29 years old with stage 3c of ovarian cancer

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Comments

  • Bstrange
    Bstrange Member Posts: 87
    Have Faith
    I'm new on the site, but I read your post and I understand how you must feel. When I was diagnosed with Stage 4B I didn't know what to expect. After surgery and my chemo I was in remission for 7 months, I am now going through more chemo, but physically I am doing great. The way I handled it is to read and meditate on how to stay in the present. The only reality we have is in this very moment. Not the future. I don't know if you are Christian or not , but I find my strength in knowing God did not bring me this far for nothing. He is only found in the present and if I stay there I am at peace.

    I am praying for you and I applaud your courage. You are a remarkable woman.

    Barbara
  • saundra
    saundra Member Posts: 1,370 Member
    Bstrange said:

    Have Faith
    I'm new on the site, but I read your post and I understand how you must feel. When I was diagnosed with Stage 4B I didn't know what to expect. After surgery and my chemo I was in remission for 7 months, I am now going through more chemo, but physically I am doing great. The way I handled it is to read and meditate on how to stay in the present. The only reality we have is in this very moment. Not the future. I don't know if you are Christian or not , but I find my strength in knowing God did not bring me this far for nothing. He is only found in the present and if I stay there I am at peace.

    I am praying for you and I applaud your courage. You are a remarkable woman.

    Barbara

    Amen
    Great response. I'm Stage IV too and do the same. Saundra
  • deanna14
    deanna14 Member Posts: 732
    saundra said:

    Amen
    Great response. I'm Stage IV too and do the same. Saundra

    Hang in there Janna
    Hi Janna,
    I am 39 and although I do not have ovca, I have uterine papillary serous cancer. Historically, it has been known to be more aggressive and recurrent than simple uterine cancer. UPSC acts more like ovca and so I frequently visit the ovca boards. I completed radiation in December and I am due to have my 3rd carbo/taxol treatment next Monday.
    I had a total hysterectomy in Sept. last year. I have 3 stepsons and a step granddaughter, but no biological children. I had decided against having any children even at 39, but it I still sometimes question my decision. However, the Lord brought my husband to me with his 3 children. I pray and trust that the Lord knows what is best for me and that if he meant for me to raise children that he will bring that to me. It helps me to try to keep a positive attitude and many days this is not easy. If you want children, there are lots of kids out there that need good loving families. Just pray about it.
    Live each day to the fullest, surround yourself with people and things that you love. Trust that the Lord has a plan for you and he knows best. I know that this is a difficult time, but I have found that turning my worries over to the Lord sure does help.
    God Bless you. Take care.
  • Timber
    Timber Member Posts: 5
    29 yrs old with ovarian cancer
    Hi I'm Kathy, I'm stage 111C ovarian cancer also. There is a great book that you probably know about called "Crazy Sexy Cancer" written by Kris Carr. It is written for women 20-40 and is so inspirational in a really young hip way. You will love it if you haven't already read it. I did. My Doctor has a saying that I love "things turn out the best for people who make the best out of the way things turn out" If your Drs. are optimistic than believe them. I do. That is how I get through, You are not alone,Kathy
  • Andee66
    Andee66 Member Posts: 2
    I am 28yrs old with Ovarian Cancer
    I was diagnosed in 2004 with Endometriosis, I have been battling this disease ever since, with surgeries, labs, ultrasounds, biopsies, etc. I now can relate with SOMEONE! I am sorry to hear about your diagnosis, I really know what you are going through. Fortunately I gave birth to a very healthy beautiful baby girl in Feb of 2009, she truly is my miracle child. I had a laparascopic surgery in Nov of 2009 and my doctor just routinely sent everything to pathology. Came out Papillary Serous Carcinoma. For 2 months I knew I had cancer but no one could tell me where. Beginning of january I had a total hystrectomy, I had my port placed yestreday and start my first chemo treatment on the 8th of Feb. This is a very hard thing to deal with. I am sorry you had not had any children, I really wanted more but am blessed with my daughter. It does kind of shut your energy down and your ability to think positive. But seriously Janna, You have to stay positive!!!! THe only thing I heard my doctor say the other day was "people have been cured of this". So WE will be them! We will fight this! We can not think about it coming back, we need to think of the current moment and living our life to the fullest. Of course I have been immobile due to my surgery but I can't wait to get my energy back. I am scared of chemo, I"m scared of losing my hair, and yes I'm scared of reoccurence. I know nothing about this disease and with my diagnosis it is Low-grade papillary serous carcinoma stage 3c ovarian cancer. SEriously???? I have no clue, they say it is not that effective with chemo, I don't know, I hope to get a lot of knowledge. Unfortunately I can not tell you what is going to happen next but I can tell you that We together have to stay positive, I will try and stay on this site as much as possible. At least you know now taht you have someone to get through this. We can share our stories and vent our fears. IT is going to be ok!!!!!!!!!!!!!!!!
  • Andee66
    Andee66 Member Posts: 2
    aah9976 said:

