Uterine Papillary Serous Carcinoma (UPSC): any others here???

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  • Ro10
    Ro10 Member Posts: 1,561 Member
    Teresa 61 said:

    Hair Loss
    Deanna, my heart goes out to you. Such an emotional roller coaster when your hair starts coming out. My head still has the buzzed look,I look like grandma GI Jane.I wear a soft gray cap around the house.My wig is really comfortable so I always wear it when I leave the house.It won't take long for you to find what works for you.
    Marge, love your Army Mom picture, happy to hear you are feeling better.
    Linda ,happy the transfusion went well for you and made you feel better.
    Ro, happy to see your able to post now. Hope you don't get the achy bones side effect.
    Peggy, hope your doing okay, know this is a rough time for your husband, daughter and yourself.Dancing with NED on the 13th will be a great Valentine for you.....

    About blood work results
    Here is some of the information I was given regarding blood counts. Hope it helps. About 7 - 14 days after receiving chemo your blood counts may begin to fall. NADIR is the word used to define the point in time when the blood counts are at their lowest. The timing and severity of the fall depends on : the chemo drugs and dosages, your general state of health, and your nutritional state.
    WBC (white blood cells)or leukocytes main function is to fight infection. There are different types of WBCs the true infection fighter are the neutophils, also called segs or polys. They are also the most abudant type of white blood cell.
    RBC (red blood cells) also called erythrocytes main function is to carry oxygen from the lungs to the body. Hemaglobin (hgb) is the main component of RBC. When hemaglobin is decreased you may look pale, feel overly tired and weak and become short of breath. A blood transfusion may be needed to increase the hemaglobin. Vitamins and iron supplements may make you feel better, but should only be taken with your doctor's advice. (Raisins are high in iron, and will also help with constipation).
    Platelets, or thrombocytes are the smallest formed elements in the blood and are vital for blood clotting. A decrease in the amount of platelets in the blood due to destruction or inablility of the bone marrow to make them can lead to bleeding. After chemo you may notice that you bruise more easily, or a minor cut may take longer to stop bleeding. You may see tiny pin-like dots on your ankles, lower legs and arms. The red dots are called petichiea.
    You may also notice you gums may bleed after you brush your teeth. Notify your doctor if you notice these things.
    Linda you body will begin to produce more red blood cells, but the transfusion helps the RBCs from dropping lower due to the chemo. Hope this information is helpful and not scary. The important thing is to try to have the best nutrition you can have, with lots of protein. Stay away from sick people and take care of yourself,practice good handwashing, and resting when you need to.
    Hope everyone is doing okay. Deanna I will experience your sadness of losing your hair, soon. Hope each day is a little better for you. Marge hope you are getting stronger each day. Peggy hopes things are settling down for you a little. Day 5 after chemo and still feeling good. Hugs to all.
  • shortmarge
    shortmarge Member Posts: 291
    Ro10 said:

    About blood work results
    Here is some of the information I was given regarding blood counts. Hope it helps. About 7 - 14 days after receiving chemo your blood counts may begin to fall. NADIR is the word used to define the point in time when the blood counts are at their lowest. The timing and severity of the fall depends on : the chemo drugs and dosages, your general state of health, and your nutritional state.
    WBC (white blood cells)or leukocytes main function is to fight infection. There are different types of WBCs the true infection fighter are the neutophils, also called segs or polys. They are also the most abudant type of white blood cell.
    RBC (red blood cells) also called erythrocytes main function is to carry oxygen from the lungs to the body. Hemaglobin (hgb) is the main component of RBC. When hemaglobin is decreased you may look pale, feel overly tired and weak and become short of breath. A blood transfusion may be needed to increase the hemaglobin. Vitamins and iron supplements may make you feel better, but should only be taken with your doctor's advice. (Raisins are high in iron, and will also help with constipation).
    Platelets, or thrombocytes are the smallest formed elements in the blood and are vital for blood clotting. A decrease in the amount of platelets in the blood due to destruction or inablility of the bone marrow to make them can lead to bleeding. After chemo you may notice that you bruise more easily, or a minor cut may take longer to stop bleeding. You may see tiny pin-like dots on your ankles, lower legs and arms. The red dots are called petichiea.
    You may also notice you gums may bleed after you brush your teeth. Notify your doctor if you notice these things.
    Linda you body will begin to produce more red blood cells, but the transfusion helps the RBCs from dropping lower due to the chemo. Hope this information is helpful and not scary. The important thing is to try to have the best nutrition you can have, with lots of protein. Stay away from sick people and take care of yourself,practice good handwashing, and resting when you need to.
    Hope everyone is doing okay. Deanna I will experience your sadness of losing your hair, soon. Hope each day is a little better for you. Marge hope you are getting stronger each day. Peggy hopes things are settling down for you a little. Day 5 after chemo and still feeling good. Hugs to all.

