Looking for Stage II Ovarian Cancer Survivors

cancer survivor x 4
cancer survivor x 4 Member Posts: 177
edited March 2014 in Ovarian Cancer #1
Hello,
I was DX on May 2009 with a Stage 2B ovarian cancer. I am looking for anyone else who was a stage 2. I want to see how they are doing and if they have had any re-occurances. Thank-You for any information you can provide me. Paula
«1345

Comments

  • This comment has been removed by the Moderator
  • cancer survivor x 4
    cancer survivor x 4 Member Posts: 177
    unknown said:

    This comment has been removed by the Moderator

    Stage 2
    Hey Nancy,
    Thank-You for the reply. I just do not know if I am any better off at a Stage 2. I could only find 1 other person and she has been clean for 9 years and had no re-occurances. The reason we caught it at a Stage 2, was because I was already being watched by an oncologist every 6 monthes because of my breasts and I was already having those symptoms that ovarian cancer produces, but not really paying them much attention, but the real kicker was I woke up in the middle of the night with a horrible stomach ache and I called the oncologist the next morning and he sent me immediatly for a CT scan. My re-occurance rate is still 25% or 35%, according to all the data. I just worry alot. By the way, I have been reading alot of these disscussions and you guys are like warriors. I admire you so much. This site is just what a person needs to get through these tough times. I love all of you and don't even know you that well. Thank-You for your time. Paula
  • zippy
    zippy Member Posts: 3

    Stage 2
    Hey Nancy,
    Thank-You for the reply. I just do not know if I am any better off at a Stage 2. I could only find 1 other person and she has been clean for 9 years and had no re-occurances. The reason we caught it at a Stage 2, was because I was already being watched by an oncologist every 6 monthes because of my breasts and I was already having those symptoms that ovarian cancer produces, but not really paying them much attention, but the real kicker was I woke up in the middle of the night with a horrible stomach ache and I called the oncologist the next morning and he sent me immediatly for a CT scan. My re-occurance rate is still 25% or 35%, according to all the data. I just worry alot. By the way, I have been reading alot of these disscussions and you guys are like warriors. I admire you so much. This site is just what a person needs to get through these tough times. I love all of you and don't even know you that well. Thank-You for your time. Paula

    stage 2 cancer
    I know a lady who was dx with stage 2C ovarian cancer, and happy to say she is doing fine after 14 years. Linda
  • kathryn1
    kathryn1 Member Posts: 88
    Hi
    Hi,
    I am stage 2. I talk with a lady who survived stage 2 for 14 years now. No re-occurances!!
    So, we can do this too. She says there are survivors, might as well be us!
    Kathryn
  • cancer survivor x 4
    cancer survivor x 4 Member Posts: 177
    kathryn1 said:

    Hi
    Hi,
    I am stage 2. I talk with a lady who survived stage 2 for 14 years now. No re-occurances!!
    So, we can do this too. She says there are survivors, might as well be us!
    Kathryn

    stage 2
    Hello,
    I am so glad to find another stage 2. You are only the 3rd person I have found. How long ago where you dx and have you had any problems or re-occurences. I have found a 9 year survivor and a 14 year survivor and neither one of them have had any re-occurences. I would be grateful for any information. Thank-You, Paula
    And also, what kind of treatment did you take?
  • kathryn1
    kathryn1 Member Posts: 88

    stage 2
    Hello,
    I am so glad to find another stage 2. You are only the 3rd person I have found. How long ago where you dx and have you had any problems or re-occurences. I have found a 9 year survivor and a 14 year survivor and neither one of them have had any re-occurences. I would be grateful for any information. Thank-You, Paula
    And also, what kind of treatment did you take?

