BC with Neo-Bladder

ekusel
ekusel Member Posts: 4
edited March 2014 in Bladder Cancer #1
I am having much trouble regulating my BM's 18 days post-op. If I take the Stool Softener that was prescribed (Surfak), it causes me to have explosive diarrhea that can last for 3 hours and wipes me out. After 3 days of this, I called my urologist and he prescribed Lomotil. I only took one dose of this and then no Surfak the next morning. That caused me to have no BM's for two days and that HURT. I tried Colace this morning and had what I thought was a good BM but wound up being bloated and hurting the rest of the day.

Any advice that could be offered on this subject would be greatly appreciated.

Comments

  • Military
    Military Member Posts: 31
    Perhaps you can help. I underwent surgery two years ago. For the first 6 months I could not control my bowl movements with extreme diarrhea. In addition, my stomach is constantly bloated and I have problems with gas. This is very discouraging and tiring. The Doctor gave me a prescription for CYANOCOBALAMIN 1000MCG-1M per month. Nothing seems to stop these episodes of diarrhea every four or five days. I can only hope that you have discussed such problems with your doctor and he has given you some suggestions. The only recommendation my Doctor has given me is to take off the shelf pills for Diarrhea.
  • santo
    santo Member Posts: 1
    had bladder removed 3 years ago & had trouble with BM until my doctor prescribed cholestyramine powder it worked wonders for me.
  • Military
    Military Member Posts: 31
    Military said:

    Perhaps you can help. I underwent surgery two years ago. For the first 6 months I could not control my bowl movements with extreme diarrhea. In addition, my stomach is constantly bloated and I have problems with gas. This is very discouraging and tiring. The Doctor gave me a prescription for CYANOCOBALAMIN 1000MCG-1M per month. Nothing seems to stop these episodes of diarrhea every four or five days. I can only hope that you have discussed such problems with your doctor and he has given you some suggestions. The only recommendation my Doctor has given me is to take off the shelf pills for Diarrhea.

    I went for the better part of 1.5 years with extreme diarrhea. My docotr suggested off the shelf pills but I am extremely disappointed. Has anyone given you a suggestion that works.
  • Military
    Military Member Posts: 31
    I had similar surgery in 2004 and have suffered from extreme diarrhea from the start. The doctor does not seem to be concerned but I am. A few month ago I started to take Dannon Activia (yogurt)to regulate my digestive system. It can be purchased at most grocery stores. Since taking it, my problem with explosive diarrhea has improved. You may want to consider trying it.
  • Fluffy2u
    Fluffy2u Member Posts: 2
    Military said:

    Perhaps you can help. I underwent surgery two years ago. For the first 6 months I could not control my bowl movements with extreme diarrhea. In addition, my stomach is constantly bloated and I have problems with gas. This is very discouraging and tiring. The Doctor gave me a prescription for CYANOCOBALAMIN 1000MCG-1M per month. Nothing seems to stop these episodes of diarrhea every four or five days. I can only hope that you have discussed such problems with your doctor and he has given you some suggestions. The only recommendation my Doctor has given me is to take off the shelf pills for Diarrhea.

    Military: I hope you are doing fine, I was just searching for someone to connect with my husband who is five weeks post op, he has the neo bladder and is having a rough time adjusting and training the new bladder, would you consider or can you provide some insight? Thanks so much!!
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