cancer treatment

EIO
EIO Member Posts: 8
edited March 2014 in Head and Neck Cancer #1
Hi
Has anyone had treatment for oral cancer and wished they had not im one of these people who had no symptoms whatsoever and felt that because of my age (62) it would not spread quickly it was also very rare mucoid epidermoid under the tongue
although i did not now it existed neck dissection found lymph glands to be clear but I was hap[pier not knopwing anything perhaps foolish i know but thats my feeling anyone out there feel the same

Comments

  • skunkman
    skunkman Member Posts: 1
    #2
    I had cancer of the lymph nodes and base of the tongue. Lost it all. And treatment was so bad it killed me during a radiation treatment. But I'm alive. I didn't have any symtoms other than I something that felt like a mild toothache sometimes. I was given 6 months even with treatment. They said it took maybe 15-20 years to get that bad. I just turned 50. I could have suffered with the "mild toothache" till I stopped breathing. I'm glad I followed through and went to the ENT. 18 months Cancer free now. No regrets. That what does not kill me makes me stronger.
  • mayfly
    mayfly Member Posts: 7
    #3
    skunkman said:

    I had cancer of the lymph nodes and base of the tongue. Lost it all. And treatment was so bad it killed me during a radiation treatment. But I'm alive. I didn't have any symtoms other than I something that felt like a mild toothache sometimes. I was given 6 months even with treatment. They said it took maybe 15-20 years to get that bad. I just turned 50. I could have suffered with the "mild toothache" till I stopped breathing. I'm glad I followed through and went to the ENT. 18 months Cancer free now. No regrets. That what does not kill me makes me stronger.

    Great attitude ..

    you bud in cancer Mayfly
  • kstevens
    kstevens Member Posts: 2
    #4
    skunkman said:

    I had cancer of the lymph nodes and base of the tongue. Lost it all. And treatment was so bad it killed me during a radiation treatment. But I'm alive. I didn't have any symtoms other than I something that felt like a mild toothache sometimes. I was given 6 months even with treatment. They said it took maybe 15-20 years to get that bad. I just turned 50. I could have suffered with the "mild toothache" till I stopped breathing. I'm glad I followed through and went to the ENT. 18 months Cancer free now. No regrets. That what does not kill me makes me stronger.

    skunkman, what kind od treatment did they give you. I just found out I have it in the base of my tounge and nodes. Sounds like you made it like a trooper.
  • garyr
    garyr Member Posts: 27
    #5
    kstevens said:

    skunkman, what kind od treatment did they give you. I just found out I have it in the base of my tounge and nodes. Sounds like you made it like a trooper.

    Hi, I had the same thing as you in Sept. of 1999. They did a left neck disection and took out a lot of nodes, only 2 had cancer. They treated the back of my tounge with 64 radiation treatments, which are pretty rough, but I feel great now, it was well worth the hassle.

    Good luck.
    GaryR
  • MWHF
    MWHF Member Posts: 10
    #6
    kstevens said:

    skunkman, what kind od treatment did they give you. I just found out I have it in the base of my tounge and nodes. Sounds like you made it like a trooper.

    My name is Michael. I was stage 4 base of tongue and it spread to my lymph nodes. Noticed it 2 years ago when I was shaving. I had chemo and radiation. No surgery. I have been cancer free for almost 2 years.
  • mosbutler
    mosbutler Member Posts: 6
    #7
    skunkman said:

    I had cancer of the lymph nodes and base of the tongue. Lost it all. And treatment was so bad it killed me during a radiation treatment. But I'm alive. I didn't have any symtoms other than I something that felt like a mild toothache sometimes. I was given 6 months even with treatment. They said it took maybe 15-20 years to get that bad. I just turned 50. I could have suffered with the "mild toothache" till I stopped breathing. I'm glad I followed through and went to the ENT. 18 months Cancer free now. No regrets. That what does not kill me makes me stronger.

    My husband was diagnosed with Stage 4 base of tongue cancer. It did to to the lymph nodes on one side. He had 6 chemos, 8 weeks radiation. He is post treatment 6 weeks tomorrow. His throat is still very sore and he cannot eat, relying on a feeding tube. He feels healthy, but is frustrated over the SLOW healing process.
    What was your experience?
    Thanks for being there.
    Maureen Butler
  • ebjjj
    ebjjj Member Posts: 2
    #8
    MWHF said:

    My name is Michael. I was stage 4 base of tongue and it spread to my lymph nodes. Noticed it 2 years ago when I was shaving. I had chemo and radiation. No surgery. I have been cancer free for almost 2 years.

    Same as my daughter--stage 4, base of tongue, aggessive chemo and 7 weeks of rad. Also spread to the lymph nodes. I am so glad that you are alive and well!!!! My daughter is just 30, and having a very difficult time with the rad---can't talk, many burns and sores, hard to swallow water. I know it will improve, but it is so hard..Thanks for the encouragement.
  • keller9555
    keller9555 Member Posts: 1
    #9
    MWHF said:

    My name is Michael. I was stage 4 base of tongue and it spread to my lymph nodes. Noticed it 2 years ago when I was shaving. I had chemo and radiation. No surgery. I have been cancer free for almost 2 years.

    MICHAEL K.
    STAGE 4 NECK CANCER LYMPH NODES. STARTED IN TONCIL
    HAD 6 CHEMO AND 30 RADIATION TREATMENT. SO FAR 7 MONTHS CANCER FREE. HAD A VERY HARD TIME DURING TREATMENTS, BUT THE WAY BACK UP WAS MUCH MORE DIFFICULT. LOSS 50LBS,DRUG DEPENDENT,DEPRESSION,COULDN'T EAT, LIKE THEY SAY YOU COULD WRITE A BOOK ABOUT WHAT YOU GO THOUGHT.
    PLEASE REPLY.

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