    hi janna
    I am sorry to read about some else so young dealing with the diagnosis of having ovarian cancer. My sister was 24 when she was diagnosed with stage 2c and I am 32 was just diagnosed with stage 1a. Neither one of us have had to go through treatment but both had hysterectomies. I am still recovering from mine which was just last week on monday the 5th. I can say it is difficult pill to swallow when the dr says you have cancer but I knew that regardless of how bad it was I had to fight. I am greatful that I had caught mine so early but not everyone is as lucky as I am. I don't know how much help I could be in regards to everything but if you want to chat about it you can either email me on here or email at aam9976@yahoo.com... my yahoo im is aam9976 and I am willing to chat on there as well.

    Can I ask why the opted not
    Can I ask why the opted not to do Chemo? I am just curious because I am finding out that people that have hysterectomies are not required to go through chemo. I am 28 with 3c and am to start chemo in 2 weeks. I just had a hysterectomy 3 weeks ago.
  • kayandok
    kayandok Member Posts: 1,202 Member
    Dear Janna,
    I'm so sorry your dx had to bring you here. You have already received so many great words of encouragement, I just wanted to say, "Welcome!" and come back any time.
    I am also one of those oldies, I'm 54 and was dx 2 1/2 years ago. My kids are young, so I feel a bit younger than that.
    I hope you can find some younger survivors too.
    Hugs,
    kathleen:)
  • msfanciful
    msfanciful Member Posts: 559
    kayandok said:

    Dear Janna,
    I'm so sorry your dx had to bring you here. You have already received so many great words of encouragement, I just wanted to say, "Welcome!" and come back any time.
    I am also one of those oldies, I'm 54 and was dx 2 1/2 years ago. My kids are young, so I feel a bit younger than that.
    I hope you can find some younger survivors too.
    Hugs,
    kathleen:)

    Hi Janna,
    Ooooh...I just

    Hi Janna,

    Ooooh...I just hate this insidious disease! You are so young; it just isn't fair.

    I'm a stage 4 suvivor of 3 years now. Visiting this board will do wonders for you as it
    did for me, the sisters here are encouraging and experience. I know it can me peace of
    mind many times when nothing else did.

    I'm praying for you and your family .

    Love,

    Sharon
  • pappa_hen2
    pappa_hen2 Member Posts: 3
    Someone to listen
    I'm finding also it's a rough year.

    You are doing one of the best thing now..Talk. I support your will, your drive just to log on and write your story. You are doing wonders beyond your space. I encourage you with all of my heart to believe in the best is yet to come. Believe that you have a higher calling. Something larger than you could ever imagine yourself doing. Hold on to your faith.

    Sometimes I feel alone - unaware of time, but I force to believe it must be a reason. It has to be!. My daughter who is eight now had stage 1b (almost softball size) Ovarian cancer @ 7 years old. 4 treatments of chemo later, I'm reminded of the pain we went through with her at each 3 month check-up.

    I pray for your will to live, your heart to bear and your love to seek comfort.

    Be Blessed

    Pappa without sleep....
  • hockeygolf7
    hockeygolf7 Member Posts: 52
    Anxiety
    Hi Janna, while I am not young I do know what you mean about the feeling of the cancer coming back. I finished my chemo last October and have had two clean scans, but every once in awhile I would get an almost overwhelming feeling of dread. I feel so scared and sad and anxious that I tremble. I have been put back on some depression medicine, which I think helps and I always have my ativan to calm me down. Hope this helps and stay strong.
  • msfanciful
    msfanciful Member Posts: 559

    Someone to listen
    I'm finding also it's a rough year.

