ROLL CALL - JUNE 2013

2

Comments

  • Hearty Pioneer
    Hearty Pioneer Member Posts: 158
    Alexandra said:

    Here!


    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1+
    Treatment: debulking surgery Sep. 2012; 7 rounds of IV Taxol/Carboplatin, last one Nov. 2012; abdominoplasty Jan. 2013
    Recurrences, if any: not yet
    Current status: NED for 6 months
    Current CA125: 4


    Roll Call

    Name: Hearty Pioneer
    Age: 50
    Location: Pacific Northwest WA state
    Diagnosed: March 7, 2012, 8:30 PM at hospital ER
    Stage: 2C invasive, high grade serous carcinoma, tumor size 20 x20 cm right ovary, right fallopian tube, left fallopian tube and ovary, right pelvic peritoneum
    Genetics: BRCA1+ scheduled for double mastectomy with reconstruction June 25, 2013 (had cancer in right breast 2001)
    Treatment: 1.5 liters of fluid removed from right lung March 2012, optimal debulking surgery March 2012; Cisplatin (IV chemo) and Paclitaxel (IP chemo) 18 weeks, last treatment July 2012. Took homeopatic remedies for chemo detox. September 2012 ended up at hospital for 4 days with peritonitis then 21 days IV antibiotic every 6 hours
    Recurrences, if any: not yet
    Current status: NED since August 2012
    Current CA125: my oncologist does not report my CA 125 score to me unless there is an issue. She thinks this leads to a better quality of life, not worrying about small fluctuations.

  • JoanC
    JoanC Member Posts: 231
    Alexandra said:

    Here!


    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1+
    Treatment: debulking surgery Sep. 2012; 7 rounds of IV Taxol/Carboplatin, last one Nov. 2012; abdominoplasty Jan. 2013
    Recurrences, if any: not yet
    Current status: NED for 6 months
    Current CA125: 4


    Checking In

    Name: Joan

    Age: 70..on 7/21 can't believe I am that old!

    Location: Salem, Oregon

    Diagnosed: April 2, 2008

    Stage: 3C

    Genetics: Not tested...no family history of disease

    Recurrences: None.... NED since end of treatment 10/6/2008

    Current CA125: 6

     

  • Pamela B
    Pamela B Member Posts: 108
    Name: Pamela

     

    Age: 59 (for a few more months!)

     

    Location: Central Florida near Tampa

     

    Diagnosed: Dec 2012

     

    Stage: 3C

     

    Genetics: BRCA1 & 2 Negative

     

    Treatment: Debulking surgery Dec 10, 2012. 4 plus a bit of round 5 IP/IV Taxol & Cysplatian Handled rounds 1-3 like a champ but round 4 got the best of me. Too many side effects that could become permanent if I continued. Slight neuropathy in hands and feet for now. Stopped treatment in May 2013.

     

    Current Status: Having CT and PET scans this week before I get the all clear and considered officially in remission.

     

    CA125: 6 down from 540 after surgery and before chemo started.
  • Pamela B
    Pamela B Member Posts: 108

    Roll Call

    Age: 60  (60?!?  Really?!? How did I get here so fast??)

    Location: Ohio

    Diagnosed: March 2012

    Stage 3 c, high grade. Second, unrelated cancer in uterus, stage 1, discovered in pathology from surgery.

    Genetics: I still haven't had the testing done, although Angelina has me considering.

    Treatment: 3 rounds of taxol/cisplatin to reduce tumors away from bowel before surgery in June, followed by 5 months of IV/IP taxol and carboplatin. Currently half way through a planned year of monthly taxol for maintenance. I also made some big changes to my diet and added some supplements.  Still crave Diet Coke.

    CA 125 was around 300 at diagnosis, shot up to 2000 with first chemo treatments, but was down to less than 5 early this year.  There has been a pesky little rise the last 3 months to 15.  Waiting...waiting...waiting...

    Current status:  No hair, beautiful wig.  Tingling neuropathy in the middle 3 toes on each foot.  In need of a vacation.  I'm positive walking on the beach will help the neuropathy.

    You look fantastic for 60! I

    You look fantastic for 60! I hope I look even half as good when I get there. It is only a few months so I don't think I have much of a chance!!!

  • JulieL
    JulieL Member Posts: 141
    Roll Call 2013

    Name:  Julie

    Age:  64

    Lives: Gold Coast, Australia

    Diagnosed: December 2011 with Stage 4 Primary Peritoneal Cancer

    Initial sympton: Collapsed lung

    Treatment:  Pleurodesis on my right lung to prevent further fluid build up (successful), 4 rounds of carbo/taxol, optimal debulking surgery, 3 rounds of carbo/taxol, two months off chemo assuming remission with CA125 down to 16 from 653.  Then rose to 209 and 3 rounds of Doxil (Caelyx) continued rising numbers and bad side effects, 5 rounds of Gemzar boosted with Cycloblastin and numbers still increased so now on Topotecan and have so far had 3 rounds.  Side effects minimal and numbers still rising but last week just a small rise so hoping next month will show a fall!  Ever the optimist!  

