Hair loss

13»

Comments

  • eihtak
    eihtak Member Posts: 1,473 Member
    LaCh said:

    thanks sandysp

    I just never think "I had cancer," when and if someone asks me to describe myself. It's not a part of who I am, it's a condition that I had. I equate it with the flu or a cold but with higher stakes.  I give it as much weight in self-identification as I do to my asthma.  It's not that I want to forget about it particularly, it's just that it takes more effort to get it to stick in my head than it does to let it slip out of my head.  It's more like, "Oh, yeah, that's right, I had cancer once...  hey, you want to go to the park?" As for helping others, I find that my views, my delivery and my words aren't always helpful, often create strife or discontent, and I'm not sure if I can add anything constructive to the dialogue anyway. In any case, there are plenty of other people here who can and do; one more (me) isn't necessary.  That said, I think that after a year (Sloan Kettering's criteria) I may see about volunteering there in a one-on-one capacity, not so much to help others, since I think there are plenty of people out there who "help" but because it might be a gratifying experience for me.

    LaCh.....

    I'm one of those people that has spent most of my life sitting on the fence and admiring both sides. I would NEVER win a debate. I think volunteering is a wonderful experience, weather you do it for yourself or for others.....both sides benefit. I love to hear your views, and the way you put your thoughts into words.

    I saw the broadway musical production of the Lion King last weekend. Besides being an amazing technical masterpiece I have always loved the whole reminder of "the circle of life".........................it always gets me thinking about what I may have intentionally or unintentionally passed on or still can.

     

     

     

     

  • Marynb
    Marynb Member Posts: 1,118
    LaCh said:

    thanks sandysp

    I just never think "I had cancer," when and if someone asks me to describe myself. It's not a part of who I am, it's a condition that I had. I equate it with the flu or a cold but with higher stakes.  I give it as much weight in self-identification as I do to my asthma.  It's not that I want to forget about it particularly, it's just that it takes more effort to get it to stick in my head than it does to let it slip out of my head.  It's more like, "Oh, yeah, that's right, I had cancer once...  hey, you want to go to the park?" As for helping others, I find that my views, my delivery and my words aren't always helpful, often create strife or discontent, and I'm not sure if I can add anything constructive to the dialogue anyway. In any case, there are plenty of other people here who can and do; one more (me) isn't necessary.  That said, I think that after a year (Sloan Kettering's criteria) I may see about volunteering there in a one-on-one capacity, not so much to help others, since I think there are plenty of people out there who "help" but because it might be a gratifying experience for me.

    LaCh
    Hi! Glad to hear you are doing so well and I hope you are enjoying this terrific Spring weather!

    I really wish that I could say that cancer is in my past! It must be a great feeling. Maybe someday that will happen for me if thr scientists keep working towards a cure for me!

    How is that book coming?
  • LaCh
    LaCh Member Posts: 557
    eihtak said:

    LaCh.....

    I'm one of those people that has spent most of my life sitting on the fence and admiring both sides. I would NEVER win a debate. I think volunteering is a wonderful experience, weather you do it for yourself or for others.....both sides benefit. I love to hear your views, and the way you put your thoughts into words.

    I saw the broadway musical production of the Lion King last weekend. Besides being an amazing technical masterpiece I have always loved the whole reminder of "the circle of life".........................it always gets me thinking about what I may have intentionally or unintentionally passed on or still can.

     

     

     

     

    eihtak

    Thanks Eihtak,

    Yeah, I've volunteered in the past and have found it very rewarding. With regard to enjoying my views, I thank you, but the truth is that people always like to hear anyone's views, as long as they agree or support their own, but when they don't, they're a little less enjoyable. The problem is compounded in a written  forum which is unavoidably what this is. I've pissed off more than one person, more than one time on this board, although it wasn't and isn't my desire or intention to do so. I seem to have a real knack, so I try to keep my input and opinions to a mimimum.

  • Marynb
    Marynb Member Posts: 1,118
    LaCh said:

    eihtak

    Thanks Eihtak,

    Yeah, I've volunteered in the past and have found it very rewarding. With regard to enjoying my views, I thank you, but the truth is that people always like to hear anyone's views, as long as they agree or support their own, but when they don't, they're a little less enjoyable. The problem is compounded in a written  forum which is unavoidably what this is. I've pissed off more than one person, more than one time on this board, although it wasn't and isn't my desire or intention to do so. I seem to have a real knack, so I try to keep my input and opinions to a mimimum.

