R-Epoch treatment

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Comments

  • pumoser
    pumoser Member Posts: 2
    edited May 2016 #22
    double hit lymphoma

    Have finished 6 rounds of Epoch R and am in remission. Does anyone have experience with remission and how long to expect?  No one mentioned a stem cell transplant for me.

     

     

     

     

     

     

     

     

     

     

     

     

     

     

  • pumoser
    pumoser Member Posts: 2
    JP_NHL said:

    Thread
    Thanks, Max.

    I can do that. My main intent was to offer advice to others on the thread, including Tony.

    Double Hit Lymphoma

    JP  What has been your experience after remission?

  • mken03
    mken03 Member Posts: 4
    R-EPOC for DLBCL

    I am currently being treated with this protocol.  As others have mentioned, my first treatment was also in the hospital.  I am on my third in home treatment which has been very convenient and much more comfortable than the hospital.  We drive daily for the five days to the center as other have also said for the battery change and refill.  Let me know if i can help with any questions ...these impact all of us differently for sure ... but there are similarities...

  • Semone12
    Semone12 Member Posts: 2
    DA-R-EPOCH for Double Hit DLBCL

    My husband just completed the first of 6 dose adjusted R-EPOCH treatments yesterday.  Each treatment will be inpatient and will last 5 days.  He is stage 2A - Bulky.

    Please share your experiences with this regimen, if & when you experienced remission and for how long.  Really appreciate your guidance.  

    Thank you and best wishes of good health,

    Semone

  • Conway0625
    Conway0625 Member Posts: 3
    Semone12 said:

    DA-R-EPOCH for Double Hit DLBCL

    My husband just completed the first of 6 dose adjusted R-EPOCH treatments yesterday.  Each treatment will be inpatient and will last 5 days.  He is stage 2A - Bulky.

    Please share your experiences with this regimen, if & when you experienced remission and for how long.  Really appreciate your guidance.  

    Thank you and best wishes of good health,

    Semone

    Best of Luck

    Hi Semone- all the best to your husband and yourself. I had a similar diagnosis and underwent 6 rounds of R-EPOCH from mid-May to early September last year. It was definitely a journey but we got through it. Last week I received the results from my last scan and I'm apparently clear. Very relieved. The treatment was as advertised- challenging but manageable. It will wear you down over time but he will bounce back  

    Like I said, it is a journey but you will both get through it. Please let me know if you have any specific questions. Best of luck again. 

  • KimDee
    KimDee Member Posts: 7
    Last round of DA-EPOCH R is underway 6 of 6

    I'm a bit worried though.  For rounds 4 and 5, my WBC counts got really low and I developed a fever, and that combo wins you a hospital bed. Was a 5 day stay for round 4 and a 4 day stay for round 5.  Of course I'd very much like to stay out of the hospital this time, any ideas on how I can help myself?

    A factor I'm going to talk to my doctor about tomorrow, is that my bloodcounts were at the bottom edge of normal on Monday, even before they started my 5 days of chemo.  I feel doomed, and will I end up in the hospital again much sooner and for possibly longer this time?  Is there anything I can do for myself?  I teased my doc on Monday that I would do garlic supplements and Gingseng supplements as those were what I could remember boosting your immune system.  He said sure, they're harmless.  Wishful thinking is something else I added to my list.  How can I avoid a fever, a maybe there, maybe not there infection? It's no fun being in the hospital.  But maybe I'll just have to roll with it, even if I don't want to. Cancer sucks as we all know.  Wahhhhh....

  • Conway0625
    Conway0625 Member Posts: 3
    Semone12 said:

    DA-R-EPOCH for Double Hit DLBCL

    My husband just completed the first of 6 dose adjusted R-EPOCH treatments yesterday.  Each treatment will be inpatient and will last 5 days.  He is stage 2A - Bulky.

    Please share your experiences with this regimen, if & when you experienced remission and for how long.  Really appreciate your guidance.  

    Thank you and best wishes of good health,

    Semone

    How are things going?

    Hope all is well!

  • Conway0625
    Conway0625 Member Posts: 3
    KimDee said:

    Last round of DA-EPOCH R is underway 6 of 6

    I'm a bit worried though.  For rounds 4 and 5, my WBC counts got really low and I developed a fever, and that combo wins you a hospital bed. Was a 5 day stay for round 4 and a 4 day stay for round 5.  Of course I'd very much like to stay out of the hospital this time, any ideas on how I can help myself?

    A factor I'm going to talk to my doctor about tomorrow, is that my bloodcounts were at the bottom edge of normal on Monday, even before they started my 5 days of chemo.  I feel doomed, and will I end up in the hospital again much sooner and for possibly longer this time?  Is there anything I can do for myself?  I teased my doc on Monday that I would do garlic supplements and Gingseng supplements as those were what I could remember boosting your immune system.  He said sure, they're harmless.  Wishful thinking is something else I added to my list.  How can I avoid a fever, a maybe there, maybe not there infection? It's no fun being in the hospital.  But maybe I'll just have to roll with it, even if I don't want to. Cancer sucks as we all know.  Wahhhhh....

    Fever

    Sorry Kim- just saw this and hope past two weeks were fever free. 

    Same thing happened to me last year after my 5th cycle.  Blood counts crashed + fever = 3 bonus days in the hospital! Ironic thing was that I felt way better that week than my first week out after my 4th round. Plus my blood work from a few days earlier wasn't that bad. Unfortunately I don't think there is much you can do to avoid a fever. You just have to rest and listen to your body. And please, if you get a fever past your threshold call your doctor right away. Don't wait to see if it gets better"

    Seriously, a little wishful thinking doesn't hurt either! If you get a chance check back in and let us know how it's going. All the best!

  • Srt_10
    Srt_10 Member Posts: 1
    edited August 2017 #30

    Best of Luck

    Hi Semone- all the best to your husband and yourself. I had a similar diagnosis and underwent 6 rounds of R-EPOCH from mid-May to early September last year. It was definitely a journey but we got through it. Last week I received the results from my last scan and I'm apparently clear. Very relieved. The treatment was as advertised- challenging but manageable. It will wear you down over time but he will bounce back  

    Like I said, it is a journey but you will both get through it. Please let me know if you have any specific questions. Best of luck again. 

    Need some motivation

    I am diagnosed with PMBCL, stage 2A and have completed 6 cycles of R- ECHOP last week. Post 4th cycle PET scan shows significantly improved results with earlier bulky mass reduced to only 1cm. However i have been adviced Radiation therapy also. During the chemo, i have become very weak. How long generally it takes to come back to 100% energy?