Pancreatic Cancer Survivors

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Comments

  • creeves said:

    My wife just Diagnosed with pacnreatic cancer
    Last Thursday evening (15-Oct-2009) my wife was diagnosed with pancreatic cancer. The tumor is 3.9 x 4cm in diameter located in the head of the pancrease and at this time can not be removed because of a blood supply. Now this all new to me however it is encouraging to read some of these stories on here how people have had treatment and were able to get the tumor removed and have lived longer than probably expected. I do realize we have very tough road ahead but this is at least some encourging new.

    Thanks

    Hello My friend. Be strong and be smart. Here's my advise to you

    Don't just rely on Orthodox medicine....

    When my father 61 typed 2 diabetic was diagnosed with PC in Costa Rica, he came back to the US to hear bad news from the VA hospital. He was given 2 months to live (the most). No other medical treatment was given to him by the conventional medicine. No surgery no nothing. They gave up on him and sent him home to die.

    I took him to a private clinic with lots of success in treating almost all types of cancer.
    The Issels Clinic in Santa Barbara. www.issels.com . After his 4 week treatment, my father regain his strengh and most of his blood levels whent back to normal. the cancer maskers imrpoved between 50% and 90% in four weeks.

    His doctors (the same that sent him home to die) could no believe it. They ran another blood work on him and they came out even better.

    Now, our mission was to get the VA to perform this blood work once a month to keep track on the cancer and the rest of his blood levels. The doctors at the VA did not help us. We lost track and my father died 7 months after his was diagnosed.

    So, without the conventional treatments we did acomplished what seemed to be impossible and incredible to anyone. My advise to you is, Don't just rely on orthodox medicine. This doctors at the Issels Clinic are graduated certified and licensed phisycians that know what they are doing.

    I am not saying most MD's don't know what they have to do in order to treat a PC patient. But the reality is that there is a huge diference in their approach to deal with such terrible desease. One doctor wants to treat you and the other one plans to help you get cured. HUGE difference.

    If my dad had gotten the help from his MD's at the hospital, we would've probably still have him around telling you more about all of this. He fought and died with his boots on...

    My best regards to you and best of wishes. Be strong and if you can or have the financial possibility seek to get help from the clinics I mentioned.

    Also try looking at www.cancercenters.com Believe me when I say, there is more we all can do to beat Cancer...DO NOT LOSE TRACK OF THE DESEASE FOR AT LEAST A YEAR...every month run a Blood work to determine the remission or regression.
  • Good News!
    Hi, I said I would report back to you if and when we received any more news on my hushands condition.

    Well, we went back to see the Consultant yesterday, expecting her to send him for another CT scan to see how things are progressing and then see her again for a follow up. Well, her Registrar examined him and asked numerous questions (when we could understand him because he was Hungarian). When the Consultant came back into the room she had decided that as he is doing so well, had no side effects from any of the Chemo whatsoever, no real hair loss-just thinning, fantastic appetite and put on some weight that they would leave him alone for three months - we could ring them if we feel we needed to. They decided that if they sent him for the scan, it would add more anxiety and worry for no reason which would not be fair on either of us.

    We are going to celebrate our daughters birthday in two weeks time (7 yrs) and have a brilliant Christmas and forget about everything until the new year, so at least we can relax a little until then.

    I would be interested in hearing how all of you out there are coping with this illness.

    I guess the majority of people on this site are from US (sorry if I am wrong), they seem to do things differently here in UK.

    Do not wait 3 months. Big Mistake.
    Dear friend, I'm very happy for you and your family about the good news that your husband is feeling and looking better.

    Being in the UK gives you an advantage over us here in the States since around 40% of patients in the UK seek for alternative medicine.