  • Tasgirl
    Tasgirl Member Posts: 85
    Alexandra said:

    Here!


    Name: Alexandra
    Age: 45
    Location: Toronto, Canada
    Diagnosed: May 3rd, 2012
    Stage: 3C
    Genetics: BRCA1+
    Treatment: debulking surgery Sep. 2012; 7 rounds of IV Taxol/Carboplatin, last one Nov. 2012; abdominoplasty Jan. 2013
    Recurrences, if any: not yet
    Current status: NED for 6 months
    Current CA125: 4


    Name:JennyAge: 60 (really

    Name:Jenny
    Age: 60 (really only 21)
    Location: Adelaide Australia
    Diagnosed: Septe,ber ? 2008
    Stage: PPC 3
    Genetics: ?
    Treatment: debulking surgery Oct. 2008; 6rounds of IV Taxol/Carboplatin, finished March 2009, Carbo/Gemzar June 2011 now on oral chemo
    Recurrences, Persistant tumour near bowel/pelvis area

    Current CA125: 1316

  • azgrandma
    azgrandma Member Posts: 609 Member
    JulieL said:

    Roll Call 2013

    Name:  Julie

    Age:  64

    Lives: Gold Coast, Australia

    Diagnosed: December 2011 with Stage 4 Primary Peritoneal Cancer

    Initial sympton: Collapsed lung

    Treatment:  Pleurodesis on my right lung to prevent further fluid build up (successful), 4 rounds of carbo/taxol, optimal debulking surgery, 3 rounds of carbo/taxol, two months off chemo assuming remission with CA125 down to 16 from 653.  Then rose to 209 and 3 rounds of Doxil (Caelyx) continued rising numbers and bad side effects, 5 rounds of Gemzar boosted with Cycloblastin and numbers still increased so now on Topotecan and have so far had 3 rounds.  Side effects minimal and numbers still rising but last week just a small rise so hoping next month will show a fall!  Ever the optimist!  

    Roll Call

    Lynda

    62

    Arizona

    Diagnosed Nov 2009 stage 3c

    Surgery in Nov and chemo started in December.Had debulking surgery and stints put in ureder.When i was first diagnosed my ca 125 was over 4500, it is now at 9

    I had to have mu lung and stomach drained twice but once the chemo took effect it took care of the fluid

    I recieved carbo taxol and was only  able to recieve 4 rounds of chemo due to low white count. Was given pt scan in may of 2010 and it has been clear ever since. Praise GOd for healing.

    Just had checkup last week and i am still doing well and still cancer free Praise God

  • Glad to be done
    Glad to be done Member Posts: 569
    azgrandma said:

    Roll Call

    Lynda

    62

    Arizona

    Diagnosed Nov 2009 stage 3c

    Surgery in Nov and chemo started in December.Had debulking surgery and stints put in ureder.When i was first diagnosed my ca 125 was over 4500, it is now at 9

    I had to have mu lung and stomach drained twice but once the chemo took effect it took care of the fluid

    I recieved carbo taxol and was only  able to recieve 4 rounds of chemo due to low white count. Was given pt scan in may of 2010 and it has been clear ever since. Praise GOd for healing.

    Just had checkup last week and i am still doing well and still cancer free Praise God

    Helloooo Fellow Fighters.  

    Helloooo Fellow Fighters.   It's been a while.  I read but have not been posting.   I hope everyone is well.

     



    Name: Eileen
    Age: 46
    Location: Hampton, NH
    Diagnosed: January 20, 2012
    Stage: 3C
    Genetics: BRCA1+
    Treatment: debulk surgery January 11, 2012; 6 rounds of IV Cisplatian/Taxol (intraperotoneal also)

    Last Treatment: June 25, 2012 
    Recurrences, if any: None t
    Current status: NED for just shor of 1 year

    Current CA125: Steady since the end at 13



     

  • 123Miley
    123Miley Member Posts: 94
    I will be an official 6 year survivor on June 10!

    Name:  Robyn

     Age:  47 

    Location:  Texas

    Diagnosed: July 10, 2007

    Stage: 3C


    Genetics: none (oddly my sister had breast cancer – 10 year survivor – and we are both negative for the gene)

    Treatment: debulking surgery ; 10 rounds of IV Carbo/Taxol.  Had to discontinue IP after first round due to complications from scar tissue. 

