lost ,confused ,just need some one to talk to

Anita jo
Anita jo Member Posts: 7
edited March 2014 in Kidney Cancer #1
Help 13 weeks ago my huspand was being treated for kindney stones
he started hurting so bad I took him to emergency room.
They diagnosed him with renal carcenomia , stage 4 It has already moved
to his lungs and in his back they said there was no hope gave him months to live
the drs called hospice in . they just gave up on him hes 57 yrs old never been sick or in the hosp. its unbeliveble

Comments

  • imbkuz
    imbkuz Member Posts: 52
    Anita jo
    Has he seen a Renal Cell Carcinoma oncologist? My husband too was diagnosed with Renal Cell Carcinoma Stage IV, mets to lungs, extensive sarcomatoid features which means very aggressive and the Fuhrman grade is stage IV this past March/April. He had a radical nephrectomy by a surgeon who specializes in this and is now seeing a top notch renal cell carcinoma oncologist who put him on medication.There are a lot of new meds out there for this disease. How is your husband feeling physically besides devastated by these doctors reaction? And how are you holding up? There are a few excellent Cancer Treatment Centers for this type of cancer in the U.S. I don't know where you are located but you should look up www.kidneycancer.org and there is a nurse hot line who may direct you to another doctor. Please do not give up. I'll be praying for you and your husband. Let me know how it works out.
    God Bless
  • Anita jo
    Anita jo Member Posts: 7
    imbkuz said:

    Anita jo
    Has he seen a Renal Cell Carcinoma oncologist? My husband too was diagnosed with Renal Cell Carcinoma Stage IV, mets to lungs, extensive sarcomatoid features which means very aggressive and the Fuhrman grade is stage IV this past March/April. He had a radical nephrectomy by a surgeon who specializes in this and is now seeing a top notch renal cell carcinoma oncologist who put him on medication.There are a lot of new meds out there for this disease. How is your husband feeling physically besides devastated by these doctors reaction? And how are you holding up? There are a few excellent Cancer Treatment Centers for this type of cancer in the U.S. I don't know where you are located but you should look up www.kidneycancer.org and there is a nurse hot line who may direct you to another doctor. Please do not give up. I'll be praying for you and your husband. Let me know how it works out.
    God Bless

    I TOOK HIM TO CANCER
    I TOOK HIM TO CANCER SPECIALIST IN MEMPHIS TENN UT CANCER INSTATUT
    HE HAS HIS GOOD DAYS AND BAD DAYS . ITS LIKE THEY JUST GAVE UP ON HIM THEY EVEN CALLED HOSPICE INWE ARE SO LOST
  • imbkuz
    imbkuz Member Posts: 52
    Anita jo said:

    I TOOK HIM TO CANCER
    I TOOK HIM TO CANCER SPECIALIST IN MEMPHIS TENN UT CANCER INSTATUT
    HE HAS HIS GOOD DAYS AND BAD DAYS . ITS LIKE THEY JUST GAVE UP ON HIM THEY EVEN CALLED HOSPICE INWE ARE SO LOST

    Anita jo
    What does Hospice advise you? Do you want to try somewhere else? Was the cancer specialist only experienced in Renal Cell Carcinoma?If you go on kidney cancer site there are many people on the forum who were lost causes until they found the right doctor to help them. I'm not saying this is your case if you have tried all the possible avenues. I just hope the right people come into your life now.
    God Bless and you are in my prayers.I am so sorry.
  • Anita jo
    Anita jo Member Posts: 7
    imbkuz said:

    Anita jo
    What does Hospice advise you? Do you want to try somewhere else? Was the cancer specialist only experienced in Renal Cell Carcinoma?If you go on kidney cancer site there are many people on the forum who were lost causes until they found the right doctor to help them. I'm not saying this is your case if you have tried all the possible avenues. I just hope the right people come into your life now.
    God Bless and you are in my prayers.I am so sorry.

    imbkuz
    ty so much hospice says according to the dr there is nothing else they can do except keep hi comfortable .but wat i dont understand we cant even go back to dr since hospice is here now