tongue cancer

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tara8
tara8 Member Posts: 1
edited March 2014 in Head and Neck Cancer #1
anybody out there with metastatic tongue cancer? My brother has squamish cell carcenoma, primary site being the tongue. it has now spread to the lungs and other parts of the body after three years of being in remission, he originally had surgery to remove the tumor and then radiation.

Now it's back, and we're looking for anyone who has had the same condition.

Thanks,

Tara

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  • murry
    murry Member Posts: 2
    #2
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    Dear Tara,
    I am 23 and I have tongue cancer also. Mine was just diagnosed in nov. Tell your brother to hang in there and I will be praying for him.
  • Papaw13
    Papaw13 Member Posts: 13
    #3
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    tongue cancer

    I know this is an old thread, but I hope some new people will respond. How are you two doing? My husband had the squamous type of cancer in his tongue too. It was also in his jaw. Then he had a different type of cancer in his tonsils. He had his entire tongue; tonsils; partial jaw bone removed. Also, 2 lymph nodes from his neck. I would really like to hear any positive stories out there... So far, my husband cannot gain any weight or even stabilize. He can no longer eat, swallow, spit, or talk; and he has a PEG tube now. I would like to hear it's worth it and that life will get better again. Cancer sucks!  

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #4
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    Papaw13 said:

    tongue cancer

    I know this is an old thread, but I hope some new people will respond. How are you two doing? My husband had the squamous type of cancer in his tongue too. It was also in his jaw. Then he had a different type of cancer in his tonsils. He had his entire tongue; tonsils; partial jaw bone removed. Also, 2 lymph nodes from his neck. I would really like to hear any positive stories out there... So far, my husband cannot gain any weight or even stabilize. He can no longer eat, swallow, spit, or talk; and he has a PEG tube now. I would like to hear it's worth it and that life will get better again. Cancer sucks!  

    been there on a small scale

     

    Pawpa13,

    Neither tara8 or murry have logged on since August of 2008, but I am sure they would agree with you “cancer sucks”.

    It sounds like you have been given a tough go of it.  There are others who would identify with your condition, if they knew about you.  This older threads are full of information, but lack the attention getting you are after.   A new thread may turn the response in your favor.

    While I was stage IVa, scc, bot,  and went through the typical H&N side effects I haven’t spent much time in your shoes and really feel your pain.

    Good luck,

    Matt

     

  • cookieflower
    cookieflower Member Posts: 4
    #5
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    tongue cancer stage 1

    my boyfriend of 20 yrs age 57 was diagnosed yesterday and we are freaking out... we have to travel to northern nh for the surgery..

     i am so worried because he has alot of other medical problems.. 

  • Chicklette
    Chicklette Member Posts: 225
    #6
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    cookieflower said:

    tongue cancer stage 1

    my boyfriend of 20 yrs age 57 was diagnosed yesterday and we are freaking out... we have to travel to northern nh for the surgery..

     i am so worried because he has alot of other medical problems.. 

    Northern NH

    Hi Cookieflower,

    Are you going to DHMC in Lebanon?  That is a very good hospital.  We live in NH and my husband received his treatment for HNC in Boston.  He is one year cancer free!  I will pray for your boyfriend.

    ~Chicklette~

  • cookieflower
    cookieflower Member Posts: 4
    edited October 2018 #7
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    Chicklette said:

    Northern NH

    Hi Cookieflower,

    Are you going to DHMC in Lebanon?  That is a very good hospital.  We live in NH and my husband received his treatment for HNC in Boston.  He is one year cancer free!  I will pray for your boyfriend.

    ~Chicklette~

    Chiclette thank you

    i lost the forum... so i didnt respond until now.. thanks so much..yes Lebanon... thank you for the prayers.. we are so scared because Randy has a

    bad liver and is a bleeder... i am pushing vit k like nobodys business.. we live in gilford... xoxo so glad to hear one yr cancer free!

  • cookieflower
    cookieflower Member Posts: 4
    edited October 2018 #8
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    MY bf has under the tongue cancer...

    I am specifically describing it now... we had to re-schedule the consult because he had a nosebleed today and couldn't go...

    now it puts us back 2 weeks.,.. we go oct 29th.. it's only just beginning and i hope it doesnt get worse.. it's stage 1

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #9
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    welcome

    cookieflower,

    Welcome to the H&N forum, sorry that you are here, but I hope the stars align for you (I hope all works out well).

    This was an old post 5 years ago when I responded, and it is still old today.

    To get maximum traction you may want to start a new post and introduce yourself.

    It sometimes helps, because not everybody looks at these old posts.

    Matt

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