    Even though the doctor told you not to go back for 3 months. Believe me; Pancreatic Cancer is one of the fastest growing kind. even 1 month of not taking proper care of it could be a big problem. So, just get that Monthly Blood Work and don't lose track of the desease. Just do that, tell your doctor you want that blod work. It would not affect your husband at all and you'll be able sleep better at night. Do not let go. even if the doctor says he doesn't need it. YOUR FAMILY NEEDS IT..! Remember it's not anyone's family or the doctor's family we're talking about it is YOURS and that's what matters the most to you. If she denies you the tests, look for another doctor immediatly.

    My best regards to you and blessings to you and your family.
  • hmpcwks
    hmpcwks Member Posts: 1
    Pancreatic Cancer Survivors
    My dad is a 21 year Pancreatic survivor. His doctor operated on him for 18 and a half hours, and was able to remove it all. He is now diabetic, and needs insulin, but that is a small price to pay. He was told he would only have a year and a half if the operation was sucessful, so we are very lucky and we are thankful for every day. His doctor always told him that he wasn’t supposed to still be around, but my dad fooled them all. My family now truly believes that it just wasn’t his time, and we will always be grateful for Dr. Fry, and the work he did for my dad. For those of you who have heard those words that there is no hope, please don’t believe them, for there is always hope.

    Joe Padilla
  • ldenton
    ldenton Member Posts: 1
    hmpcwks said:

    Pancreatic Cancer Survivors
    My dad is a 21 year Pancreatic survivor. His doctor operated on him for 18 and a half hours, and was able to remove it all. He is now diabetic, and needs insulin, but that is a small price to pay. He was told he would only have a year and a half if the operation was sucessful, so we are very lucky and we are thankful for every day. His doctor always told him that he wasn’t supposed to still be around, but my dad fooled them all. My family now truly believes that it just wasn’t his time, and we will always be grateful for Dr. Fry, and the work he did for my dad. For those of you who have heard those words that there is no hope, please don’t believe them, for there is always hope.

    Joe Padilla

    Pancreatic Cancer Survivor
    As of Feb 15,2010 I will be a 39 year Pancreatic cancer Survivor. God has Blessed me in the last 39 years and I know every day that I wake up is another gift from Him. I was 21 years old when I had emergency explorirory surgery, due to pain and shadows on two sets of extensive x-rays. I was in surgery for 12 hours and when the doctor finished sent me to ICU and told my parents that I would not make it 24 hours, but God was not finished with me and I made it not just 24 hours but like the energizer bunny I'm still going. I have no signs of diabetis, but do have some problems digesting spicy or gressy foods so I stay away from them.

    L. Denton
  • toribear28
    toribear28 Member Posts: 5

    Hello there, My mom was diganosed with pancreatic cancer on Sept 04, she went through radiation and chemo. Her cancer was in the duodem also! It was unoperable b/c of the attachment to the main artrey! Altough I do believe that her treatments prolonged her life. She battled cancer for 2 and half years! She just passed away in May 2006 and now I know that she is a true survivor!

    I know that really doesnt count for you trying to find the longest surviving pacreatic survivor.

    Jessica

    Same situation
    Did you mom give up on life at all? My mother was diagnosed last Christmas and they cannot take it out. She was told that it would be "quality over quantity" and that she would be undergoing chemo the rest of her life. Recently though it feels as if she is just giving up on life. I don't know what to do - if anything. I know if she would try to enjoy what time she has left then she would last longer. But to get her in that mindset, I have no clue. What did you do with your mother in the days of illness? In the good days? I can't seem to get her to go outside at all, except to Dr. appts. I can't even seem to get her to shower anymore, or to put on makeup and to feel good about herself. I just want to help, but ultimately I don't know how. If you have any suggestions, it would be greatly appreciated.
    Tori
  • liaky30
    liaky30 Member Posts: 1
    lindamccb said:

    survivor of pancreatic cancer
    In 2006 it was discovered that I had grapefruit-size pseudopapillary tumor of the pancreas(began in the head). A whipple was performed to remove the extremely rare tumor which had spread to my stomach, spleen and ovaries. I did not have to have chemo or radiation because removal of the tumor removed the cancer which was contained inside of it. However, in November, 2008, it was discovered that the original cancer had metastasized to my liver. In December, a liver resection and radiopathy were performed to remove the new tumors. I am doing well, but because this is such an extremely rare type of cancer, and one which can but seldom metastasizes, my oncologist is struggling with a post op course of treatment. Originally he told me that I would have an aggressive course of chemo and possible radiation. Now he has ruled out radiation and is conferring with doctors around the US who may have treated this type of cancer and what they would suggest. The waiting game is tough but at least I am cancer free once again, and the prognosis is very good.
    If anyone has information on this type of cancer, experience with treatment of it, I would very much like to hear about it.

