Looking for Stage II Ovarian Cancer Survivors

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  • stage 2
    Hello,
    wow, I found 2, Stage 2 people in 1 day. I was dx in June 2009. I was a 2B. I have 1 more chemo treatment left. Stage 2 people are so hard to find. I found 2 ladies, 1 is 9 years out with no re-occurances and the other lady is 14 years out with no re-occurances. I also am talking to another lady currently, who was a stage 2 and she has 2 treatments left and she is doing fine. This cancer is so hard to find early on. If you want to talk e-mail me at vintagehouse@comcast.net. We can exchange phone numbers. Thank-You, Paula

    Stage 2C Ovarian and Stage 2C Uterine Cancer Survivor!!
    I was diagnosed with Stage 2C Ovarian and Uterine Cancer on December 22, 2008. I am happy to report that after 6 rounds of Carbo Taxol and 3 rounds of Brachytherapy (internal radiation) I am Cancer Free. The chemo went well, radiation was nothing (internal radiation doesn't leave you with burns)and my hair is growing back beautifully. I was diagnosed when I went to the hospital with back pain. Come to find out I had a tumor (14x13x10cm - yes cm) pressing on my pelvic bone and growing up into/around my stomach. I had a complete hysterectomy (during surgery they found the Uterine Cancer) then started my chemo in January, finished in May had radiation in June and I have never felt better. I still get tired and I still have some other minor problems but other than that I am healthy, happy and alive. Hope to hear from you soon.
  • Stage 2C Ovarian and Stage 2C Uterine Cancer Survivor!!
    I was diagnosed with Stage 2C Ovarian and Uterine Cancer on December 22, 2008. I am happy to report that after 6 rounds of Carbo Taxol and 3 rounds of Brachytherapy (internal radiation) I am Cancer Free. The chemo went well, radiation was nothing (internal radiation doesn't leave you with burns)and my hair is growing back beautifully. I was diagnosed when I went to the hospital with back pain. Come to find out I had a tumor (14x13x10cm - yes cm) pressing on my pelvic bone and growing up into/around my stomach. I had a complete hysterectomy (during surgery they found the Uterine Cancer) then started my chemo in January, finished in May had radiation in June and I have never felt better. I still get tired and I still have some other minor problems but other than that I am healthy, happy and alive. Hope to hear from you soon.

    Stage 2
    Hello,
    I answered your e-mail. Hope to hear from you soon. I am doing fine. If you do not get my e-mail let me know. Thanks, Paula
  • SissyKay said:

    Stage II Cancer
    Hello,

    I was dx in Dec. 08 with Stage 2 as a result of a prophylatic oophorectomy. I am BRCA1 positive (47 years old) so I decided to have my ovaries removed to be safe, and surprise, surprise there was a tumor in one of my ovaries and on one of my fallopian tubes. One month later I had a "second look" surgery and my oncologist found a small tumor in my abdomen. I did the standard 6 rounds of carbo/taxotere (was allergic to taxol) Mar-June of this year. I had a CA125 level of 17 with my first surgery, and now it is at 10. I am finally feeling much better after the chemo physically, but of course mentally I am really struggling with the anxiety. My next check-up is in February. I want to be positive but also realistic. This is a sneaky disease, and I know that I am so fortunate compared to many other women to have found it a little earlier, but still I do not trust it for one second!!! I am new to this site so look forward to hearing from others with Stage 2. Also because I am BRCA1 positive I recently had a prophylatic double mastectomy. I dreaded doing this but the thought of tackling breast cancer on top of ovarian made the decision easier.

    Stage 2
    Hello,
    Glad to hear from you. Our Stage 2 group is very small so we welcome you. I am doing fine. I am finished with my chemo, I had a clear CT scan and my CA-125 is a 6. I am 46 and also BRCA1 positive. It is a good thing you had your breasts removed, because prior to getting ovarian cancer, I had Stage I breast cancer 3 times. I have had partial mastectomy. I know it is hard not to worry, but Stage 2's do very well. I am feeling great and try not to worry about it to much. After being sick for 6 monthes, it sure feels good to feel well. I thank god everyday. Here is my e-mail address vintagehouse@comcast.net. Thank-You, Paula
  • saritab
    saritab Member Posts: 4

