Ex-TUBE-ation

Kimba1505
Kimba1505 Member Posts: 557
edited March 2014 in Head and Neck Cancer #1
Mark had his tube removed today. Took it into his own hands and made the appointment without any recommendation from his docs. They had to scramble to get his ENT to say it was ok. He has not used it in four weeks and his weight is on the rise. Looks like he has been shot in the stomach.
Never thought we would be here. I remember in April I would read all the posts about people finishing treatment and PEGS removed and thought we would never be THERE. To those of you just starting out, it is a one day at a time process and time does move forward even though sometimes it does not feel like it. There are mile stones, but there is no end.
Love to all of you,
Kim

Comments

  • rush1958
    rush1958 Member Posts: 221 Member
    Tube
    Congrats!

    Getting rid of that thing is a great feeling.

    Rush
  • Hal61
    Hal61 Member Posts: 655
    Great for Both!
    Glad to hear for Mark, Kimba. He's done a super job recovering, and I know your support has been one of his strenghts throughout.

    best, Hal
  • GraceLibby
    GraceLibby Member Posts: 88
    Great news!
    That is totally awesome! As someone who is just beginning this journey, it is inspiring to hear the progress from those who are on the other side. Congratulations!
  • staceya
    staceya Member Posts: 720

    Great news!
    That is totally awesome! As someone who is just beginning this journey, it is inspiring to hear the progress from those who are on the other side. Congratulations!

    Congratulations!! It is
    Congratulations!! It is truly a path we all walk together celebrating milestones!
    Stacey
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Peg-Less
    Great news...

    I can't wait to be port-less... mine comes out in February - two years with it.
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    Skiffin16 said:

    Peg-Less
    Great news...

    I can't wait to be port-less... mine comes out in February - two years with it.

    That is
    Excellent, Kim. Another obstacle left in the dust by you and Mark. Excellent.

    kcass
  • delnative
    delnative Member Posts: 450
    Kent Cass said:

    That is
    Excellent, Kim. Another obstacle left in the dust by you and Mark. Excellent.

    kcass

    How wonderful!
    I remember how much I wanted to get rid of that doggone tube and how happy I was when I finally did.
    And you have to admit, it leaves a really cool scar. I call mine my old war wound.
    Congratulations!

    --Jim in Delaware
  • kimmygarland
    kimmygarland Member Posts: 312
    delnative said:

    How wonderful!
    I remember how much I wanted to get rid of that doggone tube and how happy I was when I finally did.
    And you have to admit, it leaves a really cool scar. I call mine my old war wound.
    Congratulations!

    --Jim in Delaware

    Great News
    I'll bet he is so happy to have that out. Glad to hear he is gaining weight. Happy Day!
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Kim


    That is great news, one more positive step in the healing process.
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Kim - Thanks for sharing!
    Mark

    Welcome to the "second belly-button" club!

    Deb
  • dogsrule
    dogsrule Member Posts: 96
    D Lewis said:

    Kim - Thanks for sharing!
    Mark

    Welcome to the "second belly-button" club!

    Deb

    I second that
    I second the second belly button club to. So glad to hear the good news that Mark is doing so well. All of us have had some big, big challenges to overcome, but hearing the great progress Mark has made is very hopeful for us all.
    Jo
  • CajunEagle
    CajunEagle Member Posts: 408
    D Lewis said:

    Kim - Thanks for sharing!
    Mark

    Welcome to the "second belly-button" club!

    Deb

    Kim
    Kim, you have been one truly strong person during this whole journey. Mark is quite fortunate to have you around to get as far as he has. In fact, we are all fortunate to have you around to make us think and question our ability to carry on.

    Go look back to 4-14-2010 8:24am and read your initial post on here......"Newly Diagnosed, Need Help". Even then you "seemed" as though you had your act together. Congradulations to Mark, and hope the healing continues.

    Larry
  • sweetblood22
    sweetblood22 Member Posts: 3,228

    Kim
    Kim, you have been one truly strong person during this whole journey. Mark is quite fortunate to have you around to get as far as he has. In fact, we are all fortunate to have you around to make us think and question our ability to carry on.

    Go look back to 4-14-2010 8:24am and read your initial post on here......"Newly Diagnosed, Need Help". Even then you "seemed" as though you had your act together. Congradulations to Mark, and hope the healing continues.

    Larry

    Terriffic. I am glad that
    Terriffic. I am glad that Mark is doing well. I hope I can get rid of mine someday.
  • Jimbo55
    Jimbo55 Member Posts: 590 Member

    Kim
    Kim, you have been one truly strong person during this whole journey. Mark is quite fortunate to have you around to get as far as he has. In fact, we are all fortunate to have you around to make us think and question our ability to carry on.

    Go look back to 4-14-2010 8:24am and read your initial post on here......"Newly Diagnosed, Need Help". Even then you "seemed" as though you had your act together. Congradulations to Mark, and hope the healing continues.

    Larry

    Kim and Mark
    Wow that is such good news to hear. I am so glad for both of you. Cheers

    Jimbo
  • Lena Rose
    Lena Rose Member Posts: 73
    That's great news Kim!
    So happy to hear that Mark lost an extra appendage! Wishing you both continued healing and blessings.
  • Scambuster
    Scambuster Member Posts: 973
    Done with that PEG !
    Great news Kim for you and Mark. Nice for him to be able to do a full 360 when he is lying down now. Amazing how simple things in life are completely compromised with this blasted 'C', but Mark is now another big step in the right direction.

    Scam

    PS: If he tosses and turns at night, don't worry Kim, he is doing it because now ' HE CAN'.
  • miccmill
    miccmill Member Posts: 248
    Lena Rose said:

    That's great news Kim!
    So happy to hear that Mark lost an extra appendage! Wishing you both continued healing and blessings.

    Yeaaaaaa!!
    What great news. Mark has done so great. His progress has been an inspiration.

    I know Glenn will be really happy to get rid of that tube. It's really an annoyance to him especially now that he's starting to feel better.
  • stevenl
    stevenl Member Posts: 587
    miccmill said:

    Yeaaaaaa!!
    What great news. Mark has done so great. His progress has been an inspiration.

    I know Glenn will be really happy to get rid of that tube. It's really an annoyance to him especially now that he's starting to feel better.

    Milestone
    Hi Kim,

    It was a milestone moment for me, so I know it is for Mark also. Hoping for continued success!

    Best,
    Steve
  • Glenna M
    Glenna M Member Posts: 1,576
    stevenl said:

    Milestone
    Hi Kim,

    It was a milestone moment for me, so I know it is for Mark also. Hoping for continued success!

    Best,
    Steve

    Great news
    Great news Kim. Mark will really start to feel like his new "normal" now with that tube out of the way.

    Stay well,
    Glenna
  • RushFan
    RushFan Member Posts: 224
    Glenna M said:

    Great news
    Great news Kim. Mark will really start to feel like his new "normal" now with that tube out of the way.

    Stay well,
    Glenna

    GREAT
    Now the culinary experimentation begins. Have a great weekend.