Just found out I have stage 4 lung cancer

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Comments

  • prnorman
    prnorman Member Posts: 2
    I can't imagine the emotion
    I can't imagine the emotion that you all have had to go through during your diagnosis. However, I do know how it feels from a daughters point of view. Every day I see the struggles of the strongest person that I strive to be. If I had any advice to give it would to keep pushing the doctors. I always feel like I'm one step behind. There's always one more stronger drug to try, a more effective pain killer to help soothe the pain, or another doctor's point of view that could have been helpful 6 months prior. We should have gotten a second opinion and should have researched it as soon as the diagnosis occured. Stage 2 turned to stage 4 in a matter of weeks because our plan of action was too slow. We were forced to make appointments later rather than sooner and I only feel regret that it wasn't placed as a higher priority. We were told (at stage 2) that the aches and pains in her body could be cured through a trip to the chiropractor. I now know that the aches and pains that felt like pulled muscles was the first signs of metasising (sp?) to the bone which causes extreme pain. Our PET & CT scan were few and far between and everytime we heard a new diagnosis, I get to hear, "That is really rare. I've never seen that." Question your doctors and the methods that they choose to pursue. Make sure they do a whole body scan. Most only go from the neck to the mid thigh. If you do take a bone medicine, be aware that it causes jaw infections. Steroids ahve been a huge help to reliev pain but have been striven from my mother's cocktail because it can infection. Some doctors have relied more on sedating rather than curing. Eat, because you will loose your appetite. All the treatment you will endure will take energy and nutrients and it is the best thing you can do for yourself. And don't quit! We are all depending on your strength to help the next fighting cancer survivor. Our family gets through this with hope, love, and telling the miracles of other survivors. I admire your strength to even seek outside resources when it must be a dificult thing to do. I will pray for you and your family as I believe you will fight this most unfair diagnosis.
  • AM3737
    AM3737 Member Posts: 3
    thymic carcinoma
    I am a 42 year old just diagnosed 7 months ago with stage IVa thymic carcinoma. I am also a wife and mother of 3 children as my oldest is just turning 15 yrs. old. I am hoping that you are still doing well with fighting this cancer and would like to be able to communicate with anyone who has the same type of rare cancer. I have been through chemo and surgery and still have disease in my left pleural cavity.
  • TN605
    TN605 Member Posts: 1
    AM3737 said:

    thymic carcinoma
    I am a 42 year old just diagnosed 7 months ago with stage IVa thymic carcinoma. I am also a wife and mother of 3 children as my oldest is just turning 15 yrs. old. I am hoping that you are still doing well with fighting this cancer and would like to be able to communicate with anyone who has the same type of rare cancer. I have been through chemo and surgery and still have disease in my left pleural cavity.

    My mom was diagnosed in
    My mom was diagnosed in August, 2011 with stage IVb thymic cancer. she is 66 yrs. old. She has been through Chemo (second cycle). They can't remove her cancer because it wraps around her airway and major arteries, it spreads into her left lung. We have been there to support her. Hopefully we can fight this battle together. We will keep you in our pray. Take care and let us know how it goes for you.