Papillary Renal Cell Carcinoma- Anyone Experiencing This or is a Survivor?

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  • dawnmomofthree
    dawnmomofthree Member Posts: 39
    #82
    imbkuz said:

    Dawn
    Thank you so much for the update. It was bittersweet. I am having a really difficult time the last few days and as I write this I'm crying. Maryann was one of the first people to help me.I've also missed her on the kidney cancer forum. She's always been in my heart. This just made things worse hearing about her. She is my hero and a wonderful lady. I hope this passes quickly and she will be on the road to recovery shortly.Is there anyway I can let her know she's in my prayers? I miss her.
    Thanks Dawn. I hope all is well with you and your family.
    Always
    Babs

    Maryann
    Hi Babs,

    Yes I feel the same way that you do about Maryann. If you look at many of the threads on this kidney cancer site, it is amazing how many times Maryann has posted and offered kind words and support for so many of us. She is a very dear friend. If you email me, I'll see what I can do about getting you her contact information. Her daughter is passing on cards and email messages of support to the hospital where she is staying right now. My email is: dawnlanders700@hotmail.com

    Take care,
    Dawn
  • imbkuz
    imbkuz Member Posts: 52
    #83
    dawnmomofthree said:

    Maryann
    Hi Babs,

    Yes I feel the same way that you do about Maryann. If you look at many of the threads on this kidney cancer site, it is amazing how many times Maryann has posted and offered kind words and support for so many of us. She is a very dear friend. If you email me, I'll see what I can do about getting you her contact information. Her daughter is passing on cards and email messages of support to the hospital where she is staying right now. My email is: dawnlanders700@hotmail.com

    Take care,
    Dawn

    Happy Fourth of July
    Dawn Thank you so much for being so helpful and hope this weekend is full of pleasure for you,Carrie hope you have as nice a weekend as possible if feasible, Donna lee you go girl and everyone else I hope you all have a nice holiday weekend. I know Maryann will be in our thoughts and prayers.Again, I stupidly made plans and life happened so my weekend... well we will see. Prayers for family would be great.Thanks everyone.
    Always
  • dawnmomofthree
    dawnmomofthree Member Posts: 39
    #84
    imbkuz said:

    Happy Fourth of July
    Dawn Thank you so much for being so helpful and hope this weekend is full of pleasure for you,Carrie hope you have as nice a weekend as possible if feasible, Donna lee you go girl and everyone else I hope you all have a nice holiday weekend. I know Maryann will be in our thoughts and prayers.Again, I stupidly made plans and life happened so my weekend... well we will see. Prayers for family would be great.Thanks everyone.
    Always

    Great News
    Hi Everyone,

    I have some fantastic news. Maryann's daughter emailed me and said that Maryann is being released from the hospital today. All of your prayers and well wishes must have helped. Hopefully Maryann herself will be posting a message soon.

    Imbukuz, I hope you are ok. I am certainly sending prayers for you and your family, whatever is going on I hope that you have a good 4th of July with your family.

    Carrie and Donna I can't wait to hear all about your 4th of July weekends. I hope you both live it up.

    I took the kids to the zoo today. It was very crowded and I am exhausted now, but I think they had a fantastic time.

    Have a great holiday everyone.
    Dawn
  • donna_lee
    donna_lee Member Posts: 1,042 Member
    #85
    dawnmomofthree said:

    Great News
    Hi Everyone,

    I have some fantastic news. Maryann's daughter emailed me and said that Maryann is being released from the hospital today. All of your prayers and well wishes must have helped. Hopefully Maryann herself will be posting a message soon.

    Imbukuz, I hope you are ok. I am certainly sending prayers for you and your family, whatever is going on I hope that you have a good 4th of July with your family.

    Carrie and Donna I can't wait to hear all about your 4th of July weekends. I hope you both live it up.

    I took the kids to the zoo today. It was very crowded and I am exhausted now, but I think they had a fantastic time.

    Have a great holiday everyone.
    Dawn

    FYI
    Just to let you know I went the direct route to Maryann. Somewhere in the past few months she gave out her email address and I sent a contact telling her we missed her. Also commented that if the family was reading it, to please let us know. Sounds like it may have worked. I'm so glad to finally hear about her. I had even scrolled back and seen that she hadn't communicated since early June.
    Bangormom has been a true inspiration and voice of encouragement.

