Bone Cancer Mets from Breast Cancer

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Comments

  • keep_on_going
    keep_on_going Member Posts: 21
    #22
    cookie97 said:

    I have bone mets as well..
    Yeah me too :( i was dxd in May of this year with mets to bone from get go. I have just completed my 7th round of Taxotere/Cytoxin along with Zometa. My last PET showed all clear except for one spot remaining on my left Illiac originally dxd with T11, T12, L4, L5 both femurs, pelvis, and both illiac. Meds are doing pretty well at keeping everything at bay. I am supposed to have 2 more treatments then another PET hopefully all will be clear at that time.
    The fear is somewhat daunting to say the least. I remember saying to the onc. "Oh in bone. Isn't that better than the liver or lungs?" Almost like it was good news. Crazy me! Guess we hold on to whatever thread of hope that is out there?
    I don't have any pain, but onc said that if I did they could use rads to alleviate that.
    Good luck to you and don't let it get you down.

    Peace and Love,
    Edie

    Good luck
    I'll pray there are no more hot spots, and the chemo doesn't get you down. The Taxotere was close to unbearable for me
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #23
    keep_on_going said:

    I hope you find your answer
    I have trouble when people ask if I'm a survivor. Yes, I am surviving..but not like I'm disease free or cured. And that is what they perceive a survivor to be. I go every 3 weeks for my Herceptin. I had to stop the Zometa because I developed of osteonecrosis of the jaw. Every scan and blood draw is just like when I was waiting for the first biopsy results It has become a chronic condition..like diabetes..no cure but some great treatments..and new things coming every day.
    Over time I have learned to celebrate each day I can get out of bed, manage my pain, and make someone smile

    Praying for you!

    Praying for you!
  • fauxma
    fauxma Member Posts: 3,577 Member
    #24
    keep_on_going said:

    Good luck
    I'll pray there are no more hot spots, and the chemo doesn't get you down. The Taxotere was close to unbearable for me

    Smartine,
    You are in my
    Smartine,
    You are in my prayers that treatments are effective.
    Stef
  • iowasignterp
    iowasignterp Member Posts: 55
    #25
    keep_on_going said:

    I hope you find your answer
    I have trouble when people ask if I'm a survivor. Yes, I am surviving..but not like I'm disease free or cured. And that is what they perceive a survivor to be. I go every 3 weeks for my Herceptin. I had to stop the Zometa because I developed of osteonecrosis of the jaw. Every scan and blood draw is just like when I was waiting for the first biopsy results It has become a chronic condition..like diabetes..no cure but some great treatments..and new things coming every day.
    Over time I have learned to celebrate each day I can get out of bed, manage my pain, and make someone smile

    yes, the survivor ? is interesting
    Am I a survivor? well, I agree, I am not cured or disease free and I am not completely a warrior either at this point in time. almost like a limbo or purgatory. I agree with you, keep-on-going, I am surviving but have trouble with that question. I am so glad you decided to post here. you get it. thanks.
  • Megan M
    Megan M Member Posts: 3,000
    #26
    cookie97 said:

    I have bone mets as well..
    Yeah me too :( i was dxd in May of this year with mets to bone from get go. I have just completed my 7th round of Taxotere/Cytoxin along with Zometa. My last PET showed all clear except for one spot remaining on my left Illiac originally dxd with T11, T12, L4, L5 both femurs, pelvis, and both illiac. Meds are doing pretty well at keeping everything at bay. I am supposed to have 2 more treatments then another PET hopefully all will be clear at that time.
    The fear is somewhat daunting to say the least. I remember saying to the onc. "Oh in bone. Isn't that better than the liver or lungs?" Almost like it was good news. Crazy me! Guess we hold on to whatever thread of hope that is out there?
    I don't have any pain, but onc said that if I did they could use rads to alleviate that.
    Good luck to you and don't let it get you down.

    Peace and Love,
    Edie

    Sending prayers and good
    Sending prayers and good luck to you too Edie and all of you with mets.

