Still here

24242
24242 Member Posts: 1,398
Just wanted to you all to know that there are still people who hang around here now and then and would still be happy to support you in any way that we can. I soon to be a 12 year survivor and sometimes just having someone who has been there can truly help. I can't imagine what it would of been like if I did have my very understand and supportive Catholic family. Without the amazing parents I have I am not sure where I would have wound up. My Best Wishes for this 2009 year yet to come.
Tara

Comments

  • Mischelle
    Mischelle Member Posts: 4
    My partner has Liposarcoma
    Dont really know what to say so I will get straight to the point....Karen has Liposarcoma. She was diagnosed in 1998, they supposedly got it all (was in her upper thigh), she became disabled in 1999, it either came back or she attained another primary tumor in her sacrum in 2007. She underwent 30 radiation treatments in '07 then begam\n chemo in Jan. 2008 and is still receiving treatments. This is MASSIVE chemo, she goes 4 days a month for 6 hours a day (24 hours of chemo monthly because the cancer is so rare anf the Dr's do not know much about it let alone how to treat it. In Oct. 2008 her scans showed that were the cancer had migrated up her spine to her neck was receeding, thanks be to God. She still is going because the Dr's want her to go until its gone. Her next scans are in 3 weeks so we continue to pray.

    I am her partner of over 20 years and her caregiver of over 11 years; not to say that she is incapable of taking care of herself. I do what she needs and take care of our raising our grandson (her son's son), taking care of our 5 dogs, and all the housekeeping/yard work. Pre-cancer, she always took care of the house and I took care of the yard; not hard to tell whose role is what huh? Anyway, it all worked out up until her cancer recurred 2 years ago. I then became THE house, yard, kid and dog keeper as well as her caregiver. Don't get me wrong, I don't mind it I just can't handle it. I was working 50-60 hours weekly up until I lost my job of 8 years in December and have major lower back problems. I am at my wits end and just needed to vent I guess. I do see that it is taking a toll on me though. Any advice????