    Meanwhile, keep your spirits up because there are many survivors out here like me who are pulling for you and have you in our prayers.

    Linda Mcc-b

    stage 4 pancreatic cancer
    hi,
    i just want to say that i have the greatest respect for people that go through this.My father in law was diagnosed 3 weeks ago.they told us that it was just a tumor on his pancreas but then when he had surgery we were told that they could not go through with the surgery becuse the tumor spread to the walls of the stomach and a small stamp on his liver.This is concidered stage 4 right?We have been told that right now the best thing to do is to start thermodynamic therapy combined with chemotherapy.Is there a chance that the cancer cells could go away with this therapy?Do you know if there is a possibility that they could operate on a patient with this prognosis?We still cannot beleive that this is happening.He was the most healthy person i know,never had a cold in his life.He is 50 years old and has so much to live for.Seeing your story has given me so much hope.....
  • chief said:

    I will hit the 5 year mark in May of next year. Doing well.

    I am glad you are well. My mom was just diagnosed. Do you know of any resources for alternative oncologists in the Milwaukee, WI area or just a resource board?
    thanks
  • Don't just rely on Orthodox medicine....
    When my father 61 typed 2 diabetic was diagnosed with PC in Costa Rica, he came back to the US to hear bad news from the VA hospital. He was given 2 months to live (the most). No other medical treatment was given to him by the conventional medicine. No surgery no nothing. They gave up on him and sent him home to die.

    I took him to a private clinic with lots of success in treating almost all types of cancer.
    The Issels Clinic in Santa Barbara. www.issels.com . After his 4 week treatment, my father regain his strengh and most of his blood levels whent back to normal. the cancer maskers imrpoved between 50% and 90% in four weeks.

    His doctors (the same that sent him home to die) could no believe it. They ran another blood work on him and they came out even better.

    Now, our mission was to get the VA to perform this blood work once a month to keep track on the cancer and the rest of his blood levels. The doctors at the VA did not help us. We lost track and my father died 7 months after his was diagnosed.

    So, without the conventional treatments we did acomplished what seemed to be impossible and incredible to anyone. My advise to you is, Don't just rely on orthodox medicine. This doctors at the Issels Clinic are graduated certified and licensed phisycians that know what they are doing.

    I am not saying most MD's don't know what they have to do in order to treat a PC patient. But the reality is that there is a huge diference in their approach to deal with such terrible desease. One doctor wants to treat you and the other one plans to help you get cured. HUGE difference.

    If my dad had gotten the help from his MD's at the hospital, we would've probably still have him around telling you more about all of this. He fought and died with his boots on...

    My best regards to you and best of wishes. Be strong and if you can or have the financial possibility seek to get help from the clinics I mentioned.

    Also try looking at www.cancercenters.com Believe me when I say, there is more we all can do to beat Cancer...

    Hello,
    Do you know of a resource for finding alternative oncologists in our area of Milwaukee, WI?

    thanks
  • mmacmonagle
    mmacmonagle Member Posts: 5

    Pancreatic cancer
    I am amazed to read the stories about survival rates for pancreatic cancer.

    My husband (47 at time) was diagnosed last year with pancreatic cancer. He was a fit and well man, never had a day off work. He woke up one morning rather yellow, ended up going to the local hospital for a check with on duty doctor who sent him to the main hospital for tests etc. He ended up having about 4 various operations (major one was to re-plumb his insides) - he has a cancerous tumour in his pancreas at the bottom of the bile duct which cannot be operated on as it is too dangerous and near too many major vessels/organs etc.