    Stage 2
    Hello,
    Glad to hear from you. Our Stage 2 group is very small so we welcome you. I am doing fine. I am finished with my chemo, I had a clear CT scan and my CA-125 is a 6. I am 46 and also BRCA1 positive. It is a good thing you had your breasts removed, because prior to getting ovarian cancer, I had Stage I breast cancer 3 times. I have had partial mastectomy. I know it is hard not to worry, but Stage 2's do very well. I am feeling great and try not to worry about it to much. After being sick for 6 monthes, it sure feels good to feel well. I thank god everyday. Here is my e-mail address vintagehouse@comcast.net. Thank-You, Paula

    new stage 2
    Hi Everyone,

    I was just diagnosed with stage 2 cancer and i am starting Taxol/carbo on Wednesday.
    Of course I am extremely scared and nervous. But I guess that is to be expected.I had a hyst on Oct 30, 2009. Good luck everyone on your treatments, I will let you know how Wednesday treatment goes

    Hugs to all,

    Sarita
  • saritab said:

    new stage 2
    Hi Everyone,

    I was just diagnosed with stage 2 cancer and i am starting Taxol/carbo on Wednesday.
    Of course I am extremely scared and nervous. But I guess that is to be expected.I had a hyst on Oct 30, 2009. Good luck everyone on your treatments, I will let you know how Wednesday treatment goes

    Hugs to all,

    Sarita

    Stage 2
    Good Morning and welcome to our ovarian cancer sight. Please keep us up to date on your treatments and how you are doing. If you have any questions or just need to vent, we are here for you. We will all help you get through this process. This sight has been a life saver for me. I was a Stage IIB. I am out of treatment and doing well. Thank-You, Paula
  • MistressEmily
    MistressEmily Member Posts: 2
    Stage 2 Survivor
    Sept 17 2007 was my last chemo Taxol as well. 6 Treatments 7 hours each. Drove myself. 6 weeks of Radiation external and internal that's for the cervical cancer. I am doing great. I was stage two B Ovarian which is still fairly early.
    I am still going strong and sometimes forget I had it. I had Uterian, Ovarian, and cervical cancer. Pretty much wiped out that part of me. I'm still alive and doing well. Finished two years of college while taking chemo and radation. You'll be fine. Never believe everything they tell you. Ask for second opinions and stick with a great Doctor. But never stop asking questions. Remember don't freak. Your going to want to have total control of your cancer keep up with your white blood cells and watch everything. I found the best thing was to ask God to take care of it because I wasn't able to do it myself. I just let go for the first time in my life... and it was great.

    God Bless
    Mistress Emily
    Don't panic it only waste hair.
  • MistressEmily
    MistressEmily Member Posts: 2
    lamke said:

    Stage 2B
    My wife was recently Dx with stage B ovarian cancer and had surgery Oct 2009. Dr put in 2 ports for the chemo but we have not decided yet on whether to use both of them. We are looking for feedback and trying to research as much as possible about the carbo/taxol treatments.

    It sucks but Taxol Rocks
    I was stage two b with Uterian and cervical as well. My CA 125 never went above a 5 from day one I never showed signs of any cancer until they went in for fibroids and found all 3. I had the Taxol in 2007 and not a problem so far. Still always praying. It's a very sneaky thing and don't ever let your guard down. but you can get through it with God's help. Your never going to do it alone. I am so Glad I had a great Doctor. In Jacksonville Florida Doctor Robertson. He said do you want to kill it than that's what the Taxol will do.

    He was right.
  • ildragonfly
    ildragonfly Member Posts: 2
    stage2
    Hi, I just had my 3rd surgery for reoccurrence of ovarian cancer which was originally diagnosed stage2 in March 2002. Two weeks shy of the 5 year mark it reappeared in March 2007. Again 3 weeks ago (short of 3 years), the cancer returned. Each time it has appeared as a removabe tumor and I followed with chemo treatments. The first time I was part of a clinical trial so had 22 treatments of taxol and carboplatin. The second time I had 6 treatments of gymzar and carboplatin...I find out next Monday what the plan of treatment is.
    I have been very discouraged by the continued reocurrences but have a great dea of trust and faith in my oncologist. A CT scan did not detect either of the second and third tumors but he ordered PET scans which did find them. My CA-125 only went up to 70 with the second recorrence and to 10 for the third.
    I have not been a part of any support group throughtout this ordeal but I feel that finding others like myself is an important part of my coping....there are so many amazing women who have endured and conquered...I am in awe.
    ildragonfly
  • saundra
    saundra Member Posts: 1,370 Member

    stage2
    Hi, I just had my 3rd surgery for reoccurrence of ovarian cancer which was originally diagnosed stage2 in March 2002. Two weeks shy of the 5 year mark it reappeared in March 2007. Again 3 weeks ago (short of 3 years), the cancer returned. Each time it has appeared as a removabe tumor and I followed with chemo treatments. The first time I was part of a clinical trial so had 22 treatments of taxol and carboplatin. The second time I had 6 treatments of gymzar and carboplatin...I find out next Monday what the plan of treatment is.
    I have been very discouraged by the continued reocurrences but have a great dea of trust and faith in my oncologist. A CT scan did not detect either of the second and third tumors but he ordered PET scans which did find them. My CA-125 only went up to 70 with the second recorrence and to 10 for the third.
    I have not been a part of any support group throughtout this ordeal but I feel that finding others like myself is an important part of my coping....there are so many amazing women who have endured and conquered...I am in awe.
    ildragonfly

