An alternative for your feeding tube

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  • SmithMama2
    SmithMama2 Member Posts: 48

    Feeding tube recipe please!
    I know this is quite an old thread, so I don't know if I'll get a reply, but I'm on a feeding tube right now and am desperatly wanting something healthier to put down it than Ensure. Please send me your recipe, it sound great. I don't like posting my email address on message boards, can you just post the recipe here?

    Here is my recipe
    I thought I would share the recipe I have used to keep my husband’s weight stable during chemo/radiation. He started at 160 lbs., lost 5 lbs. after the first two weeks of treatment, then ended treatment three days ago at 160 lbs. We were told he would lose lots of weight, so I am pleased to say that doesn't have to happen. Oh yes, he also has 3 liters of water by tube every day.

    He has stage 4a base of tongue squamous cell carcinoma. He had 35 radiation treatments while simultaneously having chemo over 7 weeks time--1 dose of cisplatin (that caused him to lose some of his hearing), then 5 weekly treatments of carboplatin and taxol.

    He had a PEG placed before he started treatment, and although he has been able to swallow water, pills, and Throat Coat tea, he has had little food for the last 5 weeks. (Today he had maybe a 1/4 cup of cream of wheat. I was delighted!!!)

    Feel free to contact me if you have any questions about specific ingredients. You can also visit his Caring Bridge blog at https://www.caringbridge.org/visit/kevindavidsmith
    Karen

    Recipe for the super-high calorie shake (Total calories 1310):
    This is my feeding tube recipe. This shake makes two servings. I make it in the morning, and save half for an evening meal in the refrigerator. Allow it to sit at room temperature for a bit of time, so it is more comfortable going through the tube.

    1 can high calorie liquid meal replacement (Nutren 1.5, could use Ensure)
    (15 g/protein, 375 calories)
    1 envelope Carnation Instant Breakfast powder
    (5 g/protein, 130 calories)
    2 scoops EAS 100% whey protein powder (found at Target)
    (23 g/protein, 240 calories)
    3/4 cup Organic Half-and-Half
    (6 g/protein, 240 calories)
    3/4 cup prune juice
    (1.5 g/protein, 135 calories)
    1 ripe banana (108 calories)
    1 Tblsp. *Barlean's Total Omega 3/6/9 oil, pomegranate blueberry flavor
    (70 calories)
    2 capsules *New Chapter Probiotic Immunity (to help with digestion)
    2 capsules *Branched Chain Amino Acid Complex (to protect muscle tissue)
    1 tablet Centrum chewable multi-vitamin (crushed)
    1 tablet Zinc (crushed)
    2 tsp. Fiber powder (Benefiber) (to help with constipation)
    (15 calories)

    Blend until very smooth, so it can pass through a feeding tube.
    (* Ingredients can be found at a health food store.)

    When husband was able to handle the taste of a shake by mouth, I would use this same recipe as above (minus the 3/4 cup half-and-half which was too rich for him to drink), but also add:
    1/4 cup Half-and-Half
    (2 g/protein, 80 calories)
    1/2 cup whole milk
    (4 g/protein, 75 calories)
    1/4 cup walnuts (they blend very smooth in a blender)
    (4.5 g/protein, 196 calories)
    1/4 cup organic whole milk yogurt
    (2 g/protein, 37 calories)
    2 heaping Tblsp. Flax seed, ground
    (3 g/protein, 45 calories)
    2 heaping Tblsp. Wheat germ
    (4 g/protein, 55 calories)
    3-4 kinds of fresh or frozen fruits (strawberries, blueberries, peaches, pears, raspberries, mango, cantaloupe)

    Total 1558 calories (plus the calories from the fresh/frozen fruit)

    2 weeks after chemo/radiation is completely over, we will add anti-oxidents back into his diet, and the shake will additionally include:
    2 Tblsp. *Noni juice
    2 Tblsp. *Acai juice
    1 packet Emergen-C powder (vitamin C powder)
    1 Tblsp. *Green Vibrance (powdered organic greens, grasses, concentrated superfood)
  • SASH
    SASH Member Posts: 421 Member
    newbride said:

    Sash - Question
    Sash I can't believe how similar it sounds like your experience and my husbands have been. He just got the PEG tube this week - which was a nightmare - because of his prior surgery they could not put him totally out and he felt alot of pain.