    Does anyone else receive "Cure" magazine, which is free to cancer "people." Mine just came yesterday and there is an article on Kidney cancer and treatment(s). I just started reading the article, so can't share much yet. I'll start a new post to let others out there know about the mag and other info available. The mags have been in my oncologists and the radiologists offices and subscriptions are free.

    This morning, I took my husband to a town about 1/2 hr. away that has one of the restored, quaint little shopping districts. Found all sorts of stuff. Books for the granddaughters, a new door buzzer in an art gallery, 2 blouses for me, salt-water taffy, a ceramic frog plaque for hubby's collection (we both liked the vivid colors), locally made jellies and salad dressings, and a necklace with amber beads that goes with one of the blouses. Then we went to Bandon Dunes for lunch. Google Bandon Dunes and you'll see some gorgeous golf courses.

    Happy Fourth!!! It's a R/W/and not so blue day for us.
    Donna
  • dawnmomofthree
    dawnmomofthree Member Posts: 39
    #86
    donna_lee said:

    FYI
    Just to let you know I went the direct route to Maryann. Somewhere in the past few months she gave out her email address and I sent a contact telling her we missed her. Also commented that if the family was reading it, to please let us know. Sounds like it may have worked. I'm so glad to finally hear about her. I had even scrolled back and seen that she hadn't communicated since early June.
    Bangormom has been a true inspiration and voice of encouragement.

    Does anyone else receive "Cure" magazine, which is free to cancer "people." Mine just came yesterday and there is an article on Kidney cancer and treatment(s). I just started reading the article, so can't share much yet. I'll start a new post to let others out there know about the mag and other info available. The mags have been in my oncologists and the radiologists offices and subscriptions are free.

    This morning, I took my husband to a town about 1/2 hr. away that has one of the restored, quaint little shopping districts. Found all sorts of stuff. Books for the granddaughters, a new door buzzer in an art gallery, 2 blouses for me, salt-water taffy, a ceramic frog plaque for hubby's collection (we both liked the vivid colors), locally made jellies and salad dressings, and a necklace with amber beads that goes with one of the blouses. Then we went to Bandon Dunes for lunch. Google Bandon Dunes and you'll see some gorgeous golf courses.

    Happy Fourth!!! It's a R/W/and not so blue day for us.
    Donna

    Happy 4th of July
    Hello Ladies,

    Happy 4th of July to everyone! Just wanted to report that I spoke with Maryann briefly on the phone. She is home from the hospital and has been through an ordeal, but thankfully now she is home again with her family. Hopefully she will post on this thread in the next couple of days when she is feeling a little better.

    Donna I checked out the Bandon Dunes golf course that you ate lunch at. What a beautiful area of the country that you live in! I would love to live near the coast someday. It sounds like you are having a great weekend. You certainly have earned it. :) I would be interested in getting a copy of the kidney cancer article from "Cure" magazine. I don't receive that, but I am fortunate enough not to be a "cancer person" and only a caregiver. My fil has his next set of scans next week so I assume we may have to change his treatment or make some additonal decisions. I'd like to be up to speed on what is out there for him in way of possible options.

    Happy 4th everyone,
    Dawn
  • AlwaysHaveHope
    AlwaysHaveHope Member Posts: 29
    #87
    dawnmomofthree said:

    Happy 4th of July
    Hello Ladies,

    Happy 4th of July to everyone! Just wanted to report that I spoke with Maryann briefly on the phone. She is home from the hospital and has been through an ordeal, but thankfully now she is home again with her family. Hopefully she will post on this thread in the next couple of days when she is feeling a little better.

    Donna I checked out the Bandon Dunes golf course that you ate lunch at. What a beautiful area of the country that you live in! I would love to live near the coast someday. It sounds like you are having a great weekend. You certainly have earned it. :) I would be interested in getting a copy of the kidney cancer article from "Cure" magazine. I don't receive that, but I am fortunate enough not to be a "cancer person" and only a caregiver. My fil has his next set of scans next week so I assume we may have to change his treatment or make some additonal decisions. I'd like to be up to speed on what is out there for him in way of possible options.

    Happy 4th everyone,
    Dawn

    Happy 4th everyone!
    I am so
    Happy 4th everyone!

    I am so glad to hear that Maryann was up to talking with you a little, Dawn. Thanks for giving me her address so I could send the letter and thanks for keeping me updated via email. We are all such good friends and Maryann, as you have said, has been such a great source of support, so I am so thankful that she is at least home now with her family and not in the hospital anymore. Dawn... I hope your father-in-law's scans offer good news this coming up week. Donna...I hope you are doing okay, too, and hope your weekend is enjoyable. Maryann...please take your time getting back with us; I think we all understand if you can't post for a while and we are all just happy to have you back.