    Welcome, to our discussion
    Actually, you are an inspiration that one can beat this for 5 and 3 years to some of us. Thanks for your post. Keep up the good work. Saundra
  • fern6942
    fern6942 Member Posts: 1

    Stage 2
    Hey Nancy,
    Thank-You for the reply. I just do not know if I am any better off at a Stage 2. I could only find 1 other person and she has been clean for 9 years and had no re-occurances. The reason we caught it at a Stage 2, was because I was already being watched by an oncologist every 6 monthes because of my breasts and I was already having those symptoms that ovarian cancer produces, but not really paying them much attention, but the real kicker was I woke up in the middle of the night with a horrible stomach ache and I called the oncologist the next morning and he sent me immediatly for a CT scan. My re-occurance rate is still 25% or 35%, according to all the data. I just worry alot. By the way, I have been reading alot of these disscussions and you guys are like warriors. I admire you so much. This site is just what a person needs to get through these tough times. I love all of you and don't even know you that well. Thank-You for your time. Paula

    Stage 3
    Don't give up hope. I was stage 3...9 years ago and no reoccurrences as yet.
  • mtntopmom
    mtntopmom Member Posts: 1
    MMK said:

    Diagnosed Stage 2c last Feb 2009
    Had abdominal surgery - there were two tumors outside the ovaries and on the tubes - one had flopped over and stuck to my pelvic wall and my appendix =-so............total hysterectomy,oophorectomy, appendectomy, also removed my omentum and 45 lymph nodes and part of my pelvic wall. The wash was clean and so were the nodes - so no spread. I went through 6 cycles of carbo/platinum every 21 days in addition to 5 cycles of Avastin as part of trial. My ca-125 before surgery was 65 - just tested at 5 - have been told I'm in complete remission. I would like to believe I have beat this thing.................good luck to all of us with this disease!

    Stage 2A Ovarian, 1B endometrial, diagnosed last Feb 2009
    I didn't really have any of the classic symptoms, went to a GYN urologist for urinary incontinence and THANK GOD he didn't think my symptoms sounded typical!!! U/S showed ovarian mass. Went in for laparoscopy thinking (hoping) it was endometriosis related, with an Onc/Gyn on call (again THANK GOD)just in case since my ca-125 was 67, ended up having the whole debulking, etc. Nodes/washings were clean, so I am very grateful! Went thru the 6 cycles of Carbo/Taxol, did pretty well, finished in July. My hair is growing back with curls! I love menopause! (it's the small things that make me happy :-)!) I just had my second CT scan, which was essentially OK and my ca-125 was down to 9. I really am feeling great! I tend to forget it all sometimes, but it all comes back with the 3 month checkups. It's great to hear from other folks with Stage 2 ovarian. There just wasn't much information available regarding Stage 2. I'm really just trying to focus on exercising, eating right, keeping a positive mind-set and living each day as well as I can! Each day is a gift!
  • Nancy48
    Nancy48 Member Posts: 5
    Stage 2 survivor
    Hi Paula, I was diagnosed April of 2008. I had a hysterectomy, 6 sessions of chemo and 28 radiation treatments. I am feeling well, doing all my regular visits and tests and so far no reoccurance.
  • Nancy48 said:

    Stage 2 survivor
    Hi Paula, I was diagnosed April of 2008. I had a hysterectomy, 6 sessions of chemo and 28 radiation treatments. I am feeling well, doing all my regular visits and tests and so far no reoccurance.

    Stage II
    Hi Nancy,
    Thank-You for replying to my post. I see that you are almost 2 years out, in April, no problems. That is fantastic. My friend Kathryn and I were both Stage II and we are 8 monthes out, with no problems so far. We are keeping our fingers crossed. Her CA-125 is holding at 5 and my CA-125 is holding at 6 with clear scans. We are happy, happy, and more happy. Thank-You and keep in touch. Paula
  • tngirl
    tngirl Member Posts: 28
    Last Chemo Today
    Hi,