    Link to Info on Blood Counts
    http://www.chemocare.com/managing/low_blood_counts.asp
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    Thanks for blood count info! I heard back from this Website!
    Thanks for the information on what my blood work means; I will visit the website Marge mentioned as soon as I tell you my news.

    I read on another thread on this website that someone had contacted the webmaster, and the link that sends out the emails telling you someone has replied to your posting is broken, but they are working on it. So that's the story there.

    I also just got an email reply this morning from Dana Haulotte of the American Cancer Society Cancer Survivors Network®. She emailed: "Thank you for contacting the Cancer Survivors Network (CSN). We do apologize for the delay in our response. Thank you for your interest in creating a new discussion board on the CSN. After speaking with our technical team we found that a new board can be created but we are unsure if the posting from the Gynecological Cancers discussion board can be moved. If it cannot be moved do you still want a new board created? Thank you for all you bring to the CSN community."

    I replied that we still would love to have our own 'Uterine Cancer' Discussion Board, but hoped that they would leave up this original thread, even if it stayed under 'Gynecologic Cancer Other than Ovarian', so that it could be accessed by new UPSC sisters using their 'Search' mechanism. And we could make a point of occasionally adding a new post to this old thread explaining where to find us now, so that this thread stays moved up to the 1st page of that Discussion Board. It will be great to have our own new posts organized in threads on chemo and radiation and neuropathy and emotional support, etc., specific to our cancer type, as a better resource for newcomers that may not have the time to read through our super-long thread looking for something specific. I hope they do it.

    How are all my UPSC sisters today? I am in my Nadir week, and largely housebound, hiding from germs and viruses, but it is freezing cold here anyway. I vowed to start daily mild exercise today (leg lifts, yoga) as I am tooooo sedentary for my own good. I feel so much better since my transfusion, a lot of it 'psychologically' better, as that breathlessness and pounding heart, although fairly mild, was SCARY. Now I don't feel so fragile. The sun is shining brightly on the snow outside, and I love sunshine! Be happy today, my friends.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    What a wonderful site that is
    Marge , I checked out the site and it has so much information on all side effects, and good recommendations on how to help with the side effects. Thanks for sending it. I have a lot of information from my nursing career, but it is sure different when you are the person going through everything. It still amazes me all the current information you can find on the internet. We sure could not be checking things out at the library like the old days. I think like others have said I hav "chemo brain" due to the pre treatment steroids and taking the steroids 3 days after treatment. I feel I can think a little better today. I am on day 6 post chemo, and still no problems. That fear of the unknown sure plays havoc on one's mind too.
    Linda I am glad you are feeling better. I like the new picture. I guess next week I will have my "new look", too. Continue to take care of yourself. Enjoy that sun and snow inside. Keep warm. Deanna hope you are adjusting to your new look also, and things are going well for you. Theresa hope you are doing okay. I am sure you have a harder time taking care of your daughter. My heart goes out to you. Peggy hope you and your husband are doing okay, too. HUGS to all.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    Ro10 said:

    What a wonderful site that is
    Marge , I checked out the site and it has so much information on all side effects, and good recommendations on how to help with the side effects. Thanks for sending it. I have a lot of information from my nursing career, but it is sure different when you are the person going through everything. It still amazes me all the current information you can find on the internet. We sure could not be checking things out at the library like the old days. I think like others have said I hav "chemo brain" due to the pre treatment steroids and taking the steroids 3 days after treatment. I feel I can think a little better today. I am on day 6 post chemo, and still no problems. That fear of the unknown sure plays havoc on one's mind too.
    Linda I am glad you are feeling better. I like the new picture. I guess next week I will have my "new look", too. Continue to take care of yourself. Enjoy that sun and snow inside. Keep warm. Deanna hope you are adjusting to your new look also, and things are going well for you. Theresa hope you are doing okay. I am sure you have a harder time taking care of your daughter. My heart goes out to you. Peggy hope you and your husband are doing okay, too. HUGS to all.

    I'm so glad you found us in our new location, Ro!
    RO: I was worried that we finally have you posting with us, and thaty as soon as you got comfortable with the process, we had this thread moved!! (Or did you post this before the move?? maybe I am celebrating too soon!) I didn't have the email addresses of all the UPSC sisters, but emailed as many of you as I could to give out new location on this website. We have now been granted our OWN Discussion Board, a new UTERINE CANCER listing in with the main listing of all the other Discussion Boards. http://csn.cancer.org/forum/189

    So now, when you come into the website, and go onto the list of Discussion Boards, pass by the ‘Gynecologic Cancer other then Ovarian’ discussion board and scroll on down until you see ‘UTERINE CANCER.’ They moved our old thread here, and I suggested that everyone start there in our old thread, reading any posts that may be new to you. But instead of just hitting ‘REPLY’ to continue our chatting, if you want, feel free to create a new thread within our Board. This way we can have separate topics (chemo; radiation; side effects; various drug research, etc.) which will make it easier for new UPSC Sisters to SEARCH on just what they need to know that day, as opposed to reading our wonderful long rambling discussion of everything and anything. This should make our posting have less glitches since the individual threads won’t get so crazy-long.

    If any of you have Teresa’s or Beav’s or any of our other UPSC Sister’s email addresses, please email them and give them the new address: http://csn.cancer.org/forum/189

    I don’t want to lose anyone with the move!
  • deanna14
    deanna14 Member Posts: 732

    I'm so glad you found us in our new location, Ro!
    RO: I was worried that we finally have you posting with us, and thaty as soon as you got comfortable with the process, we had this thread moved!! (Or did you post this before the move?? maybe I am celebrating too soon!) I didn't have the email addresses of all the UPSC sisters, but emailed as many of you as I could to give out new location on this website. We have now been granted our OWN Discussion Board, a new UTERINE CANCER listing in with the main listing of all the other Discussion Boards. http://csn.cancer.org/forum/189

    So now, when you come into the website, and go onto the list of Discussion Boards, pass by the ‘Gynecologic Cancer other then Ovarian’ discussion board and scroll on down until you see ‘UTERINE CANCER.’ They moved our old thread here, and I suggested that everyone start there in our old thread, reading any posts that may be new to you. But instead of just hitting ‘REPLY’ to continue our chatting, if you want, feel free to create a new thread within our Board. This way we can have separate topics (chemo; radiation; side effects; various drug research, etc.) which will make it easier for new UPSC Sisters to SEARCH on just what they need to know that day, as opposed to reading our wonderful long rambling discussion of everything and anything. This should make our posting have less glitches since the individual threads won’t get so crazy-long.

    If any of you have Teresa’s or Beav’s or any of our other UPSC Sister’s email addresses, please email them and give them the new address: http://csn.cancer.org/forum/189

    I don’t want to lose anyone with the move!

