Things moving quicker than originally planned

luv4lacrosse
luv4lacrosse Member Posts: 1,410 Member
in Head and Neck Cancer #1

Good morning all. I received a call Friday from my Onco Nurse, she said he and pulmonary doc discussed my CT and the issue with my pleural efflusion not improving since the 8 weeks I habe been off Taxotere. Their consensus is I have a Para Mallignant Efflusion, since none of my lung fluid has ever showed the presence of cancer cells. They say 50% of the time the lab cannot find cells. I'm am now going to start Cisplatin this coming Friday, and every Friday going forward. the expectation if the Cisplatin works the the fluid should fix itself.

Wish me luck

Mike

Comments

  • hwt
    hwt Member Posts: 2,328 Member
    #2
    Good luck Mike!

    Have you had cisplatin before? Hopefully, getting it in weekly doses won't be too hard on you. I know once they dropped my dose to weekly, it was allot easier for me to handle. Smaller doses more often. I had mine in combo with the rads2012  so hard to say what was tough on me, the rads or chemo. Getting it solo should be easier. I know my recent taxol/erbitux was so much easier stand alone than with rads. 

    Prayers are with you!

    Candi

  • hwt
    hwt Member Posts: 2,328 Member
    #3
    Good luck Mike!

    Have you had cisplatin before? Hopefully, getting it in weekly doses won't be too hard on you. I know once they dropped my dose to weekly, it was allot easier for me to handle. Smaller doses more often. I had mine in combo with the rads2012  so hard to say what was tough on me, the rads or chemo. Getting it solo should be easier. I know my recent taxol/erbitux was so much easier stand alone than with rads. 

    Prayers are with you!

    Candi

  • Greg53
    Greg53 Member Posts: 849
    #4
    hwt said:

    Good luck Mike!

    Have you had cisplatin before? Hopefully, getting it in weekly doses won't be too hard on you. I know once they dropped my dose to weekly, it was allot easier for me to handle. Smaller doses more often. I had mine in combo with the rads2012  so hard to say what was tough on me, the rads or chemo. Getting it solo should be easier. I know my recent taxol/erbitux was so much easier stand alone than with rads. 

    Prayers are with you!

    Candi

    Bro'

    Mike,

    A little cisplatin ain't nothin' for a tough North County Boy!  Kick some butt Dude!!

    Greg

    ps- Go Blues

  • osmotar
    osmotar Member Posts: 1,006
    #5
    Luck and More

    Mojo, blessings, and good light coming your way in this next step of your journey. 

    Linda

  • donfoo
    donfoo Member Posts: 1,771 Member
    #6
    wishin you luck

    As always, thanks for the updates and your courageous attitude in your fight with the beast. Sorry to hear the source did not point elsewhere. But chemo is hardly a stranger to you so you know the drill. Best wishes and thought for you. Don

  • KTeacher
    KTeacher Member Posts: 1,103
    #7
    Port

    Do you have a port?  I lost my poor veins to cisplatin.  Stay hydrated.  I had something added in and slept like a baby at the center.  I hope that this does the trick for you.

  • Guzzle
    Guzzle Member Posts: 710
    #8
    KTeacher said:

    Port

    Do you have a port?  I lost my poor veins to cisplatin.  Stay hydrated.  I had something added in and slept like a baby at the center.  I hope that this does the trick for you.

    YNWA

    Mike the mantra if Liverpool is YOU'LL NEVER WALK ALONE. Google the words of the song brother. Pretty much says it all. G.

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #9
    mike, saying many prayers

    mike, saying many prayers that things only get better from this point forward.  i'm also sending good mojo and positive vibes your way.  you can do this.

    God bless you always,

    dj

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #10
    hwt said:

    Good luck Mike!

    Have you had cisplatin before? Hopefully, getting it in weekly doses won't be too hard on you. I know once they dropped my dose to weekly, it was allot easier for me to handle. Smaller doses more often. I had mine in combo with the rads2012  so hard to say what was tough on me, the rads or chemo. Getting it solo should be easier. I know my recent taxol/erbitux was so much easier stand alone than with rads. 

    Prayers are with you!

    Candi

    Cisplatin Before

    Hi Candi, yes I had Cisplatin my first time around. One whopping dose every 3 weeks while getting both sides of my neck radiated. It was horrible then, but I had worse side effects from the rads. It was the only drug that my cancer did not re appear, so I feel like it will work again. My doc also says the smaller weekly dose should minimize the side effects.

    Mike

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #11
    KTeacher said:

    Port

    Do you have a port?  I lost my poor veins to cisplatin.  Stay hydrated.  I had something added in and slept like a baby at the center.  I hope that this does the trick for you.

    Port

    Yes, I had a power port put in 2 yrs ago. I've been lucky with my veins as the working out keeps them huge. I actually get all of my blood drawn and IV contrast through my AC vein in my arm. It's just so much quicker vs the lab trying to find an RN and do the port.

  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #12
    Greg53 said:

    Bro'

    Mike,

    A little cisplatin ain't nothin' for a tough North County Boy!  Kick some butt Dude!!

    Greg

    ps- Go Blues

    NOCO TOUGHNESS

    Yes sir, brought a lot of North County hood toughness to Tx. I'm getting a little worried about the Blues, but Coach Hitchcock expects most if not all of the injured players will be game ready Thursday.

    Miss you brother.

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #13
    Mojo sent your way

     

    Mike,

    Let’s hope, like you said the Cisplatin works and the fluid will fix itself.

    Wishing you lots of luck,

    Matt

  • KB56
    KB56 Member Posts: 318 Member
    #14
    Things moving

    mike, I didn't have Cisplatin but it doesn't sound like you're a stranger to it or what to expect.   Good luck as you get started and get it behind you.  

     

    All the best, 

    keith

  • Hondo
    Hondo Member Posts: 6,636 Member
    #15
    Hi Mike

    Here pulling for you that the cisplatin will do the trick, keep your positive way of looking at things and you will do very well. As always keeping you in prayers my friend

     

    Tim Hondo

  • jim and i
    jim and i Member Posts: 1,788 Member
    #16
    You are amazing

    You keep on truckin no matter how much they throw at you. Praying for mild side effects and success.

    Debbie

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #17
    Prayers...

    Prayers your way...

    Can't really speak of side effects of either, though I had both Taxotere and Cisplatin simultaneously...

    I know with the Cisplatin especially, they start flushing your kidneys with lasix and such right away... You'll be the Pee King more than likely like I was.

    So sit close to the head, and drag your pump with you if you have one...

    It's like the first pee after drinking for awhile... Your good until the first pee, then every few minutes you gotta go...

    Hang in there bro..., beat this thing.

    John

  • patricke
    patricke Member Posts: 570
    #18
    LOTS OF LUCK WISHES

    Hey Mike, I'm sorry to hear that you're having to go through this treatment, but I'm wishing and hoping that it does the trick quickly and effectively.

    PATRICK

     

  • arndog64
    arndog64 Member Posts: 537
    #19
    patricke said:

    LOTS OF LUCK WISHES

    Hey Mike, I'm sorry to hear that you're having to go through this treatment, but I'm wishing and hoping that it does the trick quickly and effectively.

    PATRICK

     

    Good Luck Man!!!

    Sorry to hear you have to go on weekly treatments. I am praying it does the job and cleans all the bad cell out. Stay strong!!!

     

  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #20
    nothing

    cisplatin is nothing a tough guy like you can't handle. keep that fight going, so proud of you. 

     

    john 

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