both papillary serous, so I think the same things may just work for the 2 of us. (Who knows? It's such a crap shoot!) My oncologist may be thinking Avastin/Gemzar for me next anyway; I'll know more Tuesday when I get the results of today's CT/PET.

    Losing all your hair still sucks; I can't argue that one. But treat yourself to a gorgeous NEW wig; and get another one every month you are on taxol, every one different. That's what I did and it made it all so much more bearable to always have a new look. And it's WINTER! Wigs & hats in winter are GREAT! (I was bald in summer once & I promise you WINTER is the time to be bald for the vain!) (((((Nancy))))
  • anicca
    anicca Member Posts: 334 Member
    I totally get it about the
    I totally get it about the hair. When I was told I would lose mine, I hardly even blinked. Now that it has come back (still very, very short,) I'm so happy with it, and especially with having eyelashes again, that I know I would be upset to lose it all over again. Getting my wigs was fun, but wearing a wig all the time is not, especially in warm weather, and hats also get to be a bit much after a while. I hope this is a winning combination for you and you will have your hair back along with your health.
  • leesag
    leesag Member Posts: 621 Member
    Thinking of you
    Nancy,

    I've been lurking a lot lately but I wanted to let you know that you and your family remain in my prayers. On the plus side, with such a long break between taxol-tinis, it should prove to be very effective! God Bless and keep you!
    Hugs!
    Leesa
  • Cindy Bear
    Cindy Bear Member Posts: 569
    Hi Nancy
    Hi Nancy. So glad you have a new plan in place and are going full speed ahead. I am sorry about the hair, can only imagine how disappointing that is. But like other posters have said, taxol may just be the ticket for you and You are beautiful, hair or no hair. Hugs and prayers,
    Cindy
  • eward
    eward Member Posts: 210
    gorgeous
    I am wishing you all the best. I know from your posts that you have been strong and feeling good. Your strength will help you deal with the Taxol. You are ready for this.
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    Taxol is good stuff
    If it didn't steal our hair, it would be perfect.

    I hope this cocktail is the winning one.

    Carlene
  • lenjam
    lenjam Member Posts: 51

    Taxol is good stuff
    If it didn't steal our hair, it would be perfect.

    I hope this cocktail is the winning one.

    Carlene

    Wishing you
    Wishing you great success that this is the ONE!
  • lenjam
    lenjam Member Posts: 51

    Taxol is good stuff
    If it didn't steal our hair, it would be perfect.

    I hope this cocktail is the winning one.

    Carlene

    Wishing you
    Wishing you great success that this is the ONE!
  • vj1
    vj1 Member Posts: 150
    lenjam said:

    Wishing you
    Wishing you great success that this is the ONE!

    Best to you
    Nancy,
    here's the best of the best in prayers and thoughts for a successful treatment. Don't worry about the hair, wigs can be fun!

    Verma
  • kayandok
    kayandok Member Posts: 1,202 Member
    Taxol
    Nancy, I'm sitting here in the chemo room as the taxol drips into my veins. It has always worked for me. Will you get the dense dose?
    Loosing your hair is bummer, and having something specific to cry for is sometimes cathartic.
    Hugs,
    K(⌒-⌒; )
  • jloe
    jloe Member Posts: 174
    clamryn said:

    blood pressure
    Joni, I had noticed on a previous comment that you had trouble with your blood pressure on the Avastin. I was wondering how high your blood pressure got if you don't mind me asking. I have been going through the same. I get kind of worried about it. They did start me on b/p meds but it is still high at times.

    Linda

    Linda,
    I was on bp meds

    Linda,
    I was on bp meds before the Avastin and I was 120/80 with the meds. However, after the 4th Avastin treatment it was at 150/90 and continued even after they increased my medication. After the 5th treatment, bp did not lower and the protein was elevated in the urine. He stopped the treatment before #6.
  • Lisa13Q
    Lisa13Q Member Posts: 677
    You and Mom are on the same thing now
    They are pulling out the big guns....you are beautiful with or without hair....
  • upsofloating
    upsofloating Member Posts: 466 Member
    This should be a good one
    This should be a good one for you Nancy - getting the big guns together! But I hear you about the hair, I took the first go round in stride but a second is tougher -- but the results will make it all worthwhile. I've got you in my thoughts and prayers.
    Annie
  • VictoriaSF
    VictoriaSF Member Posts: 165
    i wish you the best
    Wishing you great success! Hope and it will help!

    Blessings
    Victoria