    I am so happy uterine cancer now has it's own listing
    It's great to see uterine cancer listed now. It is a giant step in the right direction, I think. This is quickly becoming a peeve of mine... breast cancer, ovarian cancer... all other female cancers. I am finding out that uterine cancer is much more common than I would have guessed before I was diagnosed. What are other things we can do to push for more face time for uterine cancer? There definately needs to be better screening for uterine cancer. I actually read on the ACS website that women in my position (positive for, or suspected to be positive for Lynch Syndrome), should have routine ultrasounds. My brother had his colon cancer 6 years ago and I told all of my doctors my family history and still no one said anything about rountine ultrasound as I could be genetically predisposed to uterine cancer. How do we get the information out there?
    Okay, I'll step off my soap box. Good job Linda on getting this new board!
  • deanna14
    deanna14 Member Posts: 732
    deanna14 said:

    I am so happy uterine cancer now has it's own listing
    It's great to see uterine cancer listed now. It is a giant step in the right direction, I think. This is quickly becoming a peeve of mine... breast cancer, ovarian cancer... all other female cancers. I am finding out that uterine cancer is much more common than I would have guessed before I was diagnosed. What are other things we can do to push for more face time for uterine cancer? There definately needs to be better screening for uterine cancer. I actually read on the ACS website that women in my position (positive for, or suspected to be positive for Lynch Syndrome), should have routine ultrasounds. My brother had his colon cancer 6 years ago and I told all of my doctors my family history and still no one said anything about rountine ultrasound as I could be genetically predisposed to uterine cancer. How do we get the information out there?
    Okay, I'll step off my soap box. Good job Linda on getting this new board!

    fingernails
    After that little rant, I forgot to ask if anyone else is having problems with their fingernails? Mine are very soft,hangnails and splitting, a couple down into the quick which is very uncomfortable. Would appreciate any ideas or suggestions? I have started using a cuticle oil, I have no idea if it will help. I thought maybe it would moisturize anyway.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    deanna14 said:

    fingernails
    After that little rant, I forgot to ask if anyone else is having problems with their fingernails? Mine are very soft,hangnails and splitting, a couple down into the quick which is very uncomfortable. Would appreciate any ideas or suggestions? I have started using a cuticle oil, I have no idea if it will help. I thought maybe it would moisturize anyway.

    Fingernails
    Check out the site Marge listed above chemocare/managing side effects/skin care. Nail changes is listed under there. I found I have some hangnails starting, too which is very unusual for me. I have very strong fingernails, so I don't know if I will need to keep them short. I have used cuticle oil, but also used a moisturizing lotion around the fingertips to keep the hangnails from going deeper. You are right it is painful. I have a friend that had fingernail and toenail problems due to chemo. I will e-mail her for her suggestions, too.
  • deanna14
    deanna14 Member Posts: 732
    Ro10 said:

    Fingernails
    Check out the site Marge listed above chemocare/managing side effects/skin care. Nail changes is listed under there. I found I have some hangnails starting, too which is very unusual for me. I have very strong fingernails, so I don't know if I will need to keep them short. I have used cuticle oil, but also used a moisturizing lotion around the fingertips to keep the hangnails from going deeper. You are right it is painful. I have a friend that had fingernail and toenail problems due to chemo. I will e-mail her for her suggestions, too.

    chemocare
    Thanks Ro, I will check out the chemocare site.
  • california_artist
    california_artist Member Posts: 816 Member

    I'm so glad you found us in our new location, Ro!
    RO: I was worried that we finally have you posting with us, and thaty as soon as you got comfortable with the process, we had this thread moved!! (Or did you post this before the move?? maybe I am celebrating too soon!) I didn't have the email addresses of all the UPSC sisters, but emailed as many of you as I could to give out new location on this website. We have now been granted our OWN Discussion Board, a new UTERINE CANCER listing in with the main listing of all the other Discussion Boards. http://csn.cancer.org/forum/189