    Hugs, Megan
  • Msbrit
    Msbrit Member Posts: 1
    #27
    Bone mets
    I was diagnosed with bone mets a month ago after 11 years in remission. After radiation I became so weak I'm unable to walk. Has anyone else experienced this? I'm encouraged by the posts here. Thanks in advance for your replies.
  • Noel
    Noel Member Posts: 3,095 Member
    #28
    Msbrit said:

    Bone mets
    I was diagnosed with bone mets a month ago after 11 years in remission. After radiation I became so weak I'm unable to walk. Has anyone else experienced this? I'm encouraged by the posts here. Thanks in advance for your replies.

    I do not have bone mets,
    I do not have bone mets, and, pray I never do. I just wanted to send all of you prayers and hugs. I wish they would find a cure!!!

    As one sister on here always says, GirlPower!
  • DianeBC
    DianeBC Member Posts: 3,881 Member
    #29
    iowasignterp said:

    yes, the survivor ? is interesting
    Am I a survivor? well, I agree, I am not cured or disease free and I am not completely a warrior either at this point in time. almost like a limbo or purgatory. I agree with you, keep-on-going, I am surviving but have trouble with that question. I am so glad you decided to post here. you get it. thanks.

    I think you are all
    I think you are all survivors, don't you? You are fighting a much harder fight than I, and, many on here. Keep fighting and know that you have lots of support here!
  • susie09
    susie09 Member Posts: 2,930
    #30
    keep_on_going said:

    we could be twins
    My story is the same ER/PR -, HER2+. I was diagnosed with mets. 9 months after my original diagnosis. That was in March 2006. Originally it was in T10,11,12 & L1,2. I also had a broken rib. After 4 years, I know have it in the right hip & shoulder blade, and a few more ribs. You're anecdotes are true as far as I know...bone only is the best (? when it's u it's the worst!) My doc won't give me the answer. If I find one somewhere I'll certainly share

    Sending prayers!

    Sending prayers!
  • phoenixrising
    phoenixrising Member Posts: 1,508
    #31
    My heart goes out to
    My heart goes out to you....all of you who have had to wrap your head around mets to the bone. Yes, you are survivors and most of all warriors. Even the most fierce warrior needs to rest for the next round. This link: Forum: STAGE IV BREAST CANCER SURVIVORS is from breastcancer.org and is a forum for stage 4. I'm hoping that between the 2 sites you will find your answers. A friend of mine just lost her sister who was clear for 11 yrs. It just brings home that none of us knows if we've been cured or not. I can only speak for myself but although I carry on each day and try to keep it out of my mind, there is still a part of me that is waiting for the other shoe to drop. My lesson, I think, is to accept and find a place for it if that makes any sense. By the way, the woman who started breastcancer.org has also experienced breast cancer. Many blessings to you all and I hope you find what you need.
    hugs
    jan
  • Alexis F
    Alexis F Member Posts: 3,598
    #32
    phoenixrising said:

    My heart goes out to
    My heart goes out to you....all of you who have had to wrap your head around mets to the bone. Yes, you are survivors and most of all warriors. Even the most fierce warrior needs to rest for the next round. This link: Forum: STAGE IV BREAST CANCER SURVIVORS is from breastcancer.org and is a forum for stage 4. I'm hoping that between the 2 sites you will find your answers. A friend of mine just lost her sister who was clear for 11 yrs. It just brings home that none of us knows if we've been cured or not. I can only speak for myself but although I carry on each day and try to keep it out of my mind, there is still a part of me that is waiting for the other shoe to drop. My lesson, I think, is to accept and find a place for it if that makes any sense. By the way, the woman who started breastcancer.org has also experienced breast cancer. Many blessings to you all and I hope you find what you need.
    hugs
    jan

    So sorry Jan to read about
    So sorry Jan to read about your friend's sister. And, breastcancer.org is a great site. I like the way they have individual sections for everything involving cancer.


    Adding my hugs and prayers to all of you,


    Lex
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    #33
    Alexis F said:

    So sorry Jan to read about
    So sorry Jan to read about your friend's sister. And, breastcancer.org is a great site. I like the way they have individual sections for everything involving cancer.


    Adding my hugs and prayers to all of you,


    Lex

    Thanks for the link!

    Thanks for the link!

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