21 Year Old NSMLC Adenocarcinoma Stage 4

2

Comments

  • phelangelica
    phelangelica Member Posts: 17
    medi_2 said:

    hullo!
    I've read arguments for both sides and have come to my own conclusions but will not venture to say what is 'correct' and 'not correct', I only know what works for me and when I see someone 50 or more pounds under their ideal weight, I don't think instant breakfast is going to do much harm. Also the 'sugar feeds cancer' debate rages on but I think people are taking it too literaly (H & S, where are you? ;)). But as all cancers are not alike, so all treatments are not alike and different strokes for different folks (oh gosh I sound like a dork). Welcome to our site and we look forward to hearing more from you!
    Medi

    Hullo!
    Sorry if it seemed very disrespectful to say that. My experience is only relatively recent, and im a caregiver, not a survivor. So whatever has worked for you is what is "correct" for you. But my comments were blurted hastily because of conviction and passion to help someone else embarking on this journey. For three months I've immersed myself thoroughly in as much material as humanly possible with the crazed enthusiasm of someone trying to save the life of someone i love. And its a recurring theme that sugar and highly processed foods are on the "avoid" side of the cancer menu. Yes i'm skeptical of mainstream commercial processed food products even before the diagnosis, but im not a wingnut. After three years going through the wringer of law school, I'm pretty good at sussing out the legitimacy of my resources and am not so desperate that i'd cling to quackery for hope. Even if you still have a kernel of doubt about the value of the studies that show negative impact of sugar, I dont think that extra sugar in the diet does anyone enough good to make it worth taking the risk of guzzling it in the form of commercial processed-to death products like ensure that have no relation to real foods that grow out of the ground. I mean, Certainly for the pleasure of living its worth having pleasures of favorite food items that may contain sugar. Savor a creme-brulee if that feels good. But drinking ensure? Doesnt seem worth it. So processed and sweet. Long shelf life usually means a food product is not great for human bodies. Commercially prepared drinks are convenient but should not be the cornerstone of a cancer diet. How about chicken broth? theres a wonderful hydrating nourishing and affordable alternative. Given a diagnosis like this, why not go for passionately learning about how to care for a body with great living foods. whats the downside?
  • phelangelica
    phelangelica Member Posts: 17

    Scary claims circulate on
    Scary claims circulate on the Internet that everyday objects and products, such as plastic and deodorant, are secret cancer causes. Beyond being wrong, many of these myths may cause you to worry unnecessarily about your own health and the health of your family.

    Before you panic, take a look at the facts. Here, Timothy Moynihan, M.D., a cancer specialist at Mayo Clinic, Rochester, Minn., takes a closer look at some popular myths about cancer causes and explains why they just aren't true.


    Myth 1: People with cancer shouldn't eat sugar, since it can cause cancer to grow faster.

    Fact: Sugar doesn't make cancer grow faster. All cells, including cancer cells, depend on blood sugar (glucose) for energy. But giving more sugar to cancer cells doesn't speed their growth. Likewise, depriving cancer cells of sugar doesn't slow their growth.

    This misconception may be based in part on a misunderstanding of positron emission tomography (PET) scans, which use a small amount of radioactive tracer — typically a form of glucose. All tissues in your body absorb some of this tracer, but tissues that are using more energy — including cancer cells — absorb greater amounts. For this reason, some people have concluded that cancer cells grow faster on sugar. But this isn't true.

    Interesting Heartof Soul
    Well, I must say I find it interesting that you were so quick to broadcast the study that showed effectiveness of diabetes drugs in preventing the spread of cancer but then would poo-poo the notion that sugar influences the spread of cancer.