    You are doing one of the best thing now..Talk. I support your will, your drive just to log on and write your story. You are doing wonders beyond your space. I encourage you with all of my heart to believe in the best is yet to come. Believe that you have a higher calling. Something larger than you could ever imagine yourself doing. Hold on to your faith.

    Sometimes I feel alone - unaware of time, but I force to believe it must be a reason. It has to be!. My daughter who is eight now had stage 1b (almost softball size) Ovarian cancer @ 7 years old. 4 treatments of chemo later, I'm reminded of the pain we went through with her at each 3 month check-up.

    I pray for your will to live, your heart to bear and your love to seek comfort.

    Be Blessed

    Pappa without sleep....

    Hi there,
    I am sooo sorry to

    Hi there,

    I am sooo sorry to hear that your precious child had to even deal with this type of monster!

    Please feel free to ask about anything about this cancer as we all have gone through it as well.

    Don't feel you have to handle this alone, until I found this board of beautiful people, I almost went into a depression that I don't think I would have ever come out of. I am now so grateful to either find answers or give answers on this board.

    You daughter is beautiful and help her to stay strong (spiritually/physcially) very important!

    I still can't believe a child THIS young could have ovarian cancer!!! How did they find it?

    Did they perform a cat-scan, pet-scan or ultra-sound to determine her diagnosis?

    Is your daughter alright now? I hope and pray she is.

    Sharon
  • boatrenter
    boatrenter Member Posts: 1
    Janna, I was diagnosed with
    Janna, I was diagnosed with stage 3C ovarian cancer last July. What a shock. I felt fine, no real symptoms. Just went in for my annual checkup and my OB/GYN said I had a mass on each ovary. I had surgery within two weeks of the diagnosis, then six months of heavy chemo. Now I am in remission but my doctor suggested I have chemo maintenance for a year so three weeks a month I get small doses of chemo. Not too many side effects now. Neuropathy in my feet is the worst for me. I read all of your comments and there is not much I can add. Except I will make a suggestion for your head dress that has really worked for me. I hated the wig I bought, never wore it. Hated the cute hats my friends brought me and the ones I bought. The turban did not work for me. About all I liked was a ball cap. One day a friend of mine said why don't you put a clip on pony tail on the back of that hat. When I had hair it was blond and I had several clip on hair pieces that I use to wear so I pulled out a clip on pony tail and it looked great. I get positive comments every time I am at the cancer center ( I show them because most people would never guess it is a clip on). I feel like I don't look sick anymore and lots of people tell me if they did not know that I have cancer they would never think I did. It is important to try to make yourself feel good by looking as good as you can. I put on makeup and wear one of my hats with the pony tail and I feel good. Also I lost about 40 pounds which in my case was also a plus. Hang in there. Try to think positive.
  • Mle42305
    Mle42305 Member Posts: 1

    Janna, I was diagnosed with
    Janna, I was diagnosed with stage 3C ovarian cancer last July. What a shock. I felt fine, no real symptoms. Just went in for my annual checkup and my OB/GYN said I had a mass on each ovary. I had surgery within two weeks of the diagnosis, then six months of heavy chemo. Now I am in remission but my doctor suggested I have chemo maintenance for a year so three weeks a month I get small doses of chemo. Not too many side effects now. Neuropathy in my feet is the worst for me. I read all of your comments and there is not much I can add. Except I will make a suggestion for your head dress that has really worked for me. I hated the wig I bought, never wore it. Hated the cute hats my friends brought me and the ones I bought. The turban did not work for me. About all I liked was a ball cap. One day a friend of mine said why don't you put a clip on pony tail on the back of that hat. When I had hair it was blond and I had several clip on hair pieces that I use to wear so I pulled out a clip on pony tail and it looked great. I get positive comments every time I am at the cancer center ( I show them because most people would never guess it is a clip on). I feel like I don't look sick anymore and lots of people tell me if they did not know that I have cancer they would never think I did. It is important to try to make yourself feel good by looking as good as you can. I put on makeup and wear one of my hats with the pony tail and I feel good. Also I lost about 40 pounds which in my case was also a plus. Hang in there. Try to think positive.