    He was given 6-12 months to live (so bloody unfair as he has a 6 year old daughter). He has (i think) chosen to be bloody minded about it and really got on with his life, he is out every day, even though he cannot work any more, this, i think, is his way of coping with it. He didn't bat an eyelid when Patrick Swayze died of the same thing. He is having chemo and the consultant is absolutely fantastic and so is the specialist nurse, we couldn't wish for anyone better.


    Does anybody out there have any stories of survival of more than 6 months?

    Inoperable??
    I had the Whipple done 9 Oct 09 for a tumor placed just like your husband's. It was supposed to take six hours but due to the fact that my arteries are not arranged like 90% of the population and severly limited access to the pancreas, it took 11 hours. The surgeon said that the only time the artery misplacement would affect a person is if they need the Whipple procedure. He NEVER considered not operating. The tumor was removed and no lymph nodes/organs were affected.

    I urge you to find a surgeon that will operate! I wish you the best and will pray for your husband.
    Mike
  • mmacmonagle
    mmacmonagle Member Posts: 5
    liaky30 said:

    stage 4 pancreatic cancer
    hi,
    i just want to say that i have the greatest respect for people that go through this.My father in law was diagnosed 3 weeks ago.they told us that it was just a tumor on his pancreas but then when he had surgery we were told that they could not go through with the surgery becuse the tumor spread to the walls of the stomach and a small stamp on his liver.This is concidered stage 4 right?We have been told that right now the best thing to do is to start thermodynamic therapy combined with chemotherapy.Is there a chance that the cancer cells could go away with this therapy?Do you know if there is a possibility that they could operate on a patient with this prognosis?We still cannot beleive that this is happening.He was the most healthy person i know,never had a cold in his life.He is 50 years old and has so much to live for.Seeing your story has given me so much hope.....

    I was told before my surgery
    I was told before my surgery that if they found cancer on my liver at the beginning of my surery that they would not proceed with the whipple because they could never remove all the cancer and it was best to heal up so I could begin chemo. Fortunately for me that wasn't the case.