    Since diabetes medications regulate sugar processes in the body is it such a stretch for you to imagine the benefits of a person regulating their own sugar intake as a preventative measure instead of purchasing pharmaceuticals to do it for them??
  • NayPaul
    NayPaul Member Posts: 230 Member

    Hullo!
    Sorry if it seemed very disrespectful to say that. My experience is only relatively recent, and im a caregiver, not a survivor. So whatever has worked for you is what is "correct" for you. But my comments were blurted hastily because of conviction and passion to help someone else embarking on this journey. For three months I've immersed myself thoroughly in as much material as humanly possible with the crazed enthusiasm of someone trying to save the life of someone i love. And its a recurring theme that sugar and highly processed foods are on the "avoid" side of the cancer menu. Yes i'm skeptical of mainstream commercial processed food products even before the diagnosis, but im not a wingnut. After three years going through the wringer of law school, I'm pretty good at sussing out the legitimacy of my resources and am not so desperate that i'd cling to quackery for hope. Even if you still have a kernel of doubt about the value of the studies that show negative impact of sugar, I dont think that extra sugar in the diet does anyone enough good to make it worth taking the risk of guzzling it in the form of commercial processed-to death products like ensure that have no relation to real foods that grow out of the ground. I mean, Certainly for the pleasure of living its worth having pleasures of favorite food items that may contain sugar. Savor a creme-brulee if that feels good. But drinking ensure? Doesnt seem worth it. So processed and sweet. Long shelf life usually means a food product is not great for human bodies. Commercially prepared drinks are convenient but should not be the cornerstone of a cancer diet. How about chicken broth? theres a wonderful hydrating nourishing and affordable alternative. Given a diagnosis like this, why not go for passionately learning about how to care for a body with great living foods. whats the downside?

    Agree with most of what u say, healthy diet serves a purpose...... and I agree that cancer utilizes sugar....as do all cells.

    But the body will synthesize the sugar it needs. The brain is the most metabolically active portion of the body consuming massive amounts of glycogen. Hence that is the reason that pet scans are done on the body... but not the head. The head "lights up" like the sun. So would consuming sugar enhance brain activity... doubtful.

    Your final statment is...what's the downside...speaking from experience as a caregiver... it rapid weight loss. If chemo/cancer patients are having a tough time eating various things, then they should eat what they want in order to keep an acceptble weight, or even pack on a few lbs if on the skinny side.

    We eat lots of brocoli, tomatos, veges in my family. That should be part of a well balanced long term diet, and I believe too may prevent cancer.... but the proverbial horse is out of the barn... my opinion... also based on research, is that sugar consumption is really only an issue when blood sugar levels cannot be regulated. If that is not a concern, then patients should eat what provides calories.

    ....the debate rages on.....;) fueled by sugar.
  • stayingcalm
    stayingcalm Member Posts: 650 Member

    Evidence that "extra" Sugar corrupts cells
    One of several such studies reported in Science Daily - dated Feb 6 2010
    below exerpt from http://www.sciencedaily.com/releases/2010/02/100205112105.htm

    Suspecting that the sugar known as O-GlcNAc might play a role in cell division, the Johns Hopkins team devised a protein-mapping scheme using new mass spectrometric methods. Essentially, they applied a combination of chemical modification and enrichment methods, and new fragmentation technology to proteins that comprise the cell division machinery in order to out and analyze their molecular makeup, identifying more than 150 sites where the sugar molecule known as O-GlcNAc was attached. Phosphates were found to be attached at more than 300 sites...

    ....Using a standard human cell line (HeLa cells), the scientists discovered abnormalities when they disrupted the cell division process by adding extra of the sugar molecule O-GlcNAc. Although the cell's chromosome-containing nuclei divided normally, the cells themselves didn't divide, resulting in too many nuclei per cell -- a condition known as polyploidy that's exhibited by many cancer cells...

    As important as the discovery is to a deeper understanding of cell division, Hart says, this extensive cross talk between O-GlcNAc and phosphorylation is paradigm-shifting in terms of signaling. Signaling is how a cell perceives its environment, and how it regulates its machinery in response to stimuli. The new sugar switches reveal that the cellular circuitry is much more complex than previously thought, he adds.

    The research was funded by the National Institutes of Health.

    Johns Hopkins authors on the paper are Zihao Wang, Chad Slawson, Kaoru Sakabe, Win D. Cheung and Gerald W. Hart. Other authors are Namrata D. Udeshi, Philip D. Compton, Jeffrey Shabanowitz and Donald F. Hunt, all of the University of Virginia.

