squamous cell carcinoma of nasal septum

13

Comments

  • vietnamvetwife68
    vietnamvetwife68 Member Posts: 9

    nasopharynx cancer
    Hi Teresa
    My husband is completing treatment for stage IV nasopharyngeal cancer and boy has it been grueling.What stage were you?I am trying to find out whether this type of cancer is slow or fast growing.Would you happen to know?

    Best to you,
    Susanne

    nasophargeal cancer
  • vietnamvetwife68
    vietnamvetwife68 Member Posts: 9

    nasopharynx cancer
    Hi Teresa
    My husband is completing treatment for stage IV nasopharyngeal cancer and boy has it been grueling.What stage were you?I am trying to find out whether this type of cancer is slow or fast growing.Would you happen to know?

    Best to you,
    Susanne

    nasophargeal cancer
  • jmike55
    jmike55 Member Posts: 4
    Tricia02 said:

    hiya
    Jennifer, the main photo is 5 years old before diagnosis, all the rest are post treatment, mainly this year in fact. I look sort of fine when I wear glasses, but without glasses my nose looks a bit squishy, crooked and flattish. A year after treatment I was still feeling quite down and depressed and went to see a cognitive behavourial therapist, which helped somewhat, but the chat room on this site helped me more at the time. I started taking diazapam for about 6 months and that also helped me out of the duldrums. I guess its a necessary part of recovery to feel down and depressed, but it does subside and eventually disappears altogether. Today I have a full and happy life. And I can honestly remember thinking I would never ever get "me" back. I didn't get the old me back, I got a new me and I have no complaints. I feel less freaked out now about life and my demise, which will happen one day, that's for sure lol. I am also a recovering alcoholic with 20+ years sobriety. I therefore have my 24 hour programme which has also been of enormous benefit to me. All in all I am a lucky person I believe. I remember you saying you are vain, I was too and am so much less so now, though I do still enjoy looking as good as I can, without being fixated on my looks. I was going to have a facelift just when I was diagnosed, now I can't be bothered lol. Anyway Jennifer I hope chemo is going ok for you and that it shrinks that tumour to a tiny size so they can remove it without too much facial damage. Bye for now Txxx

    nasal cancer
    I am in week five of radiation for nasal cancer. I think I went about six months with a bump on the right side of my nasal septum. It would bleed and I never have nose bleeds. I went to the GP and he took a swab and it came back negative (what ever that meant) and he gave me some medication to put on it. A month or more went by and I went for my annual physical and told him the nose was still a problem. He sent me to a head and neck specialist. The specialist looked at it and told me the GP was right cauterized my nose and told me to keep using the medication and saline spray. I went two more months and finally went back to the specialist who took a biopsy and two days later said I had squamous cells. He said it was sage one I guess. He sent me to an oncologist who sent me for a PET scan. The cancer was in my nose and had spread to my upper maxilla. They said it had not gone into my nasal nodes? or any lymph nodes. They did a full head, chest, pelvic exam and said they did not see cancer there. They decided on radiation therapy because the Head and Neck specialist did not think he could get the margins needed without major damage. Seven weeks is the plan. I have teeth guards, tongue guard ( have to breath through a straw in the middle of it during treatment and nose plugs. After four weeks my face is red, my nose is crusty and is clogged at night. I shoot saline spray in and blow to clear it and it is bloody. I have had two blood test to check my red blood cell count. I am still teaching and final told my students last week. I am planning on finishing the semester with them (three more weeks) and I have planned help for final exams because I probably will not want to sit in class looking like I will. My appetite is still good. I am a little tired but it is because I can't sleep more than two hours at a time. They tell me I may lose some teeth at some point but I have good teeth and the dental oncologist has me set up for fluoride trays every day after my treatments. I am hoping for the best and this site has given me encouragement. I can see that at this point I am not have as bad off as many of you but each of us has to cope with what is handed out. I was a little surprised to heard they go three months before they check to see if they got it all. I pray they do because the only option left is the surgery. I live in South Orange County, LA Calif.
    I am 63 years old and have been in athletic shape all my life. I too was told this cancer is extremely rare. I was told it is more common in smokers and drinkers. I have never smoked and am a very light weigh drinker. Enough for now and prayers to all who fight this fight.
  • maria2009
    maria2009 Member Posts: 10
    jmike55 said:

    nasal cancer
    I am in week five of radiation for nasal cancer. I think I went about six months with a bump on the right side of my nasal septum. It would bleed and I never have nose bleeds. I went to the GP and he took a swab and it came back negative (what ever that meant) and he gave me some medication to put on it. A month or more went by and I went for my annual physical and told him the nose was still a problem. He sent me to a head and neck specialist. The specialist looked at it and told me the GP was right cauterized my nose and told me to keep using the medication and saline spray. I went two more months and finally went back to the specialist who took a biopsy and two days later said I had squamous cells. He said it was sage one I guess. He sent me to an oncologist who sent me for a PET scan. The cancer was in my nose and had spread to my upper maxilla. They said it had not gone into my nasal nodes? or any lymph nodes. They did a full head, chest, pelvic exam and said they did not see cancer there. They decided on radiation therapy because the Head and Neck specialist did not think he could get the margins needed without major damage. Seven weeks is the plan. I have teeth guards, tongue guard ( have to breath through a straw in the middle of it during treatment and nose plugs. After four weeks my face is red, my nose is crusty and is clogged at night. I shoot saline spray in and blow to clear it and it is bloody. I have had two blood test to check my red blood cell count. I am still teaching and final told my students last week. I am planning on finishing the semester with them (three more weeks) and I have planned help for final exams because I probably will not want to sit in class looking like I will. My appetite is still good. I am a little tired but it is because I can't sleep more than two hours at a time. They tell me I may lose some teeth at some point but I have good teeth and the dental oncologist has me set up for fluoride trays every day after my treatments. I am hoping for the best and this site has given me encouragement. I can see that at this point I am not have as bad off as many of you but each of us has to cope with what is handed out. I was a little surprised to heard they go three months before they check to see if they got it all. I pray they do because the only option left is the surgery. I live in South Orange County, LA Calif.
    I am 63 years old and have been in athletic shape all my life. I too was told this cancer is extremely rare. I was told it is more common in smokers and drinkers. I have never smoked and am a very light weigh drinker. Enough for now and prayers to all who fight this fight.

    SCC nasal septum
    Hello jmike55

    I am also diagnosed with the same problem and awaiting treatment. Just wondering if you were also offered surgery to be followed by surgery and chemo. Also before treatment did your front teeth and gum hurts. It must be hard on you to be working and having treatment at the same time. I sincerely hope you are taking it all in your strides. I have also never smoked and never drink.
  • jmike55
    jmike55 Member Posts: 4
    maria2009 said:

    SCC nasal septum
    Hello jmike55

    I am also diagnosed with the same problem and awaiting treatment. Just wondering if you were also offered surgery to be followed by surgery and chemo. Also before treatment did your front teeth and gum hurts. It must be hard on you to be working and having treatment at the same time. I sincerely hope you are taking it all in your strides. I have also never smoked and never drink.

    nasal cancer
    Yes, I was told I had three options. Surgery, radiation and surgery with radiation. The head/ neck specialist did not feel he could get the margins necessary with surgery alone. I did not try to get another opinion. He consulted with the oncologist and they felt they could get it with radiation alone and that is what I went with. This was after they did a PET scan that showed it had not spread to my lymph nodes and it did not show up in other parts of my body scan. They did not feel I needed chemo. They are radiating from the top of my nose, across my face on both sides and down to my upper lip because the cancer had moved to the maxilla bone. They feel this will get it but if it does not, surgery is the only other option, the area cannot be radiated again. I am optimistic. I just finished my fifth week. Going into week six and seven and they say the worst week is after the last treatment. I am making it. My nose is crusty and bloody. It is hard to breath at night. I use nasal rinse and aquaphor. What part of the country are you in. Who diagnosed the cancer. Have you seen an oncologist, surgeon???? The only symptom I had was a bump on my nasal septum on the right side. It did not go away and it would bleed. My teeth were fine but I am told that they may not be that great after the radiation of my maxilla. I will deal with that in time. I have had great teeth all my life. Get other opinions. My GP was a help and the oncologist and the dental oncologist have been excellent. The treatment are challenging but you could do it. You will handle this. Where all had your cancer spread.
  • brandy l
    brandy l Member Posts: 1
    thobby said:

    Hi Melly,
    My name is Teresa and I am 46. I live south of Atlanta Georgia USA. I think I have the same type of cancer as you. I have cancer of the nasophlaranyx. Which is the area behind the nose.It was squamas cell.I was told it was rare & the time its noticed it has usually spread. When they found mine it had spread to all the sinus paths on the right side of my face. Then into the lymph nodes in my neck,my gums even started growing into my ear. That was last July. They couldn't do surgery because it was too advanced. I had chemo and radiation done at the same time. Before they could start I had to have 5 teeth pulled because of the cancer. I had a stomach tube put in because you wont be able to eat. I haven't eaten anything by mouth since last Aug. I wont kid you the treatment I had was very tough. I had radiation 5 days a week for three months and had the same amount of strong chemo for the same length of time. I was so sick during this time that a lot of time I couldn't go anywhere. When I moved around I would throw up. I lost 40 pounds. But after treatment stopped they did a ct scan and my cancer was gone. I will have another scan next month to see if it has come back or spread anywhere else. I think everything is okay though. Its been the toughest thing I have ever had to do. I would get another opinion. And weigh the odds. I haven't had many side effects from my treatment. A little hearing and vision loss because of nerves that were effected. A dry mouth because my salivary gland was destroyed. I just carry water around with me. I know it is scarry and I wish you good luck. I was told my chances of survival werent that good. But all that has changed! So keep your hope and beleive in the power of prayer.
    Teresa

    nasal cancer
    we just found my husband has cancer of the sinuses. i am so scared. his family dr. did not get him help when he told the **** his lymph nobes were getting bigger. the dr. pretty much blew him off. finally after 6 months sent to specialist that found the mass. my husband had lost his hearing in his left ear also. i just wat him to get threw this ok. they say they got it all of mass, as far as we know it as not spread. we won't know until friday talking to another dr. i don't want to loos him. he's alreday been threw back surgurys. he is not as bad as some. they did say he is cureable. he's 57. i am 46. my spelling sucks, sometimes.
  • Amy G
    Amy G Member Posts: 1
    Squamous Cell Carcinoma of nasal
    My Dad is 69 years old and was diagnosed with squamous cell carcinoma of the nasal over 1 1/2 years ago. It took the doctors approximately 4 months to diagnose it correctly. They thought the lump under his nose was scar tissue or an infection. After 4 rounds of anti-biotics and a biopsy that came back negative they went in and cut out a piece to test that came back as squamous cell. He went through mose surgery to remove most of it from his upper lip ( they cut all the way through his upper lip). After That the surgeon from the head and neck doctors office removed what was in his nose. Luckily it did not spread to his bone although a month or two later my Dad noticed a lump on his neck and it had spread to his lymphnode. He had surgery to remove his lymphnode and followed it up with chemo and radiation The mose was very painful and left him disfigured. In hind sight I wish we would of had a re-construction plastic surgeon involved during the whole process. They had to pull skin from his cheeks to fill in his upper lip. It took him a while to recover from the chemo and radiation as far as his energy and memory goes.

    A year and half later he feels better and is ready to begin re-construction on his nose. After meeting with one of his doctors today they told him his blood flow was not strong enough.. They could pull blood from his arm but it would take about 7 more surgeries. The doctor suggested trying a prosthetic if he was not up for the surgeries. We are disappointed the re-construction will entail so many more surgeries. My Dad is tired of doctor offices and is opting for trying the prosthetic. I have looked at some before and after pictures and they do not look so bad. So I guess we'll see!!

