Status Check Call

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  • Phil64
    Phil64 Member Posts: 838 Member

    Not your average status

    Ron

    dx stage 4 apr 2011

    Have been in hospice for past two weeks and it's been the best 2 weeks of pain relief ever. 

    Hope to spend the remainder of my life pain free, treatment free, eating good food and visiting with family and friends

    peace be with you all

    Ron

    Peace be with you too Ron.

    Peace be with you too Ron.

  • Helen321
    Helen321 Member Posts: 1,459 Member
    Name:  Helen321, Stage

    Name:  Helen321, Stage III

    Current Status:  A big NED!  Officially one year out of surgery with ostomy. 

    Current Hopes:  A vacation to the bahamas would be nice and staying NED!  I just like saying that . . .NED!  I know why Danker says it now, it sounds nice to say.

     

     

  • Sandi1
    Sandi1 Member Posts: 277
    Status

    Name:  Sandi1

    Current Status:  Caregiver to my husband (Mike) diagnosed 8/08 Stage IV Colon Cancer, surgery 10/08, chemo since 11/08.  Has had all chemos for Colon Cancer, and has become toxic to all.  Found a small tumor on his spine 2/14 and has had radiation which has worked.  Now he has pain on his left side ribs and health insurance refuses to pay for a PET scan to find out what it is.  We are off to Philly next week to see if we can find a clinical trial.

    Current Hopes:  To just have a few more years with my husband without thinking is this the last time i will ever do this with him.  Trying to keep our hopes up, i know the future looks bleak for him.

    Sandi

     

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Sandi1 said:

    Status

    Name:  Sandi1

    Current Status:  Caregiver to my husband (Mike) diagnosed 8/08 Stage IV Colon Cancer, surgery 10/08, chemo since 11/08.  Has had all chemos for Colon Cancer, and has become toxic to all.  Found a small tumor on his spine 2/14 and has had radiation which has worked.  Now he has pain on his left side ribs and health insurance refuses to pay for a PET scan to find out what it is.  We are off to Philly next week to see if we can find a clinical trial.

    Current Hopes:  To just have a few more years with my husband without thinking is this the last time i will ever do this with him.  Trying to keep our hopes up, i know the future looks bleak for him.

    Sandi

     

    I'm so sorry to read this news, Sandi.

    I hope you and Mike can have many more years together.  I do know that bone mets are usually not lethal, and can be managed for a long time with radiation.  Keep us posted about your search for a trial, I'm sure many hear will want to know how that goes.

    Hugs and strength to you both~AA

  • mdm2
    mdm2 Member Posts: 17
    Mdm2
    diagnosed stage 4 small

    Mdm2

    diagnosed stage 4 small bowel adenocarcinoma after emergency hemicolectomy with mets to peritoneum and node involvement dec.2013

    current status on capox treatment one more round to go then get scanned and checked for eligibility for HIPEC

    current hopes-beat cancer and watch my children grow up. 

  • traci43
    traci43 Member Posts: 773 Member
    Traci43

    Name  Traci43

    Stage colon cancer IV 6/2007, chronic myelogenous leukemia 2/13

     

    Current Status waiting for word on surgery to remove cancer in my rectum and a lymph node close by.  CEA - 25.  Stoped XELIRI 2/14.  Good news is that my surgeon says surgery will help me and that I appear to be one of those folks that can treat cancer like a chronic disease.  It responds well to chemo and surgery. Oh and I should continue to get mammograms ;-)

     

    Current Hopes - That this surgery can give me a much needed break from treatment so I can get on with life!  I'm way too busy to fit cancer therapy into my schedule.  Long-term hope - that my cancer continues to be slow growing so that I can hang around long enough to use some of those promising therapies.

  • Sephyrob
    Sephyrob Member Posts: 6 Member

    Chip
    Stage IV
    going in for

    Chip

    Stage IV

    going in for scan on Monday. Dx 2006 with liver and lung mets. Colon surgery, 4 thoacic surgeries, liver surgery and chemo and I am still on the right side of the green. Kinda suffering severe scanxiety

    Thanks for inspiring us.

    How long have yu been on chemo for? 