    He was about 220 before treatments started he is now down to 173 (although when we admit him today I might learn he is lower). He also is taking hardly anything by mouth - maybe a glass of gaterade a day if that. He has the magic mouthwash also.

    How long has it been since your last treatment? He starts his 3rd of 5 rotations this week.

    How is you weight at this point? Have you gained everything back? What about swallowing?

    SASH's Answer
    Sorry newbride, but I hadn't looked at this post since I posted.

    Here are the answers to your questions.

    "How long has it been since your last treatment? He starts his 3rd of 5 rotations this week." - Answer: I finished radiation Dec 31, 1999 and Chemo in March of 2000. Then had to put back on some weight before surgery May 1, 2000. Got up to about 145 pounds so added about 10 pounds in 6 weeks prior to surgery. By that point it was easier to swallow as radiation was over for a while. So I was back on solid foods but had to be careful of things high in sodium because of the sores left in my mouth from chemo and radiation. I found the best thing for me at that point was graham crackers soaked in milk. I was going through 2 - 3 gallons of milk a week and would eat a box of graham crackers in 2 days at the most. I think I was keeping Keebler in business at that point.

    How is you weight at this point? Have you gained everything back? What about swallowing? Answer: over the past 9 1/2 years I have put it back on, not that I wanted to put it all back, but I am at about 228. Docs want me about 210 or so, but it is much harder to lose the weight now even with eating normally, well as normal as person can after going through this.

    Swallowing is ok, but at times food does get lodged in my throat so I have to go clean it out when necessary. I do this by sticking my fingers down my throat and pull the food out. Over time you will find different foods for your husband that he can easily swallow and tolerate as it does seem to get better.
  • chinaberry25
    chinaberry25 Member Posts: 8

    Here is my recipe
    I thought I would share the recipe I have used to keep my husband’s weight stable during chemo/radiation. He started at 160 lbs., lost 5 lbs. after the first two weeks of treatment, then ended treatment three days ago at 160 lbs. We were told he would lose lots of weight, so I am pleased to say that doesn't have to happen. Oh yes, he also has 3 liters of water by tube every day.

    He has stage 4a base of tongue squamous cell carcinoma. He had 35 radiation treatments while simultaneously having chemo over 7 weeks time--1 dose of cisplatin (that caused him to lose some of his hearing), then 5 weekly treatments of carboplatin and taxol.

    He had a PEG placed before he started treatment, and although he has been able to swallow water, pills, and Throat Coat tea, he has had little food for the last 5 weeks. (Today he had maybe a 1/4 cup of cream of wheat. I was delighted!!!)

    Feel free to contact me if you have any questions about specific ingredients. You can also visit his Caring Bridge blog at https://www.caringbridge.org/visit/kevindavidsmith
    Karen

    Recipe for the super-high calorie shake (Total calories 1310):
    This is my feeding tube recipe. This shake makes two servings. I make it in the morning, and save half for an evening meal in the refrigerator. Allow it to sit at room temperature for a bit of time, so it is more comfortable going through the tube.

    1 can high calorie liquid meal replacement (Nutren 1.5, could use Ensure)
    (15 g/protein, 375 calories)
    1 envelope Carnation Instant Breakfast powder
    (5 g/protein, 130 calories)
    2 scoops EAS 100% whey protein powder (found at Target)
    (23 g/protein, 240 calories)
    3/4 cup Organic Half-and-Half
    (6 g/protein, 240 calories)
    3/4 cup prune juice
    (1.5 g/protein, 135 calories)
    1 ripe banana (108 calories)
    1 Tblsp. *Barlean's Total Omega 3/6/9 oil, pomegranate blueberry flavor
    (70 calories)
    2 capsules *New Chapter Probiotic Immunity (to help with digestion)
    2 capsules *Branched Chain Amino Acid Complex (to protect muscle tissue)
    1 tablet Centrum chewable multi-vitamin (crushed)
    1 tablet Zinc (crushed)
    2 tsp. Fiber powder (Benefiber) (to help with constipation)
    (15 calories)

    Blend until very smooth, so it can pass through a feeding tube.
    (* Ingredients can be found at a health food store.)

