brachy/Deanna

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  • Ro10
    Ro10 Member Posts: 1,561 Member

    LOL
    What a way to start a Monday morning. Funny... I too had peach fuzz all over my face. Once I shaved it off it never came back.

    Questions, if you don't use a dilator do you slather up your husband with yogurt? Hahahahaha!

    Thanks for the laughs and God Bless you all...

    MIND, BODY AND SOUL!

    Hugs.

    Marge you made me laugh
    How funny you are. What husband would not laugh at such a thing.

    After my internal radiation they told me I would only need dilators if I was not sexually active. So I did not get any dilators.

    My frequency of urination is much better this week. I still had nausea over the weekend and had to take some compazine. Still have a few softer bowel movements, but not diarrhea since I got home. I still drink my cran-apple juice everyday though.
  • deanna14
    deanna14 Member Posts: 732
    Ro10 said:

    Marge you made me laugh
    How funny you are. What husband would not laugh at such a thing.

    After my internal radiation they told me I would only need dilators if I was not sexually active. So I did not get any dilators.

    My frequency of urination is much better this week. I still had nausea over the weekend and had to take some compazine. Still have a few softer bowel movements, but not diarrhea since I got home. I still drink my cran-apple juice everyday though.

    You ladies crack me up!
    I'm glad to hear you say that about the dilators. I thought maybe I had made a mistake by not getting them. They called me the day after my last radiation appt and said they had forgotten to talk to me about dilators. I told them that I could come back in if I needed to and they told me that if I was sexually active that I really didn't need the dilators. So I didn't get them and as far as I can tell... no problems! LOL I do notice there is a little tenderness if it has been too many days in between.

    I know my husband would laugh if I brought a cup of yogurt to bed!!! LOL

    Ro, I am glad to hear that you are feeling better and each day should get better with the BM's. It didn't take me long to be able to eat whatever I wanted without getting sick.

    Take care and hugs to all!
  • Evelyn G
    Evelyn G Member Posts: 21
    radiation schedule
    Linda, as we all know, treating cancer occupies most of our thoughts, energy, and time. I'm glad you have your schedule, so you have an end to this ordeal in site. I pray that everything goes well for you and that you will soon be posting NED.

    I had my full-body CT scan yesterday and get the results Friday late afternoon when I see my doc. I could call, but if it's bad news, I'd rather hear it in person and find out what we have to do rather than getting just the results on the phone. It's been since mid-December that I had a full-body scan and four months since the upper body scan. Both were clear.

    Blessings, prayers, and hugs.......
  • deanna14
    deanna14 Member Posts: 732

    Got my brachy schedule today: sounds like Deanna's.
    I met with my radiation oncologist after getting my treatment this morning. I just have 6 more external pelvic radiation treatments left now. They'll be giving me a week off, and then I'll have the 3 brachys 1 week apart: 6/17; 6/24; & 7/01. So it looks like 7/01 should be my 'gradiation day' from my initial treatment protocol! I asked about the catheter and marker in the rectum: YES-sir-ee. (UGH!) I will get a special 'positioning' CT-scan (no IV-contrast needed) during my simulation when I get 'fitted' for my vaginal tube. So it sounds like I'm getting the kind of brachy that Deanna got, although I hope it will be more sensitively given. He said we'd talk about the dilators on the 24th. (I can't WAIT to bring up the YOGURT theory to him!! HA!)

    Additional tidbits from my appointment to share: Apparently the length of time you have to lay there actually getting brachy radiation depends on how 'old' the radioactive material is that particular day. The 'half life' of the radioactive material gets longer as they store it, and if they have a NEW batch, it doesn't need to stay in you as long as it has to if the batch they have that day is older. Wierd, huh? I asked about side effects. He said my diahrea may get worse during the 3 brachy weeks and a few weeks afterwards; and that I may notice more urinary frequency and some burning. I asked about long-term side effects: he said they are possible, but not probable. He said it was important that I do the brachy as the best protection against a recurrance at the vaginal cuff. I am resigned to doing it.

    I ask about my next diagnostic CT-scan, which he said would be some time later in July; that they like to wait a full 3 months. He still thinks the tiny 2.7mm 'nodule' they saw on my lung in my last CT-scan is nothing, but said that if it has grown in my next CT-scan, it could be treated with more chemo, or targeted radiation, or VATS surgery. I hate to even think about additional treatment and a recurrance so soon, before my initial protocol is even over!! (understatement) That would mean that my cancer is VERY resistant to treatment and that would be really really bad. I keep telling myself that my CA-125 kept dropping even the week of that last CT-scan, and wouldn't it go up if something new was growing?? I hate it that this little doubt is ruining my joy at having just 1 more month of treatment left. I just have to believe that it is NOTHING, just as both my oncologists said. But saying it is 'nothing' in one breath, and then discussing treatment options if it ISN'T 'nothing' is pretty disconcerting.