    LaCh
    Hi. I just want you to know that it is possible to disagree, without being "pissed off.". I have disagreed with you once in the past, but with no anger whatsoever. I really don't recall anyone expressing anger at you at all.
  • LaCh
    LaCh Member Posts: 557
    Marynb said:

    LaCh
    Hi! Glad to hear you are doing so well and I hope you are enjoying this terrific Spring weather!

    I really wish that I could say that cancer is in my past! It must be a great feeling. Maybe someday that will happen for me if thr scientists keep working towards a cure for me!

    How is that book coming?

    marynb

    oh, yeah, the book. I've put it away. 

  • Marynb
    Marynb Member Posts: 1,118
    LaCh said:

    marynb

    oh, yeah, the book. I've put it away. 

    LaCh
    Well, I hope when the time is right for you, you get back to it, if that is what you want to do. I understand the need to take a break from a project.
  • LaCh
    LaCh Member Posts: 557
    Marynb said:

    LaCh
    Well, I hope when the time is right for you, you get back to it, if that is what you want to do. I understand the need to take a break from a project.

    marynb

    maybe.

  • Lorikat
    Lorikat Member Posts: 681 Member
    LaCh said:

    thanks sandysp

    I just never think "I had cancer," when and if someone asks me to describe myself. It's not a part of who I am, it's a condition that I had. I equate it with the flu or a cold but with higher stakes.  I give it as much weight in self-identification as I do to my asthma.  It's not that I want to forget about it particularly, it's just that it takes more effort to get it to stick in my head than it does to let it slip out of my head.  It's more like, "Oh, yeah, that's right, I had cancer once...  hey, you want to go to the park?" As for helping others, I find that my views, my delivery and my words aren't always helpful, often create strife or discontent, and I'm not sure if I can add anything constructive to the dialogue anyway. In any case, there are plenty of other people here who can and do; one more (me) isn't necessary.  That said, I think that after a year (Sloan Kettering's criteria) I may see about volunteering there in a one-on-one capacity, not so much to help others, since I think there are plenty of people out there who "help" but because it might be a gratifying experience for me.

    LaCh

    You really think that your thoughts are different from everyone?  Causestrife, etc?  How about, they make (or help) people think?  Or help people realize they are not totally different on thought than everyone else...  You see, many people aren't bold enough to post beliefs and or feelings that are aren't main stream.  So thank you for that...

    Me?  I wish I COULD not think of cancer.  It's with me everyday.  I still battle fatigue and bowell upsets.  I still fly to Houston every three months and either I am getting ready to go or resting up after having gone with a few weeks in between.

    NOW that sounds like a pity party to me!!  But it ISNT!  I still do most of what I want to do, just not always WHEN I want to!  I am working at teaching my Grandson to ride a bike...  I can't run as far holding him up as I did his Dad, but run behind him I do!  

    So pls keep sharing....  You would be missed...   Lorie

     

  • LaCh
    LaCh Member Posts: 557
    Lorikat said:

    LaCh

    You really think that your thoughts are different from everyone?  Causestrife, etc?  How about, they make (or help) people think?  Or help people realize they are not totally different on thought than everyone else...  You see, many people aren't bold enough to post beliefs and or feelings that are aren't main stream.  So thank you for that...

    Me?  I wish I COULD not think of cancer.  It's with me everyday.  I still battle fatigue and bowell upsets.  I still fly to Houston every three months and either I am getting ready to go or resting up after having gone with a few weeks in between.

    NOW that sounds like a pity party to me!!  But it ISNT!  I still do most of what I want to do, just not always WHEN I want to!  I am working at teaching my Grandson to ride a bike...  I can't run as far holding him up as I did his Dad, but run behind him I do!  

    So pls keep sharing....  You would be missed...   Lorie

     

    Lorikat

    Thanks Lorikat,

    Those are kind thoughts, kind words.  I think that I sometimes post thought-provoking sentiments and sometimes simply provocative ones, although the latter isn't my intention. I can't say that I don't think about my situation but I can say that I don't worry about it.  My feeling is that no one lives forever and although I hope that my time isn't now, it'll be my time someday and now or later, what's the difference. (It's easier for me than it is for some others to say that since I have no family so the feeling of leaving people behind isn't a factor). Physically, I have bad days and less bad days but I can't say that I've yet had what I'd call a good day, not physically, but I try to ignore it since there's nothing that I can do about it. Digestion is a total disaster, fatigue is a real issue and so forth but I just try to ignore both. What I will say is that at a certain point, it's common to think in terms if the impact one leaves behind, the people one has touched, the better things one leaves behind and I can't say that I can yet name any of those things. So yeah, I'm not quite ready yet, but the reality is, ready or not, when your time's up, it's up.  