    There is always a chance the chemo will get rid of the cancer so go for it! My prayers are with your father in law.
  • Jill W
    Jill W Member Posts: 1
    Pancreatic Cancer Survivor ~ 17 months and counting
    I was diagnosed with Pancreatic Cancer on August 22, 2008 at the age of 33 years old. Up to this point, I had been a healthy, active, young mother with a great career. My symptoms were back pain, stomach pain and frequent bathroom trips, extreme fatigue, and the final symptom was the jaundice. I hadn't seen a regular doctor in nearly 10 years as my yearly OB visit and Dr would handle any concerns or prescriptions I needed. There was no history of cancer in my family. I had a stent put in the following Monday. The juadice remained, as did the extreme itching. 2 weeks later after the whites of my eyes had turned green, I returned to have another stent put in, this time draining the bile from inside of me. The tumor at the head of my pancreas was the size of a golf ball. The whipple wasn't an option due to the size of the tumor and due to it's location, wrapped around the main arteries. So I began 6 weeks of radiation, 5 days a week, and 1 day a week of Gemzar. The Gemzar made me hyper, the radiation made me extremely sick to my stomach. By Novemver, when this set of treatment was completed, the tumor had shrunk very little and was still unoperable. I then began a cycle of 3 weeks of receiving gemzar 1x/week, and then I would have the 4th week off to recover the cells. After 4 of these cycles, another Cat scan. This time, the tumor had shrunk in 1/2. Again, the same process for anouther 4 rounds. This CAT scan showed the tumor was undetectable. My cancer cell count, which had began at nearly 3,400 cells was down to a mere 11. I saw the surgeon again, who stated he wasn't comfortable doing the whipple, b/c as he said, the recovery is terrible, I could be in the hospital for a number of weeks, and that my quality of life following the surgery may not be what it was now. I was having no problems, I looked healthy, had returned to work full time. So we decided on 1 more round, which brought me into September. A full year of chemo. Again, this CAT scan showed the tumor as undetectable. I ended up with a gallstone attack in late September, which caused the blockage of a stent, thus causing a virus. I was hospitalized for 11 days, but again, the CAT scan showed no tumor. I am scheduled for a 3 month check up on 1/8 with the CAT scan scheduled for 12/29. I haven't been feeling the best; low energy, constant bathroom visits, and horrible mid-back pain, but I'm praying the evil tumor has not returned. I'm going on 17 months now and just celebrated my 35th birthday. Hang in there everyone. The biggest adjustment for me was learning to rest, as I was always on the go, always working on something in the yard, etc, etc. Positive attitudes make all the difference in the world. I've said from the moment I was diagnosed that I didn't have time for cancer... :)
  • davier23
    davier23 Member Posts: 1
    Pancreatic Cancer - Whipple Procedure Survivor
    I am reading through all of these posts and am inspired by the faith and optimism that I am reading. I was diagnosed with pancreatic cancer at the age of 32 on October 31, 2005, due to a high fever of 105, that made my body shiver, even though I was so hot. While checking my kidneys, the doctors found the cancer on the head of my pancreas. Almost two weeks later on November 14, 2005, I had a 7 1/2 hour Whipple procedure. I stayed in ICU for 3 days and in the hospital for 2 weeks. I was determined to be released as soon as possible. I know for sure that my positive mind, my faith and optimism is what helped me to recover. Now, four years later, I am still here and looking forward to my 5 year mark! I pray to God everyday for the blessing that I have of life and I encourage everyone around me to appreciate life everyday. Blessings to you all!
  • jakesman
    jakesman Member Posts: 33
    VITAL
    Those who are currently diagnosed w/ PanCan should read this article:

    http://www.savvynaturalhealer.com/2008/03/alternative-pancreatic-cancer.html
  • Bartrip_Devon
    Bartrip_Devon Member Posts: 10 Member
    jakesman said:

    VITAL
    Those who are currently diagnosed w/ PanCan should read this article:

    http://www.savvynaturalhealer.com/2008/03/alternative-pancreatic-cancer.html

    Very interesting ......
    Hi Jakesman

    I would just like to say a BIG thank you for recommending the website above, it is very very interesting. I am not sure if you have read the previous comments from me about my husband, who is suffering from pancreatic cancer? As the article states, stay away from salty foods etc, well my husband does tend to like his salt (the only thing I put salt in is when I am boiling potatoes) but he adds extra to his dinner - YUK!!! He is also partial to bacon, sausages and sometimes ham (which is also stated in the article).

    On a more positive note, my husband is really enjoying his life at the moment, everyone is saying how well he looks (doesn't look ill at all) and enjoying his life to the full. Again, thank you for the above site.

    Bartrip_Devon (UK)
  • jakesman
    jakesman Member Posts: 33

    Very interesting ......
    Hi Jakesman

    I would just like to say a BIG thank you for recommending the website above, it is very very interesting. I am not sure if you have read the previous comments from me about my husband, who is suffering from pancreatic cancer? As the article states, stay away from salty foods etc, well my husband does tend to like his salt (the only thing I put salt in is when I am boiling potatoes) but he adds extra to his dinner - YUK!!! He is also partial to bacon, sausages and sometimes ham (which is also stated in the article).

    On a more positive note, my husband is really enjoying his life at the moment, everyone is saying how well he looks (doesn't look ill at all) and enjoying his life to the full. Again, thank you for the above site.

    Bartrip_Devon (UK)

    Nothing but good will towards your family
    I hope your husband turns out ok - good to hear he's enjoying his life.

    Now, I'm not a doctor or an expert on this stuff. I don't even know someone personally who's going through pancreatic, so take my post with caution. Make sure you check it out with a doctor before deciding to go with the diet.