    So now, when you come into the website, and go onto the list of Discussion Boards, pass by the ‘Gynecologic Cancer other then Ovarian’ discussion board and scroll on down until you see ‘UTERINE CANCER.’ They moved our old thread here, and I suggested that everyone start there in our old thread, reading any posts that may be new to you. But instead of just hitting ‘REPLY’ to continue our chatting, if you want, feel free to create a new thread within our Board. This way we can have separate topics (chemo; radiation; side effects; various drug research, etc.) which will make it easier for new UPSC Sisters to SEARCH on just what they need to know that day, as opposed to reading our wonderful long rambling discussion of everything and anything. This should make our posting have less glitches since the individual threads won’t get so crazy-long.

    If any of you have Teresa’s or Beav’s or any of our other UPSC Sister’s email addresses, please email them and give them the new address: http://csn.cancer.org/forum/189

    I don’t want to lose anyone with the move!

    Hormone Therapy
    Hey,
    Great job on the new bloggy thing. UPSC does tend to get lost in the shuffle.

    Has anyone had any discussion with their doctors about hormone therapy. UPSC often is progesterone receptive and does respond to forms of progestin therapy, but neither of the oncologists I've seen have been willing to even test for progesterone receptors. My brother. at the same age as I was when diagnosed with my cancer, was diagnosed with prostate cancer, a very aggressive form, and was given hormone therapy when he asked, after his cancer returned a year later. The treatment brought his number down to zero, and he's been fine since, five years. So I was thinking and reading, and wondering due to the similarities about hormone therapy for me.
    Ah, any ideas????
    Love and kisses
    Claudia
    claudiaallen27@yahoo.com
  • deanna14
    deanna14 Member Posts: 732

    Hormone Therapy
    Hey,
    Great job on the new bloggy thing. UPSC does tend to get lost in the shuffle.

    Has anyone had any discussion with their doctors about hormone therapy. UPSC often is progesterone receptive and does respond to forms of progestin therapy, but neither of the oncologists I've seen have been willing to even test for progesterone receptors. My brother. at the same age as I was when diagnosed with my cancer, was diagnosed with prostate cancer, a very aggressive form, and was given hormone therapy when he asked, after his cancer returned a year later. The treatment brought his number down to zero, and he's been fine since, five years. So I was thinking and reading, and wondering due to the similarities about hormone therapy for me.
    Ah, any ideas????
    Love and kisses
    Claudia
    claudiaallen27@yahoo.com

    hormone therapy
    I am 39 and my gyn/onc and radiation onc both said the goal is for me to never take HRT.
  • Teresa 61
    Teresa 61 Member Posts: 84 Member
    deanna14 said:

    hormone therapy
    I am 39 and my gyn/onc and radiation onc both said the goal is for me to never take HRT.

    Discussion Board
    I have not been able to use the Uterine Cancer discussion board. It's the darndest thing! I click on the discussion board and I can click on all the other topics and they come up. I click on uterine cancer and it won't load, say's "OOPS! can't find the web page you are looking for". I've e-mailed CSN and AOL with my problem... each blames the other for the problem.
    Hope everyone is doing well. Have you been losing your hair yet Ro? Deanna, I imagine yours is gone now. Takes awhile to get used to, but then you find a way to deal with it knowing it won't be forever.Linda, hope you get through your 5th chemo with no problems on the 16th. I will be having my 3rd on the 17th.
  • deanna14
    deanna14 Member Posts: 732
    Teresa 61 said:

    Discussion Board
    I have not been able to use the Uterine Cancer discussion board. It's the darndest thing! I click on the discussion board and I can click on all the other topics and they come up. I click on uterine cancer and it won't load, say's "OOPS! can't find the web page you are looking for". I've e-mailed CSN and AOL with my problem... each blames the other for the problem.
    Hope everyone is doing well. Have you been losing your hair yet Ro? Deanna, I imagine yours is gone now. Takes awhile to get used to, but then you find a way to deal with it knowing it won't be forever.Linda, hope you get through your 5th chemo with no problems on the 16th. I will be having my 3rd on the 17th.

