Update first IDC now SCC

13

Comments

  • Patti1967
    Patti1967 Member Posts: 186

    Not the news I wanted you to hear

    You've really been hit with so much at once, Patti.  I, too, had to deal with 2 primary cancers at the same time and well remember the fear, dread, and will to beat them.  My heart and prayers go out for you as you continue with doing what you have to do to get through this nightmare.  I'm sending all the good mojo I can muster up for you.

    Hugs,Suzanne

    I am home from my surgery on

    I am home from my surgery on my lower lip, chin and neck dissection.  i look like I have been kicked in the mouth  several times and my neck on both sides looks like I've been stabbed several times.  I can't talk or eat and in a lot of pain, but I have managed the art of putting the straw n the back of my mouth and using my tongue to swallow liquids.

    They are giving me a week to heal before they do the lung biopsy.  Thanks to all for your support, it has given me strength!

    Hugs,

    Patti

  • DianeBC
    DianeBC Member Posts: 3,881 Member
    Patti1967 said:

    I am home from my surgery on

    I am home from my surgery on my lower lip, chin and neck dissection.  i look like I have been kicked in the mouth  several times and my neck on both sides looks like I've been stabbed several times.  I can't talk or eat and in a lot of pain, but I have managed the art of putting the straw n the back of my mouth and using my tongue to swallow liquids.

    They are giving me a week to heal before they do the lung biopsy.  Thanks to all for your support, it has given me strength!

    Hugs,

    Patti

    Glad you're home now Patti. 

    Glad you're home now Patti.  I can't imagine what you have been through.  Take it easy and keep ahead of the pain.

    Thinking of you,

    Diane

  • jnl
    jnl Member Posts: 3,869 Member
    DianeBC said:

    Glad you're home now Patti. 

    Glad you're home now Patti.  I can't imagine what you have been through.  Take it easy and keep ahead of the pain.

    Thinking of you,

    Diane

    Lots of hugs and good

    Lots of hugs and good thoughts for you!

    Leeza

  • Patti1967
    Patti1967 Member Posts: 186
    jnl said:

    Lots of hugs and good

    Lots of hugs and good thoughts for you!

    Leeza

    Thanks all, it really means a

    Thanks all, it really means a lot to me knowing you are all there!

    Hugs to you all,

    Patti

  • Angie2U
    Angie2U Member Posts: 2,991
    Patti1967 said:

    Thanks all, it really means a

    Thanks all, it really means a lot to me knowing you are all there!

    Hugs to you all,

    Patti

    I saw you posted and wanted

    I saw you posted and wanted to know how are you feeling today?  In a lot of pain still?  I imagine you are.  Please take it easy if you can, take your pain pills, if you have some, and just relax.

    Praying for you Patti,

    Angie

  • Patti1967
    Patti1967 Member Posts: 186
    Angie2U said:

    I saw you posted and wanted

    I saw you posted and wanted to know how are you feeling today?  In a lot of pain still?  I imagine you are.  Please take it easy if you can, take your pain pills, if you have some, and just relax.

    Praying for you Patti,

    Angie

    Thanks Angie, yep in some

    Thanks Angie, yep in some pain but have a pretty strong bottle of liquid pain med.  I'm not as bad as yesterday so thats a plus:)

    Hugs!

    Patti

  • DebbyM
    DebbyM Member Posts: 3,289 Member
    Patti1967 said:

    Thanks Angie, yep in some

    Thanks Angie, yep in some pain but have a pretty strong bottle of liquid pain med.  I'm not as bad as yesterday so thats a plus:)

    Hugs!

    Patti

    Good news that you're feeling

    Good news that you're feeling better.  Just so sorry Patti for this.  You've got all of us pink sisters in your corner!

    Hugs,

    Debby

  • Ritzy
    Ritzy Member Posts: 4,381 Member
    DebbyM said:

    Good news that you're feeling

    Good news that you're feeling better.  Just so sorry Patti for this.  You've got all of us pink sisters in your corner!

