CA 125continues to rise

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Comments

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    Ro10 said:

    Thank you for all the support, kind words and prayers

    I appreciate all  the words of encouragement.  My doctors both prefer the CAT scan for comparison of what has happened previously.  I have never have had a PET scan or a CT/PET.  My allergies that I mentioned are drug allergies.  The pollen does not bother me too much.  

    The reason I wanted the CAT scan in July is because we have a deposit down for a trip to Australia and New Zealand in October.  It is a 25 day trip.  We have until August 1 st to cancel or pay the final deposit.  That is why I hope I get a good CAT scan.  I am believing that the CA 125 is still a good marker foor me and the cancer is growing slowly.  I believe the Aromasin is slowing the growth.

    We had 13 inches of rain in a week.  We got rain in the basement for the first time in 44 years.  We have been cleaning up water for more than a week.  Time for major clean out.  The gardens have loved all the rain.  Now the gardens want some warmer weather.  I am happy to have the energy to work in the gardens and enjoy the flowers.  

    I hold everyone close to my heart and hope you are all having a good weekend.  In peace and caring.

    Wishing you the best and still praying for you.

    This is really good news for you and I am glad that you still consider it good news.  Keep on doing what you are doing and I pray that it remains in check.  Hopefully you will get to go on your trip.  That is my dream bucket list vacation spot. Especially the New Zealand part, this is based on the movie Lord of the Rings, such beautiful scenery in the movie.

     I am still doing OK.  I go back in July still doing every 3 months.  Last time I asked about moving to every 6 but she said not yet as it has not been 2 years yet.  She said before she would consider it I would have to have another round of full workups and CT scan.  I just had that done in Jan and got the all clear.  So maybe in Jan 14, I can have the full workup again and then go to every 6 months.  Wait and see.  Praying that you get some sunshine and time in your garden. trish

     

  • Fayard
    Fayard Member Posts: 438 Member
    I am happy you are still

    I am happy you are still strong and full of life...keep it that way!

  • LizGrrr
    LizGrrr Member Posts: 127 Member
    Ro you are one of the strongest people I know

    You consistently show us and the world what fighting is all about.  Everyone has a different approach to their treatment, and yours has such a strong sense of resolve and no-nonsense let's-get-on-with-this.  I hope you know you are a role model (a Ro model?).

     

    With admiration

    Liz in Dallas

  • Lesa Plano
    Lesa Plano Member Posts: 12
    CA125 Continues to rise

    Ro Please know that when I am in the midst of the wormy thoughts (I call them that because they just creep in and roll around and do no good) I remember you and the others here who give me hope of what tomorrow will be.  If we are strong and fight for our lives then we can still be here for each other and our families.  I believe positive thinking will help us all.  Because of you Ro, I don't lose hope for myself.  My CA125 is down from 2276 to 21!!  My last chemo did not go well but I know there will be another answer for me and with the knowledge you share with us I now know I can have the carbo again in the future, just not right now.  Each of us is different but the same, looking for hope and tomorrow and happy to be here to talk about it today.  God watch over us all and give us strength and a cure!!

  • txtrisha55
    txtrisha55 Member Posts: 693 Member

    Keeping things in perspective

    We all know I don't know what the heck I'm talking about, but it does seem that, for you at least, this number may not mean all that much.  Good grief, it was a huge numbre 2 times and it's no where near that level.    I'm sure you're uneasy about the increase and the recent loss of MaryAnn has got to add to that.  I wish you luck on your scan and hope that the Aromosin is in fact keeping the beast in it's place. 

    Sending hugs and prayers,

    Suzanne

    Double Whammy - Love the new picture and hair

    I had to back to your profile to look at past pictures to make sure who you were.  I recognized the name but not the face.  Amazing what a new hairdo will do for you.  It makes you look younger and very pretty, not that you were not before but it is very flattering to your face.  Love the color, too. trish

  • Teresa56
    Teresa56 Member Posts: 10
    Good wishes coming your way!

    Wishing you good results on your scan.Your in my prayers.Thanks for being such a helpful,kind person.

  • Randumgrly
    Randumgrly Member Posts: 3

    CA125 Continues to rise

    Ro Please know that when I am in the midst of the wormy thoughts (I call them that because they just creep in and roll around and do no good) I remember you and the others here who give me hope of what tomorrow will be.  If we are strong and fight for our lives then we can still be here for each other and our families.  I believe positive thinking will help us all.  Because of you Ro, I don't lose hope for myself.  My CA125 is down from 2276 to 21!!  My last chemo did not go well but I know there will be another answer for me and with the knowledge you share with us I now know I can have the carbo again in the future, just not right now.  Each of us is different but the same, looking for hope and tomorrow and happy to be here to talk about it today.  God watch over us all and give us strength and a cure!!