    There is Teresa!
    I have a very...very thin layer of hair on top. I am starting to get used to it. It won't be gone forever! Had chemo # 2 yesterday and I have to say it is hitting me harder this time. This too will pass. Good with yours next week.
    Take care and God bless.
  • Ro10
    Ro10 Member Posts: 1,561 Member
    Teresa 61 said:

    Discussion Board
    I have not been able to use the Uterine Cancer discussion board. It's the darndest thing! I click on the discussion board and I can click on all the other topics and they come up. I click on uterine cancer and it won't load, say's "OOPS! can't find the web page you are looking for". I've e-mailed CSN and AOL with my problem... each blames the other for the problem.
    Hope everyone is doing well. Have you been losing your hair yet Ro? Deanna, I imagine yours is gone now. Takes awhile to get used to, but then you find a way to deal with it knowing it won't be forever.Linda, hope you get through your 5th chemo with no problems on the 16th. I will be having my 3rd on the 17th.

    Beginning to lose hair
    Glad to hear from you Theresa. Hope all is going well for you. If youput your e-mail address on the site, maybe one of us could e-mail you the site Linda e-mailed us to get started on the site. This is day 12 post chemo. I combed my hair this morning and the comb was full of hair. Pieces have been coming out through the day. I showered this afternoon, but was afraid to dry it with the hair dryer, so I let it dry naturally. My head is beginning to itch, so I guess more will fall out as the week goes on. Deanna hope you are feeling better today and don't have the munchies so bad. Linda hope you are feeling a little stronger and don't have that whirring in your head. Marge hope you get your CT scan results soon, and it is good news.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    Ro10 said:

    Beginning to lose hair
    Glad to hear from you Theresa. Hope all is going well for you. If youput your e-mail address on the site, maybe one of us could e-mail you the site Linda e-mailed us to get started on the site. This is day 12 post chemo. I combed my hair this morning and the comb was full of hair. Pieces have been coming out through the day. I showered this afternoon, but was afraid to dry it with the hair dryer, so I let it dry naturally. My head is beginning to itch, so I guess more will fall out as the week goes on. Deanna hope you are feeling better today and don't have the munchies so bad. Linda hope you are feeling a little stronger and don't have that whirring in your head. Marge hope you get your CT scan results soon, and it is good news.

    ((((Ro)))) Sorry about the hair. :(
    I can see in your photo that you've always had beautiful hair, so I know this is hard. I don't care who you are, or how prepared you are mentally, losing your hair is HARD. Big hugs, Ro. The bald head is your badge of courage; try to keep it in perspective. We all shed tears over this when it happens, and some mornings when I go in to wash up and see myself in the mirror, a few tears still squeek out. Other times I just have to laugh at how funny I look. (((Ro)))
  • deanna14
    deanna14 Member Posts: 732

    ((((Ro)))) Sorry about the hair. :(
    I can see in your photo that you've always had beautiful hair, so I know this is hard. I don't care who you are, or how prepared you are mentally, losing your hair is HARD. Big hugs, Ro. The bald head is your badge of courage; try to keep it in perspective. We all shed tears over this when it happens, and some mornings when I go in to wash up and see myself in the mirror, a few tears still squeek out. Other times I just have to laugh at how funny I look. (((Ro)))

    Oh the hair!
    I so thought I was going to be prepared for it and I still cried. I have been forcing myself into social situations all weekend and the last couple of days. I think that has helped me, just hold my head up and not even acknowlege it. I'm gonna wear it like a medal, kinda like a purple heart or something. Sad to say... this has been one of the hardest things. When it first comes out, it makes it all so much more real. It makes the cancer more real and the chemo more real. However, each day that it is gone, it gets easier and it begins to feel like a symbol of the fight I'm/We are going to win!
    Just remember, you are not alone in this!
    Lots of hugs, prayers and blessings... it will be okay.
  • maylynne
    maylynne Member Posts: 8
    UPSC
    Diagnosed in March 2008. Radical hysterectomy April 2008. Chemo 3 treatments, radiation 5 weeks.
    1 brachy therapy treatment.
    Stage 3a due to a few cells in the peritoneal cytology, otherwise barely a Stage 1a.
    I will be having my first follow up in the next couple of weeks.