    (Sorry. I took a fun discussion thread and made it all sad. Didn't mean to, but had to share.)

    Soon to be graduate!
    You are so close to being finished with your treatment... yeah! If you are like me, I had less side effects with the internal radiation that the external. I did have some vaginal burning and burning with radiation for about a day after each treatment. No diarrhea or nausea. I am glad that you are going ahead with the internal radiation. At least from everything that I was told, this is an important insurance policy against reoccurance in the vag cuff.
    I so wish you did not have to worry about that last CT scan! I pray that your doctors are correct and that it is nothing. I won't say don't worry because I know no matter how far you push it back in your mind, it is still a concern. The best thing is to pray that the Lord helps carry that burden. Then stay busy with living over the next few months!

    Love and Hugs,
    Deanna
  • Ro10
    Ro10 Member Posts: 1,561 Member
    Evelyn G said:

    radiation schedule
    Linda, as we all know, treating cancer occupies most of our thoughts, energy, and time. I'm glad you have your schedule, so you have an end to this ordeal in site. I pray that everything goes well for you and that you will soon be posting NED.

    I had my full-body CT scan yesterday and get the results Friday late afternoon when I see my doc. I could call, but if it's bad news, I'd rather hear it in person and find out what we have to do rather than getting just the results on the phone. It's been since mid-December that I had a full-body scan and four months since the upper body scan. Both were clear.

    Blessings, prayers, and hugs.......

    Evelyn, I pray you get good results from you CT scan
    Hoping everything goes well for you. I hope this CT scan turns out as good as the other scans. HUGS to you.
  • Evelyn G
    Evelyn G Member Posts: 21
    Good news!
    Scan was clear and everything looked good. Next check up is in 3 months and another scan in six.

    Thanks for the prayers.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    Evelyn G said:

    Good news!
    Scan was clear and everything looked good. Next check up is in 3 months and another scan in six.

    Thanks for the prayers.

    Wonderful news Evelyn
    So glad to hear your scan was clear. Hope the next one is the same. Celebrate.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    Wonderful wonderful news, Evelynn!
    It's amazing the JOY and RELIEF that good test results bring! ENJOY! CELEBRATE! I;m so happy for you.

    :D
  • shortmarge
    shortmarge Member Posts: 291

    Wonderful wonderful news, Evelynn!
    It's amazing the JOY and RELIEF that good test results bring! ENJOY! CELEBRATE! I;m so happy for you.

    :D

    Evelynn
    I think I heard that sigh of relief all the way here at my house. :) Dancing with you!

    MIND, BODY AND SOUL!

    Hugs.
  • daisy366
    daisy366 Member Posts: 1,458 Member

    Evelynn
    I think I heard that sigh of relief all the way here at my house. :) Dancing with you!

    MIND, BODY AND SOUL!

    Hugs.

    Back to giggles
    Thanks Marge for the great visual!!! My husband heard my laughter from the other room and asked what it was about.

    Hang in there, Linda!!

    Mary Ann
  • Evelyn G
    Evelyn G Member Posts: 21
    Hair Growing
    Hi Girls,

    Hope everyone is enjoying the holiday!

    I have a question. Did anyone elses hair grow back in tight curls? My hair is about an inch long but it looks like I have an old-fashioned perm--a $500,000 one at that! I'm thankful my hair is growing and that I'm healthy again, but is there any way to relax the curls? How long does this last?
  • kkstef
    kkstef Member Posts: 688 Member
    Evelyn G said:

    Hair Growing
    Hi Girls,

    Hope everyone is enjoying the holiday!

    I have a question. Did anyone elses hair grow back in tight curls? My hair is about an inch long but it looks like I have an old-fashioned perm--a $500,000 one at that! I'm thankful my hair is growing and that I'm healthy again, but is there any way to relax the curls? How long does this last?

    Curly Hair
    Yes, my hair is VERY curly..it is 6 months since my last chemo.When the humidity is high, it is even more curly. I am so thankful to have hair that the curls are not bothersome to me. My beautician told me that from her experience, the curls go away in 6-12 months...back to its usual appearance. I have opted to just keep my hair very short until things get back to "normal"....if they ever do. My friend also had very curly hair when her hair grew back and it straightened out after about 6 months.
    !