    I have been reading your comments and I have to say that you all have been so supportive and have given me strength to keep a positive attitude and to enjoy everything that life has to offer. I have to say a lot of faith in God and his healing has been a blessing. And I can't forget my oncologist, Dr. Kramer and his wonderful and caring staff, they are the best! I just wanted you all to know that I had my last chemo (my 6th) today and am so excited and ready to feel better and to get on with my life. I was diagnosed with stage IIC in August of 2009 and had six rounds of taxol/carbo. Pre-surgery my CA-125 was 85 and is now 12. I go for a six week checkup in February. I know that I will always have some anxiety with the thought of the cancer reoccurring, but I am going to keep on reading your comments and pray for continued blessings. Thank you ladies for being there for me!
  • Linda222
    Linda222 Member Posts: 2
    unknown said:

    This comment has been removed by the Moderator

    stage 2 b ovarian cancer survivor
    Dear Nancy

    I was diagnosed with stage 2b ovarian cancer on feb 7, 2008. my ca125 was 246 before surgery. I did 6 rounds of chemo paxtol and cisplatan. I feel great. my grade of cancer was 3. I do carry the brca 1 gene and I am going to have the profilatic breast surgery to prevent the on set of Breast Cancer. I also had the robotic surgery. Did you have the robotic surgery? My grandma had breast cancer at 35 and died. My mother had ovarian cancer at 35 they got it no chemo year 1964 then in 1972 got cancer of the peritoneal and died at 43. My older sister died of breast cancer 10 years ago she was a 2 b and age 45. My other sister was diagnose with ovarian 8 months after me stage 3 for her she is find today.
  • Linda222 said:

    stage 2 b ovarian cancer survivor
    Dear Nancy

    I was diagnosed with stage 2b ovarian cancer on feb 7, 2008. my ca125 was 246 before surgery. I did 6 rounds of chemo paxtol and cisplatan. I feel great. my grade of cancer was 3. I do carry the brca 1 gene and I am going to have the profilatic breast surgery to prevent the on set of Breast Cancer. I also had the robotic surgery. Did you have the robotic surgery? My grandma had breast cancer at 35 and died. My mother had ovarian cancer at 35 they got it no chemo year 1964 then in 1972 got cancer of the peritoneal and died at 43. My older sister died of breast cancer 10 years ago she was a 2 b and age 45. My other sister was diagnose with ovarian 8 months after me stage 3 for her she is find today.

    Stage 2B Ovarian Cancer Survivor
    Dear Linda,
    Thank-You for your post. I did not have robotic surgery. I had the conventional de-bulking surgery. Stage 2B. Did six rounds of Carbo/Taxol. I also carry the Brca 1 gene. I have had Stage 1 breast cancer 3 times, but I am okay so far. That started happening 20 years ago. My grandmother has had Stage 1 breast cancer about 5 or 6 times, I lost count, she is 87 and doing fine. My mother died of ovarian cancer 12 1/2 years ago. She was 53 years old. I am 46 years old. My mom refused to have surgery, which we all know you can not do. Right now I am fine, with a clean scan and a CA-125 holding at 6. I will have breast surgery, but I have to wait a year from the last surgery. Right now I have an MRI done on my breasts every 6 monthes. Please keep us posted on how you are doing. Thank-You, Paula

    P.S. I have no sisters or brothers. I have no daughters, but I do have 3 sons.
  • zinaida
    zinaida Member Posts: 221
    tngirl said:

    Last Chemo Today
    Hi,

    I have been reading your comments and I have to say that you all have been so supportive and have given me strength to keep a positive attitude and to enjoy everything that life has to offer. I have to say a lot of faith in God and his healing has been a blessing. And I can't forget my oncologist, Dr. Kramer and his wonderful and caring staff, they are the best! I just wanted you all to know that I had my last chemo (my 6th) today and am so excited and ready to feel better and to get on with my life. I was diagnosed with stage IIC in August of 2009 and had six rounds of taxol/carbo. Pre-surgery my CA-125 was 85 and is now 12. I go for a six week checkup in February. I know that I will always have some anxiety with the thought of the cancer reoccurring, but I am going to keep on reading your comments and pray for continued blessings. Thank you ladies for being there for me!