    Does anyone have any experiences or opinions they can share about a prosthetic nose??
  • GregT
    GregT Member Posts: 1
    jmike55 said:

    nasal cancer
    I am in week five of radiation for nasal cancer. I think I went about six months with a bump on the right side of my nasal septum. It would bleed and I never have nose bleeds. I went to the GP and he took a swab and it came back negative (what ever that meant) and he gave me some medication to put on it. A month or more went by and I went for my annual physical and told him the nose was still a problem. He sent me to a head and neck specialist. The specialist looked at it and told me the GP was right cauterized my nose and told me to keep using the medication and saline spray. I went two more months and finally went back to the specialist who took a biopsy and two days later said I had squamous cells. He said it was sage one I guess. He sent me to an oncologist who sent me for a PET scan. The cancer was in my nose and had spread to my upper maxilla. They said it had not gone into my nasal nodes? or any lymph nodes. They did a full head, chest, pelvic exam and said they did not see cancer there. They decided on radiation therapy because the Head and Neck specialist did not think he could get the margins needed without major damage. Seven weeks is the plan. I have teeth guards, tongue guard ( have to breath through a straw in the middle of it during treatment and nose plugs. After four weeks my face is red, my nose is crusty and is clogged at night. I shoot saline spray in and blow to clear it and it is bloody. I have had two blood test to check my red blood cell count. I am still teaching and final told my students last week. I am planning on finishing the semester with them (three more weeks) and I have planned help for final exams because I probably will not want to sit in class looking like I will. My appetite is still good. I am a little tired but it is because I can't sleep more than two hours at a time. They tell me I may lose some teeth at some point but I have good teeth and the dental oncologist has me set up for fluoride trays every day after my treatments. I am hoping for the best and this site has given me encouragement. I can see that at this point I am not have as bad off as many of you but each of us has to cope with what is handed out. I was a little surprised to heard they go three months before they check to see if they got it all. I pray they do because the only option left is the surgery. I live in South Orange County, LA Calif.
    I am 63 years old and have been in athletic shape all my life. I too was told this cancer is extremely rare. I was told it is more common in smokers and drinkers. I have never smoked and am a very light weigh drinker. Enough for now and prayers to all who fight this fight.

    Just diagnosed
    jmike55, your story sounds just like mine, I'm just a few weeks behind you. I went to an ENT for over a year with these problems and he just gave me Nasonex. He left town and I went to another ENT who told me it was just an infection and treated it with kefflex. Believe it or not, it was my dentist who contacted the ENT and demanded he do a biopsy.

    A CT Scan from 5 months ago showed nothing and a new scan this month showed a mass both in in and under my nose. The biopsy did come back as squamous cell carcinoma. The ENT admitted to me that if the dentist hadn't called him he would still be treating me for a infection.

    I have the first visit tomorrow with the oncologist, but after reading most of the stuff on the net I don't have high hopes.

    I don't know how to tell my daughter.
  • thegirlfriend
    thegirlfriend Member Posts: 142
    GregT said:

    Just diagnosed
    jmike55, your story sounds just like mine, I'm just a few weeks behind you. I went to an ENT for over a year with these problems and he just gave me Nasonex. He left town and I went to another ENT who told me it was just an infection and treated it with kefflex. Believe it or not, it was my dentist who contacted the ENT and demanded he do a biopsy.

    A CT Scan from 5 months ago showed nothing and a new scan this month showed a mass both in in and under my nose. The biopsy did come back as squamous cell carcinoma. The ENT admitted to me that if the dentist hadn't called him he would still be treating me for a infection.

    I have the first visit tomorrow with the oncologist, but after reading most of the stuff on the net I don't have high hopes.

    I don't know how to tell my daughter.

    THank God for dentists. My
    THank God for dentists. My boyfriends dentist also is the one who immediately sent
    him to an ENT for a biopsy. What is it about the dentist and the gen practioner that
    seem so different in being able to diagnose for cancer??

    Kathy
  • jmike55
    jmike55 Member Posts: 4
    GregT said:

    Just diagnosed
    jmike55, your story sounds just like mine, I'm just a few weeks behind you. I went to an ENT for over a year with these problems and he just gave me Nasonex. He left town and I went to another ENT who told me it was just an infection and treated it with kefflex. Believe it or not, it was my dentist who contacted the ENT and demanded he do a biopsy.