    I just thought I would share
    I just thought I would share my story with you. Please dont feel alone in this at all. I am 23 years old, and diagnosed in July 09 at 22 with OVCA and had a partial hyst. they were able to leave my uterus. I also have been having a very hard time dealing with the fact that I can't have my own children. If you need someone to talk to please dont hesitate, would probably help us both. Good Luck!
  • ShannonStacie
    ShannonStacie Member Posts: 2
    Young
    I was 22 years old when I was diagnosed with Sage 3C ovarian cancer, it makes it so much harder when you are young. Because you have no one to talk to. This is a older womens cancer I know I have been there. If you need to talk to someone that undestands I am here. shannongiggles@ymail.com. You sound just like me when I first found out, I can tell you how I delt with it. The kids thing, the worry I understand.
    Shannon
  • cptv8ing
    cptv8ing Member Posts: 24
    Just curious as to how you
    Just curious as to how you are? Where are you in treatment, etc.?

    Melanie
  • special123
    special123 Member Posts: 22
    hi
    I was 39 when I found out I had cancer. My husband and I had desperately been trying to have a child. Neither of us have any children. When I found out I had cancer, my immediate thought was "OH my gosh. Its over. Im not going to have any children." To me, that was worse than my diagnosis.

    Fortunately my cancer was stage 1, but I still had to do 12 weeks of chemo. It was worse mentally towards the end than the begninning. Sitting in front of the mirror with just you and your reflection is hard. I had circles under my eyes, of course my hair was gone (even eyelashes and eyebrows). My skin was yellowish/green.

    Between the 3rd and 4th round, my get up and go had got up and went. It seemed like my whole life had stopped, been stollen from me. And as I say these words I realize how fortunate I am. Stage 1 cancer is a relatively good place to be. My prayers are with you and all the women who have a longer and harder battle than mine.My sister gave me a swift "kick in the butt" that I needed, and I made it through. My last CA 125 was 3.9!

    My words of wisdom is this....allow yourself to feel sorry for yourself...FOR A WHILE....then pull yourself together and fight! Ovarian cancer is a nasty disease. My oncologist told me once that he didn't know how he would handle it if he had to have chemo. And I told him the strengh is in us all when you need it!


    My husband and I are waiting to adopt a baby. It was not our original plan, but I will not let cancer rob me of the opportunity to be a mother!
    Best wishes!
    Sherise
  • KimmVela
    KimmVela Member Posts: 2
    Andee66 said:

    I am 28yrs old with Ovarian Cancer
    I was diagnosed in 2004 with Endometriosis, I have been battling this disease ever since, with surgeries, labs, ultrasounds, biopsies, etc. I now can relate with SOMEONE! I am sorry to hear about your diagnosis, I really know what you are going through. Fortunately I gave birth to a very healthy beautiful baby girl in Feb of 2009, she truly is my miracle child. I had a laparascopic surgery in Nov of 2009 and my doctor just routinely sent everything to pathology. Came out Papillary Serous Carcinoma. For 2 months I knew I had cancer but no one could tell me where. Beginning of january I had a total hystrectomy, I had my port placed yestreday and start my first chemo treatment on the 8th of Feb. This is a very hard thing to deal with. I am sorry you had not had any children, I really wanted more but am blessed with my daughter. It does kind of shut your energy down and your ability to think positive. But seriously Janna, You have to stay positive!!!! THe only thing I heard my doctor say the other day was "people have been cured of this". So WE will be them! We will fight this! We can not think about it coming back, we need to think of the current moment and living our life to the fullest. Of course I have been immobile due to my surgery but I can't wait to get my energy back. I am scared of chemo, I"m scared of losing my hair, and yes I'm scared of reoccurence. I know nothing about this disease and with my diagnosis it is Low-grade papillary serous carcinoma stage 3c ovarian cancer. SEriously???? I have no clue, they say it is not that effective with chemo, I don't know, I hope to get a lot of knowledge. Unfortunately I can not tell you what is going to happen next but I can tell you that We together have to stay positive, I will try and stay on this site as much as possible. At least you know now taht you have someone to get through this. We can share our stories and vent our fears. IT is going to be ok!!!!!!!!!!!!!!!!