    Hi
    Hi,
    I was dx in May 2009 too. I had surgery and now am on chemo, carbo/taxel. I have two more to go. I'm doing pretty good over all.
    What treatment are you on? And how are you doing?
    Kathryn
  • cancer survivor x 4
    cancer survivor x 4 Member Posts: 177
    kathryn1 said:

    Hi
    Hi,
    I was dx in May 2009 too. I had surgery and now am on chemo, carbo/taxel. I have two more to go. I'm doing pretty good over all.
    What treatment are you on? And how are you doing?
    Kathryn

    Stage 2
    Good Morning,
    I am on the same treatment as you and I also have 2 more to do. I was dx in June 2009. I had a full debulking surgery at John Hopkins in Baltimore. I had a tumor on each ovary. My nodes, ascites, and washing were clean. Did not spread anywhere else, but the doctors can not say if there is a cell floating around in there. My ca-125 post surgery, before chemo was a 10. It is now an 8. What was your ca-125 before chemo and what is it now. I am doing okay, except I do not like the port in my chest. It rubes against my bone. Do you have any hair left? Can we talk on the phone? My number is 304-279-7746. My name is Paula. Thank-you.
  • Metalblond
    Metalblond Member Posts: 1
    Stage 2c
    Hi,

    I was diagnosed September 2008 with stage 2C ovarian cancer at age 44... I have been looking for stage 2 people as well--with no luck really, until I just found this website and post! After surgery I did 6 rounds of taxol/carbo (I finished in January) and my hair has grown back, my CA 125 is nice and low and I'm doing well! Wow, I never thought I'd see the day I'd write that, but it is true :-)
  • tngirl
    tngirl Member Posts: 28
    Stage IIC
    I was dx with Stage IIC ovarian cancer in August. I have had two rounds of chemo and four to go. It's wonderful to talk with others who are Stage II, usually all 3's and 4's. I do consider myself very lucky. This past summer I felt a lump in my lower right abdomen and sure enough it was a cancerous mass. I would have liked it better if it stayed in my ovary, but I don't look back. Congrats to all of the survivors!!!!
  • Stage 2c
    Hi,

    I was diagnosed September 2008 with stage 2C ovarian cancer at age 44... I have been looking for stage 2 people as well--with no luck really, until I just found this website and post! After surgery I did 6 rounds of taxol/carbo (I finished in January) and my hair has grown back, my CA 125 is nice and low and I'm doing well! Wow, I never thought I'd see the day I'd write that, but it is true :-)

    stage 2
    Hello,
    wow, I found 2, Stage 2 people in 1 day. I was dx in June 2009. I was a 2B. I have 1 more chemo treatment left. Stage 2 people are so hard to find. I found 2 ladies, 1 is 9 years out with no re-occurances and the other lady is 14 years out with no re-occurances. I also am talking to another lady currently, who was a stage 2 and she has 2 treatments left and she is doing fine. This cancer is so hard to find early on. If you want to talk e-mail me at vintagehouse@comcast.net. We can exchange phone numbers. Thank-You, Paula
  • tngirl said:

    Stage IIC
    I was dx with Stage IIC ovarian cancer in August. I have had two rounds of chemo and four to go. It's wonderful to talk with others who are Stage II, usually all 3's and 4's. I do consider myself very lucky. This past summer I felt a lump in my lower right abdomen and sure enough it was a cancerous mass. I would have liked it better if it stayed in my ovary, but I don't look back. Congrats to all of the survivors!!!!

    Stage 2
    Hello,
    Wow, I can't believe I found 2 more stage 2 people in 1 day. I was beginning to think there were no very many of us. I know 2 other ladies. 1 is 9 years out with no re-occurances and the other lady is 14 years out with no re-occurances. I was dx in June 2009. I was a Stage 2B. I have 1 chemo treatment left. I am currently talking to another lady who was a Stage 2 and she has 2 treatments left and she is doing fine. If you want to talk e-mail me at vintagehouse@comcast.net. We can exchange phone numbers. Thank-You, Paula
  • Betsyboo
    Betsyboo Member Posts: 1

    Stage 2
    Hey Nancy,
    Thank-You for the reply. I just do not know if I am any better off at a Stage 2. I could only find 1 other person and she has been clean for 9 years and had no re-occurances. The reason we caught it at a Stage 2, was because I was already being watched by an oncologist every 6 monthes because of my breasts and I was already having those symptoms that ovarian cancer produces, but not really paying them much attention, but the real kicker was I woke up in the middle of the night with a horrible stomach ache and I called the oncologist the next morning and he sent me immediatly for a CT scan. My re-occurance rate is still 25% or 35%, according to all the data. I just worry alot. By the way, I have been reading alot of these disscussions and you guys are like warriors. I admire you so much. This site is just what a person needs to get through these tough times. I love all of you and don't even know you that well. Thank-You for your time. Paula

    Hi
    I am not feeling like much of a warrior, I am trying hard to find someone that only did 4 rounds of the chemo instead of the 6. Know any?
  • Betsyboo said:

    Hi
    I am not feeling like much of a warrior, I am trying hard to find someone that only did 4 rounds of the chemo instead of the 6. Know any?

