Waiting on Pathlogist Report

Options
davidbdailey
davidbdailey Member Posts: 20
edited March 2014 in Brain Cancer #1
HI everyone, on April 1 I had been informed about my Brain Tumor as I was having seizures while at Walmart and on my way to my daughthers house. We went to the hospital. Had a cat scan and a MRI and on April 16th had another MRI and Markers for the Biopsy. Then on April 30th I had another MRI markers and the Brain Tumor Removed. It was about the size of the tip of my thumb. And now I have an appointment with the Oncologist on the 26th as of my last doctors visit (Surgeon) May 12th, the Report still wasn't back on what type grade the tumor is or was. So at this time we still don't know. Surgeon believes it is Glioblastoma Multiforme.

We have been in contact with Dr Henry Friedman at the Preston Robert Tesch Brain Tumor Cancer Center at Duke University, for a second opinion. He said he needed the slides samples and my post op MRI at which I have not had yet. We may know more on tuesday the 26 and maybe I can get what Dr Friedman needs. God Bless us all. With the love of my wife and family and the love of our GOD. We can make it!
David B. Dailey

Comments

  • Mannie
    Mannie Member Posts: 52
    #2
    Options
    Pathologist Report...
    We've all been there, that's for sure. I had to wait for what seemed like a long time for my pathology report to be sure of what kind of treatment to pursue. It certainly seemed like a lifetime. I had most of the tumor removed surgically and was going through radiation so I had time to kill. No one knew what kind of tumor I had but it was believed to be a GBM too, just like yours. When my pathology report did come back, it complicated things further because my tumor had genetic markers from several kinds of tumors. I ended up being treated as if I had a GBM because my tumor had GBM markers. My official diagnosis was a gemistocytic astrocytoma, which is very uncommon.

    I ended up taking Temodar for a little over a year - the oral form, not the IV form. Temodar is less expensive in the IV form; the IV form was recently approved by the FDA. There's a GBM clinical trial going on now involving IV Temodar and CPT-11. I know a man who is in that clinical trial, he just started it and his tumor is stable. Which is fantastic. My tumor is stable now too.

    Although I am being treated by incredible doctors in Pittsburgh (Dr. Lieberman-my oncologist and Dr. Mintz-my surgeon), Dr. Friedman is a great doctor as well. I know people that are patients of his. They all really like him. I know that my doc and Dr. Friedman talk to each other about tough cases, which is really reassuring.

    There are lot's of people that do very well with a brain cancer diagnosis. I think that God has a lot to do with it. For me, personally, I was too busy to have cancer and I think that also helped out a lot. I have too much going on to let cancer interfere. For example, I still have to be a mom, a daughter, a sister, a volunteer, and do housework. I just didn't have the option of letting cancer get in the way of what I needed to do most of the time. I did have A TON of help with things but I was quite simply, busy.

    God Bless You Too.

    Mannie
  • davidbdailey
    davidbdailey Member Posts: 20
    #3
    Options
    Mannie said:

    Pathologist Report...
    We've all been there, that's for sure. I had to wait for what seemed like a long time for my pathology report to be sure of what kind of treatment to pursue. It certainly seemed like a lifetime. I had most of the tumor removed surgically and was going through radiation so I had time to kill. No one knew what kind of tumor I had but it was believed to be a GBM too, just like yours. When my pathology report did come back, it complicated things further because my tumor had genetic markers from several kinds of tumors. I ended up being treated as if I had a GBM because my tumor had GBM markers. My official diagnosis was a gemistocytic astrocytoma, which is very uncommon.

    I ended up taking Temodar for a little over a year - the oral form, not the IV form. Temodar is less expensive in the IV form; the IV form was recently approved by the FDA. There's a GBM clinical trial going on now involving IV Temodar and CPT-11. I know a man who is in that clinical trial, he just started it and his tumor is stable. Which is fantastic. My tumor is stable now too.

    Although I am being treated by incredible doctors in Pittsburgh (Dr. Lieberman-my oncologist and Dr. Mintz-my surgeon), Dr. Friedman is a great doctor as well. I know people that are patients of his. They all really like him. I know that my doc and Dr. Friedman talk to each other about tough cases, which is really reassuring.

    There are lot's of people that do very well with a brain cancer diagnosis. I think that God has a lot to do with it. For me, personally, I was too busy to have cancer and I think that also helped out a lot. I have too much going on to let cancer interfere. For example, I still have to be a mom, a daughter, a sister, a volunteer, and do housework. I just didn't have the option of letting cancer get in the way of what I needed to do most of the time. I did have A TON of help with things but I was quite simply, busy.

    God Bless You Too.

    Mannie

    Mannie Thank You for the Breath of Fresh AIR!
    Manni, Im 52 years and my wife have been married for 34 years this June. We have 4 adult children wigth the youngest 22 living at home. The other 3 are married and we have a total of 6 grandchildren with the latest one being born on May 3rd for our oldest child Son (David) and his wife. What a blessing we (my wife and I have been having all these years), I had a great paying job and not sure how all this will effect it and how long I'll be away from it at this point. But we have our Faith in our GOD and all the family support and prayers that are being said for us.

    God has blessed you Mannie, Keep the faith and we will be praying for you too.

    Thanks for your support in your message.

    Have a Blessed Day and life
    Dave & Patty Dailey
  • Unknown
    Unknown
    #4
    Options
    This comment has been removed by the Moderator

Discussion Boards