    Hugs,

    Debby

    Take that liquid pain

    Take that liquid pain medicine, so, you aren't hurting.  Praying, Praying and more Praying for you!

    Sue :)

  • Kylez
    Kylez Member Posts: 3,761 Member
    Ritzy said:

    Take that liquid pain

    Take that liquid pain medicine, so, you aren't hurting.  Praying, Praying and more Praying for you!

    Sue :)

    How are you feeling today

    How are you feeling today Patti?  I pray better.

    Hugs, Kylez

  • Patti1967
    Patti1967 Member Posts: 186
    Kylez said:

    How are you feeling today

    How are you feeling today Patti?  I pray better.

    Hugs, Kylez

    Yeah I'm feeling better,

    Yeah I'm feeling better, still can't eat or talk but the swelling is definitely going down and I haven't had to use any pain meds today:)  Thank you for asking!:)

    Patti

  • Alexis F
    Alexis F Member Posts: 3,598
    Patti1967 said:

    Yeah I'm feeling better,

    Yeah I'm feeling better, still can't eat or talk but the swelling is definitely going down and I haven't had to use any pain meds today:)  Thank you for asking!:)

    Patti

    Happy to read that you're

    Happy to read that you're feeling better.  Not happy that you can't eat or talk.  Are you just sipping liquids through a straw then Patti?  Will that be enough to sustain you?  When do you see the doctor again?

    Lots of cyber hugs,

    Lex

  • Patti1967
    Patti1967 Member Posts: 186
    Alexis F said:

    Happy to read that you're

    Happy to read that you're feeling better.  Not happy that you can't eat or talk.  Are you just sipping liquids through a straw then Patti?  Will that be enough to sustain you?  When do you see the doctor again?

    Lots of cyber hugs,

    Lex

    Yep just a liquid diet,

    Yep just a liquid diet, ensure, smoothies etc.  I go back to see my surgeon today and for a PET.  I probably won't get my stitches out for another week.  Thanks Lex:)

    Hugs!

    Patti

  • Josie21
    Josie21 Member Posts: 382 Member
    Patti1967 said:

    Yeah I'm feeling better,

    Yeah I'm feeling better, still can't eat or talk but the swelling is definitely going down and I haven't had to use any pain meds today:)  Thank you for asking!:)

    Patti

    Hi Patti

    Hi Patti,

    I haven't been on the site much because I am in NY for my 6 month check-up.  I drove here from Florida last week with my husband and two crazy West Highland Terriers.  OMG, never again!!  I just wanted to see how you were doing.  I hope you continue to feel better each day.  You are in my thoughts and prayers.

    Many, many hugs to you,

    Ginny

  • Alexis F
    Alexis F Member Posts: 3,598
    Patti1967 said:

    Yep just a liquid diet,

    Yep just a liquid diet, ensure, smoothies etc.  I go back to see my surgeon today and for a PET.  I probably won't get my stitches out for another week.  Thanks Lex:)

    Hugs!

    Patti

    Good luck today with your

    Good luck today with your appointment with your surgeon and your PET.  Post an update for us Patti.

    Prayers and hugs,

    Lex

  • Patti1967
    Patti1967 Member Posts: 186
    Josie21 said:

    Hi Patti

    Hi Patti,

    I haven't been on the site much because I am in NY for my 6 month check-up.  I drove here from Florida last week with my husband and two crazy West Highland Terriers.  OMG, never again!!  I just wanted to see how you were doing.  I hope you continue to feel better each day.  You are in my thoughts and prayers.

    Many, many hugs to you,

    Ginny

    Ugh well not so great news

    Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

    They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

    So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

    Patti 

  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    Patti1967 said:

    Ugh well not so great news

    Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

    They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

    So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

    Patti 

    Hi Patti-
    Thank you so much

    Hi Patti-

    Thank you so much for keeping us updated.  I check ofter to learn about your progress.  You will soon have all the information and a full treatment plan in place.  I'll continue to send lots of good mojo your way.  So sorry you've been hit with so much at once. 