    I am, however, very fascinated by cancer "cures" and hate cancer with a passion. So if I helped one person by making a post, it's worth it a billion times over.

    God bless :)
  • pinoangel96
    pinoangel96 Member Posts: 3

    I am glad you are well. My mom was just diagnosed. Do you know of any resources for alternative oncologists in the Milwaukee, WI area or just a resource board?
    thanks

    im in wisconsin i dont know
    im in wisconsin i dont know of any alternative however i have a great oncologist and great surgeon i go to the clinical cancer center at froedtert, feel free to contact me if u have any questions, i just finished my chemo jan 5th, im am concidered cancer free
  • pinoangel96
    pinoangel96 Member Posts: 3
    Jill W said:

    Pancreatic Cancer Survivor ~ 17 months and counting
    I was diagnosed with Pancreatic Cancer on August 22, 2008 at the age of 33 years old. Up to this point, I had been a healthy, active, young mother with a great career. My symptoms were back pain, stomach pain and frequent bathroom trips, extreme fatigue, and the final symptom was the jaundice. I hadn't seen a regular doctor in nearly 10 years as my yearly OB visit and Dr would handle any concerns or prescriptions I needed. There was no history of cancer in my family. I had a stent put in the following Monday. The juadice remained, as did the extreme itching. 2 weeks later after the whites of my eyes had turned green, I returned to have another stent put in, this time draining the bile from inside of me. The tumor at the head of my pancreas was the size of a golf ball. The whipple wasn't an option due to the size of the tumor and due to it's location, wrapped around the main arteries. So I began 6 weeks of radiation, 5 days a week, and 1 day a week of Gemzar. The Gemzar made me hyper, the radiation made me extremely sick to my stomach. By Novemver, when this set of treatment was completed, the tumor had shrunk very little and was still unoperable. I then began a cycle of 3 weeks of receiving gemzar 1x/week, and then I would have the 4th week off to recover the cells. After 4 of these cycles, another Cat scan. This time, the tumor had shrunk in 1/2. Again, the same process for anouther 4 rounds. This CAT scan showed the tumor was undetectable. My cancer cell count, which had began at nearly 3,400 cells was down to a mere 11. I saw the surgeon again, who stated he wasn't comfortable doing the whipple, b/c as he said, the recovery is terrible, I could be in the hospital for a number of weeks, and that my quality of life following the surgery may not be what it was now. I was having no problems, I looked healthy, had returned to work full time. So we decided on 1 more round, which brought me into September. A full year of chemo. Again, this CAT scan showed the tumor as undetectable. I ended up with a gallstone attack in late September, which caused the blockage of a stent, thus causing a virus. I was hospitalized for 11 days, but again, the CAT scan showed no tumor. I am scheduled for a 3 month check up on 1/8 with the CAT scan scheduled for 12/29. I haven't been feeling the best; low energy, constant bathroom visits, and horrible mid-back pain, but I'm praying the evil tumor has not returned. I'm going on 17 months now and just celebrated my 35th birthday. Hang in there everyone. The biggest adjustment for me was learning to rest, as I was always on the go, always working on something in the yard, etc, etc. Positive attitudes make all the difference in the world. I've said from the moment I was diagnosed that I didn't have time for cancer... :)

    hi jill just wondering how
    hi jill just wondering how you are doing after your ct scan and too let u know i will be thinking of you on the 8th
  • Nunu123
    Nunu123 Member Posts: 11
    jakesman said:

    Nothing but good will towards your family
    I hope your husband turns out ok - good to hear he's enjoying his life.

    Now, I'm not a doctor or an expert on this stuff. I don't even know someone personally who's going through pancreatic, so take my post with caution. Make sure you check it out with a doctor before deciding to go with the diet.

    I am, however, very fascinated by cancer "cures" and hate cancer with a passion. So if I helped one person by making a post, it's worth it a billion times over.