    Phelangelica
    Please read other articles about this, you'll understand that O-GlcNAc is not the same as the sugars in food ;-)

    ** Now, let's give Stayalive her thread back, please.**
  • trft
    trft Member Posts: 48
    Adenocarcinoma NSMLC Stage 4.
    Hi Stayalive, Oh man... you are in a real tough place. Your son must still be stinging from diagnosis. I also had Adenocarcinoma NSMLC, but my staging was much better. As to sugar or not sugar... I almost feel the discussion here is inappropriate, but you may feel the need to research the issue. It's a hard thing to do with lung cancer. Hang in there. Tim aka trft
  • phelangelica
    phelangelica Member Posts: 17

    Phelangelica
    Please read other articles about this, you'll understand that O-GlcNAc is not the same as the sugars in food ;-)

    ** Now, let's give Stayalive her thread back, please.**

    This is a discussion board
    Hey grumpy smurf, This is a discussion board and my replies are my partcipation in a discussion. Secondly, my replies are appropriate to a thread and directly respond to the post which asks for "any info and help you can offer.... What can we do? Diet, supplements?"

    It pains me to read your defensiveness and to be treated like an intruder for sharing information that i've culled from so many sources that are specificlaly intended to be helpful to people who have cancer to live and live well.

    It is my belief that when someone asks for what they can do proactively for their health in the face of such a terrifying diagnosis, suggesting carnation instant breakfast is not empowering them with information.

    Telline people it doesnt matter what they eat or what they do, that passively taking synthetic pharmaceuticals and "instant foods" is their best bet, well, to me thats not only untrue, its disempowering and depressing. Theres a lot people can do for their health. Staying positive and getting exercise are paramount. So is eating foods that would rot or sprout if left out for a while - rotting or sprouting is a good sign they might actually digest in your body. Prepackaged, highly processed sugar foods are not anybody's friend. calories are not all equal. you can thrive on a low sugar diet. I've seen it. So have you. Horses weigh a ton, literally, and they dont need carnation instant breakfast.

    If learning about healthy eating and making informed choices strikes you as more burdensome than empowering thats you. It doesnt mean you dont actually have power in making choices, or that what you choose doesnt make a difference for your body. feel free to ignore the advice and Stayalive and her son can decide for themselves.

    be well.
  • phelangelica
    phelangelica Member Posts: 17
    NayPaul said:

    Agree with most of what u say, healthy diet serves a purpose...... and I agree that cancer utilizes sugar....as do all cells.

    But the body will synthesize the sugar it needs. The brain is the most metabolically active portion of the body consuming massive amounts of glycogen. Hence that is the reason that pet scans are done on the body... but not the head. The head "lights up" like the sun. So would consuming sugar enhance brain activity... doubtful.

    Your final statment is...what's the downside...speaking from experience as a caregiver... it rapid weight loss. If chemo/cancer patients are having a tough time eating various things, then they should eat what they want in order to keep an acceptble weight, or even pack on a few lbs if on the skinny side.

    We eat lots of brocoli, tomatos, veges in my family. That should be part of a well balanced long term diet, and I believe too may prevent cancer.... but the proverbial horse is out of the barn... my opinion... also based on research, is that sugar consumption is really only an issue when blood sugar levels cannot be regulated. If that is not a concern, then patients should eat what provides calories.

    ....the debate rages on.....;) fueled by sugar.

    the week after chemo, diet must vary
    As a general rule we observe a diet low in sugar and high in whole grain foods between chemo rounds. But the week after chemo, your stomach cant work that hard to digest whole grains etc. So processed or overcooked or juiced or pureed foods may be the best way to keep something down. Once G is back on his feet we resume a healthful diet.

    Also I've seen first hand the benefits of having G supplement with ginger twice a day for three days before chemo. For G it has meant the difference between functionality and total abject misery. it cuts the nausea immensely in combination with the nausea meds.

