Still NO Treatment Plan

coco2008
coco2008 Member Posts: 418

It's been over 2 months since I was diagnosed.  2 lumpectomies followed by both incisions being reopened to get good margins.  Today was to be the day I finally got a tx plan.  I've been a wreck with all the waiting.  Saw onco this morning and was told the Oncotype test results were not in yet.  So it will be another week before I find out if it's to be just radiation or chemo and radiation.

If the results are not in next week I want to tell him to go ahead with chemo, take them both off, or just shoot me in the head.  I would rather have bad news than no news.  Bad news or really bad (there is no good news) I could begin making peace with it.  No news I'm still waiting for the unknown. There is no peace.

Comments

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    sorry to hear you are doing

    sorry to hear you are doing the waiting game that is the pits for sure. TO us it is very very urgent but to the Drs and medical professionals-the wait is not the same.

     

    I HOPE you hear something soon-if not if you insurance would cover 2nd opinion I would do that.

     

    Denise

  • coco2008
    coco2008 Member Posts: 418

    sorry to hear you are doing

    sorry to hear you are doing the waiting game that is the pits for sure. TO us it is very very urgent but to the Drs and medical professionals-the wait is not the same.

     

    I HOPE you hear something soon-if not if you insurance would cover 2nd opinion I would do that.

     

    Denise

    It's not the doctors fault.

    It's not the doctors fault. It's the lab in CA that does tthe Oncotype test.  You are right, to us it is urgent, to the labs it's same stuff, different day.

  • Angie2U
    Angie2U Member Posts: 2,991
    coco2008 said:

    It's not the doctors fault.

    It's not the doctors fault. It's the lab in CA that does tthe Oncotype test.  You are right, to us it is urgent, to the labs it's same stuff, different day.

    Sorry coco.  I know how hard

    Sorry coco.  I know how hard it is to wait.  Next week you will know and then you can hopefully feel better.  We're here waiting with you.

    Hugs, Angie

  • coco2008
    coco2008 Member Posts: 418
    Angie2U said:

    Sorry coco.  I know how hard

    Sorry coco.  I know how hard it is to wait.  Next week you will know and then you can hopefully feel better.  We're here waiting with you.

    Hugs, Angie

    There have been so many ups

    There have been so many ups and down. Tentative tx plan, only to have possibilities for tx change.  Different test results due, and not coming in for (to me) a terribly long time. It's been over a month since my last surgery.

    I can't get my hopes up again. I have an appt next Tues, but expect nothing. I'm losing hope and confidence with everyone.  All I do is cry and worry.

  • kmenurse
    kmenurse Member Posts: 217
    Hello, I understand, the

    Hello, I understand, the waiting was awful for me me also.  But, I also know that these tests go to a specialty lab so it does take longer to get the results then it would for more routine tests. Hang in there it will all come together for you.   Kathy

  • lmoneill2012
    lmoneill2012 Member Posts: 9
    I hope you find your "peace"

    I hope you find your "peace" soon. I know that each moment feels like a lifetime.