    A CT Scan from 5 months ago showed nothing and a new scan this month showed a mass both in in and under my nose. The biopsy did come back as squamous cell carcinoma. The ENT admitted to me that if the dentist hadn't called him he would still be treating me for a infection.

    I have the first visit tomorrow with the oncologist, but after reading most of the stuff on the net I don't have high hopes.

    I don't know how to tell my daughter.

    Bad News
    It has taken me awhile to figure out how to reply in the site. Anyway, 7 and half weeks of radiation failed to kill my nasal cancer. We took that as the first option because the head and neck guy said it was small and localize and radiation should be enough. A month later, he biopsied it and the cancer was still there. He did surgery taking out my nasal septum and scraping my maxilla. Six days later another head and neck guy did some reconstruction so you could not tell I had surgery. The inside of my nose was a mess for a month. Then the cancer surgeon guy didn't like what he saw and biopsied again. Cancer is back and meaner than ever. My only option is radical surgery. I feel the tumor growing by the day. My surgery is two days away. They say they may of to take my nose and the bone above my top front four teeth. This is terrible, I have great teeth for my age 63 and am in general good health. Prayers around and my advice to everyone is to get biopsied right away and go with surgery first so radiation can come after. I am stuck with surgery. I am optimistic still and anxious to get this monster out of me. I have a great network of family, friends, students who are all praying and pulling for me and love me no matter what I look like.
  • jmike55
    jmike55 Member Posts: 4
    GregT said:

    Just diagnosed
    jmike55, your story sounds just like mine, I'm just a few weeks behind you. I went to an ENT for over a year with these problems and he just gave me Nasonex. He left town and I went to another ENT who told me it was just an infection and treated it with kefflex. Believe it or not, it was my dentist who contacted the ENT and demanded he do a biopsy.

    A CT Scan from 5 months ago showed nothing and a new scan this month showed a mass both in in and under my nose. The biopsy did come back as squamous cell carcinoma. The ENT admitted to me that if the dentist hadn't called him he would still be treating me for a infection.

    I have the first visit tomorrow with the oncologist, but after reading most of the stuff on the net I don't have high hopes.

    I don't know how to tell my daughter.

    Bad News
    It has taken me awhile to figure out how to reply in the site. Anyway, 7 and half weeks of radiation failed to kill my nasal cancer. We took that as the first option because the head and neck guy said it was small and localize and radiation should be enough. A month later, he biopsied it and the cancer was still there. He did surgery taking out my nasal septum and scraping my maxilla. Six days later another head and neck guy did some reconstruction so you could not tell I had surgery. The inside of my nose was a mess for a month. Then the cancer surgeon guy didn't like what he saw and biopsied again. Cancer is back and meaner than ever. My only option is radical surgery. I feel the tumor growing by the day. My surgery is two days away. They say they may of to take my nose and the bone above my top front four teeth. This is terrible, I have great teeth for my age 63 and am in general good health. Prayers around and my advice to everyone is to get biopsied right away and go with surgery first so radiation can come after. I am stuck with surgery. I am optimistic still and anxious to get this monster out of me. I have a great network of family, friends, students who are all praying and pulling for me and love me no matter what I look like.
  • snoopneng
    snoopneng Member Posts: 1
    thobby said:

    Hi Melly,
    My name is Teresa and I am 46. I live south of Atlanta Georgia USA. I think I have the same type of cancer as you. I have cancer of the nasophlaranyx. Which is the area behind the nose.It was squamas cell.I was told it was rare & the time its noticed it has usually spread. When they found mine it had spread to all the sinus paths on the right side of my face. Then into the lymph nodes in my neck,my gums even started growing into my ear. That was last July. They couldn't do surgery because it was too advanced. I had chemo and radiation done at the same time. Before they could start I had to have 5 teeth pulled because of the cancer. I had a stomach tube put in because you wont be able to eat. I haven't eaten anything by mouth since last Aug. I wont kid you the treatment I had was very tough. I had radiation 5 days a week for three months and had the same amount of strong chemo for the same length of time. I was so sick during this time that a lot of time I couldn't go anywhere. When I moved around I would throw up. I lost 40 pounds. But after treatment stopped they did a ct scan and my cancer was gone. I will have another scan next month to see if it has come back or spread anywhere else. I think everything is okay though. Its been the toughest thing I have ever had to do. I would get another opinion. And weigh the odds. I haven't had many side effects from my treatment. A little hearing and vision loss because of nerves that were effected. A dry mouth because my salivary gland was destroyed. I just carry water around with me. I know it is scarry and I wish you good luck. I was told my chances of survival werent that good. But all that has changed! So keep your hope and beleive in the power of prayer.
    Teresa

    my dad has the same cancer a about a year ago
    please tell me if ur cancer is still there and how do u take care of it.
    cause my dads cancer is getting worse. his on stage 4 which they say he could die any moment now. if anyone who could help a little could u get back at me i like to talk to u thanks.
  • Scambuster
    Scambuster Member Posts: 973
    snoopneng said:

    my dad has the same cancer a about a year ago
    please tell me if ur cancer is still there and how do u take care of it.
    cause my dads cancer is getting worse. his on stage 4 which they say he could die any moment now. if anyone who could help a little could u get back at me i like to talk to u thanks.

    HI Snoop.

    Can I suggest you start a new post because this one is buried deep in a very old thread. You are more likely to get some response if you post a new thread.

    All the best.

    Scambuster
  • Nasal
    Nasal Member Posts: 2
    Squamous Cell Carcinoma of Nasal Septum

    Hi 

    I am new to the group. I am in Birmingham AL and I was diagnosed with squamous cell carcinoma of the septum in 2006 and before discovering this site, I thought I was the only one. My symptoms were it felt like something was enlarged in my nose and under my right eye. I had a painful scabby sore on my septum that would not heal and when I removed it I would have very bad nose bleeds and it would just grow back. This continued for about a year. I thought it was just allergies bcuz I work in dusty warehouse environment that has lots of mail and packages that are shipped from all over the world. Long story short, I've had 5 surgeries. The first was the biopsy, second was to remove parts of my septum, the entire nasal bone and reconstruct the inside of my nose using a donor's bone and the other 3 surgeries were cosmetic. I have a scar that runs from the entire length of the right side of my nose, and I don't have a good sense of smell and my nose is a little crooked but all in all my ENT (@ UAB) did an excellent job. Although I feel like he should have referred me to a plastic surgeon for the cosmetic surgeries. I had no chemo or radiation. After reading some of these stories I realize even more how blessed I am. Although I do fear sometimes that it will come back. I pray that everyone is comforted and healed. 

  • KTeacher
    KTeacher Member Posts: 1,103
    Nasal said:

    Squamous Cell Carcinoma of Nasal Septum

    Hi 

    I am new to the group. I am in Birmingham AL and I was diagnosed with squamous cell carcinoma of the septum in 2006 and before discovering this site, I thought I was the only one. My symptoms were it felt like something was enlarged in my nose and under my right eye. I had a painful scabby sore on my septum that would not heal and when I removed it I would have very bad nose bleeds and it would just grow back. This continued for about a year. I thought it was just allergies bcuz I work in dusty warehouse environment that has lots of mail and packages that are shipped from all over the world. Long story short, I've had 5 surgeries. The first was the biopsy, second was to remove parts of my septum, the entire nasal bone and reconstruct the inside of my nose using a donor's bone and the other 3 surgeries were cosmetic. I have a scar that runs from the entire length of the right side of my nose, and I don't have a good sense of smell and my nose is a little crooked but all in all my ENT (@ UAB) did an excellent job. Although I feel like he should have referred me to a plastic surgeon for the cosmetic surgeries. I had no chemo or radiation. After reading some of these stories I realize even more how blessed I am. Although I do fear sometimes that it will come back. I pray that everyone is comforted and healed. 

