Hubby with tonsil cancer with lymph node involvement

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  • genie123
    genie123 Member Posts: 6
    #42
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    robswife87 said:

    Doing well

    here. Rob has Carbo and Taxol concurrent with 35 rads. He got dehydrated and needed a peg tube for feeding. 

    It was a really rough ride with side effects and he didn't leave the house for over a month. But here we are almost 4 months out of all treatment and doing great.

    He went back to work after labor day and has gotten stronger everyday. He is still tapering off one pain med. Slowly as he is reallys ensitive.

    You will make it through this. There is a light at the end of the tunnel. Be prepared to see him the sickest he has ever been. maybe like the worst flu ever for several months.

    Just make sure he keeps swallowing. Water, Water, Water. Try to get  3000 calories in him, hard as it will be, and he will fight, just fight back he will thank you

    Prayers are with all of you.

    Sandy

    Doing well

    Glad to hear you're doing well.

    Thank you for your advice. I will make sure

    to do the best I can.

     

    genie

     

  • Presslord
    Presslord Member Posts: 3
    edited October 2018 #43
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    Skiffin16 said:

    Did You Say Boat...

    Alright, another fisherman..., I love that..., LOL.... Welcome Pam, to our hole in the internet...

    OK, I'll be good...

    I had a similar Dx as you, back in Jan2009... STGIII SCC Tonsil HPV+ and a lymphnode, both right side. A little more aggressive on treatment.., tonsils out, nine weeks of Cispatin, Taxotere and 5FU, then the seven weeks of concurrent weekly Carboplatin, and 35 aily rads..

    Next month or so will probably be the hardest, thanks to rads...

    But, as you alreay know, t's rough but very doable...

    BTW, check out the SuperThread (first post on the forum), tons of awesome information on there...

    Looking forward to hearing of your success in the coming months..

    Best,

    John

    Newbie

    A question for y'all....I had tonsil cancer with some lymph node involvement.  35 rads and 3 brutal chemos. CT scan was good. PET in 10 days. Is the  CT good enuff to celebrate? Is it predictive?

  • wbcgaruss
    wbcgaruss Member Posts: 2,275 Member
    #44
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    Presslord said:

    Newbie

    A question for y'all....I had tonsil cancer with some lymph node involvement.  35 rads and 3 brutal chemos. CT scan was good. PET in 10 days. Is the  CT good enuff to celebrate? Is it predictive?

    Presslord from what I've read

    on this forum, I believe folks are pretty confidant with a CT scan I think it should show any local area problems around the area of your treated cancer. The PET scan covers your whole body that makes sure that you don't have cancer anywhere else in your body. The PET will cover everything in your body including the CT area again.

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