    4 chemo treatments
    Good Morning,
    I do not know if you will get this reply, but I will try anyway. The only people I know that did only 4 rounds of chemo are Early Stage I people and I only saw that on the discussion board. Were you a stage II? Did you only do 4 rounds of chemo and why? I would be interested in knowing how you are doing. The standard treatment is 6 rounds of chemo. I have 1 treatment left. Hope you see this posting. Paula
  • Betsyboo said:

    Hi
    I am not feeling like much of a warrior, I am trying hard to find someone that only did 4 rounds of the chemo instead of the 6. Know any?

    4 chemo treatments
    Good Morning,
    I do not know if you will get this reply, but I will try anyway. The only people I know that did only 4 rounds of chemo are Early Stage I people and I only saw that on the discussion board. Were you a stage II? Did you only do 4 rounds of chemo and why? I would be interested in knowing how you are doing. The standard treatment is 6 rounds of chemo. I have 1 treatment left. Hope you see this posting. Paula
  • Arlene M.
    Arlene M. Member Posts: 1

    Stage 2
    Hey Nancy,
    Thank-You for the reply. I just do not know if I am any better off at a Stage 2. I could only find 1 other person and she has been clean for 9 years and had no re-occurances. The reason we caught it at a Stage 2, was because I was already being watched by an oncologist every 6 monthes because of my breasts and I was already having those symptoms that ovarian cancer produces, but not really paying them much attention, but the real kicker was I woke up in the middle of the night with a horrible stomach ache and I called the oncologist the next morning and he sent me immediatly for a CT scan. My re-occurance rate is still 25% or 35%, according to all the data. I just worry alot. By the way, I have been reading alot of these disscussions and you guys are like warriors. I admire you so much. This site is just what a person needs to get through these tough times. I love all of you and don't even know you that well. Thank-You for your time. Paula

    10 year ovca survivor
    Hi,
    I am a 10 year very lucky survivor of ovarian cancer, stage IIc, diagnosed Sept. 1999. I was wondering about other survivors of ovca of over 5 years and googled that, came across this group. I used to be quite active on the ACOR.org website for ovarian cancer but have not been last few years. I will post some info about myself - create a profile. I haven't read all the posts on here but saw some were wondering about ovarian cancer survivors. IT IS POSSIBLE!!! Oh, 6 rounds of carbo/taxol. No reoccurences but 2nd look surgery. Clean. Very hard on me as I lost my mother to ovarian cancer in 1990. I wish all with ovarian cancer strength. I know it's so hard sometimes. I'm also a breast cancer survivor and lost my oldest son, 28 years old last Jan so as my friends say, a survivor in every sense of the word.
    AM
  • lamke
    lamke Member Posts: 1

    Stage 2
    Hello,
    Wow, I can't believe I found 2 more stage 2 people in 1 day. I was beginning to think there were no very many of us. I know 2 other ladies. 1 is 9 years out with no re-occurances and the other lady is 14 years out with no re-occurances. I was dx in June 2009. I was a Stage 2B. I have 1 chemo treatment left. I am currently talking to another lady who was a Stage 2 and she has 2 treatments left and she is doing fine. If you want to talk e-mail me at vintagehouse@comcast.net. We can exchange phone numbers. Thank-You, Paula

    Stage 2B
    My wife was recently Dx with stage B ovarian cancer and had surgery Oct 2009. Dr put in 2 ports for the chemo but we have not decided yet on whether to use both of them. We are looking for feedback and trying to research as much as possible about the carbo/taxol treatments.
  • lamke said:

    Stage 2B
    My wife was recently Dx with stage B ovarian cancer and had surgery Oct 2009. Dr put in 2 ports for the chemo but we have not decided yet on whether to use both of them. We are looking for feedback and trying to research as much as possible about the carbo/taxol treatments.

