What happens now?

BionicKitty
BionicKitty Member Posts: 15
edited March 2014 in Caregivers #1
I've been reading so many of these letters. So much sadness and lots of positive and hopeful responses. My mom has some type of brain tumor caused by cancer somewhere else.Only 4 days old, we are at the very beginning of this awful adventure.I don't know what exactly to expect next, except from what I've read, I'm beginning to understand the lingo, and the various treatments and such.
She dosn't have a whole lot of symptoms yet, except for a facial neuralgia that makes half her face numb and a bit of fullness in her head on that same side.She immediatly quit smoking , quit coffee, quit dairy and processed food.she has started her own much studied alternative dietary treatment until she finds out more. She feels tired, but blames the 1 pot of coffee a day withdrawl.She is not on any medication so far, because it's so new. She dosn't really seem ill. Everyone has so much strength here. It's like a superhuman feat. How does anyone make it? It makes one question faith,whether it's the medical society or God. I just wanted to say it's nice to have a place to go when you feel overwhelmed, yet obsessed with finding an answer ...Thanks, BK

Comments

  • Jessalyn
    Jessalyn Member Posts: 6
    Its God. There's no other explanation. Facing mortality makes one need to believe in Him. I always did, but never more intensely than when my mom was sick. You don't know how you get through...you just do. That's the secret...you just do.
  • luvmykat
    luvmykat Member Posts: 8
    We stay strong for our loved ones and yes we question alot of things. First we question our faith and ask why us,then comes the answer, why not us. I found I grabbed onto my faith more and more as my mother got sicker and sicker and then when my husband was diagnosed I really needed it. I actually started to find a comfort in a faith that I had long been apart from. We go on because we have to. We stay strong because we have to. We are here because we want to be and sometimes need to be. This is a great place to come for a shoulder to cry on and support from people who understand what we are going through. I found that friends and even some family members dont always understand how helpless we are feeling and are not always the most sympathetic and understanding people in tough times. Believe me when I say I have had my share. I am here if you need a sounding board.
    sue
  • BionicKitty
    BionicKitty Member Posts: 15
    luvmykat said:

    We stay strong for our loved ones and yes we question alot of things. First we question our faith and ask why us,then comes the answer, why not us. I found I grabbed onto my faith more and more as my mother got sicker and sicker and then when my husband was diagnosed I really needed it. I actually started to find a comfort in a faith that I had long been apart from. We go on because we have to. We stay strong because we have to. We are here because we want to be and sometimes need to be. This is a great place to come for a shoulder to cry on and support from people who understand what we are going through. I found that friends and even some family members dont always understand how helpless we are feeling and are not always the most sympathetic and understanding people in tough times. Believe me when I say I have had my share. I am here if you need a sounding board.
    sue

    Thanks... I guess I already know that in my heart... I'm glad I have a flexible schedule with my job. I am finding myself driving a WHOLE lot to doctors and work and I just want to fix it, but I can't. It's terrible when it's your mom who has always been the strong one and fixed me when I was hurting. I hate the fear, but I know we all can go way beyond what we think we can. I am glad I found this site. I wish my mom could get on the internet too.... she would have lots of good things to say to others that are in her position.She is amazing. As much as it hurts to watch, I guess it is worse on the person living within it. All we can do is love and be there.... BK