petscan result and bloods from yesterday

pete43lost_at_sea
pete43lost_at_sea Member Posts: 3,900 Member

clear peritoneum, liver and pelvis, only active disease lungs two small stable spots, see blog.

one year since removab worked so well for me.

still ketogenic and qigong and supplements.

I am overjoyed and grateful, back to Germany for more treatments focusing lung spots, feeling very well.

 

pm me if you are interested German treatments

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Comments

  • lp1964
    lp1964 Member Posts: 1,239 Member
    That's awesome Pete,

    ithioseThisose had my rectal surgery last Tuesday and feeling good too. 

    What the plan for those lung spots?

    Laz

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    That's awesome Pete

    That's awesome Pete

  • That's awesome Pete

    That's awesome Pete

    Awesome

    Awesome news.. Keep the good news coming Pete. I love these... Best of Luck

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Cea now 3.5 base 2.6

    thanks for the kindness, the baseline Cea reflects small residual lung disease, 

    doing a 9 day qigong course, blowing away lung mets using qigong the next therapy starting 24 hours almost, time will tell.

    restarting raw liver smoothies to boost iron, red cells, known side effect metformin.

    when to go back Germany and what to do on the drawing board.

    open to conventional therapies to target lung mets.

    I have been home Sydney 2 months away from alt treatments besides dca, gcmaf artemisonin, supplements.

    so far the cancer is retreating and my quality of life great except another infected chemo port and burst ear drum.

     

    I am very very grateful for each day and I have found my way through this challenge so far

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Wonderful

    That is good news.  Thank you for the update.

    Kim

  • tachilders
    tachilders Member Posts: 313
    Great news pete. Sounds like

    Great news pete. Sounds like you have found both effective treatments and peace with using both conventional and non-standard treatments. Wishing you only the best. Any word from Peter menses?  Haven't spoken to him in awhile and thought you might have been in contact more recently. Unfortunately, ren doesn't seem to be having your level of success, nor did I. I'm doing ok and staying stable so far on folfiri plus avastin, but the fatigue from irinotecan has been constant and severe. The septic infection took me down and the irinotecan is keeping me there. I've been on leave since September 5 but am supposed to return to work November 4, we will see if that happens. My boss is really great so maybe I can work from home for awhile as an option. Take care and best of luck to you with the future treatments. 

    tedd

  • danker
    danker Member Posts: 1,276 Member

    Cea now 3.5 base 2.6

    thanks for the kindness, the baseline Cea reflects small residual lung disease, 

    doing a 9 day qigong course, blowing away lung mets using qigong the next therapy starting 24 hours almost, time will tell.

    restarting raw liver smoothies to boost iron, red cells, known side effect metformin.

    when to go back Germany and what to do on the drawing board.

    open to conventional therapies to target lung mets.

    I have been home Sydney 2 months away from alt treatments besides dca, gcmaf artemisonin, supplements.

    so far the cancer is retreating and my quality of life great except another infected chemo port and burst ear drum.

     

    I am very very grateful for each day and I have found my way through this challenge so far

    pete

    Have read with interest your persual of NED  without standard treatment.  Glad you have been so successful and hope you continue to beat it all  Good Luck !!

  • danker
    danker Member Posts: 1,276 Member

    Cea now 3.5 base 2.6

    thanks for the kindness, the baseline Cea reflects small residual lung disease, 

    doing a 9 day qigong course, blowing away lung mets using qigong the next therapy starting 24 hours almost, time will tell.

    restarting raw liver smoothies to boost iron, red cells, known side effect metformin.

    when to go back Germany and what to do on the drawing board.

    open to conventional therapies to target lung mets.

    I have been home Sydney 2 months away from alt treatments besides dca, gcmaf artemisonin, supplements.

    so far the cancer is retreating and my quality of life great except another infected chemo port and burst ear drum.

     

    I am very very grateful for each day and I have found my way through this challenge so far

    pete

    Have read with interest your persual of NED  without standard treatment.  Glad you have been so successful and hope you continue to beat it all  Good Luck !!

  • Fucc
    Fucc Member Posts: 92 Member
    Hi Pete,
     
    I am glad to hear

    Hi Pete,

     

    I am glad to hear you are feeling well. What is the plan for your lung spots? I am currently trying to decide what to do about mine. Have you had lung issues before?

    Carm

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member

    Great news pete. Sounds like

    Great news pete. Sounds like you have found both effective treatments and peace with using both conventional and non-standard treatments. Wishing you only the best. Any word from Peter menses?  Haven't spoken to him in awhile and thought you might have been in contact more recently. Unfortunately, ren doesn't seem to be having your level of success, nor did I. I'm doing ok and staying stable so far on folfiri plus avastin, but the fatigue from irinotecan has been constant and severe. The septic infection took me down and the irinotecan is keeping me there. I've been on leave since September 5 but am supposed to return to work November 4, we will see if that happens. My boss is really great so maybe I can work from home for awhile as an option. Take care and best of luck to you with the future treatments. 

    tedd

    what a coinidence

    i got a nasty blood infection, then bust an ear drum also, its a small world, it also took me a month to get over a weeks iv antibiotics the nasty stuff.