    Stage 2 Ovarian Cancer
    Dear Lamke,
    I will tell what I have been through so far. I was DX stage 2B ovarian cancer in June of 2009. I had a total debulking surgery. I had a chest port put in and had 6 cycles of Carbo/Taxol treatments. I did fine with all the treatments, except the last treatment, It made me sick for some reason. My ca-125 after surgery and before chemo was a 10. My ca-125 is now a 7. I just had a CT scan and it was clear and I just had a check-up with the surgeon and everything is okay, for now. I will have my port flushed once a month and have a ca-125 drawn at the same time. I will get my port out in 6 to 12 weeks as long as everything stays okay. This is a very tricky cancer. I have seen ladies never have a re-occurance and some re-occur right away. I don't think any stage is 100% safe. We all have a chance of it coming back. I know things seem tough right now, but they do get better. If you have anymore questions just let me know. I will be happy to help you. Paula
  • pullingforlou
    pullingforlou Member Posts: 7

    Stage 2 Ovarian Cancer
    Dear Lamke,
    I will tell what I have been through so far. I was DX stage 2B ovarian cancer in June of 2009. I had a total debulking surgery. I had a chest port put in and had 6 cycles of Carbo/Taxol treatments. I did fine with all the treatments, except the last treatment, It made me sick for some reason. My ca-125 after surgery and before chemo was a 10. My ca-125 is now a 7. I just had a CT scan and it was clear and I just had a check-up with the surgeon and everything is okay, for now. I will have my port flushed once a month and have a ca-125 drawn at the same time. I will get my port out in 6 to 12 weeks as long as everything stays okay. This is a very tricky cancer. I have seen ladies never have a re-occurance and some re-occur right away. I don't think any stage is 100% safe. We all have a chance of it coming back. I know things seem tough right now, but they do get better. If you have anymore questions just let me know. I will be happy to help you. Paula

    Stage 3 Survivor
    My mother had stage 3 in 1997 and was in remission until 2002 and beat it again. Now it seems it came back in 2009. So it is VERY possible to beat it.
  • MMK
    MMK Member Posts: 2

    Stage 2c
    Hi,

    I was diagnosed September 2008 with stage 2C ovarian cancer at age 44... I have been looking for stage 2 people as well--with no luck really, until I just found this website and post! After surgery I did 6 rounds of taxol/carbo (I finished in January) and my hair has grown back, my CA 125 is nice and low and I'm doing well! Wow, I never thought I'd see the day I'd write that, but it is true :-)

    Diagnosed Stage 2c last Feb 2009
    Had abdominal surgery - there were two tumors outside the ovaries and on the tubes - one had flopped over and stuck to my pelvic wall and my appendix =-so............total hysterectomy,oophorectomy, appendectomy, also removed my omentum and 45 lymph nodes and part of my pelvic wall. The wash was clean and so were the nodes - so no spread. I went through 6 cycles of carbo/platinum every 21 days in addition to 5 cycles of Avastin as part of trial. My ca-125 before surgery was 65 - just tested at 5 - have been told I'm in complete remission. I would like to believe I have beat this thing.................good luck to all of us with this disease!
  • SissyKay
    SissyKay Member Posts: 1
    Stage II Cancer
    Hello,

    I was dx in Dec. 08 with Stage 2 as a result of a prophylatic oophorectomy. I am BRCA1 positive (47 years old) so I decided to have my ovaries removed to be safe, and surprise, surprise there was a tumor in one of my ovaries and on one of my fallopian tubes. One month later I had a "second look" surgery and my oncologist found a small tumor in my abdomen. I did the standard 6 rounds of carbo/taxotere (was allergic to taxol) Mar-June of this year. I had a CA125 level of 17 with my first surgery, and now it is at 10. I am finally feeling much better after the chemo physically, but of course mentally I am really struggling with the anxiety. My next check-up is in February. I want to be positive but also realistic. This is a sneaky disease, and I know that I am so fortunate compared to many other women to have found it a little earlier, but still I do not trust it for one second!!! I am new to this site so look forward to hearing from others with Stage 2. Also because I am BRCA1 positive I recently had a prophylatic double mastectomy. I dreaded doing this but the thought of tackling breast cancer on top of ovarian made the decision easier.