    When husband was able to handle the taste of a shake by mouth, I would use this same recipe as above (minus the 3/4 cup half-and-half which was too rich for him to drink), but also add:
    1/4 cup Half-and-Half
    (2 g/protein, 80 calories)
    1/2 cup whole milk
    (4 g/protein, 75 calories)
    1/4 cup walnuts (they blend very smooth in a blender)
    (4.5 g/protein, 196 calories)
    1/4 cup organic whole milk yogurt
    (2 g/protein, 37 calories)
    2 heaping Tblsp. Flax seed, ground
    (3 g/protein, 45 calories)
    2 heaping Tblsp. Wheat germ
    (4 g/protein, 55 calories)
    3-4 kinds of fresh or frozen fruits (strawberries, blueberries, peaches, pears, raspberries, mango, cantaloupe)

    Total 1558 calories (plus the calories from the fresh/frozen fruit)

    2 weeks after chemo/radiation is completely over, we will add anti-oxidents back into his diet, and the shake will additionally include:
    2 Tblsp. *Noni juice
    2 Tblsp. *Acai juice
    1 packet Emergen-C powder (vitamin C powder)
    1 Tblsp. *Green Vibrance (powdered organic greens, grasses, concentrated superfood)

    What to eat.
    My husband is on a feeding tube and he puts 2 eggs nuked in a microwave for about 20 seconds. This kills all the bacteria and they are still soupy. This has given him a lot of energy that he would never have had otherwise. You may even want to try powder eggs that they use for frosting.
  • LucyVance
    LucyVance Member Posts: 21
    Feeding Tube Recipes Homemade Nutrition
    Hello!

    So glad to hear you're feeling better. We had a similar experience and started to feeding tube recipes, homemade enteral nutrition wesite to share what we found. I have shared basic techniques, suggested equipment and a few recipes. With the basic techniques you can eat almost all your favorite foods. It made a big difference to be able to at least smell foods that you loved while eating and to share the same meals with friends and family.

    Please take a look at the website when you have a chance - I hope you find it useful. This is just something we do volunteer (no profit, ads or sponsorship) to help others in similar predicaments. We'll also post information you'd like to share with others.

    lucysrealfood.com

    Best wishes,
    Lucy
  • LucyVance
    LucyVance Member Posts: 21

    Feeding tube recipe please!
    I know this is quite an old thread, so I don't know if I'll get a reply, but I'm on a feeding tube right now and am desperatly wanting something healthier to put down it than Ensure. Please send me your recipe, it sound great. I don't like posting my email address on message boards, can you just post the recipe here?

    Feeding Tube Recipes Homemade Feeding Tube Food
    I've got recipes posted at Lucys Real Food website. Hope they help! Lucy


    lucysrealfood
  • deblenz02
    deblenz02 Member Posts: 1
    pinedog said:

    If you decide to get the tube, which I would strongly advise, then to use this recipe you need strong support to help prepare it. It's a lot of work but worth it. If after reading this you are still interested I can email the whole recipe.

    To do this you need a juicer and a blender. Through the juicer goes kale, broccoli, cauliflower, parsley, celery, carrot, spinach, beet, apple, grapes. In the blender goes tofu, almond butter, avocado, banana, pure fruit juice, prune juice, milk, protein powder, olive oil, herring fish oil, chicken broth, multi vitamins and what's called Green Formula. This is well mixed and seived to make enough to supply three feeds a day for three days. This provides 2000 calories a day of well balanced nutrition with lots of energy and protein. It takes an hour or so to prepare which I suppose is a lot less time than preparing nine separate meals.

    This post is quite old so I'm not sure you'll receive this message. My mother was just diagnosed with stage 3 throat cancer. A feeding tube is being inserted next week. If you are able..would you please share this recipe? I'm scared and worried for her and want to do what I can to keep her strength up. Thanks and I hope your health has continued to improve.

