Survey for you Dry (& Wet) Guys

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Comments

  • jimbob51
    jimbob51 Member Posts: 3

    Wet with both nerves
    Both nerves spared. I'm wet to the point I had to have an AUS.

    What's an AUS?
    I have been reading this discussion and a few guys have mentioned having an AUS. What is it and what for? Thanks
  • Skid Row Tom
    Skid Row Tom Member Posts: 125
    jimbob51 said:

    What's an AUS?
    I have been reading this discussion and a few guys have mentioned having an AUS. What is it and what for? Thanks

    Info about the AUS
    Jimbob: Scroll down to the thread "AUS 800 Artificial Urinary Sphincter". Read my post from April 28th. That will explain it in general. If you have specific questions, write back or you may want to start a new thread "AUS Questions".

    Tom
  • shane59
    shane59 Member Posts: 86
    lion1 said:

    Pushed to the Limit
    Trew,

    I understand your frustration. There are days I just want to say screw it, and become more aggressive in what treatment I puruse, but then there's the other days when I say I could tolerate this a bit longer. Everyone is different, but the fact of the matter is, we are all human and could only take so much. For me my Doc says that my overactive bladder is the greater culbrit, no medicines worked, botox Injection #1 had no effect, like if I was Superman or something. Heck, I live in Fla and fly to Walter Reed for my treatment. My Doctor is outstanding, that's the only reason I do it, it has nothing to do with money. But, I don't know what the future holds, I just hope there's some other treatment that will be discovered to get me and others over this hump.

    I, like many others remain positive and believe the cup is half full. Heck, today is my 4 yr anniversary cancer free--------that's Great!

    Oh well to strength and determination as we all move forward in our challenges!!

    Good Fortune my friend-----------Lion1

    nerve spared now almost dry
    surgery last december 1 month latter 2 pads a day then at 2 months 1 pad now I just wear for safty as mentioned I have been trialing the ultrathin ladys pads and getting some success , now you can laugh. but a word of warning make sure you secure the sticky tabs correctly or you can cause some discomfort with the short and curleys I found out first hand exsperiance my wife had a good laugh at my exspence. Wish you all the best and sucsess for the future .I hope and pray that I to will be clear in 4 years as well thanks Shane59
  • Trew
    Trew Member Posts: 932 Member
    shane59 said:

    nerve spared now almost dry
    surgery last december 1 month latter 2 pads a day then at 2 months 1 pad now I just wear for safty as mentioned I have been trialing the ultrathin ladys pads and getting some success , now you can laugh. but a word of warning make sure you secure the sticky tabs correctly or you can cause some discomfort with the short and curleys I found out first hand exsperiance my wife had a good laugh at my exspence. Wish you all the best and sucsess for the future .I hope and pray that I to will be clear in 4 years as well thanks Shane59

    Hair Loss
    I lost almost 100% of pubic hair after radiation. Now, 6 months later it is just starting to grow back.

    Hair is not my problem. But I did get a smile at your learning curve experience. LOL!
  • Trew
    Trew Member Posts: 932 Member
    lion1 said:

    Pushed to the Limit
    Trew,

    I understand your frustration. There are days I just want to say screw it, and become more aggressive in what treatment I puruse, but then there's the other days when I say I could tolerate this a bit longer. Everyone is different, but the fact of the matter is, we are all human and could only take so much. For me my Doc says that my overactive bladder is the greater culbrit, no medicines worked, botox Injection #1 had no effect, like if I was Superman or something. Heck, I live in Fla and fly to Walter Reed for my treatment. My Doctor is outstanding, that's the only reason I do it, it has nothing to do with money. But, I don't know what the future holds, I just hope there's some other treatment that will be discovered to get me and others over this hump.

    I, like many others remain positive and believe the cup is half full. Heck, today is my 4 yr anniversary cancer free--------that's Great!

    Oh well to strength and determination as we all move forward in our challenges!!

    Good Fortune my friend-----------Lion1

    since I ws scoped and I
    Since I was scoped I am ready for any radical fix ASAP. I have run out of patience. I see the uro again on wed RE difficulty with the self cath and maybe a stricture that has grown back- but I want to ask him about the earliest date possible for a AUS.

    Enough is enough.

    My cup isn't half full. In fact, it has been kicked over. That is how I see it. I can't get past the quailty of life issues. I never think, the cancer is gone (I'm not sure it is anyway) but I do often think about the quality of life lost and wonder if all this is worth it.

    That is just how I see this. I was so active before, now cancer and wetting have turned my life around and I am measuring this "afterlife" every day not by what I have but bywhat I have lost. This is a very strange position for me to be in. I do need to be dry soon.
  • Skid Row Tom
    Skid Row Tom Member Posts: 125
    Trew said:

    since I ws scoped and I
    Since I was scoped I am ready for any radical fix ASAP. I have run out of patience. I see the uro again on wed RE difficulty with the self cath and maybe a stricture that has grown back- but I want to ask him about the earliest date possible for a AUS.

    Enough is enough.

    My cup isn't half full. In fact, it has been kicked over. That is how I see it. I can't get past the quailty of life issues. I never think, the cancer is gone (I'm not sure it is anyway) but I do often think about the quality of life lost and wonder if all this is worth it.

    That is just how I see this. I was so active before, now cancer and wetting have turned my life around and I am measuring this "afterlife" every day not by what I have but bywhat I have lost. This is a very strange position for me to be in. I do need to be dry soon.

    AUS decision
    As I mentioned, The AUS surgery is a bit rough, but once you begin to heal and they activate the thing, your life will begin anew. I've had mine three years. Last weekend, my wife and I drove to the beach for a free concert, watched the fireworks show, had dinner, and drove 90 minutes back home without a worry. Tuesday, a friend and I are leaving for a three week+ cross-country motorcycle trip. Other than packing my "liners" (I'll use one a day to catch dribbles), I have no other concerns. This is almost like having pc again. The toughest part is making the decision.
  • Trew
    Trew Member Posts: 932 Member

    AUS decision
    As I mentioned, The AUS surgery is a bit rough, but once you begin to heal and they activate the thing, your life will begin anew. I've had mine three years. Last weekend, my wife and I drove to the beach for a free concert, watched the fireworks show, had dinner, and drove 90 minutes back home without a worry. Tuesday, a friend and I are leaving for a three week+ cross-country motorcycle trip. Other than packing my "liners" (I'll use one a day to catch dribbles), I have no other concerns. This is almost like having pc again. The toughest part is making the decision.

    Thanks Skid Row
    The would say the natural flow of things has pretty much made that decison for me.

    Pun intended. :)