A Good Day Vals update

Val12
Val12 Member Posts: 27
edited March 2014 in Head and Neck Cancer #1
So I had my appointment today at the Cross Cancer Institute, and it went fine. They gave me alot to think about, lots of info, and facts. The nice thing was the oncoligist agreed with Dr. Seikaly in that my cancer is CURABLE! From what I have read oncoligists do not like to use that word… but he did. He also said that the size of my tumor is only a stage 2, but with the lymph node involvment it puts it up to a stage 4. Anyhow I was happy with what they all said, and am confident in my decisions that I have made. :-)

Hubby and I talked about it and I have decided to have the surgery first and then the treatment. I just want to get as much of the cancer out of me as possible as quick as possible. I feel as if I have been invaded and/or raped by this awful disease.

I am also signing up for a clinical study as part of my surgery where he will actually do a submandibular salivary gland transfer to protect the saliva glands from radiation.He is the doctor who pioneered this techique, (so like I said before I do think I have a great doctor). With this kind of cancer and the normal surgery and treatment there are so many quality of life issues such as: saliva and dry mouth, swallowing, and tastebud issues, and it usually takes a long time to get theses things back under controlas many of you know. With this clinical trial it makes healing, eating . drinking, swallowing etc. that much easier and you heal quicker.

Anyway I will be seeing him on Monday with my decision, and he will tell me more about the sugery, he told me that it would be within 3 weeks from then.

If any of you are interested in reading my Doctors proceedures, just type in “Submanibular Salivary Gland Transfer/ Dr. H. Seikaly” or another interesting on of his is " Beavertail Surgery" these are being done as a clinical studies all over N. America now. If anyone has had either of these done please let me know, what you thought The Clinical Research nurse is going to put me in touch with people who have had this proceedure done.

Anyway I am so happy this appointment was not a doom and gloom one, and finally the ball is in my court so I am going to run all the way to Cancer Free and good health with it!

Sunshine and Smiles Val

Comments

  • cwcad
    cwcad Member Posts: 117
    Right on!! Now fight on!!!!
    Right on!! Now fight on!!!! Keep us posted. IT would apapear that you are taking back some control. Good LUCK!!!!
  • fishingirl
    fishingirl Member Posts: 188
    cwcad said:

    Right on!! Now fight on!!!!
    Right on!! Now fight on!!!! Keep us posted. IT would apapear that you are taking back some control. Good LUCK!!!!

    I'm wishing you all the luck
    I'm wishing you all the luck in the world!!! Keep positive.
    Cindy
  • pk
    pk Member Posts: 192
    Val
    A good day for us too. My husband had his first PET scan 3 months post radiation and chemo. His body, at this time, is totally cancer free. Couldn't have better results. Go for it, fight, get thru the treatment. Obviously it's worth it!!!!

    PK
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Val


    I am glad to hear you are doing well and you have made your choice, you will continue to be in my prayers all the way through and for some time after.

    God bless
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    Hondo said:

    Hi Val


    I am glad to hear you are doing well and you have made your choice, you will continue to be in my prayers all the way through and for some time after.

    God bless

    glad to hear
    Sounds great, Val. No question about the impact on our saliva, and the typical dry mouth and impacts from it- including our digestion quality, and natural mouth and teeth cleansing. Hope all goes well- very well.

    Believe.

    kcass
  • micktissue
    micktissue Member Posts: 430
    Val
    Thanks for your post and your resolve. You and I are in the same boat. have you posted your story here somewhere? Please point me to it. I will ask my Dr about "Submanibular Salivary Gland Transfer" and the "Beavertail Surgery" as he seems interested in different surgical modalities.

    Please keep us posted.

    Warmly,

    Mick