Dancing with NED tonight!

D Lewis
D Lewis Member Posts: 1,581 Member
edited March 2014 in Head and Neck Cancer #1
My three-month PET-CT was this morning at Stanford. My doctor was able to review the results and discuss them with me late this afternoon. NO UPTAKE! NO AVIDITY! NO EVIDENCE OF DISEASE! The scoping and all the palpations were normal. Got a finger jammed down my throat again today and it seems to be getting easier. I snapped at him, but he jumped clear.

I got a good look at the medical records I was hand-carrying down to Stanford from my local treatment center. They threw everything at me that they had, treatment-wise for T1N2cM0 Stage 4 HPV-16+ base of tongue SCC. High dose Cisplatin at 100 mg/m2 (and I'm only 120 pounds). A total of 38 radiation treatments, 6900 Guys to the base of tongue and the same to both sides of the neck. Doc says I do have quite a bit of lymphedema going on. Duh, I'll bet I do! No saliva yet, and could be problematic, given the bilateral rads. Nothing else of note, occasional tingling of feet, rare tintinitis, no hearing loss, and the odd attack now and again of L'hermitte's Sign. Just enough to keep me entertained and on my toes.

Stanford didn't give me the 100% all clear that Micktissue got, but they did say that, for someone in my shoes, the 5-year survival rate was in excess of 95%. That is good enough for me.

Deb, doing the happy happy dance with NED after a very long day.
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Comments

  • Hal61
    Hal61 Member Posts: 655
    NED dance
    Deb, that's the best news anyone here can get, and I couldn't wish it on a more deserving survivor. You've done everything right, and I'm very happy it's paid off.

    best, Hal
  • Glenna M
    Glenna M Member Posts: 1,576
    Hal61 said:

    NED dance
    Deb, that's the best news anyone here can get, and I couldn't wish it on a more deserving survivor. You've done everything right, and I'm very happy it's paid off.

    best, Hal

    We'll all dance with you
    Wonderful news Deb!!! Your news has started my day with a smile. I am so happy for you, you have been through so much and now you can finally see that it was all worth it.

    Stay well,
    Glenna
  • Joel4
    Joel4 Member Posts: 263 Member
    Glenna M said:

    We'll all dance with you
    Wonderful news Deb!!! Your news has started my day with a smile. I am so happy for you, you have been through so much and now you can finally see that it was all worth it.

    Stay well,
    Glenna

    Awesome News
    That is fantastic Deb!
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    Wonderful!
    We are all cheering for you, Celebrate!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Congrats
    Great News, just in time for the week-end too....

    John
  • RushFan
    RushFan Member Posts: 224
    Skiffin16 said:

    Congrats
    Great News, just in time for the week-end too....

    John

    It's gonna be
    It's gonna be a rock & roll weekend...Great news, congrats.
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    Yes!!!!
    Deb, that's great, we'll all put on our dancing shoes with you!!! Cheers

    Jimbo
  • Kimba1505
    Kimba1505 Member Posts: 557
    Jimbo55 said:

    Yes!!!!
    Deb, that's great, we'll all put on our dancing shoes with you!!! Cheers

    Jimbo

    Morning coffee with NED
    Couldn't start a day better! Deb, that is awesome news, breathe easy, and dance for 50 more years!!
    Kim
  • johnlax38
    johnlax38 Member Posts: 136
    I'm so glad for you,
    I'm so glad for you, excellent news!
  • Greg53
    Greg53 Member Posts: 849
    johnlax38 said:

    I'm so glad for you,
    I'm so glad for you, excellent news!

    Yeeha!!!
    Awesome news Deb! Congrats!!!

    Greg
  • micktissue
    micktissue Member Posts: 430
    YAY!
    Awesome news Deb.

    Best,

    Mick
  • JUDYV5
    JUDYV5 Member Posts: 392
    NED Dance
    I love the NED dance - what wonderful news !!!
  • CajunEagle
    CajunEagle Member Posts: 408
    OUTSTANDING, Deb !!
    I'm really glad for you. That was some tough stuff you went through. Ya got it made, Girl.

    Larry
  • stevenl
    stevenl Member Posts: 587

    OUTSTANDING, Deb !!
    I'm really glad for you. That was some tough stuff you went through. Ya got it made, Girl.

    Larry

    Good Stuff
    Hi Deb,

    I knew you had it in you. Upward and onward!!

    Best Steve
  • Irishgypsie
    Irishgypsie Member Posts: 333
    stevenl said:

    Good Stuff
    Hi Deb,

    I knew you had it in you. Upward and onward!!

    Best Steve

    I would love to have the next dance!
    Great News Deb, it's a great way to start the weekend! Happy for you! Enjoy!

    Charles
  • Vivi C
    Vivi C Member Posts: 70

    I would love to have the next dance!
    Great News Deb, it's a great way to start the weekend! Happy for you! Enjoy!

    Charles

    Dancing with you!
    Dance like no one's watching! You deserve it So happy for you. You have been so kind and encouraging to me. I am thrilled for you. Keep dancing! Hope to join you soon.
    God bless,
    Viv
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    NED
    Deb, that is awesome. I had my surgery and will start Radiation and Chemo Sept. 8th. I know I am getting ready to face some tough side effects. but hearing your story just made a good day for me even better. It is so great to hear people post good news.

    BEST!!

    Mike
  • dogsrule
    dogsrule Member Posts: 96

    NED
    Deb, that is awesome. I had my surgery and will start Radiation and Chemo Sept. 8th. I know I am getting ready to face some tough side effects. but hearing your story just made a good day for me even better. It is so great to hear people post good news.

    BEST!!

    Mike

    Fantastic
    So happy for you Deb. You are an inspiration for all of us to fight the fight.
  • delnative
    delnative Member Posts: 450
    dogsrule said:

    Fantastic
    So happy for you Deb. You are an inspiration for all of us to fight the fight.

    How cool is that?
    Way cool!
    Congratulations!

    --Jim in Delaware
  • kimmygarland
    kimmygarland Member Posts: 312
    delnative said:

    How cool is that?
    Way cool!
    Congratulations!

    --Jim in Delaware

    Awesome!
    Great News!