    We did two rounds without ginger and two rounds with ginger. He will never agree to chemo without the ginger protocol again. I will post the abstract of the study findings lower on the thread.
  • phelangelica
    phelangelica Member Posts: 17
    Things we wish we knew sooner about Chemo
    To supplement with Ginger starting 3 days before (see abstract below)
    to wear acupressure wristbands 48-72 hours after - like seabands - especially if you have to ride in a car. Proper placement is important. Cannabis really helps appetite and nausea it helps a lot. I hope you have access to it.

    for several days afterwards Avoid grease and anything else hard to digest. Hydration is more important than food. Tiny sips stay down, big gulps dont stay down. If he cant drink any water get him IV fluids, it will accelerate his recovery. Sugary drinks are to be avoided, if you want something like gingerale then dilute it with water.

    Have a few kinds of broth around. eat what is craved within reason, nothing super greasy. chew it a lot. make life easy for your stomach.

    Take Milk Thistle to reduce toxic burden on liver after chemo.

    Get acupuncture if you can between treatments, and taking probiotics and enzymes before meals can help with rebuilding digestion and immune system after the nausea passes and foods can be eaten again.



    ABSTRACT: Take ginger as a method to prevent nausea, according to a University
    of Rochester Medical Center study that was funded by the National
    Cancer Institute. The study involved 644 cancer patients who were
    scheduled to have at least three chemotherapy treatments. Chemo
    patients in the study were given either ginger or a placebo. Those
    who received the ginger rated their nausea level at just two or three
    on a scale of one to seven.

    Patients took ginger three days before and three days after getting
    chemo. They took three capsules twice a day. The most effective doses
    were 1 g and 0.5 g a day, which equal 1/2 tsp. or 1/4 tsp. of ground
    ginger. Ginger is available at most health food stores.

    During the study, all patients also received a standard drug, such as
    Zofran or Kytril, to prevents nausea and vomiting.
  • medi_2
    medi_2 Member Posts: 505 Member

    This is a discussion board
    Hey grumpy smurf, This is a discussion board and my replies are my partcipation in a discussion. Secondly, my replies are appropriate to a thread and directly respond to the post which asks for "any info and help you can offer.... What can we do? Diet, supplements?"

    It pains me to read your defensiveness and to be treated like an intruder for sharing information that i've culled from so many sources that are specificlaly intended to be helpful to people who have cancer to live and live well.

    It is my belief that when someone asks for what they can do proactively for their health in the face of such a terrifying diagnosis, suggesting carnation instant breakfast is not empowering them with information.

    Telline people it doesnt matter what they eat or what they do, that passively taking synthetic pharmaceuticals and "instant foods" is their best bet, well, to me thats not only untrue, its disempowering and depressing. Theres a lot people can do for their health. Staying positive and getting exercise are paramount. So is eating foods that would rot or sprout if left out for a while - rotting or sprouting is a good sign they might actually digest in your body. Prepackaged, highly processed sugar foods are not anybody's friend. calories are not all equal. you can thrive on a low sugar diet. I've seen it. So have you. Horses weigh a ton, literally, and they dont need carnation instant breakfast.

    If learning about healthy eating and making informed choices strikes you as more burdensome than empowering thats you. It doesnt mean you dont actually have power in making choices, or that what you choose doesnt make a difference for your body. feel free to ignore the advice and Stayalive and her son can decide for themselves.

    be well.

    ?
    Phelangelica, Have you ever felt like you had been chewing on metal? Or looked at your favorite food and wanted to puke? I sincerely hope you never do Dear. And do you know what? When I was being treated (very aggresively); Carnation Instant Breakfast tasted soooo good when nothing else did. Thank you for your advice but I follow my own path.
    Stayalive, I am sorry to intrude on your thread. Please keep writing and keep us posted. I think you will find that reading about other's experiences makes you feel like you are not alone.
    cheers
    Medi
  • phelangelica
    phelangelica Member Posts: 17
    medi_2 said:

    hello!
    The only kind of supplements you will need are drinks like Ensure, Boost, Carnation Instant Breakfast etc. Don't try to load him up with antitoxidants; they will help the cancer cells grow too. He may lose his appetite, so let him eat anything he can get down and keep down. He is young and strong, he can do it! I beat it and I am 53. I didn't have the heart complications but I had the chemo and rads and I have no evidence of disease for 2 years now. I never stopped running while in treatment. I don't consider it a miracle because for some odd reason I felt like I was in control. Good luck to you and your son and keep writing! We will help.
    Cheers
    Medi

    I can respect your journey
    I can respect your journey Medi. very much. And still, in the interest of being helpful to the orginal posters others I can thorougly disagree with you and try to debunk the advice that the Carnation Instant Breakfast is the "only kind of supplements you will need" and that "antioxidants will help the cancer cells grow" Thats misinformation.