    Hi all--I AM ANOTHER OVARIAN CANCER FIGHTER DIAGNOSISED AT 29...
    HI ALL, I AM NEW TO HIS GREAT SITE, I WISH I HAD JOINED SOONER.MY DOCS TOLD ME WAS THE YOUNGEST IN THE US--AT THE TIME.WELL I AM VERY HAPPY TO TELL YOU ALL I AM STILL ALIVE AND I AM 43.I WANT YOU TO STAY POSITIVE EVERY DAY--EVEN IF ITS HORRIBLE,DONT SURRENDER TO HORRIBLE AND ALL IT BRINGS.I WILL WRTE SOON. MY CA WAS A STAGE, 2C ,I HAD SURGERY,CHEMO,BOWEL RESECION,AND A BLADDER REPAIR.

    PEACE LADIES,KIMMVELA
  • KimmVela
    KimmVela Member Posts: 2
    Mle42305 said:

    I just thought I would share
    I just thought I would share my story with you. Please dont feel alone in this at all. I am 23 years old, and diagnosed in July 09 at 22 with OVCA and had a partial hyst. they were able to leave my uterus. I also have been having a very hard time dealing with the fact that I can't have my own children. If you need someone to talk to please dont hesitate, would probably help us both. Good Luck!

    PLEASE SHARE
    I WANTED LET YOU KNOW IF YOU NEED A PERSON TO VENT TOO, I AM HERE-I WENT THUR THE SAME SITUATION,I WAS 29, STAGE 2C,SURGERY,CHEMO,BOWEL RESECTION,BLADDER DAMAGE.........AND I 43 NOW---SO DON'T YOU DARE GIVE UP,I WON'T LET YOU!!!
  • azgrandma
    azgrandma Member Posts: 609 Member

    hi
    I was 39 when I found out I had cancer. My husband and I had desperately been trying to have a child. Neither of us have any children. When I found out I had cancer, my immediate thought was "OH my gosh. Its over. Im not going to have any children." To me, that was worse than my diagnosis.

    Fortunately my cancer was stage 1, but I still had to do 12 weeks of chemo. It was worse mentally towards the end than the begninning. Sitting in front of the mirror with just you and your reflection is hard. I had circles under my eyes, of course my hair was gone (even eyelashes and eyebrows). My skin was yellowish/green.

    Between the 3rd and 4th round, my get up and go had got up and went. It seemed like my whole life had stopped, been stollen from me. And as I say these words I realize how fortunate I am. Stage 1 cancer is a relatively good place to be. My prayers are with you and all the women who have a longer and harder battle than mine.My sister gave me a swift "kick in the butt" that I needed, and I made it through. My last CA 125 was 3.9!

    My words of wisdom is this....allow yourself to feel sorry for yourself...FOR A WHILE....then pull yourself together and fight! Ovarian cancer is a nasty disease. My oncologist told me once that he didn't know how he would handle it if he had to have chemo. And I told him the strengh is in us all when you need it!


    My husband and I are waiting to adopt a baby. It was not our original plan, but I will not let cancer rob me of the opportunity to be a mother!
    Best wishes!
    Sherise

    Whats yoru ca 125 number
    what has your ca number gone from to in these four treatments. My doctor said the more it dropps in three treatmets, the better the chance you beat the disease. Mine went from almost 600 to 12 after 3 treamatents, it is now at 7
    Good luck to you honey, God will see you through this , just wait and see
  • Angelasmom2
    Angelasmom2 Member Posts: 146
    azgrandma said:

    Whats yoru ca 125 number
    what has your ca number gone from to in these four treatments. My doctor said the more it dropps in three treatmets, the better the chance you beat the disease. Mine went from almost 600 to 12 after 3 treamatents, it is now at 7
    Good luck to you honey, God will see you through this , just wait and see

    age 38
    My daughter Angela had cancer surgery July 8th, last week on her 38th birthday. She is still in the attensive care unit. The hardest part for her is that she has three young children that she wants despirately to be there for. She was dignoises as 3c ovarian. cancer. As her mother, I would jump at the chance to trade places with her.I will keep you in my prayers. God is our healer. Linda