    Welocme

    2006!  That makes you a long time survivor.  Thank you for sharing, I am glad that you finally posted.  You might want to start a new topic and indroduce yourself, this is on an old thread and might not get much of a response.

  • Nasal
    Nasal Member Posts: 2
    KTeacher said:

    Welocme

    2006!  That makes you a long time survivor.  Thank you for sharing, I am glad that you finally posted.  You might want to start a new topic and indroduce yourself, this is on an old thread and might not get much of a response.

    Thank you KTeacher

    Thank you for the welcome. I am new at this and am not sure what I am doing. How do I start a new thread? 

  • Hondo
    Hondo Member Posts: 6,636 Member
    Nasal said:

    Thank you KTeacher

    Thank you for the welcome. I am new at this and am not sure what I am doing. How do I start a new thread? 

    Hi Nasal

     

    At the top of the main page  you will see under Head and Neck Cancer (Post new Forum Topic) click on it and add you thread. Welcome to family

     

    Hondo

  • phrannie51
    phrannie51 Member Posts: 4,716
    Nasal said:

    Thank you KTeacher

    Thank you for the welcome. I am new at this and am not sure what I am doing. How do I start a new thread? 

    To start a new thread...

    Go here:

    http://csn.cancer.org/forum/164

    Right under "Head and Neck Cancer" you will see a link that says:  Post New Forum Topic.  Click that, and you can copy and paste what you wrote here....Hey.....welcome to the family!! 

    p

  • JaniceForest
    JaniceForest Member Posts: 3
    thobby said:

    Hi Melly,
    My name is Teresa and I am 46. I live south of Atlanta Georgia USA. I think I have the same type of cancer as you. I have cancer of the nasophlaranyx. Which is the area behind the nose.It was squamas cell.I was told it was rare & the time its noticed it has usually spread. When they found mine it had spread to all the sinus paths on the right side of my face. Then into the lymph nodes in my neck,my gums even started growing into my ear. That was last July. They couldn't do surgery because it was too advanced. I had chemo and radiation done at the same time. Before they could start I had to have 5 teeth pulled because of the cancer. I had a stomach tube put in because you wont be able to eat. I haven't eaten anything by mouth since last Aug. I wont kid you the treatment I had was very tough. I had radiation 5 days a week for three months and had the same amount of strong chemo for the same length of time. I was so sick during this time that a lot of time I couldn't go anywhere. When I moved around I would throw up. I lost 40 pounds. But after treatment stopped they did a ct scan and my cancer was gone. I will have another scan next month to see if it has come back or spread anywhere else. I think everything is okay though. Its been the toughest thing I have ever had to do. I would get another opinion. And weigh the odds. I haven't had many side effects from my treatment. A little hearing and vision loss because of nerves that were effected. A dry mouth because my salivary gland was destroyed. I just carry water around with me. I know it is scarry and I wish you good luck. I was told my chances of survival werent that good. But all that has changed! So keep your hope and beleive in the power of prayer.
    Teresa

    Hello

    Hi Teresa,

    My sister was just diagnosed with squamous cell cancer of the ethmoid sinus.  It has spread to her eye orbit, nasal septum and it's very close to two of the bones adjacent to her brain.  It s stage T4a.  Surgery is mot an option so we re very hopeful for the chemo and radiation treatments.

    What stage is your cancer?

    Thanks!

    Take care,

    Janice

  • JaniceForest
    JaniceForest Member Posts: 3

    nasopharynx cancer
    Hi Teresa
    My husband is completing treatment for stage IV nasopharyngeal cancer and boy has it been grueling.What stage were you?I am trying to find out whether this type of cancer is slow or fast growing.Would you happen to know?

    Best to you,
    Susanne

    Hi Susanne,
    My sister has

    Hi Susanne,

    My sister has stage IV squamous cell cancer.  It began in her ethmoid sinus and has spread to two other sinuses and more.

    Her pathology report says that it s locally aggressive, but doesn t tend to spread distantly.

    She s about to start chemo and radiation without surgery.  Did your husband have chemo and radiation and how did he fare with them?

    Thanks.

    Take care,

    Janice