    First Reoccurrence: September  2011, 6 rounds of Carbo/Taxol

    Second Reoccurrence:  January 2013, currently on monthly Doxil and doing well

    CA125:  Highest prior to surgery was over 800.  Lowest after surgery and treatment was 12.  I hit 190 early this year but after 5 rounds of Doxil I am back down to 102. 

    I know I have had a whole lot easier road than some and tougher road than others. But for all of you who are earlier in this journey than I am, just believe there is a whole lot of life left to live - and not just after cancer but with it as well!  I am living proof!  

  • EnglishGal
    EnglishGal Member Posts: 101
    Roll Call 2013

    Name:  Ann

    Age:  68

    I live in Toronto, Canada

    Was DX'd in May of 2010.  Currently in remission and feeling great.  I had optimal debulking by a gyn-onc and six sessions of carboplatin/taxol.  Certainly, I am concerned for my future, wondering if I will recur (mine was found fairly advanced) but I just get out and have fun and keep busy.

    I joined this board after I was DX'd and posted from time to time, the last while I have lurked.  Due to a busy life I haven't been posting lately but I hope to come back after our summer of travelling.

    You are all a great group of ladies.

     

    Ann

     

  • Lesa Plano
    Lesa Plano Member Posts: 12
    roll call

    I live in Dallas TX,

    Age 58

    UPSC Diagnosed incorrectly 9/2010 and diagnosed correctly at recurrence 12/2012

    Still taking chemo, just finished the 9th round of taxol and number 7.5 carbo. 

    CA125 down from 2276 to 21 as of last week. 

    CT scans to be done 7/11 to see if continued reduction of tumors.  At this time tumors have gone from plural cavity, liver, abdomen and left with one in pelvic floor and one in omentum. 1cm and 3 cm respectively that can be seen. 

    Changed diet lost 45 pounds and still working on losing.  Looking for additional ways to manage this through diet and supplements if anyone has infor to share.

  • Marblelady
    Marblelady Member Posts: 2
    Roll Call 10 Years Come Dec

    Age: 62

    Location: Florida

    Diagnosed: Dec 2003

    Stage: 3A

    Treatment:  Debulking surgery Dec 19, 2003 6 rounds of IV Taxol/Carb

    Current status:  NED

    Current CA125:  6

    Smile

  • BellaandD
    BellaandD Member Posts: 8
    still here

    Yep I was lurking

    Diag stage IV primary peritoneal  May 2012 

    Had hysterectomy and debulking as well as sx on lungs  (talc)

    6 rounds carbo/taxol last was 11/19/2012  ca125 was 0 at one point, stayed  below 10  for awhile, then 13,23, 60 and now 116.  I show on ct  a small spot about 2cm and 2 small areas they are watching.  Feel good other than issues with severe osteoporosis.  Am gardening  and doing  aqua fitness.

    Set to start doxil this Wednesday, anyone have experiences with this.

    I keep positive but get nervous at times.

  • jbeans888
    jbeans888 Member Posts: 313
    BellaandD said:

    still here

    Yep I was lurking

    Diag stage IV primary peritoneal  May 2012 

    Had hysterectomy and debulking as well as sx on lungs  (talc)

    6 rounds carbo/taxol last was 11/19/2012  ca125 was 0 at one point, stayed  below 10  for awhile, then 13,23, 60 and now 116.  I show on ct  a small spot about 2cm and 2 small areas they are watching.  Feel good other than issues with severe osteoporosis.  Am gardening  and doing  aqua fitness.

    Set to start doxil this Wednesday, anyone have experiences with this.

    I keep positive but get nervous at times.

    Name: Joyce
    dx: Feb 28th

    Name: Joyce

    dx: Feb 28th 2011, stage 3c

    Age at dx: 31 yrs old 

    treatment: 6 rounds of carbo/taxol

    in remission 2 years and NED 

    Ca-125 in June was 8

    doing good so far I try to stay active and busy.  

     

  • kimberly sue 63
    kimberly sue 63 Member Posts: 421 Member
    I'm here too!

    I haven't been on the board for a while.

    Dx: March 28th 2012 with epithelial ovarian cancer 3c, both ovaries, right fallopian tube, and omentum involvement

    SX: optimal

    Chemo: chemo dense, weekly chemo for 18 weeks...it took 8 months to get through chemo due to the need to skip treatments when blood counts were low.

    Remission: 9 months now!!!!