    Antioxidants do not help cancer cells grow. Theres a lot that stay alive can do to help her son! And carnation instant breakfast is not "the only supplement" of value to anyone diagnosed with cancer. In fact theres plenty to indicate that the inverse is true.

    If the discussion is instead about what tastes good to you or the effect of chemo on tastebuds, then i certainly cannot disagree with you about what you liked to drink after chemo.

    My life as a caregiver is largely compassion driven, i dont need the guilt-trips to spur my involvement research and concern.
  • phelangelica
    phelangelica Member Posts: 17
    medi_2 said:

    ?
    Phelangelica, Have you ever felt like you had been chewing on metal? Or looked at your favorite food and wanted to puke? I sincerely hope you never do Dear. And do you know what? When I was being treated (very aggresively); Carnation Instant Breakfast tasted soooo good when nothing else did. Thank you for your advice but I follow my own path.
    Stayalive, I am sorry to intrude on your thread. Please keep writing and keep us posted. I think you will find that reading about other's experiences makes you feel like you are not alone.
    cheers
    Medi

    Empowering vs. validating
    Youre experience is of course valid. i didnt think this thread was about what tasted good to you and the effect of chemo on your tastebuds.

    I think the discussion was about what someone with a newly diagnosed son who is reeling with that terrible disempowered helpless feeling can do. What tools she can use to empower herself as a caregiver and support her son. I've been where she is. Right where she is. And you saying that carnation et al is "the only supplement" she should use, or that antioxidants feed cancer is not just scientifically untrue, but its a big bummer.

    Sorry, i wont be guilt tripped into agreeing with those 2 statements. They arent true.
  • mamacita5
    mamacita5 Member Posts: 254 Member

    Things we wish we knew sooner about Chemo
    To supplement with Ginger starting 3 days before (see abstract below)
    to wear acupressure wristbands 48-72 hours after - like seabands - especially if you have to ride in a car. Proper placement is important. Cannabis really helps appetite and nausea it helps a lot. I hope you have access to it.

    for several days afterwards Avoid grease and anything else hard to digest. Hydration is more important than food. Tiny sips stay down, big gulps dont stay down. If he cant drink any water get him IV fluids, it will accelerate his recovery. Sugary drinks are to be avoided, if you want something like gingerale then dilute it with water.

    Have a few kinds of broth around. eat what is craved within reason, nothing super greasy. chew it a lot. make life easy for your stomach.

    Take Milk Thistle to reduce toxic burden on liver after chemo.

    Get acupuncture if you can between treatments, and taking probiotics and enzymes before meals can help with rebuilding digestion and immune system after the nausea passes and foods can be eaten again.



    ABSTRACT: Take ginger as a method to prevent nausea, according to a University
    of Rochester Medical Center study that was funded by the National
    Cancer Institute. The study involved 644 cancer patients who were
    scheduled to have at least three chemotherapy treatments. Chemo
    patients in the study were given either ginger or a placebo. Those
    who received the ginger rated their nausea level at just two or three
    on a scale of one to seven.

    Patients took ginger three days before and three days after getting
    chemo. They took three capsules twice a day. The most effective doses
    were 1 g and 0.5 g a day, which equal 1/2 tsp. or 1/4 tsp. of ground
    ginger. Ginger is available at most health food stores.

    During the study, all patients also received a standard drug, such as
    Zofran or Kytril, to prevents nausea and vomiting.

    Foods during Chemo
    Medi I agree with you....that metal taste was the worst! I found anything creamy that had some fat content in it helped me the most. Crunchy salads with ranch dressing really hit the spot, as well as chicken pot pie! I also stumbled upon fresh coconut right from the shell helped. If I chewed a piece of fresh coconut it took the taste from my mouth for a bit. I did gain weight rather than losing during chemo because of my eating habits but my doctor was thrilled because it is easier to tolorate chemo if you don't lose too much weight. I am now doing VERY well and started a yoga class last night. Now that I am eating normally again my weight has settled back down to normal as well.

