need info one the vaccine???

castle
castle Member Posts: 14
edited March 2014 in Skin Cancer #1
my husband has just had a reacurrence of melanoma their talking about a study does anyone have any info

Comments

  • RCDolmaker
    RCDolmaker Member Posts: 2
    #2
    My husband has participated in four studies. If your interested let me know. I can get you the names. My husband goes to UCLA Medical Center. He has been stage IV for 8 years and he has had 6 tumors removed and 3 brain tumors are dormant after sterostatic radiosurgery. He works everyday and has a great quality of life.

    Good Luck!! Keep fighting.
  • cindysallen
    cindysallen Member Posts: 8
    #3
    I am presently on an autogulous vaccine at Hoag Prespretarian Hospital in Newport Beach. The study is free but you have to travel out there and have your shots there. I had a reaccurance and the tumor they removed is being used as my vaccine. I have been free of that area for a year. But just recently had a tumor removed from my brain but is different because of the blood brain barrier. Good luck. Cindy
  • cindysallen
    cindysallen Member Posts: 8
    #4
    RCDolmaker said:

    My husband has participated in four studies. If your interested let me know. I can get you the names. My husband goes to UCLA Medical Center. He has been stage IV for 8 years and he has had 6 tumors removed and 3 brain tumors are dormant after sterostatic radiosurgery. He works everyday and has a great quality of life.

    Good Luck!! Keep fighting.

    I hope I am doing this right. What kind of vaccine and studies has your husband been on? I have been in stage IV for three years. I have had three tumors removed. I am really interested in the sterostatic radiosurgery. I had a brain tumor removed on the 28th of February and a Gliasite balloon put in the cavity and had a reaction which has been folowed by a plumonary embolism and an infection which now has made three operations. I am trying to decide if I should do follow-up steiostatic radisurgery or a machine call Linac. I have been looking at the center in Hoag Medical in Newport Beach. That is where I presently go for my autogulous vaccine. I would like to kekep in touch with you as it seems there are not a lot of us survivors.

    Do you eat a special diet? Or take herbs? If you have the time I would like to hear from you. my name is Cindy Allrn I a presently 50. I am staying with my mother presently in Wyoming and the email address is rosewi@trib.com. Thank you.
  • castle
    castle Member Posts: 14
    #5
    cindysallen said:

    I hope I am doing this right. What kind of vaccine and studies has your husband been on? I have been in stage IV for three years. I have had three tumors removed. I am really interested in the sterostatic radiosurgery. I had a brain tumor removed on the 28th of February and a Gliasite balloon put in the cavity and had a reaction which has been folowed by a plumonary embolism and an infection which now has made three operations. I am trying to decide if I should do follow-up steiostatic radisurgery or a machine call Linac. I have been looking at the center in Hoag Medical in Newport Beach. That is where I presently go for my autogulous vaccine. I would like to kekep in touch with you as it seems there are not a lot of us survivors.

    Do you eat a special diet? Or take herbs? If you have the time I would like to hear from you. my name is Cindy Allrn I a presently 50. I am staying with my mother presently in Wyoming and the email address is rosewi@trib.com. Thank you.

    Hi Cindy My name is Gina you replied to my message about a vaccine, my husband had melanoma 7 years ago and just had a reacurence in his left lower bowel, this was just removed on 3/7/04 and ther were no limph node involved. Now they found a found a spot on his lung the lower lobe that they are going to remove after he heels from this past surgery. We are 38 years old with 2 daughters. I am scared to death. I dont know anything about these studies. This is the frist one we have been ask to particpate in. e mail me at castlefun4@aol.com if you would like.
  • cindysallen
    cindysallen Member Posts: 8
    #6
    castle said:

    Hi Cindy My name is Gina you replied to my message about a vaccine, my husband had melanoma 7 years ago and just had a reacurence in his left lower bowel, this was just removed on 3/7/04 and ther were no limph node involved. Now they found a found a spot on his lung the lower lobe that they are going to remove after he heels from this past surgery. We are 38 years old with 2 daughters. I am scared to death. I dont know anything about these studies. This is the frist one we have been ask to particpate in. e mail me at castlefun4@aol.com if you would like.

    Let me know if you get my email. cindy
  • Bruce2768
    Bruce2768 Member Posts: 9
    #7
    RCDolmaker said:

    My husband has participated in four studies. If your interested let me know. I can get you the names. My husband goes to UCLA Medical Center. He has been stage IV for 8 years and he has had 6 tumors removed and 3 brain tumors are dormant after sterostatic radiosurgery. He works everyday and has a great quality of life.

    Good Luck!! Keep fighting.

    I hope you get this. My husband is stage 4 for 1-1/2 years, stage 3 before that and thought he was cancer free for 13 years before that when he had his 1st site removed - level 3. He has undergone bio chemotherapy with IL-2, cisplatin and Interferon - 4 rounds, then maintenance with Il-2 and GSM-FS, both hospital pulses and daily shots. Now he's had recurrences in the soft tissue.I would like to find out more about your husbands clinical trials. Best, Maureen my email is mmegowan@cox.net
  • Ralphie62
    Ralphie62 Member Posts: 61 Member
    #8
    RCDolmaker said:

    My husband has participated in four studies. If your interested let me know. I can get you the names. My husband goes to UCLA Medical Center. He has been stage IV for 8 years and he has had 6 tumors removed and 3 brain tumors are dormant after sterostatic radiosurgery. He works everyday and has a great quality of life.

    Good Luck!! Keep fighting.

    trials

    My Mom is set for surgery next wk: has 3 site on her face: i would love any info you have on clinical trials....thanks so much!! my private email is lisaspride@aol.com

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