    Deb
  • yank_mtnmannh
    yank_mtnmannh Member Posts: 1
    I was diagnosed with esophageal cancer in early September 2009. A stent in the esophagus was recommended in order NOT to have to have a feeding tube. For some reason, the stent isn't working as usual. Anything that goes through the stent doesn't pass on to the stomach. The surgeon thinks that there isn't enough muscle movement because the stent is long and the tumor is as well. During chemo & radiation treatment nothing could stop the nausea so a stomach tube was put in place, but the nausea continued, so the stomach tube could no longer be used, and a "j" tube was put in. I am on a 24/7 feeding through the "j" tube. It leaks almost all the time & I've developed a yeast buildup for 5 weeks now that no one has been able to find anything to block the gastric juices from eroding the exterior skin around the opening. If anyone has any thoughts or tips, they would be appreciated.

    I also still have problematic thick whitish mucos that has to be coughed up. That usually starts a vomiting attack. The Radiation oncologist said that that should be out of my system a month after finishing Radiation therapy--it's been 7 weeks now.

    I am extremely interested in the recipe you developed to be able to use more natural nutrients for feeding. Thank you, and thanks for sharing your experience.
  • Scambuster
    Scambuster Member Posts: 973

    I was diagnosed with esophageal cancer in early September 2009. A stent in the esophagus was recommended in order NOT to have to have a feeding tube. For some reason, the stent isn't working as usual. Anything that goes through the stent doesn't pass on to the stomach. The surgeon thinks that there isn't enough muscle movement because the stent is long and the tumor is as well. During chemo & radiation treatment nothing could stop the nausea so a stomach tube was put in place, but the nausea continued, so the stomach tube could no longer be used, and a "j" tube was put in. I am on a 24/7 feeding through the "j" tube. It leaks almost all the time & I've developed a yeast buildup for 5 weeks now that no one has been able to find anything to block the gastric juices from eroding the exterior skin around the opening. If anyone has any thoughts or tips, they would be appreciated.

    I also still have problematic thick whitish mucos that has to be coughed up. That usually starts a vomiting attack. The Radiation oncologist said that that should be out of my system a month after finishing Radiation therapy--it's been 7 weeks now.

    I am extremely interested in the recipe you developed to be able to use more natural nutrients for feeding. Thank you, and thanks for sharing your experience.

    Alternative feeds
    HI Yank-m

    There are many threads and posts on alternative feeds regarding cooked foods. I was intolerant to the Nestle and other hospital/ doctor introduced products and found 'Vitashake' by Sunrider to work for me to put through the tube. (Google it). I still take one a day but now on my cereal. Best mixed with Rice or Soy milk as Dairy may be contributing to your heavy mucus problem.

    For the mucus I was prescribed Fluimucil (Search earlier posts) which helps break up the mucus.

    Not sure about your yeast infection issue but I did consult with a good Naturopath during my treatment (and still now 16 weeks out) and they may have answers to your problem.

    Hang in there, you will get over these hurdles.

    Regds
    Scambuster
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member

    I was diagnosed with esophageal cancer in early September 2009. A stent in the esophagus was recommended in order NOT to have to have a feeding tube. For some reason, the stent isn't working as usual. Anything that goes through the stent doesn't pass on to the stomach. The surgeon thinks that there isn't enough muscle movement because the stent is long and the tumor is as well. During chemo & radiation treatment nothing could stop the nausea so a stomach tube was put in place, but the nausea continued, so the stomach tube could no longer be used, and a "j" tube was put in. I am on a 24/7 feeding through the "j" tube. It leaks almost all the time & I've developed a yeast buildup for 5 weeks now that no one has been able to find anything to block the gastric juices from eroding the exterior skin around the opening. If anyone has any thoughts or tips, they would be appreciated.

    I also still have problematic thick whitish mucos that has to be coughed up. That usually starts a vomiting attack. The Radiation oncologist said that that should be out of my system a month after finishing Radiation therapy--it's been 7 weeks now.

    I am extremely interested in the recipe you developed to be able to use more natural nutrients for feeding. Thank you, and thanks for sharing your experience.