     

    My husband dx stage 4 colon Nov 2013.  He's 46. 

    rare tumor found in colon with regular colon cancer mets to liver. Rare tumor removed

    chemo 5fu and irinotecan since feb 2014.   

    Fels good, no pain just low energy.  

    April 9 th PET scan.

    I keep telling him that there are stage 4 survivors. He just has to believe!!!!!

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    **** and Kathleen

    Hi,

    Kathleen, caregiver to wonderful husband ****.  **** has had 3 surgeries and over 100 chemo treatments in the past 5 years, 3 months.  He has actually been in good health up until about 2 months ago.  Right now pain management is key.  Tomorrow he will have a biopsy to be sent to biotech firm in San Francisco.  Then, start on Zaltrap and hopefully beat back the cancer that has been growing in the lungs and lymph nodes.  Also, **** is battling lymphedema (swelling) in the legs and pelvic area.  It takes up many hours a day mangaing the lymphedema and has cut down his physical activity, which is hard.

    We hope the Zaltrap will beat things back.  We continue to treasure all our time together as a family.

    Aloha,

    Kathleen

  • DD3
    DD3 Member Posts: 136 Member

    **** and Kathleen

    Hi,

    Kathleen, caregiver to wonderful husband ****.  **** has had 3 surgeries and over 100 chemo treatments in the past 5 years, 3 months.  He has actually been in good health up until about 2 months ago.  Right now pain management is key.  Tomorrow he will have a biopsy to be sent to biotech firm in San Francisco.  Then, start on Zaltrap and hopefully beat back the cancer that has been growing in the lungs and lymph nodes.  Also, **** is battling lymphedema (swelling) in the legs and pelvic area.  It takes up many hours a day mangaing the lymphedema and has cut down his physical activity, which is hard.

    We hope the Zaltrap will beat things back.  We continue to treasure all our time together as a family.

    Aloha,

    Kathleen

    Randy and Kathy

    Cargiver here.  Wife was diagnosed with Stage IIIA Dec 2013.

    - Ct Scan last Monday ---- > All clear

    - CEA ---- >1.0

    - Colonoscopy to be done on April 15th.

    What a journey this has been.  Thoughts and prayers for all on here.

     

     

  • ron50
    ron50 Member Posts: 1,723 Member
    ron50 said:

    still rolling

      Ron,dxed at age48 in jan1998. Aggresive stage3c into six nodes. Surgery and 48 sessions of 5fu and levamisole. No signs of cancer .since then but increasing problems with auto-immune disease of an unknown nature. Severe psoriatic arthritis ,type two diabetes and nephrotic syndrome of the kidneys as well as 10.000 plus premature ectopic heat beats a day.Currently on powerful immuno-suppressants. Methotrexate and now cyclosporin.  Hope ? I'm a realist. :)   Ron.

    another birthday

    Just turned 64. Ron.

  • Jeremy2323
    Jeremy2323 Member Posts: 13
    DD3 said:

    Randy and Kathy

    Cargiver here.  Wife was diagnosed with Stage IIIA Dec 2013.

    - Ct Scan last Monday ---- > All clear

    - CEA ---- >1.0

    - Colonoscopy to be done on April 15th.

    What a journey this has been.  Thoughts and prayers for all on here.

     

     

    Jeremy, 39, stage III rectal

    Jeremy, 39, stage III rectal cancer

    Diagnosed March 3,2014

    Chemo and radaition now. Surgery to follow.

     

    Wow, how my life has changed in a blink of an eye. Hope treatment takes care of it and im cancer free.

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    ron50 said:

    another birthday

    Just turned 64. Ron.

    Happy birthday, Ron!!!!

    Keep up a good fight. You are an inspiration.

    Lin

  • SilentRenegade
    SilentRenegade Member Posts: 123
    Hello

    Name: Megan

    Stage: Father has Stage IV - two primary tumors - 7cm in colon, smaller one in rectum, one 7mm node on liver, two 5mm nodes on lungs (one on each - never confirmed to be mets as new PET shows scar tissue more likely) 

    Current Status: No more mets found (lungs are scar tissue, liver met completely disappeared). 5cm tumor left in colon, no mention from doc about rectal tumor (presumably gone -  we will find out more when he talks to the surgeon). Possible inflamation due to chemo around tumor, so possibly smaller than 5cm. Finished 12 rounds of Chemo three weeks ago and is doing well with the exception of neuropathy. Eating well and much more active. Surgery is the next step and the oncologist belives they can eradicate the cancer with surgery since there is only "a little bit left." 

