Off remission

2

Comments

  • fuzzytrouble
    fuzzytrouble Member Posts: 212

    Ah?
    So, is that a yes or no to pastries at Borders, eh?????

    : ~ /

    I'm the goofy looking one on the left. The rest are my brothers and sister at heather's wedding, she's the one without a shoe that lives near you.

    claudia

    you are too funny
    Claudia you made me laugh twice today and that's a good sign. lol

    The pastry is a definite yes and of course I would not want to water down that great coffee of theirs so no tears. lol
    I like this picture too if fits you to a T, and I knew because of your hair you were on the left.

    December is not to far away and will be here in no time at all hurry on up and anyone else want to join us who are in the Portland area? The more the merrier.

    Sharon
  • fuzzytrouble
    fuzzytrouble Member Posts: 212
    lociee said:

    Sorry!
    Hi Sharon, keep up the fight! I've been back and forth for years, myself. I am a total lorazapam freak - I think it's also called adavan? I take it every night at bedtime - and whenever I'm feeling anxious - like just before an MRI when I have to once again go down that claustrophobic tunnel. It comes in various strengths - I recommend asking the doctor about the low strength and trying it. It's more gentle on the system then anti-depressants - with few side effects (I never had any). It just takes the edge off. Interesting that you come from Cambridge. I raised two daughters there - and we loved it for 20 years! Now I live in Somerville. The best to you - and know that everyone is behind you - cares for you - and hopes for the best.
    Mia

    Mia Lorazapam
    Thanks so much for your kind words and I plan to fight with everything I got. I was thinking of doing the same thing but right now I want to see how good I can be and not take it before bed. I have it on a very high shelf and I would have to stretch to get it, now do I really want to exercise like stretching? lol
    I don't blame you about taking them before the mri I even hate the ct scan donut. lol
    I have very low dosage ones to take if I need them, so here's hoping I can cope without them right now.
    I grew up not far from Central Square, and hung out in Porter Square all the time. Such a small world it tis!
    My email is scurley19@gmail.com if you all want to chat off the site.
    I know I have the best support ever from here, and I am behind everyone too.

    Ta Ta for now,
    Sharon
  • fuzzytrouble
    fuzzytrouble Member Posts: 212

    Pain??? What pain?
    Sharon,

    I didn't know you were in pain. I thought they discovered the recurrence with a CT or PET scan. I just keep on missing things. I think it's cause I stumble out here in the morning to see what people have posted and haven't fully woken up yet.

    I'm thinking of changing my schedule and coming to Oregon more towards the beginning of December. I haven't seen my family for many years and would love to spend the Christmas holiday with them and spend some time at Borders with you drinking coffee and having a good time, as you suggested. And I won't even mind if you cry in your coffee. I'll explain to people that it's not cause we're breaking up, but that it's a medical issue. Aren't we going to have a fun time. Hang in there.

    Sounds just marvey pooh to me. Don't they have lovely pastries there? Where I live they don't really have any idea what civilization even looks like nor how civilized people are supposed to treat one another.


    Love ya,

    Claudia

    Thinking of writing a book about this town.

    Love,

    Claudia

    pain
    Well my bones ached all the time and the bottom of my feet were so painful if I stood on them too long. I figured it was side effects from chemo which I had just finished in March of this year. Only one leg bone hurt really bad at times and I just took tylenol to help it along and it did help. I was told that the nerve damage from the chemo could take a very long time to heal and that it heals from your spine out. I don't know how true that is, but I now wear croc's for the feet, and my leg has been better so no pain as yet.

    Hugs
    Sharon
  • deanna14
    deanna14 Member Posts: 732

    Thank you
    I know I have many ears out here and like you I also get so nervous when the scan time comes. I kind of had a feeling about this one, because I just wasn't feeling right for awhile. My body felt heavy and my ankles were swelling more than usual. I don't want to frighten anyone but please pay attention to your body more than ever. I am very depressed now and don't know if I should ask for anti-depression pills or not, will it make me worse or will they help with the feeling of this new dx? I cry at everything now and I don't even want to move to go anywhere. I would like some help with the depression bit. I am not a person of faith, I have my reasons, so please don't be upset with me for that. My husband does and I know so many of you have on this site. I know that many of you have gone past the two different times of chemo and I to will fight this with all my heart and your support, but right now it's a toughie to deal with.