    Concur
    I concur with scambuster: you WILL get past this AND you should review previous posts to gather information that allows you to compare and contrast your experience to that of others. There is MUCH information about the topics you bring up, most of it very good.

    In the meantime ... you can help to alleviate the mucous buildup in a couple of ways. The first is to remain hydrated; avoid sports drinks and instead, if water is not sufficient, try seltzer water (OncoMan told me it is even better than water for some reason).

    The second is to practice diligent oral hygiene, including switching from standard mouthcare products (mouthwash and toothpaste) to products designed specifically to combat dry mouth (and thus help with the mucous problem); these can be found over the counter in drugstores or via prescription.

    Third, someone I regard highly in this board (a guy who calls himself SASH) has indicated that dairy products tend to assist in the cultivation of yeast infections and even mucous buildup; consider lightening up on the dairy products for a spell, with the agreement of your doctors and nutritionist, of course.

    Fourth, ask your doctors for something called Miracle Wash or Magic Wash (it seems to have a different name depending on where you live). This concoction, consisting of lidocaine and a few other ingredients, can alleviate both the infection and associated pain for 'cold sores' if they develop as a result of the infection.

    Welcome, yank. Best wishes to you and your family.

    Take care,

    Joe
  • RosieNurse
    RosieNurse Member Posts: 2
    Food for tube feedings
    My sister was diagnosed with mouth cancer in Sept 09, had her PEG placed a few weeks later. The family all decided we did not want to use the commercial preparation as it is nothing but junk. There is very little help out there if you don't want to use commercial but we found a site and started playing around a lot on our own. She is very tiny to begin with and with all the problems she had she went down to 80 lbs. Her last rad was 12/22/09 and she did not have the 3rd and final chemo because we were all convinced it would have killed her at the time.
    She has been doing her food her self for the last couple of months and has found quite a few things to get into the tube and is now up to 102 lbs. She is feeling well, which is a miracle because of how sick she was and how many bouts of C-Diff she went through.
    People need to take charge of their own health.
    If anyone is interested I will give you some ideas on what to do and where to find more info.
  • RosieNurse
    RosieNurse Member Posts: 2

    Food for tube feedings
    My sister was diagnosed with mouth cancer in Sept 09, had her PEG placed a few weeks later. The family all decided we did not want to use the commercial preparation as it is nothing but junk. There is very little help out there if you don't want to use commercial but we found a site and started playing around a lot on our own. She is very tiny to begin with and with all the problems she had she went down to 80 lbs. Her last rad was 12/22/09 and she did not have the 3rd and final chemo because we were all convinced it would have killed her at the time.
    She has been doing her food her self for the last couple of months and has found quite a few things to get into the tube and is now up to 102 lbs. She is feeling well, which is a miracle because of how sick she was and how many bouts of C-Diff she went through.
    People need to take charge of their own health.
    If anyone is interested I will give you some ideas on what to do and where to find more info.

    Tube feeding
    Just wanted to say the site we found that was very helpful was Lucy's Real Food. I saw Lucy had a couple of posts earlier. This was very helpful when we were starting out but most especially when my sister had "protein deficient edema". She was carrying about 20 lbs of fluid from her waist to her toes and because it was not the regular type of edema they could not give her diuretics. As usual, we had to do the research ourselves and find out about this edema. I had never come across it in my nursing and wasn't familiar with it. To get rid of it we had to severely increase her protein intake. On Lucy's site we discovered how to "boil" chicken to grind it fine enough to put through a feeding tube. Making your own food for a tube is somewhat tricky, you don't want to clog the tube because they will not usually jump to unclog it for you and you could go 24 hrs or more without nutrition, which is very bad if you're already battling cancer. (Please don't let that discourage you because you are not getting adequate nutrition through the commercial preparations) PLEASE research healthy nutrition from some good alternative sites that will explain what you really need to get healthy.
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member