  • Lorikat
    Lorikat Member Posts: 681 Member
    LaCh said:

    Lorikat

    Thanks Lorikat,

    Those are kind thoughts, kind words.  I think that I sometimes post thought-provoking sentiments and sometimes simply provocative ones, although the latter isn't my intention. I can't say that I don't think about my situation but I can say that I don't worry about it.  My feeling is that no one lives forever and although I hope that my time isn't now, it'll be my time someday and now or later, what's the difference. (It's easier for me than it is for some others to say that since I have no family so the feeling of leaving people behind isn't a factor). Physically, I have bad days and less bad days but I can't say that I've yet had what I'd call a good day, not physically, but I try to ignore it since there's nothing that I can do about it. Digestion is a total disaster, fatigue is a real issue and so forth but I just try to ignore both. What I will say is that at a certain point, it's common to think in terms if the impact one leaves behind, the people one has touched, the better things one leaves behind and I can't say that I can yet name any of those things. So yeah, I'm not quite ready yet, but the reality is, ready or not, when your time's up, it's up.  

    LaCh..

    Hmmmm... Thought provoking indeed!  You see, I HAVE family..  Husband, brothers, sisters, children and grandchildren..  I love them all sooooooo very much....  I want to see them, love them and help them.  I do not want to be an emotional,physical drain on any of them.  

     

    As far as dying and leaving them, I have done my very best with and for them.  Will they miss me when I'm gone?  For awhile.   But they are strong independent people and as such will do just fine.  Do I WORRY about any of that?  Not really...l just live life to te fullest everyday.  Like you there are almost good days and not so good days.  However this is the only place I share that fact.  My granddaughter who graduates high school this year named me as her "hero without a cape" saying I never lost my enjoyment of life ethin though things were really bad at times.    If I can leave my family with thesethoughts I've lived well....

     

    So you see, we're not so different at all...  I've never seen New York or central park so look through new eyes for me, ok?  In the mean time I will enjoy just how beautiful the mountains are here...  Lorikat

  • LaCh
    LaCh Member Posts: 557
    Lorikat said:

    LaCh..

    Hmmmm... Thought provoking indeed!  You see, I HAVE family..  Husband, brothers, sisters, children and grandchildren..  I love them all sooooooo very much....  I want to see them, love them and help them.  I do not want to be an emotional,physical drain on any of them.  

     

    As far as dying and leaving them, I have done my very best with and for them.  Will they miss me when I'm gone?  For awhile.   But they are strong independent people and as such will do just fine.  Do I WORRY about any of that?  Not really...l just live life to te fullest everyday.  Like you there are almost good days and not so good days.  However this is the only place I share that fact.  My granddaughter who graduates high school this year named me as her "hero without a cape" saying I never lost my enjoyment of life ethin though things were really bad at times.    If I can leave my family with thesethoughts I've lived well....

     

    So you see, we're not so different at all...  I've never seen New York or central park so look through new eyes for me, ok?  In the mean time I will enjoy just how beautiful the mountains are here...  Lorikat

    Lorikat

    Well, I guess there are similarities but I see them as differences. Curious, how reality is defined by the lens through which one views it.  A few people might miss me when I'm gone but not many and not for very long. That's not to say that I don't want to leave things better than I found them. I do.  I'm pretty content with my life, have some regrets but none with the choices that I've made.  You just keep your goals in sight and put one foot ahead of the other and carry on toward those goals. My attention span regarding my lingering medical issues is very short; the whole thing is getting "old," which is why I'm just ignoring them and calling them my new normal.  In addition, my opinion of medicine and doctors was about as low as it could be before the cancer and nothing has happened to change that, so the liklihood of pursuing answers from a system I abhor, from doctors I neither trust or respect is pretty slim. I bear them no ill will, I simply don't want to interract with them or be involved with them. I know people with phsical challenges that make mine look like a day at the park, and the grace and equanimity with which they face those challenges aren't lost on me, but act as models, as goals that I strive to attain in whatever way that I can.  I have an idealized image of the person that I want to be and strive for that person. So I have some things that I want to accomplish, I have passion for many things, things that I care deeply about and things that I love doing, so I'll do them as long as I can, as often as I can. After that, like I said...  when your time's up, your time's up and one hopes to face that with grace as well, whether it comes tomorrow or thirty years from now. I was in Central Park last Saturday and it was, in fact, as beautiful and enchanted as it always is this time of year. But if you live near the mountains, trust me, you're not missing out on anything down here in NYC.  It's not an easy place to live and takes a huge toll. 

  • GordK
    GordK Member Posts: 1
    During my treatment I kept on

    During my treatment I kept on using quantum xmetics and my hair is very good now. Worked like a charm for me.