    As for this weekend and how it's going.....
    Had a great time last night. Went with my sister, her fiance', and my nephew to her fiance's brother's new townhouse in another county. We stayed until 10:00 p.m. We fixed his wiring on his big screen (projector that projects image on his wall), took a tour of his townhouse, grilled hotdogs and marshmellows, then watched part of one movie and part of another on his big screen on the wall. We were going to stay and watch fireworks at 10:00, but my nephew was getting tired (way past his bedtime), so we all left. Got home about an hour later. It was fun. I enjoyed myself for a change. Felt kind of bad leaving dad at home alone by himself, though.

    Haven't really done anything today that's worth mentioning, except I've been washing clothes and working on getting these photos ready for one of those frames that my mom had wanted me to help her with for such a long time and I never got around to doing. Hope my mom's up there somewhere looking down on me, happy to see me getting them done. 0:) Well, I tried to watch a movie downstairs with dad for a change, but he fell asleep shortly after starting it, so I came back upstairs to my room and I guess I'll watch some of the Boston POPS on t.v. tonight by myself. Oh well, at least I tried.

    Well, everyone have a great rest of your holiday and I'll talk with you all later.
  • imbkuz
    imbkuz Member Posts: 52
    #88
    AlwaysHaveHope said:

    Happy 4th everyone!
    I am so
    Happy 4th everyone!

    I am so glad to hear that Maryann was up to talking with you a little, Dawn. Thanks for giving me her address so I could send the letter and thanks for keeping me updated via email. We are all such good friends and Maryann, as you have said, has been such a great source of support, so I am so thankful that she is at least home now with her family and not in the hospital anymore. Dawn... I hope your father-in-law's scans offer good news this coming up week. Donna...I hope you are doing okay, too, and hope your weekend is enjoyable. Maryann...please take your time getting back with us; I think we all understand if you can't post for a while and we are all just happy to have you back.

    As for this weekend and how it's going.....
    Had a great time last night. Went with my sister, her fiance', and my nephew to her fiance's brother's new townhouse in another county. We stayed until 10:00 p.m. We fixed his wiring on his big screen (projector that projects image on his wall), took a tour of his townhouse, grilled hotdogs and marshmellows, then watched part of one movie and part of another on his big screen on the wall. We were going to stay and watch fireworks at 10:00, but my nephew was getting tired (way past his bedtime), so we all left. Got home about an hour later. It was fun. I enjoyed myself for a change. Felt kind of bad leaving dad at home alone by himself, though.

    Haven't really done anything today that's worth mentioning, except I've been washing clothes and working on getting these photos ready for one of those frames that my mom had wanted me to help her with for such a long time and I never got around to doing. Hope my mom's up there somewhere looking down on me, happy to see me getting them done. 0:) Well, I tried to watch a movie downstairs with dad for a change, but he fell asleep shortly after starting it, so I came back upstairs to my room and I guess I'll watch some of the Boston POPS on t.v. tonight by myself. Oh well, at least I tried.

    Well, everyone have a great rest of your holiday and I'll talk with you all later.

    I too am sooooo glad Maryann
    I too am sooooo glad Maryann is out of the hospital and can't wait until she is back. Is it at all possible to have her start a part 2 of these posts since it takes me almost a half hour to scroll down:) Just a suggestion. Dawn, again thank you for the wonderful news! I hope we always keep in touch. If anyone ever told me that I'd be meeting people this way I would have never believed them. It's unfortunate circumstances but I have met the most wonderful caring people. Not like the real world whatever that may be:) Life certainly has changed since my husband's diagnosis and you find out who truly cares or not. You guys rock.Dawn,Thank you for your prayers the other day...we had a really nice day yesterday....normal whatever that means. It was wonderful and I relished every second.I really do believe in the power of prayer. Look at our Maryann. I hope everything goes well with your fil this week...keep us posted. I think it's amazing that he still mows the lawn. My hubby tried and boom he was down for the count but he did BBQ last night. Carrie I'm so happy that you enjoyed yourself the other night and with your dad I can't imagine the pain that he he is going through too.Please when you go up to your room don't feel alone I'm sure your mom is watching over you and we will always be here for you too. I don't know what I will do when I lose my husband.Although I can't think about it. One thing I have learned from this experience is that while we are making plans life happens and when I worry or think about something happening something else happens.
    Donna lee keep us posted on all your adventures......sounds like you're living it up and it's beautiful there. Yesterday I gardened a little (whatever my body allowed me with my physical limitations) and it was so nice and relaxing to get back to nature.My husband goes for CT scan in about three weeks so maybe we'll have some good news. He's only on his first round of Sutent so maybe it's too soon. But I do believe in miracles.
    Hope everyone will and is having an enjoyable as possible holiday weekend.
  • imbkuz
    imbkuz Member Posts: 52
    #89
    imbkuz said:

    I too am sooooo glad Maryann
    I too am sooooo glad Maryann is out of the hospital and can't wait until she is back. Is it at all possible to have her start a part 2 of these posts since it takes me almost a half hour to scroll down:) Just a suggestion. Dawn, again thank you for the wonderful news! I hope we always keep in touch. If anyone ever told me that I'd be meeting people this way I would have never believed them. It's unfortunate circumstances but I have met the most wonderful caring people. Not like the real world whatever that may be:) Life certainly has changed since my husband's diagnosis and you find out who truly cares or not. You guys rock.Dawn,Thank you for your prayers the other day...we had a really nice day yesterday....normal whatever that means. It was wonderful and I relished every second.I really do believe in the power of prayer. Look at our Maryann. I hope everything goes well with your fil this week...keep us posted. I think it's amazing that he still mows the lawn. My hubby tried and boom he was down for the count but he did BBQ last night. Carrie I'm so happy that you enjoyed yourself the other night and with your dad I can't imagine the pain that he he is going through too.Please when you go up to your room don't feel alone I'm sure your mom is watching over you and we will always be here for you too. I don't know what I will do when I lose my husband.Although I can't think about it. One thing I have learned from this experience is that while we are making plans life happens and when I worry or think about something happening something else happens.
    Donna lee keep us posted on all your adventures......sounds like you're living it up and it's beautiful there. Yesterday I gardened a little (whatever my body allowed me with my physical limitations) and it was so nice and relaxing to get back to nature.My husband goes for CT scan in about three weeks so maybe we'll have some good news. He's only on his first round of Sutent so maybe it's too soon. But I do believe in miracles.
    Hope everyone will and is having an enjoyable as possible holiday weekend.

    Dawn and everyone Cure magazine
    http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1131 I hope this link works for the article. Cancer patients can get magazine for free. I signed up for hubby.Hope this helps.
    Always
    Babs
  • AlwaysHaveHope
    AlwaysHaveHope Member Posts: 29
    #90
    imbkuz said:

    Dawn and everyone Cure magazine
    http://www.curetoday.com/index.cfm/fuseaction/article.show/id/2/article_id/1131 I hope this link works for the article. Cancer patients can get magazine for free. I signed up for hubby.Hope this helps.
    Always
    Babs

    Created a new Part 2 of our post!
    Okay everyone,
    With Babs recent suggestion, I've gone ahead and created a Part 2 Discussion Post.
    It's under the same place (Kidney Cancer) and all you have to do is look for the post titled, "Papillary Renal Cell Carcinoma-Anyone Experiencing This, Is a Survivor?-PART 2, STILL GOING STRONG".

    Let me know if anyone can't find it, but it's at the top of the Kidney Cancer posts, so you can't miss it.

    Talk with you'll later (under the new post).

    Carrie
  • PamelaFischer
    PamelaFischer Member Posts: 1
    #91
    My Dad
    You guys know exactly what i feel. My dad has been fighting this horrible cancer for almost 2yrs now. He has just recently been taken off the last trial approved for him, and medications he was on. Doctors are telling us he only has 2mths if that,unless something soon starts up for him. My dad is in horrible pain and is now just taking high doses of pain medication that make him over drowsy and unable to do much of anything. My family is hurting so bad..at this point im so heartbroken and angry that my dad is dying and nothing or nobody can help us.I love him so much and im just so scared.Its hard having so many people around and nobody seems to realize they cant cure him. He has his up and down days. Today was hard on him. I wish i could give him his life back just for one day completely without the words (Papillary) RENAL CELL CANCER. I needed to let you Know i am praying hard for you all. Today is a rough day. I want our lives back..i want my dad back to who he was! I signed up to this paticular site just to let you and your mom know, although i dont know you,and you dont know me, our lives have been impacted the same way. I AM PRAYING HARD FOR YOU! Hold your mom close. and i will hold my dad. We can only pray to see the end one day of this horrible cancer,RCC. You are in my thoughts deeply..

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