    Living with great hope

    Huge Hugs to you Sharon...
    I have not been on the site much lately and am saddened to hear of your reoccurance. My thoughts and prayers are with you Sharon. You are living all of our scariest nightmares. You are strong and we are all sending you more strength. I rarely use the word hate, but I have so come to hate cancer with such intensity.
    Please ask your doctor for something for the depression. Attitude is everything when you are fighting a life threatening illness! You need to be able to see things more clearly and find some light in this tunnel. I have been taking meds for depression since I was diagnosed in Sept. 2008. I also talked with a lady a couple of months ago who is a 10 year cancer survivor. She was diagnosed 10 years ago with Stage IV colon cancer with mets to the lungs and liver and she is still alive today to talk about it. She still sees a cancer therapist...psychologist. I think it is so important for your spirit and mind to be healthy for this fight for your life!
    I am also going to pray for you. I know that you said you are not a person of faith, but God can give you peace that passes all understanding! I won't preach... I am sure you have heard all the arguments. Still gonna pray for you!!!
    Keep that hope... we all need to keep the HOPE!
    Love and Hugs!
  • daisy366
    daisy366 Member Posts: 1,458 Member

    you are too funny
    Claudia you made me laugh twice today and that's a good sign. lol

    The pastry is a definite yes and of course I would not want to water down that great coffee of theirs so no tears. lol
    I like this picture too if fits you to a T, and I knew because of your hair you were on the left.

    December is not to far away and will be here in no time at all hurry on up and anyone else want to join us who are in the Portland area? The more the merrier.

    Sharon

    Deanna
    It's nice to hear from you. Hope you are doing well. Mary Ann
  • Songflower
    Songflower Member Posts: 608
    daisy366 said:

    Caution about benzodiazepine medication
    Ativan, xanax, klonipin, valium, librium, and others are benzodiazepines - they are sedative DEPRESSANTS. This class of drug is insidious - and personally, I think dangerous unless properly monitored by a competent professional. Take caution and research all benzodiazepines. They are meant to be taken for a VERY SHORT TIME - generally 3 months. They are addictive and when taken with alcohol can cause black-outs (being awake and not knowing what you are doing). I have personal knowledge of the danger!!!

    Doctors are prescribing these like candy and for long term with sometimes disastrous results. We have enough problems and don't need any others.

    With caring, Mary Ann

    Using medication
    Medication can be used wisely. Ativan usually does not interfere with the liver and chemo. I have taken it and never had trouble stopping it. I had never taken that type of medication before. Some persons have receptors that can cause addiction. If you have not had an addiction problem in the past you most likely can take these drugs safely. Learn them well and work with your Doctor in how to take them; I kept a diary during taxol reactions so the pain could be managed; otherwise I would never have been able to take the chemo. I really believe in maintaining quality of life during this very difficult time. If medication helps for a while don't beat yourself up. Also, pain management today is becoming well researched and the importantce of controlling pain to prevent further pain is being understood. I had reactions to taxol and had to take alot of percocet; I never take them now. For neuropathic pain I am taking Lyrica and find it really helpful. It has given me my life back and I can work and keep health insurance. Health professionals in chronic pain management are wonderful at helping you maintain safe doses. I had cancer ten years ago; had to take alot of medication and stopped it and never took it for years. It helped me get through the drug reactions and participate in life. Even though you are in chemotherapy for cancer you should still be able to enjoy and live life. You deserve the opportunity to make every day count. There are safe ways to do it.
  • deanna14
    deanna14 Member Posts: 732
    daisy366 said:

    Deanna
    It's nice to hear from you. Hope you are doing well. Mary Ann

    Hi Mary Ann
    I am doing very well. I hope you are too. Time gets away... I am trying to browse through the many posts since I have been on here last.
    I had my first "clean" CT scan last month. God is good!
  • california_artist
    california_artist Member Posts: 816 Member
    deanna14 said:

    Hi Mary Ann
    I am doing very well. I hope you are too. Time gets away... I am trying to browse through the many posts since I have been on here last.
    I had my first "clean" CT scan last month. God is good!