    Tube feeding
    Just wanted to say the site we found that was very helpful was Lucy's Real Food. I saw Lucy had a couple of posts earlier. This was very helpful when we were starting out but most especially when my sister had "protein deficient edema". She was carrying about 20 lbs of fluid from her waist to her toes and because it was not the regular type of edema they could not give her diuretics. As usual, we had to do the research ourselves and find out about this edema. I had never come across it in my nursing and wasn't familiar with it. To get rid of it we had to severely increase her protein intake. On Lucy's site we discovered how to "boil" chicken to grind it fine enough to put through a feeding tube. Making your own food for a tube is somewhat tricky, you don't want to clog the tube because they will not usually jump to unclog it for you and you could go 24 hrs or more without nutrition, which is very bad if you're already battling cancer. (Please don't let that discourage you because you are not getting adequate nutrition through the commercial preparations) PLEASE research healthy nutrition from some good alternative sites that will explain what you really need to get healthy.

    Feedings and clogs
    To unclog the tube- Coca-Cola. Was advised by my handlers before my first feeding that such is the way to get the tube unclogged. And, yes, it did happen, once, and the Coke did unclog the tube.

    As for "commercial feedings", Rosie, are you talking about the Jevity, or the Ensure/Boost? The Jevity formula did right by me- only nutrition I got for 7-weeks with the battle raging, starting at the end of week #1, and would urge caution towards casting doubts that way. The stuff worked for me. Yes, I lost some 17% of my body weight, but considering the terms of the battle we fight/fought, perhaps that is not so great a %.

    That said, I also am an advocate for healthy foods, and the "alternative," being the "salad freak." But during treatment with a PEG- Jevity does rule the day. Did right by me.

    kcass
  • katember
    katember Member Posts: 2
    pinedog said:

    If you decide to get the tube, which I would strongly advise, then to use this recipe you need strong support to help prepare it. It's a lot of work but worth it. If after reading this you are still interested I can email the whole recipe.

    To do this you need a juicer and a blender. Through the juicer goes kale, broccoli, cauliflower, parsley, celery, carrot, spinach, beet, apple, grapes. In the blender goes tofu, almond butter, avocado, banana, pure fruit juice, prune juice, milk, protein powder, olive oil, herring fish oil, chicken broth, multi vitamins and what's called Green Formula. This is well mixed and seived to make enough to supply three feeds a day for three days. This provides 2000 calories a day of well balanced nutrition with lots of energy and protein. It takes an hour or so to prepare which I suppose is a lot less time than preparing nine separate meals.

    more specific directions
    Hey there pinedog-

    I know this is a really old post, but I've been looking for a recipe like the one you describe. My husband is 4 weeks into his 7 weeks of chemo with concurrent radiation for tongue cancer and he is just starting to use his feeding tube. I am supplementing his Jevity with juicer and blender drinks, but would love to be replacing the Jevity with something like you describe.
    Could you possibly email me the recipe with amounts? Any more info on the Green Formula you used would be appreciated too.

    Thanks so much,
    Hope you are doing well,
    Kathi
  • katember
    katember Member Posts: 2
    victor53 said:

    my mix
    i mix 1 and 1/2 scoops Whey protien powder from GNC
    with a tablespoon of L Glutamine
    plus a scoop of Simplicity it a meal replacement powder from a company called Reliv
    plus a scoop of Reliv Now its their vitamin powder.
    plus a scoop of Supreme Foods its a vegetable and fruit powder i get at GNC
    plus a couple of tablespoons of Flax Seed oil
    plus table spoon of freeze dried black razzberries i get from Stokes berry farms in Ohio.
    I put it all in one of the big shakers from GNC
    i mixed with water up to the top like 25 ounces i think to the top of one of those gnc shakers.
    shake it good and it pours down my tube.
    I am getting my tube out this week just got my first scan back clean ,5 months post treatment,so i will have to start drinking it.
    I feel great with lots of energy.
    I was doing 3 shakes a day now i am eating more cheese omelets and mashed potatoes and soups so i am only doing 1 or 2 a day.
    When i say scoops i mean the scoops that come in the cans.
    The Reliv stuff i thought was a multi level marketing scam but i got turned on to it 5 years ago when i was going on a diet and it worked for me and i felt great.
    I got a dealer ship number from my mom so its 40% off if you want to try it ,i will give you or anybody else the dealership number.
    She doesnt make a dime off it she just lets people use her number.
    This is my own mix of stuff from articles ive read about black rassberries and L glutamine and flax seed oil and personal experience with the Reliv stuff,and the protien and supreme foods just made sence to me.
    I take some fish oil and probiotics too. I actually like my feeding tube i feel great and would leave it in for a bit longer but summers here and im a surfer and a swimmer and dont feel like tapeing it up .