    All the best to you and your son as you fight the fight!
  • medi_2
    medi_2 Member Posts: 505 Member
    mamacita5 said:

    Foods during Chemo
    Medi I agree with you....that metal taste was the worst! I found anything creamy that had some fat content in it helped me the most. Crunchy salads with ranch dressing really hit the spot, as well as chicken pot pie! I also stumbled upon fresh coconut right from the shell helped. If I chewed a piece of fresh coconut it took the taste from my mouth for a bit. I did gain weight rather than losing during chemo because of my eating habits but my doctor was thrilled because it is easier to tolorate chemo if you don't lose too much weight. I am now doing VERY well and started a yoga class last night. Now that I am eating normally again my weight has settled back down to normal as well.

    All the best to you and your son as you fight the fight!

    !
    You will looove yoga! Let us know how it goes.
    Medi
  • stayingcalm
    stayingcalm Member Posts: 650 Member

    Things we wish we knew sooner about Chemo
    To supplement with Ginger starting 3 days before (see abstract below)
    to wear acupressure wristbands 48-72 hours after - like seabands - especially if you have to ride in a car. Proper placement is important. Cannabis really helps appetite and nausea it helps a lot. I hope you have access to it.

    for several days afterwards Avoid grease and anything else hard to digest. Hydration is more important than food. Tiny sips stay down, big gulps dont stay down. If he cant drink any water get him IV fluids, it will accelerate his recovery. Sugary drinks are to be avoided, if you want something like gingerale then dilute it with water.

    Have a few kinds of broth around. eat what is craved within reason, nothing super greasy. chew it a lot. make life easy for your stomach.

    Take Milk Thistle to reduce toxic burden on liver after chemo.

    Get acupuncture if you can between treatments, and taking probiotics and enzymes before meals can help with rebuilding digestion and immune system after the nausea passes and foods can be eaten again.



    ABSTRACT: Take ginger as a method to prevent nausea, according to a University
    of Rochester Medical Center study that was funded by the National
    Cancer Institute. The study involved 644 cancer patients who were
    scheduled to have at least three chemotherapy treatments. Chemo
    patients in the study were given either ginger or a placebo. Those
    who received the ginger rated their nausea level at just two or three
    on a scale of one to seven.

    Patients took ginger three days before and three days after getting
    chemo. They took three capsules twice a day. The most effective doses
    were 1 g and 0.5 g a day, which equal 1/2 tsp. or 1/4 tsp. of ground
    ginger. Ginger is available at most health food stores.

    During the study, all patients also received a standard drug, such as
    Zofran or Kytril, to prevents nausea and vomiting.

    Hmmm
    Yes, I've heard those acupressure wristbands can cure anything ;-) Does it matter what color they are? Is blue ok? Goes with my eyes.

    Stayalive, I'm sure phelangelica believes she is doing the correct thing, but before you do anything please be sure to run it by your son's doctor, ask what she/he thinks. Best of luck and science to your son and to you!
    •stayingcalm
  • NayPaul
    NayPaul Member Posts: 230 Member

    Things we wish we knew sooner about Chemo
    To supplement with Ginger starting 3 days before (see abstract below)
    to wear acupressure wristbands 48-72 hours after - like seabands - especially if you have to ride in a car. Proper placement is important. Cannabis really helps appetite and nausea it helps a lot. I hope you have access to it.

    for several days afterwards Avoid grease and anything else hard to digest. Hydration is more important than food. Tiny sips stay down, big gulps dont stay down. If he cant drink any water get him IV fluids, it will accelerate his recovery. Sugary drinks are to be avoided, if you want something like gingerale then dilute it with water.

    Have a few kinds of broth around. eat what is craved within reason, nothing super greasy. chew it a lot. make life easy for your stomach.

    Take Milk Thistle to reduce toxic burden on liver after chemo.

    Get acupuncture if you can between treatments, and taking probiotics and enzymes before meals can help with rebuilding digestion and immune system after the nausea passes and foods can be eaten again.