    Current Hopes: Surgery goes well. He is excited to get it cut out. He's in no pain at this point, so I hope that continues. I hope he takes after his mother and is cancer free for the rest of his life as she was after her surgery (she lived about 10 years after very aggressive uterine/ovarian cancer and ended up with Alzheimers - but the cancer never came back). His hopes are that they cut it out and get this over with so he can go back to normal again. 

  • aggie0053
    aggie0053 Member Posts: 110
    had colon resection 2010 2b

    had colon resection 2010 2b no chemo thought i got rid of it, now node cancer think it's still colon start chemo next week my names aggie {john} hope they get it this time

  • sdp
    sdp Member Posts: 181
    Phil64 said:

    Phil64

    Phil64, Stage IV.

    Status: Had a second liver resection done on 2/7.  I'm back to work and waiting for a 3/20 appointment with my onc. My last CEA (on 2/27) was 1.0

    Hopes: I hope to continue healing from surgery and hope my CEA remains low and NO MORE RECURRANCES.  If I have to do chemo, I hope it WORKS and I can stay NED for a long time.

     

    Second liver resection

    Hi 

    I am scheduled for a second liver resection due to a recurrrence - single met approx 2.5 cm in MRI and 1.6 cm in ct-pet.

    my first liver resection was billboard with extensive mets - that was done aug  2012.

    that was extensive and i was in hospital for 15 days and thereafter further 39 days before I could catch a flight back.

    will it be easier the second time around ? Doc says the second time around the recovery will be 7 to 10 days in hospital and another 7 days post hospital before I can take a flight ! 

    how was your second resection recovery in comparison to the first surgery recovery ? 

  • Hooley
    Hooley Member Posts: 156
    had 3 lung mets removed 2 wks
    had 3 lung mets removed 2 wks ago

    New

    Surgery went well. Dr had to take upper and middle lobe of right lung and wedge bottom tumor.   Feeling pretty good.  Only prob was drain was,taken out too early and lung hadn't sealed yet so,had large collapse.  Bugger!   Had new drain reinserted along with suction three days ago.  will have X-ray tomorrow to check status? Praying lung has expanded fully into,space and that has sealed. Frustrated but so grateful to God 

  • Patteee
    Patteee Member Posts: 945
    status

    patty in Minnesota

    dx'd 6/08 with stage 3B  CC

    coming on 6 years free and clear of this beast

    hope that my 60's are way better than my 50's have been

  • Easyflip
    Easyflip Member Posts: 588 Member
    Today NED
    Diagnosed March 2013 Stage 3a colon
    Colectomy and 6 months chemo
    Last pet scan negative however spots on liver which docs not worried about for some reason
    Pet every 6 months, 1 year colonoscopy
    Working part time and appreciative of every day : )
  • Easyflip
    Easyflip Member Posts: 588 Member

    Status from Idaho

    Carol, caregiver to husband Jim, who was diagnosed with Stage 3 colorectal cancer on August 30, 2013. Partially resected tumor, just finished eight rounds of 5/FU chemo. CT scan on Wednesday morning, March 5, of Jim's chest, abdomen, and pelvis to see if the chemo slowed things down. This is palliative care only -- the cancer was present in all eleven of the lymph nodes that the surgeon removed.

    My goal is to enjoy all the time we have left together, and to not have my sweetheart be in any more pain. We've grown very close over the last six months of trying to get Jim recovered from his surgery. He still has an open abdominal wound after all these months, because the chemo, of course, pretty much stopped his ability to heal. CRUMB! We've only had ten years together, but he was well worth the wait. We married in our fifties.

    You guys are going to be a great help to me as my husband gets sicker. He's not much of a talker, so I have to get support from other people.

    Be strong carol
    This hits home because I'm stage 3 diagnosed march of 2013. I've been married 30 years. You know what? We found our soulmates and even 10 minutes with them is more than many people can say. I'm puttingngood thoughts out to the universe for both of you.