    I have always been extremely healthy, so this diagnosis was quite surprising.

    I had minimal side effects from chemo and the radiation. I am back to my normal energy levels. I just got back from 2 weeks in Puerto Vallarta.

    It's great to have this site as this cancer is rare and I have only been able to find a couple of people who have told their stories awhile ago.
  • pjba11
    pjba11 Member Posts: 188
    maylynne said:

    UPSC
    Diagnosed in March 2008. Radical hysterectomy April 2008. Chemo 3 treatments, radiation 5 weeks.
    1 brachy therapy treatment.
    Stage 3a due to a few cells in the peritoneal cytology, otherwise barely a Stage 1a.
    I will be having my first follow up in the next couple of weeks.

    I have always been extremely healthy, so this diagnosis was quite surprising.

    I had minimal side effects from chemo and the radiation. I am back to my normal energy levels. I just got back from 2 weeks in Puerto Vallarta.

    It's great to have this site as this cancer is rare and I have only been able to find a couple of people who have told their stories awhile ago.

    Welcome Wecome
    So very glad to meet you. So sorry to have to meet you like this though. Puerto Vallarta sounds like a piece of heaven. I am in the middle of Mn. (and so very sick of winter.) Tell us more more more!! God bless you for joining us here. Peggy
  • maylynne
    maylynne Member Posts: 8
    pjba11 said:

    Welcome Wecome
    So very glad to meet you. So sorry to have to meet you like this though. Puerto Vallarta sounds like a piece of heaven. I am in the middle of Mn. (and so very sick of winter.) Tell us more more more!! God bless you for joining us here. Peggy

    Still worried
    Thank you Peggy.
    I will write more when I can, I still find it difficult think about it. I worry about every little ache and pain. My hair has grown back, still quite short. It came out more gray than before and very curly. I have aching calf muscles at night, this is probably from the chemo. All in all I am still here and doing well I feel. When first diagnosed I did not think I would be here now, so I live each day to the fullest.

    With this supportive group I do not feel alone now, and hopefully I will be able to talk about it all.
    Maylynne
  • pjba11
    pjba11 Member Posts: 188
    maylynne said:

    Still worried
    Thank you Peggy.
    I will write more when I can, I still find it difficult think about it. I worry about every little ache and pain. My hair has grown back, still quite short. It came out more gray than before and very curly. I have aching calf muscles at night, this is probably from the chemo. All in all I am still here and doing well I feel. When first diagnosed I did not think I would be here now, so I live each day to the fullest.

    With this supportive group I do not feel alone now, and hopefully I will be able to talk about it all.
    Maylynne

    will be looking forward to hearing from you when you can
    It is a very difficult journey and as I have said in the past it is the most difficult journey of your life for your life. I was NED for many months before I would quit looking at other people with envy saying to myself why are they well and doing what ever they want to do while I am stuck with this crap.... then it dawned on me. I am done with cancer. I still have many many days when I feel a twinge or somethng new for pain and panic, but I have convinced myself that I have no more of a percentage of getting cancer than anyone else that I meet on the street. It took me awhile to feel that way... but now I do. It has helped me alot. Even if I did get cancer recurrences now I feel that I have been through it once and will now know how to make better decisions the second time. We are all here to help you get through what ever bothers you the most. Just ask!! We are all sisters now. God bless. Peggy