    Suzanne

  • Josie21
    Josie21 Member Posts: 382 Member
    Patti1967 said:

    Ugh well not so great news

    Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

    They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

    So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

    Patti 

    Hi Patti

    Hi Patti,

    I am still hoping with all my heart that the lung nodule is not cancer.  I think you have been through quite enough now!! No matter what, you will survive whatever life throws at you.  You are clearly an amazing, positive person who will fight this.  I am sorry you have to deal with so much.  It is just not fair.  I hope you get to eat as much as humanly possible when those stitches come out.  I think you should try and gain those 6 pounds back in one day!! You deserve it.

    As for me, I moved to Florida 6 months after being diagnosed, but I loved and trusted my oncologist so much that I travel back and forth every 6 months to see her.  I see her tomorrow.  

    Please keep us posted.  You are in my thoughts and prayers.

    Hugs,

    Ginny

  • Patti1967
    Patti1967 Member Posts: 186
    Josie21 said:

    Hi Patti

    Hi Patti,

    I am still hoping with all my heart that the lung nodule is not cancer.  I think you have been through quite enough now!! No matter what, you will survive whatever life throws at you.  You are clearly an amazing, positive person who will fight this.  I am sorry you have to deal with so much.  It is just not fair.  I hope you get to eat as much as humanly possible when those stitches come out.  I think you should try and gain those 6 pounds back in one day!! You deserve it.

    As for me, I moved to Florida 6 months after being diagnosed, but I loved and trusted my oncologist so much that I travel back and forth every 6 months to see her.  I see her tomorrow.  

    Please keep us posted.  You are in my thoughts and prayers.

    Hugs,

    Ginny

    Thanks Suzanne:) Oh I see

    Thanks Suzanne:) Oh I see Ginny, thats quite a drive:)  Let us know how it goes tomorrow, thanks!

    Big Hugs to all,

    Patti

  • Angie2U
    Angie2U Member Posts: 2,991
    Patti1967 said:

    Ugh well not so great news

    Ugh well not so great news but not awful either, my surgeon informed me today that my margins were not clear on two places on my lip.  One close to surface and one inside my lip.  She will be talking with the rest of my team tonight at the tumor board meeting and is hoping my rad onc thinks he can kill the rest with the 36 radiation treatments I will be having.  As far as my PET, my husband who wrote down the info when I was still loopy from my surgery last week, got the date wrong lol I have the PET next Tuesday, on the 30th.  Nice way to spend my B-day lol but hey at least I am here and celebrating another B-day:)  They are holding off on giving me my complete treatment plan, told me to prepare for chemo again as well due to them being as sure as they can be before my lung biopsy that the noduels are cancer.  I won't have the lung biopsy until after I have the PET.

    They seem to think that back in Aug when I was diagnosed with bilateral IDC, with a fully metastic node, that it was already in my lungs all be it microscopicly (sp?) that's why it didn't show on my CT/PET I had right after my bilat mastectomy in Sept.  

    So for now I don't have to go back until Monday and at least then I can get these stiches out and EAT lol.   I have been making a list of everything I am going to eat.  On the bright side I have lost 6 pounds this past week and am only now 10 pounds away from my ideal weight!  There always has to be a bright side, right?  Ginny you have to go from FL to NY?  Oh my goodness!  I hope your check up went well and everything is fine:)  Thanks for you thoughts everyone!

    Patti 

    So sorry Patti.  One good

    So sorry Patti.  One good thing is it sounds like you have a great team of doctors that are helping you.  Continuing to pray for you and keep posting updates for us.

    Huge hugs,

    Angie

  • Pink Rose
    Pink Rose Member Posts: 493

    Hi Patti-
    Thank you so much

    Hi Patti-

    Thank you so much for keeping us updated.  I check ofter to learn about your progress.  You will soon have all the information and a full treatment plan in place.  I'll continue to send lots of good mojo your way.  So sorry you've been hit with so much at once. 

    Suzanne

    I am sending lots of prayers

    I am sending lots of prayers to you!

    Hugs, Rose