    I am stage 2C ovarian cancer and...
    I was diagnost with 2C ovarian cancer and stage 1 HER2 positive breast cancer february 14 2007. i am BRCA1 positive.My mom died july 2006 - ovarian cancer, she was 75.My aunt had 20 years ego breast cancer, and now had recurrency, at age 73. She live in Russua, St.Petersburg. I had 6 carboplatin/taxoter plus one eyar Herceptin every 3 weeks.Last July my dad (85 years). My ovarian cancer back. CA125 did go up from sept. to dec.-16,19,29,630. Januery 12 I start carboplatin and gemzar. PET scan light up 5 spots in pelvic. Doctor not recomended surgery, too many spots,:(! I hope it is will go in remission again. Sorry about my spelling. did not go scool for english. My russian better.I love to read how you help each other. God bless you all. With best wishes, Zina.:)
    P.S. Tomorow my second chimo:(.
  • Tglover
    Tglover Member Posts: 4
    zinaida said:

    I am stage 2C ovarian cancer and...
    I was diagnost with 2C ovarian cancer and stage 1 HER2 positive breast cancer february 14 2007. i am BRCA1 positive.My mom died july 2006 - ovarian cancer, she was 75.My aunt had 20 years ego breast cancer, and now had recurrency, at age 73. She live in Russua, St.Petersburg. I had 6 carboplatin/taxoter plus one eyar Herceptin every 3 weeks.Last July my dad (85 years). My ovarian cancer back. CA125 did go up from sept. to dec.-16,19,29,630. Januery 12 I start carboplatin and gemzar. PET scan light up 5 spots in pelvic. Doctor not recomended surgery, too many spots,:(! I hope it is will go in remission again. Sorry about my spelling. did not go scool for english. My russian better.I love to read how you help each other. God bless you all. With best wishes, Zina.:)
    P.S. Tomorow my second chimo:(.

    Creeping CA 125
    Hi Ladies! I'm so happy to find this thread. I was diagnosed w/ stage 2a ovarian cancer in 8/08, had a total hysterectomy and then 6 rounds of tax/carbo. My CA 125 was 7 for the first couple of check-ups after chemo, then 9 and now it's risen to 10. I am so grateful for the early diagnosis and how well I'm feeling now. However, the CA 125 is slowly creeping and I'm wondering if it becomes exponential. I'm only 43 and I have a 7-yr old son so I'd love to find some other survivors who have had similar experiences.

    Thanks for sharing - you are an amazing group of women who inspire me!
  • cancer survivor x 4
    cancer survivor x 4 Member Posts: 177
    Tglover said:

    Creeping CA 125
    Hi Ladies! I'm so happy to find this thread. I was diagnosed w/ stage 2a ovarian cancer in 8/08, had a total hysterectomy and then 6 rounds of tax/carbo. My CA 125 was 7 for the first couple of check-ups after chemo, then 9 and now it's risen to 10. I am so grateful for the early diagnosis and how well I'm feeling now. However, the CA 125 is slowly creeping and I'm wondering if it becomes exponential. I'm only 43 and I have a 7-yr old son so I'd love to find some other survivors who have had similar experiences.

    Thanks for sharing - you are an amazing group of women who inspire me!

    CA-125
    Hello Tglover,
    I was diagnosed a 2B in June 2009. I am 1 year cancer free. I get my CA-125 done every 30 days. After surgery it was a 10. After 6 chemo treatments it was a 5. It has bounced around between 5 and 7 the whole time. My oncologist says they are looking for "doubling of numbers or tripling of numbers". How often do you get your CA-125 done? I do not think you need to worry about a 1 or 2 or even 3 point jump over the course of a couple of monthes. It might go down the next time. Even with a CA-125 of 10, I do not think a CT scan is going to pick anything up. Frankly, I am tired of getting blood draws. Everyone else has it done every 3 monthes. Why do I have to get mine done every 1 month? Don't start worrying yet. I know it is hard to do, but I am just trying to live my life to the fullest and have a good time, just in case I have a re-occurance soon. Thank-You, Paula
  • Tglover
    Tglover Member Posts: 4

    CA-125
    Hello Tglover,
    I was diagnosed a 2B in June 2009. I am 1 year cancer free. I get my CA-125 done every 30 days. After surgery it was a 10. After 6 chemo treatments it was a 5. It has bounced around between 5 and 7 the whole time. My oncologist says they are looking for "doubling of numbers or tripling of numbers". How often do you get your CA-125 done? I do not think you need to worry about a 1 or 2 or even 3 point jump over the course of a couple of monthes. It might go down the next time. Even with a CA-125 of 10, I do not think a CT scan is going to pick anything up. Frankly, I am tired of getting blood draws. Everyone else has it done every 3 monthes. Why do I have to get mine done every 1 month? Don't start worrying yet. I know it is hard to do, but I am just trying to live my life to the fullest and have a good time, just in case I have a re-occurance soon. Thank-You, Paula

    Creeping CA 125
    Thanks for the quick reply, Paula! I get my CA 125 done every 3 mos and I'm not panicked. I just see the trending upward and I'd feel more comfortable if the variations went up and down over time, instead of simply creeping upward. I correlate survivability with how long that CA 125 can stay low and the time between re-occurances. Thanks for sharing!