    ABSTRACT: Take ginger as a method to prevent nausea, according to a University
    of Rochester Medical Center study that was funded by the National
    Cancer Institute. The study involved 644 cancer patients who were
    scheduled to have at least three chemotherapy treatments. Chemo
    patients in the study were given either ginger or a placebo. Those
    who received the ginger rated their nausea level at just two or three
    on a scale of one to seven.

    Patients took ginger three days before and three days after getting
    chemo. They took three capsules twice a day. The most effective doses
    were 1 g and 0.5 g a day, which equal 1/2 tsp. or 1/4 tsp. of ground
    ginger. Ginger is available at most health food stores.

    During the study, all patients also received a standard drug, such as
    Zofran or Kytril, to prevents nausea and vomiting.

    Ginger?
    According to the abstract, the patients who received givnger rated their nausea at just a two or three on a scale of one to seven....

    Do you know at what number those who took a placebo rated their nausea? I did not see that included here.
  • stayalive
    stayalive Member Posts: 24
    NayPaul said:

    Ginger?
    According to the abstract, the patients who received givnger rated their nausea at just a two or three on a scale of one to seven....

    Do you know at what number those who took a placebo rated their nausea? I did not see that included here.

    Thanks for all Useful Info
    Thanks to all for sharing all the useful info.

    My son goes back for his 2nd course of chemo this Fri. He will have ultrasounds & tests before he starts the 2nd course. He reads about sugar and tries to avoid it though he takes Agave Nectar. He seems to continue to look skinnier though he has not lost his appetite completely. However, he is coughing alot more which worries me tremendously. If fluid continues to build up in his heart membrane, the doctors will have a permanent hole (sorry not sure what the medical term is for this procedure) to drain the fluid from his heart membrane to the stomach and I'm very worried that this will cause the cancerous cells to build up in his stomach & other organs.

    My son is doing meditations and Qing-gong. There are different meditation & breathing techniques in Qing Gong that increases inner strength and inner oxygen level that we are hoping will help our fight against this disease.

    We heard of a teacher who had Stage IV cancer and had gone thru 28 chemo courses with no success and the doctors basically sent him home saying there was nothing they can do. So this teacher for the next 1 year travelled to China to learn different Qing gong techniques and now he's in remission for 8 years. He's now a Qing Gong master inspiring other cancer patients to defeat this disease. We are inspired by this and my son goes to the Qing Gong sessions twice a week. Of course he's the youngest learner in the group but that does not discourage him.

    We are hoping that we will get over this difficult challenge and that my son can continue to live his dreams.
  • havinghope
    havinghope Member Posts: 9
    stayalive said:

    Thanks for all Useful Info
    Thanks to all for sharing all the useful info.

    My son goes back for his 2nd course of chemo this Fri. He will have ultrasounds & tests before he starts the 2nd course. He reads about sugar and tries to avoid it though he takes Agave Nectar. He seems to continue to look skinnier though he has not lost his appetite completely. However, he is coughing alot more which worries me tremendously. If fluid continues to build up in his heart membrane, the doctors will have a permanent hole (sorry not sure what the medical term is for this procedure) to drain the fluid from his heart membrane to the stomach and I'm very worried that this will cause the cancerous cells to build up in his stomach & other organs.

    My son is doing meditations and Qing-gong. There are different meditation & breathing techniques in Qing Gong that increases inner strength and inner oxygen level that we are hoping will help our fight against this disease.

    We heard of a teacher who had Stage IV cancer and had gone thru 28 chemo courses with no success and the doctors basically sent him home saying there was nothing they can do. So this teacher for the next 1 year travelled to China to learn different Qing gong techniques and now he's in remission for 8 years. He's now a Qing Gong master inspiring other cancer patients to defeat this disease. We are inspired by this and my son goes to the Qing Gong sessions twice a week. Of course he's the youngest learner in the group but that does not discourage him.

    We are hoping that we will get over this difficult challenge and that my son can continue to live his dreams.

    Hi Stayalive, my husband
    Hi Stayalive, my husband also have stage 4 lung cancer and had heard good things about Qing Gong. He too is following a teacher who had bone cancer about 30 years ago. Same like your son's teacher, he went back to Hong Kong did surgery and refused all chemo and radiation, instead he went to learn Qing Gong. He has other patients with other illness who are his students and all are looking more healthy than ever.

