New Update

lady4darknight
lady4darknight Member Posts: 90 Member
edited March 2014 in Head and Neck Cancer #1
Hi all,
I met with the ENT yesterday and had my PET repeated this morning. The ENT has said that he did not like seeing the new mess on the CT in my nodes, left tonsil and soft palate. He agreed that the PET did need to be repeated. But he also said he didn't feel that my tumor(on the BOT) would shrink much more. Said it would definitely have to be removed the rest of the way with surgery. He also stated that if the least little thing looks suspicious on the PET I would also be having surgery to remove as much as possible and have it all biopsied. Then of course it will be a matter of what it all shows as to the course of treatment. OMG I just feel like I am starting all over again. I am praying that my PET shows nothing. If and he said a big if...if it is all clear he would consider pulling my trache if I could maintain my o2 levels and letting me go 3 months before going through anything else to let my tongue and throat heal since I have had issues with my throat bleeding with my trache. This is the game plan I want..lol. So now I will be hoping and praying that everything looks good. I am prepared for the worse and hoping for the best. Would like to be able to go swimming. Something I haven't been able to do for 2 years. I hope you all have an excellent weekend.
Debbie
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Comments

  • Hal61
    Hal61 Member Posts: 655
    Hoping with you
    Debbie, I'll be saying a prayer for you, and hoping for the best with you.

    Hal
  • stevenl
    stevenl Member Posts: 587
    Hal61 said:

    Hoping with you
    Debbie, I'll be saying a prayer for you, and hoping for the best with you.

    Hal

    Not Again!!
    Debbie,

    I am praying and hoping the best for you. I truly hope you do not have to go through it all again.

    The praying Steve
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Prayers Here As Well
    You're in our prayers as well.....good PET to come.

    Best,
    ~John
  • greg from pa
    greg from pa Member Posts: 86
    Skiffin16 said:

    Prayers Here As Well
    You're in our prayers as well.....good PET to come.

    Best,
    ~John

    Hi Debbie,
    Sorry the news from the ENT was not that great. I think I know a little how you feel, when we go trrough all this grueling treatment,and we want and expect good results. I am 2 weeks away from finishing 7 weeks of radiation and chemo and I am hoping and praying for the best. But at the same time i suppose I have to prepare myself if the next PET is not the one I am hoping for.I just want you to know I will be praying for you.I know you have alot of good peolple here pulling for you, Debbie. Take care Greg
  • Scambuster
    Scambuster Member Posts: 973
    Hoping is shows all is OK
    Hi Debbie, Sorry to hear this news but we are all hoping and praying all will be OK for you.

    Scam
  • miccmill
    miccmill Member Posts: 248

    Hoping is shows all is OK
    Hi Debbie, Sorry to hear this news but we are all hoping and praying all will be OK for you.

    Scam

    Debbie
    You're in my prayers. So sorry you are possibly facing more treatment.

    You will come through.

    Hoping every scan and test shows nothing.
  • Glenna M
    Glenna M Member Posts: 1,576
    So sorry..
    I am so sorry that you have to go through all of this again. I hope the next PET is clear and you will be able to have the trach removed.

    I will keep you in my prayers.
    Glenna
  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    Debbie, the waiting is the
    Debbie, the waiting is the hard part. I'm sending you lots or positive thinking and even more prayers!!!! I can only imagine how you feel but please try to be strong and hang in the. WE'RE PRAYING FOR THE BEST!!! I am sorry that you have to play the waiting game again.
    God bless you friend,
    debbie
  • lady4darknight
    lady4darknight Member Posts: 90 Member

    Debbie, the waiting is the
    Debbie, the waiting is the hard part. I'm sending you lots or positive thinking and even more prayers!!!! I can only imagine how you feel but please try to be strong and hang in the. WE'RE PRAYING FOR THE BEST!!! I am sorry that you have to play the waiting game again.
    God bless you friend,
    debbie

    waiting and not very patiently..lol
    Hi all,
    Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

    Debbie
  • miccmill
    miccmill Member Posts: 248

    waiting and not very patiently..lol
    Hi all,
    Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

    Debbie

    Debbie
    We're praying for you. Sending our most positive energy your way.

    Good luck tomorrow.
  • Kimba1505
    Kimba1505 Member Posts: 557

    waiting and not very patiently..lol
    Hi all,
    Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

    Debbie

    Waiting with you Debbie.
    Know that we are all waiting with you to hear the word; and we are behind you all the way through with what you decide. Good energy being sent your way...in Texas, right?
    My Best,
    Kim
  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member

    waiting and not very patiently..lol
    Hi all,
    Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

    Debbie

    Debbie, you have my thoughts
    Debbie, you have my thoughts and prayers. Lets be positive and not let any negative thoughts in our mind. I'm rooting for you.
    God bless you friend,
    debbie
  • CajunEagle
    CajunEagle Member Posts: 408

    waiting and not very patiently..lol
    Hi all,
    Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

    Debbie

    Good Luck
    I'm not sure how it's possible, but we'll all be holding your hand tomorrow. You'll feel it.

    (Kim....I think Debbie's treatment takes place in Tulsa, OK..)
  • staceya
    staceya Member Posts: 720

    Good Luck
    I'm not sure how it's possible, but we'll all be holding your hand tomorrow. You'll feel it.

    (Kim....I think Debbie's treatment takes place in Tulsa, OK..)

    We all will be holding your
    We all will be holding your hand!!
  • rozaroo
    rozaroo Member Posts: 665
    staceya said:

    We all will be holding your
    We all will be holding your hand!!

    Debbie!
    I will keep you in my prayer's. Positive thought's sent your way also!
    Hugg's Roz
  • rozaroo
    rozaroo Member Posts: 665
    staceya said:

    We all will be holding your
    We all will be holding your hand!!

    Debbie!
    I will keep you in my prayer's. Positive thought's sent your way also!
    Hugg's Roz
  • dennis318
    dennis318 Member Posts: 349 Member
    rozaroo said:

    Debbie!
    I will keep you in my prayer's. Positive thought's sent your way also!
    Hugg's Roz

    waiting for your news!
    Debbie, waiting and hoping to hear from you, hope all goes well, we all feel for you, and are hoping for positive news. Lets both get rid of our trachs, what a pain. Dennis
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Debbie


    One thing about being here we all know what you are going through, and will keep you in our thoughts and prayers that your PET comes back clean.

    Hondo
  • Glenna M
    Glenna M Member Posts: 1,576

    waiting and not very patiently..lol
    Hi all,
    Thank you for all the prayers and positive support. It has been a very long weekend but I will have answers tomorrow. Joey and I have talked and if the results are bad I am going through with the surgery regardless of how wide spread or how much needs removed. My throat has been very sore again. Kind of feels like strep, but I know most of you understand that. I have my fingers crossed and am hoping for the best. My appt. is 11:00 cdt tomorrow and will post as soon as I get back to the center with my results. I couldn't do this without you all.

    Debbie

    Joining the circle...
    Debbie, I am joining the circle of friends who will be holding hands and praying for you.

    Stay strong,
    Glenna
  • kimmygarland
    kimmygarland Member Posts: 312
    Hondo said:

    Hi Debbie


    One thing about being here we all know what you are going through, and will keep you in our thoughts and prayers that your PET comes back clean.

    Hondo

    Thinking of you
    Thinking of you and praying for good results.