    God bless :)

    My husband
    My husband was diagnosed with Pancreatic Cancer last month. We went in with what we thought was food poisoning and came out with this Cancer.
    He becaume jaundiced and we flew from St Petersburg, Russia, where we were living at the time for work reasons to Malta.
    In Malta, he was hospitalised and on IV. We were operated on, the intentiin was a whipple proceedure. The surgeon could not do it because he said the tumour - was sitting on a artery or vein. He did a double bypass instead to relieve him of the jaundice.

    So we cam out, not clear, depressed, very confused and wondering what to do.

    Tyhe surgeon and oncologist have told us that the plan is to shrink the tumour a little to make it operable and then to remove it.

    We are undergoing a five week course of daily radiotherapy and once per week chemo (Gemzar).

    I would like to know if anyone else has gone through this and any tips and advice.

    If so, how long before you had the operation before chemo/radio treatment ended? I am asking because I am nervous and want to know if there is a risk of spread after the treament or if we could have an option to carry on with chemo up until the operation?

    We are really down and depressed. We jave no support network here and are completely alone.
  • CaryRenault
    CaryRenault Member Posts: 11
    Nunu123 said:

    My husband
    My husband was diagnosed with Pancreatic Cancer last month. We went in with what we thought was food poisoning and came out with this Cancer.
    He becaume jaundiced and we flew from St Petersburg, Russia, where we were living at the time for work reasons to Malta.
    In Malta, he was hospitalised and on IV. We were operated on, the intentiin was a whipple proceedure. The surgeon could not do it because he said the tumour - was sitting on a artery or vein. He did a double bypass instead to relieve him of the jaundice.

    So we cam out, not clear, depressed, very confused and wondering what to do.

    Tyhe surgeon and oncologist have told us that the plan is to shrink the tumour a little to make it operable and then to remove it.

    We are undergoing a five week course of daily radiotherapy and once per week chemo (Gemzar).

    I would like to know if anyone else has gone through this and any tips and advice.

    If so, how long before you had the operation before chemo/radio treatment ended? I am asking because I am nervous and want to know if there is a risk of spread after the treament or if we could have an option to carry on with chemo up until the operation?

    We are really down and depressed. We jave no support network here and are completely alone.

    Some assistance

    Hi NuNu123 -

    It sounds like you are in a desperate situation. I will do my best to assist.

    I just came down with Pancreatic adenocarcinoma. Thatis what my PET scan said. The surgeon did NOT want to operate because it metastasized to my lung. They say that once you remove the primary tumor that the others proliferate. I am NOT sure if I should push the surgeon to operate or just stay in a current clinical trial I hope to get into son. View;
    http://clinicaltrials.dfhcc.harvard.edu/trials/1397 Hopefully, I plan to say and do well with this. The surgeon said he'll operate if I see him again in a year. So, follow-up with him to see if things are okay. I just went thru 3 month of chemo and radiation at Brigham and Womens hospital in Boston, MA I stayed at the Aztrazenica ACS Hope Lodge at 125 S. Huntington Ave. In Jamica Plain, MA/ There phone number is 617-396-5500 Try 617-396-5514 to actually speak to a person. I give you this info. to intice you to get to this part of the USA. I think you were in Russia. I do NOT know the medical arena well there but feel your desperateing would best be handled here.

    The best of luck and note I tried,

    Cary
  • MadelynJoe
    MadelynJoe Member Posts: 96

    thank you for your reply, and your mom had to be a real trooper. My wife's mother battled cancer for 2 and half years (lung) and I know my wife was in a lot of pain watching mom go through this. Condolences on your mom, and thank you for replying. god bless your future.

    Lung Cancer
    I saw your post regarding pancreatic cancer and the anguish your wife went through with her Mother. I want her to know that strides are being made in Lung Cancer research every day. I should know because I am almost a 5 year NSCLC survivor (May 2005 - May 2010) with no evidence of disease. My Mother also passed away 20 years ago from lung cancer.

    Have you seen any info anywhere regarding pancreatic cancer clinical trials? I have a friend that is inoperable and we will try almost anything at this point.

    God bless you both.

    Madelyn