    God bless and lets keep hope alive.
  • phelangelica
    phelangelica Member Posts: 17
    NayPaul said:

    Ginger?
    According to the abstract, the patients who received givnger rated their nausea at just a two or three on a scale of one to seven....

    Do you know at what number those who took a placebo rated their nausea? I did not see that included here.

    Ginger
    Do look up the studies on acupressure for chemo nausea. They are highly suggestive of efficacy and I know a lot of people who benefit from them. Pretty sure any color will help, Stayingcalm, if its correctly placed on the P6 point. Studies using "sham points" showed that the patient did not enjoy a placebo effect. It has to be correctly placed.

    And do look at the study on ginger and hear my experience, im smart and observant and Im sharing my experience: that it works, it helps a lot with nausea.

    That was also the experience of the participants in the double blind study funded by the National Cancer Institute. If that strikes you as quackery but you embrace the pharmaceuticals that are being sold to you by corporations that have a huge motive to move their product to you that is your lifestyle choice.

    Keep in mind that Ginger and Acupressure are affordable and effective and easily available to everyone and theres really no harm in you setting aside your cynicism and giving these things a try.

    I have no motive to mislead anyone: do what you can to improve quality of life and balance the toxic arsenal of pharmaceutical treatments with healthy lifestyle choices.
  • stayingcalm
    stayingcalm Member Posts: 650 Member

    Ginger
    Do look up the studies on acupressure for chemo nausea. They are highly suggestive of efficacy and I know a lot of people who benefit from them. Pretty sure any color will help, Stayingcalm, if its correctly placed on the P6 point. Studies using "sham points" showed that the patient did not enjoy a placebo effect. It has to be correctly placed.

    And do look at the study on ginger and hear my experience, im smart and observant and Im sharing my experience: that it works, it helps a lot with nausea.

    That was also the experience of the participants in the double blind study funded by the National Cancer Institute. If that strikes you as quackery but you embrace the pharmaceuticals that are being sold to you by corporations that have a huge motive to move their product to you that is your lifestyle choice.

    Keep in mind that Ginger and Acupressure are affordable and effective and easily available to everyone and theres really no harm in you setting aside your cynicism and giving these things a try.

    I have no motive to mislead anyone: do what you can to improve quality of life and balance the toxic arsenal of pharmaceutical treatments with healthy lifestyle choices.

    Please do -
    - post a link to the studies. And I'm also interested in the scientific proof for the efficacy of the wristbands, but I'll tell you, acupressure sits right up there with homeopathy for sheer silliness, in my book. Ginger for nausea, well...It's possible, but does it work better than Zofran or Emend or Kytril?
    Thx for the info.
  • rubyb
    rubyb Member Posts: 1
    survivor stage IV lung cancer
    Hi Stayalive!!

    Just wanted to let you know that there is a tremendous amount of hope for your son. I was diagnosed with stage IV lung cancer in May of 2010 with mets to the lymph nodes of the mediastinum and the left hip. I don't have any professional advice to offer but I can tell you some of the things that I did. First and foremost I surrounded myself with a wonderful group of very supportive friends who only would believe a complete cure for me. They all prayed for me and asked several of their friends and needless to say before it was all said and done there were probably thousands of people praying for me. Whenever a person asked if they could pray for me I would stop and allow them to pray for me. These two things sustained me and gave me a great sense of peace.

    Nutritionally I took high doses of vitamin D, a really good mega multiple, fish oil, co-Q10, and ate a really good diet of fresh fruits, vegetables and quality protein. I ate a lot of asparagus as this has been shown to shrink lung tumors. I drank lots of alkaline water and did yoga at least 3-5 times a week for strengthening body, mind and spirit...

    I also did 6 rounds of chemotherapy at an excellent hospital here in Michigan, Henry Ford. I just knew I was going to be ok and on September 30, 2010 my doctor could find no evidence of cancer.

    Is there hope for your son and can you expect a miracle??? Absolutely, expect it and accept nothing less!!