    Hello Lesa,
    I am just curious

    Hello Lesa,

    I am just curious and was reading all these posts. My mother has uterine cancer and her ca-125 is now at a 12. it went as low as a 10. I thought the doctor would stop chemo and then we would just keep a close eye. instead he said that she will keep doing chemo every week at low dose. which is what we have been doing for awhile. i thought a "12" was a good thing, but it seems bc it doesn't continue to get lower he might not think it is a good thing. I don't like to ask the Dr. too many questions in front of my my mother, just in case his response is not good. Anyway, i was wondering now that you are at a 21, if you don't mind sharing with me, what your Dr. is planning for you. My mother gets Evastin one week, and taxol for the next two, and then Repeat, all at low doses.

  • Randumgrly
    Randumgrly Member Posts: 3

    CA125 Continues to rise

    Ro Please know that when I am in the midst of the wormy thoughts (I call them that because they just creep in and roll around and do no good) I remember you and the others here who give me hope of what tomorrow will be.  If we are strong and fight for our lives then we can still be here for each other and our families.  I believe positive thinking will help us all.  Because of you Ro, I don't lose hope for myself.  My CA125 is down from 2276 to 21!!  My last chemo did not go well but I know there will be another answer for me and with the knowledge you share with us I now know I can have the carbo again in the future, just not right now.  Each of us is different but the same, looking for hope and tomorrow and happy to be here to talk about it today.  God watch over us all and give us strength and a cure!!

    Hello Lesa,
    I am just curious

    Hello Lesa,

    I am just curious and was reading all these posts. My mother has uterine cancer and her ca-125 is now at a 12. it went as low as a 10. I thought the doctor would stop chemo and then we would just keep a close eye. instead he said that she will keep doing chemo every week at low dose. which is what we have been doing for awhile. i thought a "12" was a good thing, but it seems bc it doesn't continue to get lower he might not think it is a good thing. I don't like to ask the Dr. too many questions in front of my my mother, just in case his response is not good. Anyway, i was wondering now that you are at a 21, if you don't mind sharing with me, what your Dr. is planning for you. My mother gets Evastin one week, and taxol for the next two, and then Repeat, all at low doses.

  • RoseyR
    RoseyR Member Posts: 471 Member
    Ro, you are STRONG!

    Ro, 

     

    Sorry I've been away from the boards for a few months, but checking in today, want to encourage you to be optimistic.

    I think you are consitutionally stronger than our dear Linda and Mary Ann--so even if you were all diagnosed at about the same time and at the same stage, that doesn't mean that your "expiration dates" will be similar.

    I think your fighting spirit and great outlook will keep you around a long long time, dear.

    Just sorry to hear that your CA125 has recently risen: another bump in the road that I am sure you'll transcend!

    Stay well and upbeat,

     

    Love,

    Rosey

     

  • fuzzytrouble
    fuzzytrouble Member Posts: 212
    Hello

    I am so happy to see you still on here. After so many of our sisters passed in the last couple of years i just got depressed with this site. Someone posted Linda P's picture on Facebook and it was like she was telling me to go back and support everyone. Here I am and I see lots of names I remember. I was on with you, Linda, Marge, Deena, and so many others. I still have cancer in my lungs and on my vaginal cuff I am on a pill now for anti estogen and it seems to to doing a great job. I even have had a new grandson born since 2007, I was one of the lucky ones to still be here. I won't go away again. 

  • Ro10
    Ro10 Member Posts: 1,561 Member

    Hello

    I am so happy to see you still on here. After so many of our sisters passed in the last couple of years i just got depressed with this site. Someone posted Linda P's picture on Facebook and it was like she was telling me to go back and support everyone. Here I am and I see lots of names I remember. I was on with you, Linda, Marge, Deena, and so many others. I still have cancer in my lungs and on my vaginal cuff I am on a pill now for anti estogen and it seems to to doing a great job. I even have had a new grandson born since 2007, I was one of the lucky ones to still be here. I won't go away again. 

    Sharon it is so good to see your posts

    I have thought about you often and wondered how you were doing.  I know you had such a hard time with Doxil.  Glad you are off of it now.  Sorry to hear you still have the cancer in your lungs and vaginal cuff.  What pill are you on.  I am on Aromasin and it has slowed down the rise of my marker.

    Congratulations on your new grandson.  I love the picture of your grandkids.  Do they still live so far away from you?  Hope you get to enjoy them often.  

    I am glad you are back to give support to others.  The new people nred to know that they can live for years with this diagnosis, and if one chemo does not work, there are others to try.  So happy to hear from you.  In peace and caring.