PET scan results show lung mets

Glad you are here

with this group, but hate to have you need to join in.

It is so disgusting that something no bigger than an uncooked bean could cause so much fear or damage. (I hate to say Kidney bean...but I did.)

Fox is the one to share his experiences with IL2.  And I have a friend who had 3 separate sessions with the drug.  One week in ICU, then 3 out; and back again.  After the third round, the Dr halted the treatment because her heart couldn't handle the drugs.  Since that time in 2009, the nodules have remained stable (not growing) and she is OK.  But IL2 does mess up your calcium and potassium balance and have a number of other side effects.

So learn all you can about your line of treatment, pull up you big-guy boxers, put on your game face and give it hell.  We are partial to survivors and want to include you in this select group of crazies.

Good luck and keep us posted along your journey.

And seeing by the time between when I hit send and got a chance to edit, you are an east coaster.  There are many EST people on this board.  Hope they respond to you.

Donna

was your tumor staged? Your

was your tumor staged? Your nephrectomy was one week before my husband's; he had scans in late November and is scheduled for round 2 In late February.

i agree with others; Fox is the voice of experience with your recommended treatment.

Smart Patients has discussions on better results when this is combined with other drugs.

good luck to you,

Sarah

Sorry

I would guess 10mm would equal 1cm still small,i will be praying you get good results from your IL-2 treatment and i am sorry your PET scan results came back the way they did.

Darron said:

Even a Hokie

Even a VT Hokie can cheer on an IL-2 Dr. At UVa !

Go get 'em. If you don't qualify or get cold feet on the IL-2, it is my understanding that my Dr's office will be opening up to patients for the Nivolumab trial arm here in Charlotte. Take a peek at my bio, Nivo took care of my lung mets in 12 weeks (if I recall correctly)

Beat of luck to you.

Il-2

I'm not only the Hair Club for Men president, I'm also a client.....oops, wrong commercial. Many others have been on the Il-2. I guess I'm just the most recent. I honestly think that I didn't prove to be as tough as everyone thinks I am. I was like the cheap drunk who can't handle his booze. It didn't take much for me to hit the wall. Mentally it took me to the end of my coping abilities. But physiologically, my body just couldn't tolerate it. Others have managed to recieve much more of the drug than I could. It doesn't reflect ones response to the treatment. I've been told that if Il-2 is to work for someone, only a few doses may be enough. So, I've done well.

My suggestion is to keep in mind that you can live through anything regardless of how hard it is. Getting through the treatments is the short term goal. The long term goal of a cure is well worth the difficulty. I would go for another round of it in a heartbeat. Worth mentioning is the belief that the Il-2 treatments seem to help other drugs be more effective once the Il-2 is in your system. Also worth mentioning is that except for the Il-2 and a couple of doses of zometa for my bones, I have not recieved any other drugs since June or maybe May of 2013. And I am stable. Scans have been reduced to every 3 months. It could change any day. If or when it does, well, that's another story. My doc expects good things to continue happening. She doesn't have a back up plan at this point. So I say ,"Go for it."

I had tried to keep a running post of my treatments beginning in June 2013 on this forum. You can read back and watch my physical and mental health do a nose dive. But now I am feeling as good as I have in at least a couple years. Worth it? Hell yeah!