    Hey, I was just wondering how the ct went
    Deanna,

    That is so encouraging to hear it went well.

    I am so very happy for you.

    I see your hair grew in a different color. : ^ /
  • daisy366
    daisy366 Member Posts: 1,458 Member

    Hey, I was just wondering how the ct went
    Deanna,

    That is so encouraging to hear it went well.

    I am so very happy for you.

    I see your hair grew in a different color. : ^ /

    Deanna,
    Super - a breath of fresh air for awhile :)

    I get tests TODAY and see the doc next week. Fingers crossed!!

    Take care. Mary Ann
  • daisy366 said:

    Deanna,
    Super - a breath of fresh air for awhile :)

    I get tests TODAY and see the doc next week. Fingers crossed!!

    Take care. Mary Ann

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  • Ro10
    Ro10 Member Posts: 1,561 Member
    deanna14 said:

    Hi Mary Ann
    I am doing very well. I hope you are too. Time gets away... I am trying to browse through the many posts since I have been on here last.
    I had my first "clean" CT scan last month. God is good!

    Great News Deanna
    So happy to hear about your "clean" CT scan. That is wonderful. You are right that God is good. In peace and caring.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    daisy366 said:

    Deanna,
    Super - a breath of fresh air for awhile :)

    I get tests TODAY and see the doc next week. Fingers crossed!!

    Take care. Mary Ann

    Mary Ann wishing you good results on your tests
    Hope all turns out well for you with your tests. Hope you will be celebrating after you see the doctor. In peace and caring.
  • Ro10 said:

    Great News Deanna
    So happy to hear about your "clean" CT scan. That is wonderful. You are right that God is good. In peace and caring.

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  • daisy366
    daisy366 Member Posts: 1,458 Member
    unknown said:

    This comment has been removed by the Moderator

    thank you
    Thanks ladies, I'll keep you posted. It's great to have such support - I feel it all the way here in SW Florida.
    Mary Ann
  • fuzzytrouble
    fuzzytrouble Member Posts: 212
    daisy366 said:

    Deanna,
    Super - a breath of fresh air for awhile :)

    I get tests TODAY and see the doc next week. Fingers crossed!!

    Take care. Mary Ann

    me too
    I am doing the same as everyone Mary Ann, fingers, toes, and my eyes.
    Good results coming your way!
    Sharon
  • shortmarge
    shortmarge Member Posts: 291
    daisy366 said:

    thank you
    Thanks ladies, I'll keep you posted. It's great to have such support - I feel it all the way here in SW Florida.
    Mary Ann

    Thinking of You
    crossing with everyone else... you are in my thoughts and prayers.


    Marge
  • Thinking of You
    crossing with everyone else... you are in my thoughts and prayers.


    Marge

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  • kkstef
    kkstef Member Posts: 688 Member
    daisy366 said:

    thank you
    Thanks ladies, I'll keep you posted. It's great to have such support - I feel it all the way here in SW Florida.
    Mary Ann

    Thinking of you Mary Ann!
    Mary Ann....I am praying that your tests come out just fine....but know the anxiety that precedes the dr. visit! Know you will be dancing next week!!!
    Karen
  • Katrinka123
    Katrinka123 Member Posts: 51
    Sending you lots of warm
    Sending you lots of warm hugs Sharon! You have such a fight - and I know you can do it! You will be in my thoughts - as all of the women here are.

    My dearest friend in the world is living with cancer - just as she has been for the last few years. Her chemo works for a bit, then it doesn't so the doctors change it. She just rolls with it as best as she can. She truly lives her life every single day!

    We women are just remarkable! The news can make us stumble - but we have to get up and fight back!

    I will be thinking about you - willing you to find the best fight you have in you!

    -Kat
  • Sending you lots of warm
    Sending you lots of warm hugs Sharon! You have such a fight - and I know you can do it! You will be in my thoughts - as all of the women here are.

    My dearest friend in the world is living with cancer - just as she has been for the last few years. Her chemo works for a bit, then it doesn't so the doctors change it. She just rolls with it as best as she can. She truly lives her life every single day!

    We women are just remarkable! The news can make us stumble - but we have to get up and fight back!

    I will be thinking about you - willing you to find the best fight you have in you!

    -Kat

    This comment has been removed by the Moderator