    CA125: 5

    BRCA1 positive; deceided not to have prophyalactic mastectomy...I am surveyed by mammogram every 6 months, and Breast MRI on the alternating 6 months.Laughing

  • pattysoo
    pattysoo Member Posts: 170
    Count me in

    Name: Pat

    Diagnosis: May, 2010 Low Grade adenocarcinomal, Stage IIIc

    Treatments: Suboptimal debulking followed by 6 rounds of carbo/taxol. 5 rounds of Avastin added beginning with chemo round#3.

    Femara for mainentance.

    Genetic testing shows KRAS mutation.

    CA125 in mid teens, then steadily rising for the past year. Is now around 300-400. (not sure, haven't received most recent results)

    NED for about 18 months. 

    Just completed screening for the MEK162 clinical trial. I'm praying that I'll be accepted, that I'll receive the experimental drug arm, and that it works for me. I have to drive to Columbus, Ohio from my home in WV for this trial, but it could be so worth it. I should know in a week what my fate is to be. 

    This disease has taught me patience and self-advocacy.

  • leesag
    leesag Member Posts: 621 Member
    Roll Call: Surviving!

    I've been absent from the board for a long time.  Please accept my apologies!

    48 years old

    Diagnosed Stage 3c January 2010

    Debulking/Chemo

    Ned July 2010

    Diagnosed Brain Mets May 2011 upped to Stage 4

    Craniotomy/ Whole Brain Radiation/ Gamma Knife

    Ned August 2010

    Living Strong today/ still NED 

    On a personal note,  I lost my Grandfather in 2011 and my father in 2012.  In May 2013, my husband informed me that after 15 years of marriage (and me supporting him through his  drug addiction for four years and subsequent his terminatin and unemployment for a year) that   "due to my lack of availability for HIS anxiety" he wants a divorce.  

    I'm just hanging on, trusting that God has a plan for me.  ;)

     

    After all, I'm a SURVIVOR!

  • Havehope2
    Havehope2 Member Posts: 22
    roll call

    Age: 49 (dx at 47)

    Location: NJ, USA

    Diagnosed: Feb 9, 2011
    Stage: 3B
    Genetics: BRCA1+
    Treatment: debulking surgery, 7 nodes removed ( all clear) Feb 2011 ; 6 x IP/IV Cisplatin/Taxol 

    Recurrences: 3/8/2013 after 22  Months NED; chemo 6 x carbo/gemzar (Day 1,8,28)

    Current status: chemo
    Current CA125 is 5 

    Other: Diagnosed with Breast Cancer Oct 31, 2008 ( age 44). stage 2A, BXM, chemo 4 x F.A.C. + 12 wkly Taxol. NED since May 2009. 

  • 2timothy1 7
    2timothy1 7 Member Posts: 345
    leesag said:

    Roll Call: Surviving!

    I've been absent from the board for a long time.  Please accept my apologies!

    48 years old

    Diagnosed Stage 3c January 2010

    Debulking/Chemo

    Ned July 2010

    Diagnosed Brain Mets May 2011 upped to Stage 4

    Craniotomy/ Whole Brain Radiation/ Gamma Knife

    Ned August 2010

    Living Strong today/ still NED 

    On a personal note,  I lost my Grandfather in 2011 and my father in 2012.  In May 2013, my husband informed me that after 15 years of marriage (and me supporting him through his  drug addiction for four years and subsequent his terminatin and unemployment for a year) that   "due to my lack of availability for HIS anxiety" he wants a divorce.  

    I'm just hanging on, trusting that God has a plan for me.  ;)

     

    After all, I'm a SURVIVOR!

    Leesag

    I'm so sorry for all your personal losses! Broke my heart to read your post. Bible says in the world you will have trouble, but take heart, for i have overcome the world.  It is so true, we all will have trouble! You've sure had your share.  I know God has a plan for us all no matter how confusing the road is! Hang in there sister:).

  • Hen
    Hen Member Posts: 14
    leesag said:

    Roll Call: Surviving!

    I've been absent from the board for a long time.  Please accept my apologies!

    48 years old

    Diagnosed Stage 3c January 2010

    Debulking/Chemo

    Ned July 2010

    Diagnosed Brain Mets May 2011 upped to Stage 4

    Craniotomy/ Whole Brain Radiation/ Gamma Knife

    Ned August 2010

    Living Strong today/ still NED 

    On a personal note,  I lost my Grandfather in 2011 and my father in 2012.  In May 2013, my husband informed me that after 15 years of marriage (and me supporting him through his  drug addiction for four years and subsequent his terminatin and unemployment for a year) that   "due to my lack of availability for HIS anxiety" he wants a divorce.  

    I'm just hanging on, trusting that God has a plan for me.  ;)

     

    After all, I'm a SURVIVOR!

    Your faith will sustain you

    Every day your soul is strengthened.  God has wonderful plans for you.  Trust Him.  You ARE a survivor!!