    i am super sensity low dose xeloda whic wiped my immune system and then i also got infections.

    peter menzies and i had lunch yesterday, before i head to germany, he is pretty well, only got lung mets, vogel and removab helped him a little, he is on folfiri avastin and in good spirits. he is interested in my lung met ideas, we have similar disease profiles now.

    glad your boss is kind, if you get a chance do your high resolution hla subtypes a and b, i got my results today and they predict my success retrospectively and they give me hope going forward on this last little exercise. about 2/3 cancer patients are respoders i think, this is using doc nesslehut p2x7 priming agents.

    i will test out nesslehut on remaining lung mets, before getting seriously adventuruos with prof rolle lazer stuff. maybe vogel can do the lungs. a few options.

    best of luck to you with you treatments, it was nice meeting you and of course ren at hallwang. i wish you guys were not so advanced, alas.

    pete

     

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Fucc said:

    Hi Pete,
     
    I am glad to hear

    Hi Pete,

     

    I am glad to hear you are feeling well. What is the plan for your lung spots? I am currently trying to decide what to do about mine. Have you had lung issues before?

    Carm

    plan re spots

    live joyfully and see if another lung targetted vaccine with leukine might help, stay on ketogenic diet and supplements and then explore therapy reponse

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    danker said:

    pete

    Have read with interest your persual of NED  without standard treatment.  Glad you have been so successful and hope you continue to beat it all  Good Luck !!

    not ned yet but close

    the few spots mean i miss the ned prize, better the devil we know!

  • karguy
    karguy Member Posts: 1,020 Member
    That's great

    That's great news,I hope everything contiues to go well.Good luck.

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    Congratulations, Pete...

    hope the lung spots are soon gone as well.

    AA

  • Coloncancerblows
    Coloncancerblows Member Posts: 296 Member
    Great news!

    Great news!

  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Thanks!

    Pete,

    You are awesome for checking in with your very good news!   So fabulous!   Keep going my friend!

     

    Aloha,

    Kathleen

  • Nana b
    Nana b Member Posts: 3,030 Member

    Thanks!

    Pete,

    You are awesome for checking in with your very good news!   So fabulous!   Keep going my friend!

     

    Aloha,

    Kathleen

    Guten Tag

    Keep on moving forward! 

     

    Aufweidensein 

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    Nana b said:

    Guten Tag

    Keep on moving forward! 

     

    Aufweidensein 

    cea spiked to 23 from 6.2, migjt be start round 4 or a knockout

    not sure what or why, but fighting on, see blog if your interested.

  • tanstaafl
    tanstaafl Member Posts: 1,313 Member

    cea spiked to 23 from 6.2, migjt be start round 4 or a knockout

    not sure what or why, but fighting on, see blog if your interested.

    ?

    which labs for which cea numbers?  Also if you could show your ESR and/or hsCRP values with the CEA/CA199, that might make it easier to add some windage or range width for inflammation changes.

  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    tanstaafl said:

    ?

    which labs for which cea numbers?  Also if you could show your ESR and/or hsCRP values with the CEA/CA199, that might make it easier to add some windage or range width for inflammation changes.

    just got cea number and the lab

    seeing alternative doctor first thing tomorrow for vit c and strategy, all the other numbers may help indicate die off or recurrence, either way the next german vaccine is booked for around 16th november, so its about 10 weeks since the last vaccine, i will likely do a tace before and after vaccine with some hallwang infusions for the day, i will try and get doctor herr my german pett guru to review the ct and the pet. plenty to do in a month and to get back for xmas.

    erring on the aggressive side for these potential recurrences, again this might be a response to heavy duty artemisinin, or even a vaccine effect. lst vaccine only about 10 weeks ago. I am really praying this is a synergy between the dendritic cell vaccine and the artemisinin

    my new slogan

    "live peacefully, treat aggressively"

    if this is a recurrence its interesting that I have had latest high res ct reviewed at the big radiologists review meeting only monday 8am, i took the dvd to the meeting myself

    these same images were reviewed by my personal radiologist a few days earlier with nothing found, likewise similar results from the pet only a week before,

    so the clarity and the effectiveness of the scans in the light of the cea rise is telling the same old story, generally conventional will not treat based cea alone, i have started treatments as soon as the rise came in. hoping for the best, treating for the worst. the treatments are not toxic, they are a little costly but far more affordable than germany

    trying to sort this little rise out in sydney, rather than running back to germany, but fly i will, if i have to.

    I wish i had another marker to go by.

    such a quick large jump, really just over 2 weeks, gies me hope its really die off.

    if it is a recurrence in the same spot, I will line up alps like ren was looking at, I can also check out the latest lung met technique with doctor role.

    I will put down the bloods when i get them, tans, we got to love the 2 weekly cea results.

    I use different labs and adjust for the baseline so the government pays the blood tests.

    so over two monthhs of low cea and clear scans, got to love this crazy illness, keeps me on my toes.

    Its freezing in germany and so warm and pleasant in sydney is whre i would like to stay.