    Hey Victor-

    Are you still handing out a dealership # for Relev? My husband is four weeks into his 7 weeks of chemo/radiation for tongue cancer and your mix sounds great. He has a feeding tube and is just starting to use it. I've been making lots of juices and smoothies for him in addition to the jevity he puts into his tube. Not crazy about the Jevity...I like your idea better.
    Would appreciate any help/ advice you can offer.

    Thanks,
    Hope you are doing well,
    Kathi (and Breezy)
  • jcontant80
    jcontant80 Member Posts: 1
    Could you email me the
    Could you email me the recipe? My 2 1/2 year old son is gonna get a G-tube placed in a couple of days. I would really appreciate it. My email address is jcontant80@aol.com
  • skydog
    skydog Member Posts: 1
    hello
    can someone please send me this recipe that Pinedog has, thank you very much.

    clarkisafterdark@gmail.com
  • ikamalie
    ikamalie Member Posts: 2
    skydog said:

    hello
    can someone please send me this recipe that Pinedog has, thank you very much.

    clarkisafterdark@gmail.com

    Pine dog's recipe?
    Aloha, Did anyone ever get the recipe for Pine Dog's mix. We'd like it too for my Dad who got a feeding tube two weeks ago, and is finding the Jevity lacking. Thank you so much, Ikamalie

    My email is
    ikamalie@gmail.com
  • ikamalie
    ikamalie Member Posts: 2
    ikamalie said:

    Pine dog's recipe?
    Aloha, Did anyone ever get the recipe for Pine Dog's mix. We'd like it too for my Dad who got a feeding tube two weeks ago, and is finding the Jevity lacking. Thank you so much, Ikamalie

    My email is
    ikamalie@gmail.com

    new feeding tube
    My dad is down to 135 lbs. from 165, and he's had three chemo treatments and three radiation rounds in two years for parotid gland cancer. he's doing good though, and in good spirits and just elected to get a peg because its so hard to eat with mouth sores, and mainly the partial paralysis of his face which makes food get all glomped up and stuck and hard to chew. We have been given Jevity whihc is OK, but we worry about the high fructose corn syrup and also it upsets his stomach. He's having a hard time, fitting as much jevity as they say he should take, into his stomach, it comes back up the tube, and he's also still eating some by mouth for the exercise and taste. The eating and getting enough calories is so hard though, for all of us. Before the peg he said he felt all he did was sit at the table all day and try to struggle down his meals. The tube is still really new and challenging for all of us, but we're looking forward to trying some of Lucy's recipes and maybe Pine Dog's (he said that sounded good) if anyone has it. We're open to any more suggestions too, and think tube will help him overall. Lots of ups and downs huh in this cancer process. He's been in ER four times in last month and a half because this fourth round of chemo is really really tough on him. All the best to all of you and your families.
  • justatadmore
    justatadmore Member Posts: 1
    Desperately seeking your recipie...
    My father was recently diagnosed with stage 4 throat cancer... had SX about six months or so ago and now this and he's going into his fourth week of chemo and radiation in a 7 week program. He had a feeding tube inserted at the onset and has been able to eat until this past week. Lost 6 lbs in less than a week. Must start on tube now. Will attempt to take in fluids orally still but dietitian is concerned. I read your comments about your recipe and please ask that you send me a copy at your earliest convenience. I am in NC and he is in IN. I am traveling home at the end of this month to help my folks out for a short stint and would love to spend my time there making him meals this way in addition to his canned diet. My email address is sheila.blake@hotmail.com .

    Thank you sooooo very much in advance.

    I'm a workaholic normally and make my own dog food supplements weekly for a pack of 4 Great Danes so this should be a snap for me! Thankfully I enjoy that sort of thing.

    Thanks again for any help you can give.